2026-02-12T16:01:42-07:00 2025-03-31 311717077 Support Kansas City Inc 6750 Antioch Rd Suite 305 Merriam KS 66204 990 2024-04-01 363847816 International Essential Tremor Foundation INTE 9133413880 13628 W 95th Street Lenexa KS 66215 Kelly Lyons President 8168389599 2025-11-17 1 1 Catherine Jay P01516006 9138314752 2025-11-17 2024 2025-03-06 01:10:19Z X Patrick McCartney 13628 W 95th Street Lenexa KS 66215 2557973 0 X www.essentialtremor.org X 1992 KS The International Essential Tremor Foundation (the Foundation), was incorporated on June 25, 1992, in the state of Illinois as a nonprofit organization. The mission of the Foundation is to provide funding for research on tremor disorders, educational information, services, and support to individuals who have been diagnosed with essential tremor (ET), their families, and health care providers. The Foundation is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by essential tremor. 7 7 3 65 0 0 564041 924098 26610 31665 204318 364668 25778 0 820747 1320431 199653 196050 0 0 310637 311677 0 0 42313 394440 422137 904730 929864 -83983 390567 9002216 9514675 143549 91662 8858667 9423013 The IETF provides hope to the ET community worldwide through awareness, education, support, and research. 0 0 762244 196050 31665 Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the International Essential Tremor Foundation (IETF) hosts a special campaign to raise awareness about essential tremor during National Essential Tremor Awareness Month (NETA). Our goal is to achieve a greater understanding and acceptance of essential tremor. (2) Essential Tremor Research James Parkinson first distinguished essential tremor from other tremor disorders (including the disease that carries his namesake) in 1817. More than 200 years later, there are still many unanswered questions about essential tremor. However, researchers are moving our knowledge forward. It is vital to understand what causes ET in order to develop tailored treatment options and a cure for this life-altering condition. IETF Funded Research Essential tremor (ET) has no cure. If only we understood the cause of ET, then new, tailored treatments could be developed. Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the IETF. To date, your research donations have provided more than $1,350,000 to fund numerous promising studies. (3) Educational Programs The IETF facilitates and shares information on a variety of educational programs to educate patients, caregivers, healthcare providers and the general public about essential tremor (ET). Programs may cover the following topics: the diagnosis of ET, current treatment options, research, support groups, assistive technology, and more. 0 0 0 762244 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 3 1 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 IL X X Patrick McCartney 9133413880 13628 W 95th Street Lenexa KS 66215 Patrick McCartney Executive Director 40 0 X 120099 0 14982 Kelly Lyons President 5 0 X X 0 0 0 Shari Finsilver Vice President 5 0 X X 0 0 0 Paul Rodden Secretary 5 0 X X 0 0 0 Nathan Fiser Treasurer 5 0 X X 0 0 0 Patrick Reidy Board Member 5 0 X 0 0 0 Paula Nauer Board Member 5 0 X 0 0 0 Claudine Boldridge Board Member 5 0 X 0 0 0 120099 0 14982 1 0 0 0 0 0 0 0 0 0 924098 240679 924098 Industry Partner Email Communication Fees 900099 31665 31665 0 0 0 0 0 0 31665 241079 0 0 241079 0 0 0 0 0 0 0 0 0 0 1361131 0 1237542 0 123589 0 123589 0 0 123589 0 0 0 0 0 0 1320431 31665 0 364668 X 75050 75050 21000 21000 100000 100000 138140 110512 20721 6907 139442 111554 20916 6972 2420 1936 363 121 10221 8177 1533 511 21454 17163 3218 1073 19145 0 19145 0 37927 30342 5689 1896 159334 127467 23900 7967 17936 14349 2690 897 27825 22260 4174 1391 28366 22693 4255 1418 23872 19097 3581 1194 18877 15102 2832 943 7583 6066 1138 379 Promotional Gieaway Items 6927 0 0 6927 Postage and Printing 61564 49251 9235 3078 Copier Lease Payments 12781 10225 1917 639 929864 762244 125307 42313 389713 141202 350840 143052 96044 87324 87324 0 0 8358813 8846118 110638 80471 9002216 9514675 34959 13238 108590 78424 143549 91662 X 5715896 6118905 3142771 3304108 8858667 9423013 9002216 9514675 X 390567 173780 0 0 0 -1 X 0 1 X 1 0 X 2903482 1248005 1823851 629404 924098 7528840 31665 31665 2903482 1248005 1823851 629404 955763 7560505 2132487 402653 995607 41608 42053 3614408 4781 4781 2132487 402653 995607 41608 46834 3619189 3941316 79896 125127 167796 203511 241079 817409 22852 12544 44650 25778 0 105824 102748 137671 212446 229289 241079 923233 0 3006230 1385676 2036297 858693 1196842 8483738 0.46457 0.4575 0.10882 0.0792 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 0 0 51324 51324 0 0 36000 36000 0 0 Lease Liability 78424 78424 X 1494211 173780 0 0 0 173780 1320431 0 0 0 1320431 929870 0 0 0 6 6 929864 0 0 0 929864 Schedule D, Part X, Line 2 The Foundation is exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code and files the informational Federal Form 990. However, income from certain activities not directly related to the Foundation's tax-exempt purpose are subject to taxation as unrelated business income. The Foundation has also been classified as an entity that is not a private foundation within the meaning of Section 509(a) and qualifies for deductible contributions as provided in Section 170(b)(1)(A)(vi). The Foundation utilizes the provisions of FASB ASC 740-10, Accounting for Uncertain Tax Positions. The Foundation continually evaluates expiring statutes of limitations, audits, proposed settlements, changes in tax law, and new authoritative rulings. The Foundation believes that it has appropriate support for any tax position taken, and as such, does not have any uncertain tax positions that are material to the financial statements. Schedule D, Part XII, Line 2d Rounding adjustment. 1 North America (including Canada and Mexico, but not the United States) 0 0 Grantmaking 100000 0 0 100000 North America (including Canada and Mexico, but not the United States) Funds sent to McGill University in Montreal were for the annual Essential Tremor research grant. 100000 Wires 0 1 1 0 0 0 0 0 0 Schedule F, Part I, Line 2 The IETF requires all research grant recipients to submit semiannual progress reports to determine how funding is being used and if future payments will be made. This report is reviewed by our medical advisory board chair and our board president 1 Dignity Health Dba St Joseph Hospital Medical Center 350 W Thomas Road Phoenix AZ 85013 721561134 501c3 75050 0 Funds are for the annual Essential Tremor research grant. 1 0 Scholarships 7 21000 0 Schedule I, Part I, Line 2 The IETF requires all research grant recipients to submit semiannual progress reports to determine how funding is being used and if future payments will be made. This report is reviewed by our medical advisory board chair and our board president. Form 990, Header, Line B The Form 990 is being amended to update reporting of program service revenue and unrelated business income. Form 990, Part VI, Section B, Line 11b The Executive Director and Finance Committee review the Form 990 before the final copy is submitted for filing. Form 990, Part VI, Section B, Line 12c The Board is given a statement regarding IETF's conflict of interest policy. Each Board member must read and sign the statement annually. Form 990, Part VI, Section B, Line 15 The Board votes on a compensation package for the Executive Director, along with an annual performance and raise review. Compensation for staff is discussed and approved by the Board. Form 990, Part VI, Section C, Line 19 Financial statements and other documents are available upon request. Form 990, Part IX, Line 11g Janitorial services, public relations and marketing. Form 990, Part XI, Line 9 Rounding adjustment.