2026-07-01T11:25:53-04:00 2025-12-31 880374623 HOULDSWORTH RUSSO & COMPANY PC 6001 S DECATUR BLVD STE P LAS VEGAS NV 891183074 990 2025-01-01 473169795 THE FAMILIESCN2A FOUNDATION INC FAMI 3012528070 PO BOX 4260 GETTYSBURG PA 17325 MICHAEL VASEY TREASURER 3105919145 2026-05-01 JESSICA P SAYLES P01530213 7022699992 2026-07-01 2025 2025-03-06 01:10:19Z JENNIFER BURKE PO BOX 4260 GETTYSBURG PA 17325 2344483 false X WWW.SCN2A.ORG X 2015 GA THE FAMILIESCN2A IS DEDICATED TO FINDING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR SCN2A RELATED AUTISM AND EPILEPSY DISORDERS. THE FAMILIESCN2A FOUNDATION RAISES PUBLIC AWARENESS, PROVIDES PATIENT ADVOCACY, AND SUPPORTS CLINICAL RESEARCH, GENETIC RESEARCH, AND EARLY DETECTION. 11 11 7 15 0 2981308 2076981 78728 113331 22254 50659 0 3082290 2240971 778922 1135458 0 238128 388444 0 118860 600668 708196 1617718 2232098 1464572 8873 3609937 3695761 68606 109382 3541331 3586379 THE FAMILIESCN2A'S MISSION IS TO IMPROVE LIVES OF THOSE AFFECTED BY SCN2A RELATED DISORDERS THROUGH RESEARCH, PUBLIC AWARENESS, FAMILY SUPPORT AND PATIENT ADVOCACY. false false 1568517 1135458 PROVIDING ADVANCED RESEARCH TOWARDS EARLY DETECTION, TREATMENTS, AND A CURE FOR SCN2A DISORDERS. 460265 113331 THE SUMMER SEMINAR IS A FAMILY-FOCUSED GATHERING, WHERE FAMILIES COME TOGETHER AND LEARN ABOUT SCN2A-RELATED TOPICS AND TREATMENTS, AS WELL AS SHARE EXPERIENCES. 2028782 true true false false false false false false false false false false false true false false true false false false true true false false true false false true false false false false false true false false false false true false false false false false false false false true 10 0 7 true false false false false false true true false false false false false false X 11 11 true false false false false false false true true false false true true true true false true true false false CA MA PA X X FORTISS LLC 3234154917 888 BICYCLE CASINO DR BELL GARDENS CA 90201 LEAH SCHUST MYERS EXECUTIVE DI 40.00 X 124778 0 0 JEFFREY COTTRELL CHIEF SCIENT 40.00 X 25000 0 0 JENNIFER BURKE CHAIR 5.00 X X 0 0 0 MERY OMAN VICE CHAIR 2.00 X X 0 0 0 MICHELLE LEWIS SECRETARY 2.00 X X 0 0 0 MICHAEL VASEY TREASURER 5.00 X X 0 0 0 CARLA FORBES BOARD MEMBER 2.00 X 0 0 0 EMILY PARK TRUSTEE 2.00 X 0 0 0 MAURA BRAGG TRUSTEE 2.00 X 0 0 0 WILL HUTSON TRUSTEE 2.00 X 0 0 0 ROGER PREMO TRUSTEE 2.00 X 0 0 0 GEOFF WHITMAN TRUSTEE 2.00 X 0 0 0 ELOISE AUSTIN TRUSTEE 2.00 X 0 0 0 149778 1 false false false 202348 1874633 677374 2076981 SUMMER CONFERENCE 611710 113331 113331 113331 50659 50659 103512 202348 103512 2240971 113331 50659 908866 908866 226592 226592 149778 112334 7489 29955 208221 156166 10411 41644 30445 22834 1522 6089 24400 12200 12200 73207 72296 182 729 36054 18026 9014 9014 58587 13017 14141 31429 29356 14678 14678 460265 460265 2467 2467 MERCHANDISE 8610 4574 4036 STAFF DEVELOPMENT 5486 2743 2743 ASSISTANCE PROGRAMS 4191 4191 FEES AND PERMITS 2938 2938 2635 2635 2232098 2028782 84456 118860 1017710 266873 3533 425791 50000 11400 2275 54802 12550 149277 2342230 2475282 222514 271461 3609937 3695761 68606 109382 68606 109382 X 1401823 1411809 2139508 2174570 3541331 3586379 3609937 3695761 8873 36175 X false true X true false X 808341 1414320 1807341 2981308 2076981 9088291 808341 1414320 1807341 2981308 2076981 9088291 5284305 3803986 22364 22254 50659 95277 9183568 348512 0.41420 0.35870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED REFUNDABLE ADVANCES 271461 271461 2300849 36175 23703 59878 2240971 2240971 2255801 23703 23703 2232098 2232098 true EUROPE RESEARCH GRANTS RESEARCH GRANTS 226592 226592 226592 SCN2A RESEARCH 225000 WIRE TRANSFER false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 226,592 0 SCHEDULE F, PAGE 5, PART V PART I, LINE 2: A WRITTEN SCIENTIFIC PROGRESS REPORT REGARDING THE PROJECT MUST BE SUBMITTED TO THE FOUNDATION SIX (6) MONTHS FROM THE EFFECTIVE DATE FOR THE RELEASE OF FUNDING AS DESCRIBED IN THE GRANT AGREEMENT. A FINAL SCIENTIFIC PROGRESS REPORT AND FINANCIAL REPORT DETAILING ALL EXPENDITURES FOR THE LIFE OF THE GRANT WILL BE DUE NO LATER THAN SIXTY (60) DAYS FOLLOWING THE EXPIRATION OR TERMINATION OF THE GRANT AS DESCRIBED IN THE FOUNDATION'S POLICY STATEMENT ON RESEARCH SUPPORT. IN ADDITION, ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO THE FOUNDATION TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. PART I, LINE 3: THE ACCRUAL ACCOUNTING METHOD IS USED TO ACCOUNT FOR EXPENDITURES. ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. ONCE EXPENSES ARE SUBSTANTIATED, A REFUNDABLE ADVANCE IS DETERMINED IF ADVANCES MADE DURING THE CALENDAR YEAR EXCEED EXPENSES INCLUDED IN THE ANNUAL FINANCIAL REPORT. GALA 231773 150750 81023 81023 GOLF TOURNAMENT 74087 51598 22489 22489 305860 202348 103512 103512 103512 true UNIVERSITY OF IOWA 201 S CLINTON ST IOWA CITY IA 52242 426004813 501C3 261205 SCN2A RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO PO BOX 748872 LOS ANGELES CA 90074 946036493 501C3 68165 SCN2A RESEARCH PURDUE UNIVERSITY 23510 NETWORK PL CHICAGO IL 60673 356002041 501C3 455695 SCN2A RESEARCH THE REGENTS OF UC 1111 FRANKLIN ST 11TH FLOOR OAKLAND CA 94607 943067788 501C3 56156 SCN2A RESEARCH UNIVERSITY OF COLORADO DENVER PO BOX 910238 DENVER CO 80291 846000555 501C3 39341 SCN2A RESEARCH UPLIFTING ATHLETES 8 ATKINSON DRIVE UNIT 574 DOYLESTOWN PA 18901 341986485 501C3 10000 SCN2A RESEARCH 6 SCHEDULE I, PAGE 1, PART I, LINE 2 A WRITTEN SCIENTIFIC PROGRESS REPORT REGARDING THE PROJECT MUST BE SUBMITTED TO THE FOUNDAITON SIX (6) MONTHS FROM THE EFFECTIVE DATE FOR THE RELEASE OF FUNDING DESCRIBED IN THE GRANT AGREEMENT. A FINAL SCIENTIFIC PROGRESS REPORT AND FINANCIAL REPORT DETAILING ALL EXPENDITURES FOR THE LIFE OF THE GRANT WILL BE DUE NO LATER THAN SIXTY (60) DAYS FOLLOWING THE EXPIRATION OR TERMINATION OF THE GRANT AS DESCRIBED IN THE FOUNDATION'S POLICY STATEMENT ON RESEARCH SUPPORT. IN ADDITION, ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO THE FOUNDATION TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. SCHEDULE I, PAGE 4, PART IV THE ACCRUAL ACCOUNTING METHOD IS USED TO ACCOUNT FOR EXPENDITURES. ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. ONCE EXPENSES ARE SUBSTANTIATED, A REFUNDABLE ADVANCE IS DETERMINED IF ADVANCES MADE DURING THE CALENDAR YEAR EXCEED EXPENSES INCLUDED IN THE ANNUAL FINANCIAL REPORT. PLEDGE RECEIVABLE BOARD MEMBER PLEDGE RECEIVABLE X 54802 false true true 54802 X 3 628477 FAIR MARKET VALUE X EVENT SUPPLIES 1 48897 FAIR MARKET VALUE false true true SCHEDULE M, PAGE 1, PART I, LINE 32B THE ORGANIZATION USES ITS BROKERAGE FIRM(S) TO SELL STOCK DONATIONS. FORM 990, PAGE 6, PART VI, LINE 2 EMILY PARK MICHAEL VASEY DIRECTOR TREASURER BUSINESS RELATIONSHIP FORM 990, PAGE 6, PART VI, LINE 11B THE RETURN IS FURNISHED TO THE FOUNDATION'S TREASURER FOR REVIEW AND SUBMITTED TO THE EXECUTIVE BOARD (EXECUTIVE DIRECTOR, CHAIR, VICE CHAIR, TREASURER, AND SECRETARY) FOR APPROVAL BEFORE THE RETURN IS SUBMITTED FOR FILING. FORM 990, PAGE 6, PART VI, LINE 12C ANY INTERESTS THAT COULD GIVE RISE TO CONFLICT MUST BE DISCLOSED TO THE BOARD. HOWEVER, NO CONTRACT OR TRANSACTION BETWEEN THE FOUNDATION AND ONE OR MORE OF ITS MEMBERS, DIRECTORS, OR OFFICERS OR ANY OTHER FOUNDATION PARTNERSHIP, ASSOCIATION, OR OTHER ORGANIZATION IN WHICH ONE OR MORE OF THIS FOUNDATION'S DIRECTORS OR OFFICERS ARE DIRECTORS OR OFFICERS, OR HAVE A FINANCIAL INTEREST, SHALL BE VOID OR VOIDABLE SOLELY FOR SUCH REASON, OR SOLELY BECAUSE THE MEMBER, DIRECTOR, OR OFFICERS IS PRESENT OR PARTICIPATES IN THE MEETING OF THE BOARD OF DIRECTORS WHICH AUTHORIZES THE CONTRACT OR TRANSACTION, OR SOLELY BECAUSE HIS OR THEIR VOTES ARE COUNTED FOR SUCH PURPOSE IF: A.THE MATERIAL FACTS AS TO THE RELATIONSHIP OR INTEREST AND AS TO THE CONTRACT OR TRANSACTION ARE DISCLOSED OR ARE KNOWN TO THE BOARD OF DIRECTORS AND THE BOARD OF DIRECTORS IN GOOD FAITH AUTHORIZES THE CONTRACT OR TRANSACTION BY THE AFFIRMATIVE VOTES OF A MAJORITY OF THE DISINTERESTED DIRECTORS EVEN THOUGH THE DISINTERESTED DIRECTORS ARE LESS THAN A QUORUM; B. THE MATERIAL FACTS AS TO HIS RELATIONSHIP OR INTEREST AND AS TO THE CONTRACT OR TRANSACTION ARE DISCLOSED OR ARE KNOWN TO THE BOARD OF DIRECTORS, AND THE CONTRACT OR TRANSACTION IS SPECIFICALLY APPROVED IN GOOD FAITH BY A VOTE OF SUCH DIRECTORS; OR C.THE CONTRACT OR TRANSACTION IS FAIR AS TO THE FOUNDATION AS OF THE TIME IT IS AUTHORIZED, APPROVED OR RATIFIED BY THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 15A THE COMPENSATION COMMITTEE SHALL CONSIST OF THE CHAIR AND VICE CHAIR. THEY WILL REVIEW THE SALARY AND OTHER BENEFITS OF THE EXECUTIVE DIRECTOR. AS PART OF THIS REVIEW, THE COMPENSATION COMMITTEE WILL MAKE A RECOMMENDATION TO THE BOARD OF DIRECTORS REGARDING THE EXECUTIVE DIRECTOR'S SALARY AND OTHER BENEFITS TO BE PAID FOR THE UPCOMING YEAR. THIS SHALL BE DONE ON AN ANNUAL BASIS. THE VOTE OF A MAJORITY OF THE DIRECTORS ENTITLED TO VOTE AT A MEETING AT WHICH THERE IS A QUORUM SHALL DETERMINE THE SALARY AND OTHER BENEFITS OF THE EXECUTIVE DIRECTOR AND THIS SHALL BE DONE ON AN ANNUAL BASIS, NO LATER THAN SIXTY (60) DAYS AFTER THE ANNIVERSARY DATE OF THE EXECUTIVE DIRECTOR'S DATE OF HIRE. FORM 990, PAGE 6, PART VI, LINE 19 THE FOUNDATION MADE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS OWN WEBSITE AND GUIDESTAR UPON REQUEST.