2026-08-15T19:19:38-07:00 2025-06-30 990 2024-07-01 820765105 JOSEPH ROBERT SHAW FOUNDATION INC JOSE 2022371769 5117 52nd Street NW Washington DC 20016 Janet Sloan Treasurer 2022371769 2025-08-22 1 2024 2025-03-06 01:10:19Z X Joey's Foundation Janet Sloan 5117 52nd Street NW Washington DC 20016 273264 0 X www.joeys.foundation X 2017 DC Providing financial support to individuals, organizations or other entities engaged in research, education, and innovation related to children with brain injuries, their treatment, rehabilitation, recovery and activities of daily living. 7 7 0 7 0 0 240140 250693 0 0 14941 14499 6442 8072 261523 273264 114360 5000 0 0 0 0 0 0 8038 16520 30381 130880 35381 130643 237883 1263697 1581243 105 1863 1263592 1579380 X Providing financial support to individuals, organizations or other entities engaged in research, education, and innovation related to children with brain injuries, their treatment, rehabilitation, recovery and activities of daily living. 1 0 0 0 In FY 2023 Joey's Foundation provided $100,000 as the supporting organization and financial sponsor of the inaugural year of the BFit Power-based Exercise Program in Northern Virginia. The complimentary program included two full sessions: the first in the Fall of 2024 and a second session in the Spring of 2025. The program was so successful that Joey's Foundation is now preparing to move forward with a second year of two full sessions at the cost of $100,000. By word of mouth the reputation of the program has spread throughout the disability community, and parents are eager to have their children enrolled. The BFit program encourages physical activity and participation for children with cerebral palsy (CP), the most common motor disability in childhood, affecting an estimated 500,000 to 700,00 children and adults in the United States. CP is a collection of non-progressive conditions affecting the brain. Impairments are caused by abnormal development of the nervous system characterized by spasticity, muscle weakness, and poor motor control. This vulnerable population is often excluded from participating in community-based physical activity. The BFit program's supportive social environment reduces barriers to participation and focuses on increasing not only physical but also social functioning. The 12-week program consists of two 60-90 minute activity sessions each week. Outcome measures for each participant are based on standardized assessments done at the start of the program with goals set by the participants and their families. BFit enables adolescents with physical disabilities to pursue their desire to participate in recreational sports and increase physical activity. With positive reinforcement and increased self-esteem, participants learn that they are capable of participating in many different types of exercises, utilizing a variety of equipment and learning new motor skills. The program implementation requires exercise space, equipment, program coordination, volunteer trainers from local physical therapy schools, and medical oversight. Participants demonstrate improved functional outcomes, mental health and socialization. An additional benefit of the program is the hands-on experience for the physical therapy students who volunteer to work with these children. Under the oversight of licensed physical therapists, these students are responsible for administering the exercise programs, documentation, set up, break down (including cleaning), nightly feedback, and outcome measures. The volunteer students meet with the MedStar Health professional staff before and after each session to discuss each child's needs, develop appropriate exercises based on individual needs, and review outcomes and progress. The volunteer students benefit from the hands-on learning experience with the children and from the professional mentoring of the MedStar National Rehabilitation Network physical and occupational therapists. 0 0 In FY 2023 Joey's Foundation committed to providing a total of $25,000 in travel funds for patients to get to and from their research sessions using the PediaCORE system at Kennedy Krieger Institute. The success of the clinical trials requires gathering data from a large number of participants. Removing the barrier of transportation would allow a greater number of patients to enroll and participate in free physical therapy. Current treatment options for children with movement disorders can be costly and fail to fully engage young participants. PediaCORE is a system developed by the staff at Kennedy Krieger Institute based on discussions with engineers and pediatric physical therapists. It is an affordable, touch-interactive device with customizable games to engage young children in physical therapy goal-driven exercises. Kennedy Krieger is currently studying how the dosage of training with the PediaCORE system compares to traditional physical therapy. This is an important step towards optimizing dose to produce meaningful change in movement control. A significant number of visits are necessary for patients to complete the study. Funds from Joey's Foundation will ensure 30 research participants have transportation for 12 study sessions. This support will have a positive impact on both the patients and families who will benefit from PediaCORE as well as the research team. Clinical trials hold promise for patients to have better, more fulfilling lives through the discovery of new therapies. The knowledge gleaned could impact hundreds of thousands of individuals with developmental brain disorders. 5000 0 Joey's Foundation is committed to support Kennedy Krieger Institute and its life-changing work. The Institute treats children, adolescents and young adults with neurological injuries and conditions that impact how they think, move, speak, learn and interface with the world. Kennedy Krieger has over 80 programs, including a hospital and schools that serve nearly 30,000 patients and students each year. Their scientists lead over 700 active research studies, investigating new treatments, interventions and innovation. Their collaborative model creates a unique, interdisciplinary approach to whole-child care. 0 0 Joey's Corner provides books for children with and without disabilities. The organization is engaged in the creation and distribution of multisensory adaptive books for children with motor skill impairment. Adapted text and symbol-supported versions of reading material will bring books to life in a visual and physical way. Props like puppets or toys enhance a story and increase understanding. Renovated, laminated copies of image or characters make the reading material interactive. Finally, the use of speech-generating devices aligned to a text will increase interaction and understanding of the story. Multisensory books are creative, fun and enhance comprehension. 0 0 0 5000 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 7 7 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 X X Janet Sloan 2022371769 5117 52nd Street NW Washington DC 20016 X Robert L Sloan Board Chair/President & CEO 15 X X 0 0 0 Janet Sloan Board Member/Secretary/Treasurer 20 X X 0 0 0 Matthew Ammerman Board Member 0.25 X 0 0 0 Sherri Bohinc Board Member/Vice Chair 0.25 X X 0 0 0 Nicholas McConnell Board Member 0.25 X 0 0 0 Christopher Shaw Board Member 0.25 X 0 0 0 Susan Shaw Board Member 0.25 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 250693 0 250693 0 14499 0 0 14499 0 0 0 0 0 0 0 0 0 0 0 0 0 Miscellaneous 900099 8072 8072 0 0 0 0 0 0 8072 273264 8072 0 14499 5000 5000 3250 3250 3100 3100 4456 4456 5880 5880 1830 1830 496 496 873 873 Merchant services 1855 0 1855 DC registration 603 0 603 Fundraising 8038 0 0 8038 35381 5000 22343 8038 2076 31790 473334 648516 788287 900937 0 1263697 1581243 105 1863 105 1863 X 1263592 1579380 0 0 1263592 1579380 1263697 1581243 237883 77905 0 0 0 0 X 0 0 0 X 224856 398088 208925 240140 250693 1322702 224856 398088 208925 240140 250693 1322702 216394 1106308 627 5502 12566 14941 14499 48135 5412 1021 6442 8072 20947 1391784 0.79488 0.75674 X Schedule A, Part II, Line 10 Explanation for other income, Miscellaneous: 2021 amount, $5412; 2022 amount, $1021; 2023 amount, $6442; 2024 amount, $8072. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990, Header, Line B missed a decimal point in an entry Form 990, Part III, Line 2 The Kennedy Krieger Institute in Baltimore, Md has entered into a major capital campaign with three major objectives: first, to build a new inpatient hospital to care for children with movement disorders/brain injury; second, to establish a nation leading research program on neurological disorders; and third, to increase and enhance educational opportunities for children suffering from intellectual and disability disorders. The Kennedy Krieger Institute has requested financial support from the Joseph Robert Shaw Foundation, Inc. as part of their capital campaign. The Joseph Robert Shaw Foundation will make additional contributions of $15,000. per year for each of the next five years to the Kennedy Krieger Institute in support of their capital campaign. Form 990, Part VI, Section A, Line 2 Sherri Bohinc, family relationship; Christopher Shaw, family relationship; Susan Shaw, family relationship; Janet Sloan, family relationship; Robert Sloan, family relationship Form 990, Part VI, Section B, Line 11b The Form 990 was reviewed by the Board of Directors. Form 990, Part VI, Section C, Line 19 The Foundation makes its governing documents and financial statements available to the public upon request. This is not a late filing. It is an amended filing.