2026-03-16T13:04:19-07:00 2025-06-30 030483170 C E A SCHOLTES AND ASSOCIATES 106 TUNBRIDGE ROAD BALTIMORE MD 21212 990 2024-07-01 132992567 NATIONAL DOWN SYNDROME SOCIETY NATI 8002214602 1155 15TH STREET NW SUITE 540 WASHINGTON DC 20005 John Short Treasurer 2026-03-16 true true CHRIS SCHOLTES CPA P01607734 4103230010 2024 2025-03-06 01:10:19Z KANDI PICKARD 1155 15TH STREET NW SUITE 540 WASHINGTON DC 20005 7120560 false X WWW.NDSS.ORG X 1979 DE The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. 24 24 37 498 6525 48 2381511 3173086 339337 370245 757855 760829 533979 398618 4012682 4702778 304638 172025 0 2156001 2277249 0 720980 2812651 3271919 5273290 5721193 -1260608 -1018415 12985609 12363529 1109858 850986 11875751 11512543 X The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. false false 2160607 148872 214995 COMMUNITY ENGAGEMENT - SEE SCHEDULE O 1340009 17002 65950 RESOURCES AND SUPPORT - SEE SCHEDULE O 1093316 6151 ADVOCACY AND PUBLIC POLICY - SEE SCHEDULE O 155250 NATIONAL BUDDY WALK 155250 4593932 true true false true false false false false false true true false false false true true true false false false false false false false true false false true true true false false false false false false false false true true false false false false false false false true 37 0 false 37 true true true false false false false false false 0 false false false false false false false X 24 24 false false false false false false false true true false false true true true true true true true false false AK AL AR CA CO CT DC FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WA WI WV X X X CEA SCHOLTES AND ASSOCIATES 4103230010 106 TUNBRIDGE ROAD BALTIMORE MD 21212 KANDI PICKARD President & CEO 40.00 0.00 X 197048 0 42000 Robert Snow Disability Adv 40.00 0.00 97251 0 47750 Carlo P Frappolli Chairman 2.00 0.00 X X 0 0 0 Thomas Warner Vice President 1.50 0.00 X X 0 0 0 Janet Eissenstat Secretary 1.50 0.00 X X 0 0 0 John Short Treasurer 1.50 0.00 X X 0 0 0 Elizabeth F Goodwin Director 0.70 0.00 X 0 0 0 Kerry Sette Director 0.70 0.00 X 0 0 0 John Cronin Director 0.70 0.00 X 0 0 0 Misty Holmes Director 0.70 0.00 X 0 0 0 Marjorie Shavers Director 0.70 0.00 X 0 0 0 Mark Johnson Director 0.70 0.00 X 0 0 0 Debbie Morris Director 0.70 0.00 X 0 0 0 Lisa Pelham Director 0.70 0.00 X 0 0 0 Thomas Santos Director 0.70 0.00 X 0 0 0 Schunda Murphy Director 0.70 0.00 X 0 0 0 Robert Siegel Director 0.70 0.00 X 0 0 0 Candace Whiting Director 1.50 0.00 X 0 0 0 Lauren Wang Director 0.70 0.00 X 0 0 0 C Mitch Taylor Director 0.70 0.00 X 0 0 0 Michael Kulma Director 0.70 0.00 X 0 0 0 Victoria Tremonti Director 0.70 0.00 X 0 0 0 Joe Joyce Director 0.70 0.00 X 0 0 0 Courtney Gaines Director 0.70 0.00 X 0 0 0 Ciara Siegel Director 0.70 0.00 X 0 0 0 John McGuire Director 0.30 0.00 X 0 0 0 294299 89750 1 false true false Powered by Professionals 1460 Broadway 4th fl New York NY 10036 Event Planning 146294 CEA SCHOLTES AND ASSOCIATES 106 TUNBRIDGE ROAD BALTIMORE MD 21212 CFO 136080 Petrizzo Group 601 New Jersey Ave NW UNIT 830 Washington DC 20001 Consulting 211000 Manhattan 8E41 8 E 41st St Manhattan NY 10017 Rent 121674 Sidra Madison PO Box 206494 Dallas TX 75320 Office management 116968 5 81217 106612 2985257 177161 3173086 EVENT REGISTRATIONS 711300 214995 214995 NATIONAL BUDDY WALK 711300 155250 155250 370245 302265 302265 0 0 0 2134143 1675018 561 459125 -561 458564 458564 1068346 106612 742203 326143 326143 0 0 ADVERTISING INCOME 541800 6525 6525 OTHER INCOME 900099 65950 65950 72475 4702778 436195 6525 1086972 X 104525 104525 67500 67500 0 0 246203 184653 24620 36930 0 1634228 1368959 126379 138890 60873 50293 4888 5692 200741 165853 16119 18769 135204 111706 10857 12641 0 48196 21149 20010 7037 188915 82899 78433 27583 55308 55308 0 30000 30000 803049 569553 20438 213058 0 24590 15317 4620 4653 141199 123666 6465 11068 0 190261 157194 15278 17789 412080 331810 10867 69403 0 436930 423050 402 13478 0 95394 88831 2164 4399 14631 12088 1175 1368 12603 5672 5041 1890 PRINTING PUBLICATIONS AND FILM 371249 319118 2647 49484 RACE ENTREES AND FOOD 126274 107393 18881 MISCELLANEOUS 96503 84552 3015 8936 DUES AND SUBSCRIPTIONS 79823 57175 7885 14763 144914 85668 14978 44268 5721193 4593932 406281 720980 351403 201988 412732 6000 23291 0 0 0 0 0 453650 416140 60126 23678 25112 36448 11563043 10984068 0 0 0 586401 288862 12985609 12363529 337047 484059 99962 30091 672849 336836 1109858 850986 X 10154317 9328140 1721434 2184403 11875751 11512543 12985609 12363529 -1018415 655207 X false true X true false X 2400559 2713242 2046293 2381511 3173086 12714691 0 0 2400559 2713242 2046293 2381511 3173086 12714691 1546328 11168363 272256 334952 284376 321715 302265 1515564 402932 504461 326143 1233536 15470 18629 112772 26366 65950 239187 15702978 1141391 0.71120 0.74640 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false 48199 76486 124685 5596508 5721193 436060 109015 false 319569 358042 413665 436060 1527336 2291004 125303 238650 155388 124685 644026 79892 89511 103416 109015 381834 572751 58121 77744 73929 48199 257993 10098782 1251720 877671 10472831 9617225 1246668 765111 10098782 9200371 934077 517223 9617225 10828109 -1573539 54199 9200371 8716033 2162892 50816 10828109 0.84000 0.10000 0.06000 false false false 52492 18772 33720 7634 4906 2728 36448 LEASE LIABILITY, NET 336836 336836 X 5931324 655207 603339 1258546 4672778 30000 30000 4702778 6294532 603339 603339 5691193 30000 30000 5721193 Part V, Line 4: Intended uses of the endowment fund. UNRESTRICTED BOARD DESIGNATED ENDOWMENT FUND - NDSS BOARD OF DIRECTORS AND LEADERSHIP DESIGNATED FUNDS IN THE AMOUNT OF $8,806,648 WITH THE GOAL OF INVESTING SIGNIFICANT RESOURCES INTO NDSS'S MISSION AND PROGRAMS AND ALLOWING LOCAL DOWN SYNDROME AFFILIATES AND BUDDY WALKS TO MAINTAIN ADDITIONAL LOCAL RESOURCES AND EXPAND THEIR PROGRAMS IN ADVOCACY AND EMPLOYMENT FOR ALL PEOPLE WITH DOWN SYNDROME PERMANENTLY RESTRICTED ENDOWMENT FUND - INCOME FROM ENDOWMENT OF $1,073,441 WILL BE USED TO SUPPORT RESEARCH AND PROGRAMMATIC AREAS RELATED TO AGING AND DOWN SYNDROME INCLUDING PROVIDING RESOURCES AND EDUCATIONAL MATERIALS, HOSTING CONFERENCES, AND SUPPORT TO INDIVIDUALS WITH DOWN SYNDROME, FAMILIES, AND CAREGIVERS. INCOME FROM AN ENDOWMENT OF $592,742 WILL BE USED FOR SCHOLARSHIPS TO ATTEND SOME OF NDSS' CONFERENCES. Part X : FIN48 Footnote NDSS is exempt from income tax under Section 501c3 of the Internal Revenue Code the Code and comporable state law, and contributions to it are tax deductible within the limitations prescribed by the Code. The Organization has been classified as a publicly-supported organization, which is not a private foundation under Section 509a of the Code. FASB ASC 740, Accounting for Income Taxes, requires the Organization to recognize or disclose any tax positions that would result in unrecongized tax benefits. The Organization has no positions that would require disclosure or recognition under the topic. false GALA 824746 90354 734392 466064 22495 53319 NYC BUDDY WALK 247716 15187 232529 79702 85568 1 99771 846 98925 23340 862 1172233 106387 1065846 569106 22495 139749 731350 334496 true AdventHealth Foundation 900 Hope Way Altamonte Springs FL 32714 592219301 501(c)(3) 100000 0 healthcare services 1 0 SCHOLARSHIPS TO INDIVIDUALS WITH DS 40 47500 Entrepreneur Grants 2 20000 Grantmaker's Description of How Grants are Used THE ORGANIZATION RECEIVES MONTHLY STATUS REPORTS OF ACTIVITIES SUPPORTED BY THE GRANT FROM GRANTEES. THE ORGANIZATION RECEIVES AND REVIEWS PERIODIC REPORTS FROM STUDENTS GRANTEES. X X false false false false false false false false false KANDI PICKARD President & CEO 197048 358 41642 239048 X 11 58000 FMV X AUCTION ITEMS 75 90354 FMV X GOLF ITEMS 3 846 FMV X NYC BUDDY WALK 13 15187 FMV X AMBASSADOR 265 6250 FMV X BOOKS 3 1109 FMV X OTHER GOODs 16 5415 FMV false true true Part I, Line 32, Hire and Use of Third Parties METHOD OF DETERMING REVENUES - THE NATIONAL DOWN SYNDROME SOCIETY (NDSS) REQUESTS THAT ALL DONORS OF NANCASH CONTRIBUTIONS PROVIDE A RETAIL VALUE OF THEIR PRODUCT. IF THE VALUE IS NOT PROVIDED OR IS CONSIDERED PRICELESS, NDSS RESEARCHES THE PIECE ITEM ON THE INTERNET AND DETERMINES A FAIR PRICE. IN MOST CASES, THERE IS A MARKET VALUE AVAILABLE, AND IN OTHER CASES WE FIND A COMPARABLE ITEMS ON EBAY (OR ANOTHER ONLINE AUCTION SITE) TO DEERMINE THE VALUE. FOOD AND BEVERAGE DONATIONS, AS WELL AS GIFT BAT ITEMS, ARE VALUED PER PRICE. Form 990, Part VI, Section B, Line 11b THE DRAFT FORM 990 IS REVIEWED IN DETAIL BY THE FINANCE COMMITTEE AND THEN GIVEN TO THE ENTIRE BOARD TO REVIEW. Form 990, Part VI, Section B, Line 12c BOARD MEMBERS ARE REQUIRED TO ANNUALLY AFFIRM WHETHER THEY HAVE ANY CONFLICTS OF INTEREST OR NOT. IF THEY DO HAVE ANY CONFLICTS OF INTEREST, THEY ARE REQUIRED TO DISCLOSE THEM. Form 990, Part VI, Section B, Line 15a THE PROCESS FOR DETERMINING THE PRESIDENT AND CEO'S SALARY MAY INCLUDE OBTAINING COMPARABILITY DATA AND SUBSEQUENT APPROVAL BY THE EXECUTIVE COMPENSATION COMMITTEE. THE EXECUTIVE COMPENSATION COMMITTEE MAY FORGO THIS PROCEDURE IN THE EVENT THAT THE PRESIDENT & CEO RECEIVES ONLY A COST OF LIVING SALARY INCREASE. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE AUDITED FINANCIAL STATEMENTS AND IRS FORM 990 ARE ALSO POSTED ON THE ORGANIZATION'S WEBSITE. PART III, LINE 4A - COMMUNITY ENGAGEMENT THE DOWN SYNDROME COMMUNITY IS THE HEART OF NDSS. OUR COMMUNITY ENGAGEMENT EVENTS AND ACTIVITIES CELEBRATE OUR LOVED ONES WITH DOWN SYNDROME, RAISE AWARENESS AND ACCEPTANCE AMONG THE GENERAL PUBLIC AND CONNECT INDIVIDUALS AND FAMILIES WITHIN THE COMMUNITY. THROUGH OUR SCHOLARSHIPS, GRANTS AND AWARDS PROGRAM, NDSS SUPPORTS INDIVIDUALS WITH DOWN SYNDROME IN PURSUING THEIR DREAMS. STARTED IN 1995, THE NATIONAL BUDDY WALK PROGRAM PROMOTES ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME AND RAISES FUNDS FOR LOCAL AND NATIONAL ORGANIZATIONS THAT SUPPORT THE COMMUNITY. ADDITIONALLY, NDSS HOSTS AWARENESS AND ENGAGEMENT EVENTS THROUGHOUT THE COUNTRY INCLUDING OUR TIMES SQUARE VIDEO PRESENTATION AND NEW YORK CITY BUDDY WALK, RACING FOR 3.21 ON WORLD DOWN SYNDROME DAY, RUN FOR 3.21, DC GOLF OUTING, ANNUAL NDSS GALA & AUCTION AND MORE. PART III, LINE 4B - ADVOCACY AND PUBLIC POLICY THE NDSS ADVOCACY & PUBLIC POLICY PROGRAM CHAMPIONS FEDERAL, STATE AND LOCAL POLICIES THAT POSITIVELY IMPACT ALL PEOPLE WITH DOWN SYNDROME ACROSS THE COUNTRY. THROUGH OUR GRASSROOTS ADVOCACY PROGRAMS, NDSS WORKS WITH CONGRESS AND FEDERAL AGENCIES, AS WELL AS STATE AND LOCAL OFFICIALS, TO DEVELOP AND IMPROVE LAWS, REGULATIONS AND POLICIES FOR THE BENEFIT OF THE DOWN SYNDROME COMMUNITY. NDSS ALSO EMPOWERS SELF-ADVOCATES, PARENTS AND OTHERS TO INFLUENCE POLICY THEMSELVES. THE NDSS LEGISLATIVE AGENDA SPANS THE LIFE EXPERIENCE OF INDIVIDUALS WITH DOWN SYNDROME FROM BIRTH TO ADULTHOOD, CENTERED ON FIVE IMPORTANT AREAS: HEALTHCARE AND RESEARCH, EDUCATION, ECONOMIC SELF-SUFFICIENCY, COMMUNITY INTEGRATION AND EMPLOYMENT. PART III, LINE 4C - RESOURCES AND SUPPORT NDSS IS COMMITTED TO PROVIDING INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES, CAREGIVERS AND THE PUBLIC WITH COMPREHENSIVE INFORMATION ACROSS THE LIFESPAN, FROM BIRTH TO END OF LIFE. THROUGH EVENTS, WEBINARS, VIDEOS, PUBLICATIONS AND OUR WEBSITE, NDSS PROVIDES FREE RESOURCES ON A VARIETY OF TOPICS INCLUDING INFORMATION FOR NEW AND EXPECTANT PARENTS, HEALTH AND WELLNESS, EDUCATION AND EMPLOYMENT. THROUGH OUR HELPLINE AND INFO EMAIL, NDSS ANSWERS THOUSANDS OF REQUESTS FOR SUPPORT EACH YEAR. OUR STAFF RESPONDS TO QUESTIONS AND CONNECTS PARENTS, PROFESSIONALS, SELF-ADVOCATES AND OTHERS WITH REFERRALS, INCLUDING TO OUR NETWORK OF MORE THAN 300 LOCAL DOWN SYNDROME ORGANIZATIONS. PART III, LINE 4D - BUDDY WALK Since 1995, the National Buddy Walk Program has been the premier Down syndrome awareness, advocacy and peer-to-peer fundraising program in the world. It was created by the National Down Syndrome Society NDSS to promote acceptance and inclusion of people with Down syndrome and to raise funds for local and national incentives to support the Down syndrome community. Today, more than 100 Buddy Walk events take place in cities across the country and in select international locations.