2026-01-20T06:01:56-07:00 2025-09-30 990 2024-10-01 161083229 LUPUS AND ALLIED DISEASES ASSOCIATION INC LUPU 3158294272 PO Box 170 Verona NY 134780170 Kathleen Arntsen President 3152649101 2026-01-20 1 2024 2025-03-06 01:10:19Z Kathleen A Arntsen PO Box 170 Verona NY 134780170 1019976 0 X www.ladainc.org X 1978 NY To enhance quality of life for those affected by lupus and allied diseases by providing education and empowerment programs and wielding the patient voice as a catalyst to improve healthcare and treatment access, advance research and promote advocacy and awareness initiatives. 10 10 0 108 0 0 990000 893615 0 0 86141 93817 0 0 1076141 987432 562390 564724 0 0 0 0 0 0 670 182330 175425 744720 740149 331421 247283 2577966 2825249 0 0 2577966 2825249 The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life. 0 0 539724 539724 0 1. The organization supported lupus research to improve methods of diagnosis and treatment by funding a $150,000 grant to the the Lupus Research Alliance to support SLE Cognitive Impairment Differentiation and Imaging Lupus Nephritis Biopsies Prognosis Projects. 2. The organization supported pediatric lupus research to study Advancing Molecular Profiling and Understanding Adverse Events Projects in the pediatric population by funding a $89,424 grant to the Childhood Arthritis and Rheumatology Research Alliance. 3. The organization also supported $25,000 to support Does Air Pollution Influence the Baseline Characteristics of Pediatric SLE Project to improve the quality of life for the pediatric population with lupus at the Lupus Foundation of America. 4. The organization funded the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation by supporting a $25,300 preceptorship grant and a separate $50,000 grant to support Innovative Lupus Research. 5. The organization supported lupus research by funding a $200,000 grant to the Masonic Medical Research Institute to provide $50,000 to support a study on Gain-of-function mutations in SHP2 enhance inflammatory macrophage activation in SLE, $50,000 for Cell Activation in Venous Thromboembolism in Female Murine SLE, $50,000 for pathophysiological role of IRF2BP2 in SLE, and $50,000 for Identification of Novel Genes in Lupus Nephritis Development. 148292 25000 0 The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life. The organization also provided a $25,000 education grant to the Masonic Medical Research Institute to support their general education program and Summer Fellows education program. 48767 0 0 The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones. 0 0 0 736783 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 NY X X X Lori Vogel 3158294272 PO Box 170 Verona NY 134780170 X Kathleen A Arntsen President and CEO 25 0 X X 0 0 0 Lori A Vogel Treasurer 15 0 X X 0 0 0 David L Arntsen Secretary 12 0 X X 0 0 0 Sandra M Frear 1st Vice President 8 0 X X 0 0 0 Anne M Zablotowicz 2nd Vice President 14 0 X X 0 0 0 Jane M Porter Director 8 0 X 0 0 0 Jacqueline L Taylor Director 4 0 X 0 0 0 Dina Thachet Director 8 0 X 0 0 0 Meghan P Valadez Director 4 0 X 0 0 0 Brian J Vogel Director 4 0 X 0 0 0 0 0 0 0 0 0 0 0 311 0 175565 0 0 717739 0 893615 0 93817 93817 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 32544 175565 32544 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 987432 93817 0 0 564724 564724 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3500 1750 1750 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 7548 6794 377 377 2706 2435 136 135 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 478 430 24 24 2677 2409 134 134 Education 43089 43089 0 0 Advocacy 70991 70991 0 0 Awareness 44161 44161 0 0 Charity Registration 275 0 275 0 0 0 0 0 740149 736783 2696 670 546988 401768 2029934 2422915 0 0 0 0 0 0 0 0 0 0 0 0 0 0 6298 5732 1044 566 0 0 0 0 0 0 0 0 0 0 2577966 2825249 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 2577966 2825249 0 0 2577966 2825249 2577966 2825249 247283 0 0 0 0 0 X 0 1 X 1 0 X 723304 1098330 994560 1019391 926159 4761744 0 0 0 0 0 0 0 0 0 0 0 0 723304 1098330 994560 1019391 926159 4761744 0 4761744 10186 10848 46627 86141 93817 247619 0 0 0 0 0 0 0 0 0 0 0 0 5009363 0 0.95057 0.96445 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 369 369 772324 772693 140904 35226 0 0 110208 135852 141117 140904 528081 792122 443 273 305 369 1390 27552 33963 35279 35226 132020 198030 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 6298 5732 566 0 0 0 0 566 1019976 0 0 0 32544 32544 987432 0 0 0 987432 772693 0 0 0 32544 32544 740149 0 0 0 740149 Schedule D, Part XI, Line 2d The gross income from special events not including the contributions amount is 32,544. Schedule D, Part XII, Line 2d The special events direct donor benefit expenses amount is 32,544. Charity Golf Classic 208109 175565 32544 0 0 0 14365 0 18179 0 0 208109 175565 32544 0 0 0 14365 0 18179 32544 0 1 CARRA 1050 Connecticut Ave NW Suite 500 Washington DC 20036 464152355 501(c)(3) 89424 0 Book Pediatric Lupus Research Lupus Foundation of America 2121 K St NW Washington DC 20037 431131436 501(c)(3) 25000 0 Book Pediatric Lupus Research Lupus Research Alliance 270 Madison Ave Suite 300 New York NY 10016 582492929 501(c)(3) 150000 0 Book Lupus Research Rheumatology Research Foundation 200 Lake Blvd NE Atlanta GA 30319 581654301 501(c)(3) 75300 0 Book Lupus Research, Preceptor Masonic Medical Research Institute 2150 Bleecker St Utica NY 13501 135648611 501(c)(3) 225000 0 Book Lupus Research, Education Program 5 0 Schedule I, Part I, Line 2 The Childhood Arthritis and Rheumatology Research Alliance (CARRA), Lupus Foundation of America, Lupus Research Alliance, Rheumatology Research Foundation, and Masonic Medical Research Institute provide periodic progress reports back to our organization on the research being conducted and share any findings along with any subsequent publications. Our organization also has representatives who attend scientific and education meetings where the investigators present their findings. The Masonic Medical Research Institute shared information on their Education Program Initiatives and Invitations to various events. Form 990, Part VI, Section A, Line 2 President & CEO Kathleen A. Arntsen has a family relationship with Secretary David L. Arntsen; 1st Vice President Sandra M. Frear has a family relationship with Director Jane M. Porter; Director Meghan P. Valadez has a family relationship with President & CEO Kathleen A. Arntsen; Director Brian J. Vogel has a family relationship with Treasurer Lori A. Vogel. Form 990, Part VI, Section B, Line 11b Once the 990 and appropriate schedules are completed, the forms are then reviewed by the President & CEO and Treasurer and then sent electronically to the organization's Board of Directors to review and approve before filing with the IRS. Form 990, Part VI, Section B, Line 12c The organization's conflict of interest policy is reviewed annually in January by each Board of Director and any interests are disclosed that have the potential to be a conflict on the COI form, and the form is then signed by the Director, reviewed by Leadership and filed. Form 990, Part VI, Section C, Line 19 The organization's governing documents, conflict of interest policy, and financial statements are available to the public during the tax year through the New York State Attorney General's Bureau website or by written request to us. The organization's financial statements and conflict of interest policy are also available on our website www.ladainc.org and at www.guidestar.org.