2026-03-19T16:38:11-04:00 2025-12-31 383146599 COLE NEWTON & DURAN CPAS 33762 SCHOOLCRAFT RD LIVONIA MI 48150 990 2025-01-01 770552005 KENNEDY'S DISEASE ASSOCIATION INC KENN 8555327762 1445 WOODMONT LN NW UNIT 1805 ATLANTA GA 30318 TERRY THOMPSON PRESIDENT 8555327762 2026-03-19 true GRETCHEN I STUART CPA P01345047 7344272030 2026-03-19 2025 2025-03-06 01:10:19Z TERRY THOMPSON 1445 WOODMONT LN NW UNIT 1805 ATLANTA GA 30318 764062 false X WWW.KENNEDYSDISEASE.ORG X 2000 CA TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY). 11 11 0 162 0 686608 740506 0 22680 23556 -30280 -18388 679008 745674 578162 991831 0 0 57871 71746 91633 49387 669795 1099089 9213 -353415 879080 532282 328952 335569 550128 196713 TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY). false false 931000 931000 TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY). 8209 TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS. 63896 60831 TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY). 1003105 true true false false false false false false false false true false false false false true true false false false true true true true true false false true true false false false false false false false false false false false false false false false false false false true 1 0 false 0 false false false false false false false false false false false false false false X 11 11 true false false false false false false true true false false true true true true true true false false false CA CO MD NC NV SC WI X X MARGY YELTON 5133785201 427 S BROADWAY ST LEBANON OH 45036 X TERRY THOMPSON PRESIDENT 20.00 X X 0 0 0 JAMESON PARKER VICE PRESIDE 5.00 X X 0 0 0 JOHN LAUBER TREASURER 20.00 X X 0 0 0 KATHY THOMPSON SECRETARY 15.00 X X 0 0 0 NICK HOLDGATE BOARD MEMBER 3.00 X 0 0 0 RON MOFFETT BOARD MEMBER 8.00 X 0 0 0 LEW MYERS BOARD MEMBER 12.00 X 0 0 0 STEVEN RITTMASTER BOARD MEMBER 2.00 X 0 0 0 PETE SARIANO BOARD MEMBER 3.00 X 0 0 0 JOAN SORENSEN BOARD MEMBER 4.00 X 0 0 0 DALE TRAXLER BOARD MEMBER 2.00 X 0 0 0 RANDY SOO HOO FORMER BOARD 6.00 X 0 0 0 SIMON HILL FORMER BOARD 6.00 X 0 0 0 false false false 261892 478614 740506 23556 23556 261892 18388 -18388 745674 23556 731981 731981 7500 7500 252350 252350 14680 14680 57871 57871 245 245 488 488 3616 3616 12630 5952 6678 867 867 1562 1562 BANK CHARGES 7329 132 7197 CENTERS FOR EXCELLENCE 3065 3065 LICENSE & FEES 2736 2736 PROGRAM EVENT EXPENSES 1769 1769 400 400 1099089 1003105 24238 71746 354435 128615 8660 42840 3295 3295 524645 352167 879080 532282 1065 6269 327887 300000 29300 328952 335569 X 527128 160553 23000 36160 550128 196713 879080 532282 X -353415 X false true X true X 294128 324292 441338 686608 740506 2486872 294128 324292 441338 686608 740506 2486872 411507 2075365 13199 22680 23556 59435 2546307 0.81500 0.88280 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2945 2945 350 350 X 763817 18388 18388 745429 245 245 745674 1117232 18388 18388 1098844 245 245 1099089 SCHEDULE D, PAGE 3, PART X THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE U.S. INTERNAL REVENUE CODE. HOWEVER, INCOME FROM ACTIVITIES NOT DIRECTLY RELATED TO THE ASSOCIATIONS TAX-EXEMPT PURPOSE IS SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. THE ASSOCIATION HAD NO UNRELATED BUSINESS INCOME FOR THE YEAR ENDED DECEMBER 31, 2025. THE INTERNAL REVENUE SERVICE HAS CLASSIFIED THE ASSOCIATION AS AN ASSOCIATION THAT IS NOT A PRIVATE FOUNDATION. THE ASSOCIATION IS NO LONGER SUBJECT TO U.S. FEDERAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR THE 2022 FISCAL FILING YEAR AND PRIOR YEARS, GENERALLY THREE YEARS AFTER THEY WERE FILED. MANAGEMENT HAS EVALUATED FASB ASC 740, INCOME TAXES, AND HAS CONCLUDED IT HAS NO UNCERTAIN TAX POSITIONS. SCHEDULE D, PAGE 4, PART XI, LINE 2D SPECIAL EVENT EXPENSES 18,388 SCHEDULE D, PAGE 4, PART XII, LINE 2D SPECIAL EVENT EXPENSES 18,388 true EUROPE PROGRAM SERVICES EDUCATION RESEARCH 252350 252350 252350 RESEARCH 100000 WIRE TRANSFER RESEARCH 100000 WIRE TRANSFER RESEARCH 44350 WIRE TRANSFER TRAVEL GRANTS EUROPE 4 8000 WIRE TRANSFER false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 252,350 0 false 100 STEP CHALLE 97842 97842 TEXAS GOLF SCRA 62510 62510 18388 5 99535 99535 259887 259887 18388 18388 -18388 true CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVE CLEVELAND OH 44106 341018992 501C3 77000 RESEARCH BANBURY CENTER 1 BUNGTOWN ROAD COLD SPRING HARBOR NY 11724 112013303 501C3 40331 EDUCATION UNIVERSITY OF IRVINE 17801 CARTWRIGHT RD STE 203 IRVINE CA 92614 844635288 501C3 100000 RESEARCH YALE UNIVERSITY PO BOX 208239 NEW HAVEN CT 06520 060646973 501C3 177000 RESEARCH WAYNE STATE UNIVERSITY 5700 CASS AVE AAB SUITE 4602 DETROIT MI 48202 386028429 501C3 18089 RESEARCH PHILADELPHIA COLLEGE OF OSTEOPATHIC MEDICINE 4170 CITY AVENUE PHILADELPHIA PA 19131 231355135 501C3 77000 RESEARCH NORTHWESTERN UNIVERSITY 2145 SHERIDAN ROAD ROOM L291 EVANSTON IL 60208 362167817 501C3 100000 RESEARCH UNIVERSITY OF MICHIGAN 19000 HUBBARD DR DEARBORN MI 48123 386006309 501C3 100000 RESEARCH THOMAS JEFFERSON UNIVERSITY 1101 MARKET STREET SUITE 2004 PHILADELPHIA PA 19107 231352651 501C3 37561 RESEARCH 10 TRAVEL GRANTS 4 7500 SCHEDULE I, PAGE 1, PART I, LINE 2 GRANT PROPOSALS ARE SUBMITED AND REVIEWED BY AN INDEPENDENT SCIENTIFIC REVIEW BOARD. THEIR RECOMMENDATIONS ARE CONSIDERED BY THE ORGANIZTION AND FINAL GRANTS ISSUED BY THE BOARD. THE RECIPIENT OF THE GRANT MUST ADHERE TO THE GRANT REQUIREMENTS, SUBMIT A FINAL ACCOUNTING AT THE END OF THE GRANT TERM, AND RETURN ANY EXCESS FUNDS TO THE ORGANIZATION. FORM 990, PAGE 6, PART VI, LINE 2 TERRY THOMPSON KATHY THOMPSON PRESIDENT SECRETARY HUSBAND AND WIFE FORM 990, PAGE 6, PART VI, LINE 11B A DRAFT FORM 990 IS CIRCULATED TO THE ORGANIZATION'S OFFICERS AND OTHER DIRECTORS FOR APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C A CONFLICT OF INTEREST WILL EXIST WHEN THE INTEREST OR CONCERNS OF A BOARD MEMBER, EMPLOYEE, INDEPENDENT CONTRACTOR, VOLUNTEER, OR ANY MEMBER OF HIS/HER IMMEDIATE FAMILY, PARTY, GROUP, OR ORGANIZTION IN WHICH THE PROFESSIONAL ARE ACTIVELY INVOLVED WITH, MAY HAVE, OR BE SEEN TO HAVE COMPETING INTERESTS WITH THE KENNEDY'S DISEASE ASSOCIATION (KDA). A CONFLICT OF INTEREST MAY ARISE WHEN: 1. THERE IS AN EXISTING RELATIONSHIP WHICH COULD IMPAIR THE EXERCISE OF THE PERSON'S INDEPENDENT JUDGEMENT ON BEHLAF OF THE KDA, OR 2. THE PERSON OR FAMILY MEMBER RECEIVED A FINANCIAL BENEFIT DIRECTLY OR FROM INFORMATION LEARNED DURING A BUSINESS RELATIONSHIP WITH THE KDA. ALL PERSONS INVOLVED WITH THE KDA'S BUSINESS MATTERS NOT ONLY SHOULD AVOID THESE SITUATIONS BUT ALSO AVOID THOSE SITUATIONS WHICH CREATE THE APPEARANCE OF A CONFLICT OF INTEREST. TO AVOID THE FACT OR APPEARANCE OF SUCH CONFLICT, ALL PARTIES MUST MAKE FULL DISCLOSURES OF INDIVIDUAL INTERESTS THAT MAY APPEAR TO CONFLICT WITH INTERESTS OF THE KDA. BOARD MEMBERS WILL REVIEW ANY DICLOSURES MADE. IF A TRUSTEE OR DIRECTOR IS INVOLVED WITH THIS CONFLICT OF INTEREST, THEY WILL NOT BE ABLE TO VOTE OR BE COUNTED AS PART OF THE QUORUM IN ANY DECISION ON THIS MATTER. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, THE INTERESTED PERSON SHALL LEAVE THE BOARD MEETING AND THE REMAINING BOARD WILL DECIDE IF A CONFLICT OF INTEREST EXISTS. FORM 990, PAGE 6, PART VI, LINE 19 ANNUAL REPORT IS MAILED OUT TO SUBSCRIBERS AS PART OF ONE OF THE QUARTERLY NEWSLETTERS AND IT IS ALSO POSTED ON THE ORGANIZATION'S WEBSITE. ORGANIZATION'S ARTICLES OF INCORPORATION ARE ALSO POSTED ON THE WEBSITE. FURTHER, REQUESTS FOR INFORMATION CAN BE MADE THROUGH THE ORGANIZATION'S TOLL FREE NUMBER OR THE ORGANIZATION'S EMAIL ADDRESS, AND INFORMATION WILL BE PROVIDED THEREIN. FORM 990, PART XI, LINE 9 SPECIAL EVENT EXPENSES 18,388 SPECIAL EVENT EXPENSES -18,388