2026-03-16T09:57:27-05:00 2025-09-30 363321958 DESMOND & AHERN LTD 10827 S WESTERN AVENUE CHICAGO IL 606433206 990 2024-10-01 371483975 LuMind IDSC Foundation LUMI 7818251302 1155 15th Street Washington DC 20005 Hampus Hillerstrom President 7818251302 2026-03-16 1 1 Mel Padillo P03172019 7737794720 2026-03-11 2024 2025-03-06 01:10:19Z Hampus Hillerstrom 1155 15th Street Washington DC 20005 2859948 0 X lumindidsc.org X 2003 CA TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 11 11 20 50 0 0 4044988 2705416 0 0 12607 33441 -18268 20862 4039327 2759719 0 764779 0 0 1998637 1637928 0 0 418094 1993069 883665 3991706 3286372 47621 -526653 848403 209267 174292 61809 674111 147458 TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 0 0 2521015 764779 0 THE LIFE-DSR NATURAL HISTORY STUDY, RESEARCH CONSENSUS PROJECTS AND RESEARCH POLICY PROJECTS SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENT TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. COMMUNITY PROGRAMS FOR TREATMENT ACCESS EQUITY, RESEARCH AWARENESS AND PARTICIPATION, AND FOR EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION, AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COST RELATED TO IDSCS MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). 2521015 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 13 0 1 20 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 11 11 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X X Hampus Hillerstrom 7818251300 1155 15th Street Washington DC 20005 Anthony Providenti Board Chair 1.00 X X 0 0 0 Tony Hung Board Vice Chair 1.00 X X 0 0 0 Hector Guinness Treasurer 1.00 X X 0 0 0 Chris Senna Secretary 1.00 X X 0 0 0 Beverly Paperiello Director 1.00 X 0 0 0 Claudia Moreira Director 1.00 X 0 0 0 Das Narayandas Director 1.00 X 0 0 0 Jeff Strobel Director 1.00 X 0 0 0 Karen Gaffney Director 1.00 X 0 0 0 Lasandra Brill Director 1.00 X 0 0 0 Ludivine van der Heyden Director 1.00 X 0 0 0 Hampus Hillerstrom President and CEO 40.00 X 296406 0 17355 Katherine O'Neill VP Marketing & Community E 40.00 X 108466 0 2846 Lois Kelly VP of Clinical Operations 40.00 X 235746 0 38 Michelle Petronio Chief Development Officer 40.00 X 172068 0 12030 812686 0 32269 4 0 1 0 0 280312 2425104 2705416 33441 33441 121091 280312 100229 20862 20862 2759719 0 0 54303 764779 764779 313761 230860 20826 62075 1024348 753698 67992 202658 3975 2925 264 786 10939 8049 726 2164 284905 209628 18911 56366 24123 1 22789 1333 107343 6 101404 5933 42807 11 31641 11155 87912 75572 12340 16614 15176 360 1078 88032 64772 5844 17416 27465 20208 1823 5434 42165 31861 10304 54940 54940 140272 103210 9310 27752 15060 15060 Sites expenses and rese 175733 175733 Bad Debt 26322 26322 Taxes Fees & Licenses 23081 23081 Supplies 4220 3202 256 762 7576 6384 654 538 3286372 2521015 347263 418094 116453 9221 463920 74385 167671 12839 12380 648483 632088 156668 16395 24138 3600 848403 209267 90075 6374 63682 55435 20535 0 174292 61809 X 585748 112458 88363 35000 674111 147458 848403 209267 -526653 0 X X 0 1 X 1 0 X 5112405 2544017 3191064 3818921 2705416 17371823 5112405 2544017 3191064 3818921 2705416 17371823 2847072 14524751 1503 2465 14309 12607 33441 64325 153307 195882 20862 370051 792 16199 16991 17823190 682227 0.81490 0.88500 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 648483 632088 16395 16395 X 2918710 158991 158991 2759719 0 2759719 3445363 158991 158991 3286372 0 3286372 Part X, Line 2: LuMind IDSC Foundation was granted an exemption from federal income tax by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The Organization qualifies for the charitable contribution deduction under Section 170(b)(1)(A)(vi) and has been classified as an Organization that is not a private Organization under Section 509(a)(1). The tax- exempt purpose of the Organization and the nature in which it operates is described above. Management believes the Organization operates in compliance with its tax-exempt purpose. Thus, no provision for income tax has been provided for in the financial statements. Summer Double Dip 155502 155502 2904 10432 37177 Funding Futures Chicago 97216 63165 34051 8692 3450 3000 2187 3 148685 61645 87040 25535 6102 750 0 401403 280312 121091 37131 19984 3750 39364 100229 20862 0 Grants & Scholarships 100 764779 X X X X 0 0 0 0 0 0 0 0 0 Hampus Hillerstrom President and CEO 296406 0 0 0 0 0 9300 0 8055 0 313761 0 0 0 Lois Kelly VP of Clinical Operations 235746 0 0 0 0 0 0 0 38 0 235784 0 0 0 Michelle Petronio Chief Development Officer 172068 0 0 0 0 0 3975 0 8055 0 184098 0 0 0 Part I, Line 4 Hampus note: No severance was given. Amit Das Amit Das is a family member of Das Narayandas 79920 Amit Receives a salary from the Organization 0 Form 990, Part VI, Section A, line 4 Management has evaluated subsequent events through the date on which the financial statements were available to be issued. After the conclusion of the fiscal year ending September 30, 2025, the Organization entered into a merger with the National Down Syndrome Society. The purpose of this merger is to combine programmatic resources, expand research and advocacy initiatives, and strengthen long-term organizational capacity. Form 990, Part VI, Section B, line 11b Form 990 is prepared by the Organization's audit firm, using information provided by the Finance Team. It is reviewed by the President and Chief Executive Officer, and provided to the Finance Committee and Board of Directors prior to submission. Form 990, Part VI, Section B, line 12c THE PROCESS FOR MONITORING THIS IS BY ADDRESSING IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. Form 990, Part VI, Section B, line 15 COMPENSATION FOR THE CEO IS APPROVED BY THE BOARD OF DIRECTORS. OTHER EMPLOYEES ARE BENCHMARKED AND BASED ON SALARY RANGES AND USE OF EMPLOYEE COMPENSATION POLICY. INCREASES ARE APPROVED IN THE BUDGET. Form 990, Part VI, Section C, line 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE THROUGH PUBLIC NON PROFIT WEBSITES. Form 990, Part VI, Section C, line 19 GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. Form 990, Part XII, line 2c: THE ORGANIZATION HAS MANAGEMENT OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN THE CURRENT YEAR.