2026-03-27T12:28:37-06:00 2025-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2025-01-01 261577154 Usher Syndrome Society Inc % Nancy Corderman USHE 7818380204 1544 Central Avenue Needham MA 02492 NANCY CORDERMAN President 7818380204 2026-03-27 true JOHN MULLINS P01429307 2027706371 2026-03-27 2025 2025-03-06 01:10:19Z Nancy Corderman 1544 Central Avenue Needham MA 02492 1368892 false X ushersyndromesociety.org X 2008 MA To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure. 8 8 0 50 0 0 1518667 1136281 0 17979 44024 3734 114284 1540380 1294589 267603 767343 0 0 0 75996 183155 242452 450758 1009795 1089622 284794 2032699 2313420 6058 1985 2026641 2311435 To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure. false false 892446 767343 In 2025, the Usher Syndrome Society continued its award-winning Every Second Counts campaign with a new commercial bringing total impressions to more than 500 million. The campaign returned to Times Square for a second time, featuring members of the Usher syndrome community and generating national coverage, including an ABC News segment highlighting the powerful story of a newly diagnosed family. Our awareness efforts also included a first-of-its-kind immersive exhibit in New York City attended by more than 200 guests, an event featuring a singer-songwriter sharing his experience of vision loss, and a traveling exhibit displayed in five building lobbies across Boston. Together, these initiatives helped generate the funding needed to award $763,000 for research, representing a 188% increase in research support from the prior year. The cutting edge PUSH research program funded by the Usher syndrome Society, reached major scientific milestones, with new data supporting a promising platform that may lead to treatments for certain forms of Usher syndrome. 892446 true true false false false false false false false false false false false false false true true false false false false false false false true false false true false false false false false false false false false false true false false false false false false false false true 10 0 true 0 false false false false false false false false false false X 8 8 true false false false false false false true true false false true false false false false false false MA X The Organization 7818380204 1544 Central Avenue Needham MA 02492 X Nancy Corderman President 50.00 0.00 X X 0 0 0 David Corderman Vice President 5.00 0.00 X X 0 0 0 Alan Pinto Director 5.00 0.00 X 0 0 0 Rebecca Alexander Director 5.00 0.00 X 0 0 0 Tori Banu Director 1.00 0.00 X 0 0 0 Peggy Borst Director 10.00 0.00 X 0 0 0 Hannah Corderman Director 5.00 0.00 X 0 0 0 Sophia Boccard Director 1.00 0.00 X 0 0 0 0 0 0 0 false false false 1136281 120700 1136281 44024 44024 188069 74303 113766 113766 Miscellaneous 900099 518 518 518 1294589 518 0 157790 621603 621603 145740 145740 2341 2341 12136 12136 66399 5749 60650 3928 2353 1575 16730 16520 210 29 29 2151 2151 Film Fees 125177 125074 103 Bank & Merchant Fees 13561 13561 1009795 892446 41353 75996 732401 517438 752860 1343594 547438 452388 2032699 2313420 6058 1985 6058 1985 X 1143078 1505385 883563 806050 2026641 2311435 2032699 2313420 284794 0 X false true X true false X 339499 471195 489403 1518667 1136281 3955045 339499 471195 489403 1518667 1136281 3955045 0 0 0 0 0 0 3955045 17979 44024 62003 17979 44024 62003 3734 518 4252 339499 471195 489403 1540380 1180823 4021300 0.98350 0.99310 0.02000 0.01000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1294589 1294589 1294589 1009795 1009795 1009795 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) The Society is exempt from Federal income tax, on its exempt purpose activities, under Section 501(c)(3) of the Internal Revenue Code (IRC). The Society is subject to income tax on its unrelated business income under the IRC. The Society had no unrelated business income for the tax year.For the tax year-end, Society has documented its consideration of FASB ASC 740-10, Income Taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements. Fundraiser 188069 188069 74303 188069 188069 74303 74303 113766 true Childrens Hospital Boston 300 Longwood Avenue Boston MA 02115 042774441 501C3 500000 Research Usher Syndrome University of Oregon 6231 University of Oregon Eugene OR 974036231 464727800 501C3 100000 Research Usher Syndrome Usher Syndrome Coalition 9 Cornerstone Square STE 400-224 Westford MA 01886 264560897 501C3 15000 Research Usher Syndrome 3 X 120700 FMV false true false Officer directors etc family relationship Part VI line 2 Nancy Corderman has a family relationship with David Corderman and Hannah Corderman. Form 990 governing body review Part VI line 11 No review was or will be conducted. Form 990 availability to public Part VI line 18 Available upon request Governing documents etc available to public Part VI line 19 No documents available to the public.