2026-05-14T00:26:46-05:00 2025-12-31 333709623 COHNREZNICK ADVISORY LLC 1 SOUTH WACKER DRIVE SUITE 3550 CHICAGO IL 60606 990 2025-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC MUSC 3122605900 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 SHARON HESTERLEE PHD COO & CHIEF LEGAL OFFICER 3122605900 2026-05-12 1 ZACHARY SEGAL P01511850 3125085900 2026-05-11 2025 2025-03-06 01:10:19Z SHARON HESTERLEE PHD 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 86702830 0 X WWW.MDA.ORG X 1950 NY SEE SCHEDULE O 18 18 272 934 654688 0 54195181 54355588 0 0 5248735 4498056 912328 5306388 60356244 64160032 16658993 14147711 0 0 29117549 29175286 33625 1152729 14758982 20155219 17272380 65965386 61748106 -5609142 2411926 57971496 50874216 54536026 41176797 3435470 9697419 X MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. 0 0 21968472 7228714 HEALTH CARE AND COMMUNITY SERVICES: MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O)EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OFTHE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. 7773027 6893247 RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES. 14068409 25750 PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS. 43809908 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 176 0 1 272 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MO MT NE NV NJ NM NY NC ND OH OK OR PA PR RI SC SD TN UT VA WA WV WI WY X X PAMELA KOURNETAS CFO 9176931872 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 ANJAN ARALIHALLI DIRECTOR 1.00 X 0 0 0 BARRY BYRNE MD PHD DIRECTOR 1.00 X 0 0 0 BENJAMIN CUMBO III DIRECTOR 1.00 X 0 0 0 CHARLES D SCHOOR ESQ DIRECTOR 1.00 X 0 0 0 CHRISTOPHER ROSA VICE CHAIRMAN 5.00 X X 0 0 0 DAN FRIES DIRECTOR 1.00 X 0 0 0 ELIZABETH MCNALLY MD PHD DIRECTOR 1.00 X 0 0 0 GOVERNOR BRAD HENRY CHAIRMAN 5.00 X X 0 0 0 HON ROBERT E PIPIA DIRECTOR 1.00 X 0 0 0 JOHN COSTANTINO DIRECTOR 1.00 X 0 0 0 JOHN E HOWELL DIRECTOR 1.00 X 0 0 0 LILIAN WU PHD DIRECTOR 1.00 X 0 0 0 LOUIS KUNKEL PHD DIRECTOR 1.00 X 0 0 0 MARK SMITH DIRECTOR 1.00 X 0 0 0 MATT PLUMMER DIRECTOR 1.00 X 0 0 0 MIKE ROWLETT OUTGOING DIRECTOR 1.00 X 0 0 0 NANCY KINDELAN DIRECTOR 1.00 X 0 0 0 STEVE FURNARY DIRECTOR 1.00 X 0 0 0 TOM SIMON DIRECTOR 1.00 X 0 0 0 DONALD WOOD OUTGOING PRESIDENT & CEO 50.00 X 662437 0 17405 HENRY LANMAN COO & CHIEF LEGAL OFFICER 50.00 X 380303 0 56441 MICHAEL KENNEDY OUTGOING TREASURER & CFO 50.00 X 158297 0 11653 SHARON HESTERLEE PRESIDENT & CEO 50.00 X 421661 0 70765 JON VAN COTT INTERIM CFO & CONTROLLER 50.00 X 213151 0 48058 ANGELA LEK CHIEF RESEARCH OFFICER 50.00 X 221940 0 13910 MARY ROTH CHIEF MARKETING OFFICER 50.00 X 259355 0 54791 NORA CAPOCCI EVP, HEALTHCARE SERVICES 50.00 X 227925 0 24094 PERIPEDES GONDIM OUTGOING EVP, HR & VOLUNTEERS 50.00 X 235864 0 15493 RUTH DAILEY CHIEF DEVELOPMENT OFFICER 50.00 X 304413 0 29955 3085346 0 342565 56 0 1 0 YES & HOLDINGS LLC 1700 DIAGONAL ROAD SUITE 700 ALEXANDRIA VA 22314 MARKETING SERVICES 995973 MOORE A SERIES LLC 4200 PARLIAMENT PLACE 3RD FLOOR LANHAM MD 20703 DIRECT MAIL MARKETING 756396 BACK POCKET AGENCY LLC 1647 W OLIVE AVE CHICAGO IL 60660 CONTENT MARKETING AGENCY 601287 CADENT MEDICAL COMMUNICATIONS LLC 200 VESEY STREET 40TH FL NEW YORK NY 10281 MANAGEMENT AND LOGISTICAL SUPPPORT 552008 MWW GROUP LLC ONE MEADOWLANDS PLAZA 15TH FL EAST RUTHERFORD NJ 07073 MARKETING SERVICES 404000 12 291115 33197103 193656 20673714 317030 54355588 1037478 1037478 6063508 6063508 4250 0 4250 4250 4250 21664886 18204308 3460578 3460578 3460578 2922432 33197103 4338490 -1416058 -1416058 QUEST ADVERTISING 541800 654688 654688 654688 64160032 0 654688 9149756 12790451 12790451 1357260 1357260 2040172 1313151 96314 630707 20884236 13442078 985925 6456233 388108 249805 18322 119981 4129118 2657694 194932 1276492 1733652 1115860 81844 535948 300691 33367 88048 179276 130450 51227 15487 63736 420000 420000 1152729 1152729 123958 123958 1218465 1145811 72654 1803589 1798731 4858 2131273 916427 220470 994376 2266089 800624 769082 696383 105641 64 77563 28014 2228542 1577311 76280 574951 1041529 1041488 41 777554 305341 92312 379901 657418 535102 122316 473662 186004 56234 231424 EVENT EXPENSES 2448636 1052794 1395842 PRODUCTION COSTS 955424 955424 189459 63894 87475 38090 61748106 43809908 3179216 14758982 X 1512828 605131 0 907697 4374392 3486720 1562462 5591799 4089647 4315250 2604547 1565963 5597533 5205918 1014299 391615 44214583 35421745 76213 76213 10442 24911 24911 57971496 50874216 7831569 2334615 1079496 178924 4618055 5840048 10768117 10179517 30238789 22643693 54536026 41176797 X -1508923 4359739 4944393 5337680 3435470 9697419 57971496 50874216 X 2411926 -22871 3872894 X 0 1 X 1 0 X 60181680 59144929 56761618 54195181 54355588 284638996 60181680 59144929 56761618 54195181 54355588 284638996 4205198 280433798 968429 1684474 2629877 2224872 7105236 14612888 10004 10004 299261888 0.93710 0.95410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 420000 420000 43389908 43809908 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 869855 847575 998305 420000 3135735 250000 250000 250000 250000 1000000 1500000 790233 102391 65855 826769 816802 77476 104045 790233 982396 24380 133867 312379 11462 816802 1191057 -195884 12777 982396 1077753 126644 13340 1191057 1.00000 0 0 5597533 5205918 391615 391615 ACCRUED PENSION COST 22643693 22643693 X 68006515 -22871 1032831 2964731 3974691 64031824 123958 4250 128208 64160032 61744566 1032831 -4250 1028581 60715985 123958 908163 1032121 61748106 PART V, LINE 4: THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED TO SUPPORT DUCHENNE MUSCULAR DYSTROPHY RESEARCH THAT HAS BEEN APPROVED FOR FUNDING BY THE ASSOCIATION. THE ASSOCIATION MANAGES THIS ENDOWMENT IN ACCORDANCE WITH THE NEW YORK PRUDENT MANAGEMENT OF INSTITUTIONAL FUNDS ACT (NYPMIFA). THE ASSOCIATION HAS INTERPRETED NYPMIFA AS ALLOWING IT TO APPROPRIATE FOR FUTURE EXPENDITURE OR TO ACCUMULATE SO MUCH OF DONOR-RESTRICTED ENDOWMENT FUNDS AS IS PRUDENT FOR THE USES, BENEFITS, PURPOSES AND DURATION FOR WHICH THE ENDOWMENT FUND IS ESTABLISHED, SUBJECT TO THE INTENT OF THE DONOR AS EXPRESSED IN THE GIFT INSTRUMENT AND ABSENT EXPLICIT DONOR STIPULATIONS TO THE CONTRARY. PER THE DONOR'S DESIGNATION, THE ASSOCIATION IS TO DISBURSE APPROXIMATELY 85% OF ANNUAL NET INCOME OF ITS ENDOWED FUND AND THE REMAINING 15% RETURNS TO PRINCIPAL. PART X, LINE 2: U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2025, 2024, 2023, 2022 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2025, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 2,965,008. FUNDRAISING EXPENSES -277. PART XI, LINE 4B - OTHER ADJUSTMENTS: SUBLEASE RENTAL 4,250. PART XII, LINE 2D - OTHER ADJUSTMENTS: SUBLEASE RENTAL -4,250. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 277. GRANTS WRITTEN OFF 907,886. 1 EAST ASIA AND THE PACIFIC 0 0 PROGRAM SERVICES RESEARCH GRANT 183407 EUROPE 0 0 PROGRAM SERVICES RESEARCH GRANT 761308 NORTH AMERICA 0 0 PROGRAM SERVICES RESEARCH GRANT 264812 MIDDLE EAST AND NORTH AFRICA 0 0 PROGRAM SERVICES RESEARCH GRANT 147733 0 0 0 0 0 0 1357260 0 1357260 EAST ASIA AND THE PACIFIC RESEARCH 183407 CHECK/WIRE 0 EUROPE RESEARCH 761308 CHECK/WIRE 0 NORTH AMERICA RESEARCH 264812 CHECK/WIRE 0 MIDDLE EAST AND NORTH AFRICA RESEARCH 147733 CHECK/WIRE 0 0 26 0 0 0 0 0 0 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. 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MEDICAL DIAGNOSIS WONDERLAND CAMP & CONFERENCE CENTER 9241 CAMP LAKE ROAD SALEM WI 53168 362167909 CHURCH 31317 0 MEDICAL DIAGNOSIS AND RESEARCH YALE UNIVERSITY PO BOX 208087 NEW HAVEN CT 065208087 060646973 501(C)(3) 101876 0 MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT YMCA CAMP SEYMOUR 9725 CRAMER RD NW GIG HARBOUR WA 98329 910565562 501(C)(3) 49334 0 MEDICAL DIAGNOSIS AND RESEARCH 192 7 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. X X X X 1 0 0 0 0 0 0 1 0 DONALD WOOD OUTGOING PRESIDENT & CEO 247116 0 81000 0 334321 0 0 0 17405 0 679842 0 0 0 SHARON HESTERLEE PRESIDENT & CEO 390615 0 31046 0 0 0 31000 0 39765 0 492426 0 0 0 HENRY LANMAN COO & CHIEF LEGAL OFFICER 380303 0 0 0 0 0 21040 0 35401 0 436744 0 0 0 RUTH DAILEY CHIEF DEVELOPMENT OFFICER 293237 0 11176 0 0 0 29361 0 594 0 334368 0 0 0 MARY ROTH CHIEF MARKETING OFFICER 231341 0 28014 0 0 0 34750 0 20041 0 314146 0 0 0 JON VAN COTT INTERIM CFO & CONTROLLER 199591 0 0 0 13560 0 0 0 48058 0 261209 0 0 0 NORA CAPOCCI EVP, HEALTHCARE SERVICES 203913 0 24012 0 0 0 23500 0 594 0 252019 0 0 0 PERIPEDES GONDIM OUTGOING EVP, HR & VOLUNTEERS 148669 0 23283 0 63912 0 15128 0 365 0 251357 0 0 0 ANGELA LEK CHIEF RESEARCH OFFICER 221940 0 0 0 0 0 13316 0 594 0 235850 0 0 0 MICHAEL KENNEDY OUTGOING TREASURER & CFO 59653 0 0 0 98644 0 5546 0 6107 0 169950 0 0 0 PART I, LINE 4A THE FOLLOWING INDIVIDUALS RECEIVED SEVERANCE: - DONALD WOOD, OUTGOING PRESIDENT & CEO RECEIVED $315,000 - MICHAEL KENNEDY, OUTGOING TREASURER & CFO RECEIVED $97,308. - PERIPEDES GONDIM, OUTGOING EVP, HUMAN RESOURCES & VOLUNTEERS RECEIVED $59,371 PART I, LINE 7 INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL. X 6 45171 FMV X AUCTION ITEMS 9 271859 FMV 0 0 0 PART I, COLUMN (B): COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS. FORM 990, PART I, LINE 1 MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE. FORM 990, PART XI, LINE 9: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 2,965,008. GRANTS WRITTEN OFF 907,886.