2026-01-27T13:14:39-08:00 2025-07-31 362716239 Barnes Givens & Barnes Ltd 200 E Evergreen Ave Suite 117 Mount Prospect IL 60056 990 2024-08-01 742926378 MISSION MSA MISS 8667374999 540 N DEARBORN ST 10119 CHICAGO IL 60610 JOSEPH LINDAHL Executive Director 2026-01-27 true true William J Barnes P00399658 2247642442 2024 2025-03-06 01:10:19Z X 540 N DEARBORN ST 10119 CHICAGO IL 606101087 3254154 false X WWW.MSACOALITION.ORG X 1999 TX THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. 14 14 0 668 0 548793 1152738 415279 85600 190481 0 634393 1758498 463708 363999 0 259239 0 269641 1041511 1972801 1505219 2596039 -870826 -837541 5394999 4955389 26092 162189 5368907 4793200 X THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. false false 849760 415279 PATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL. 384603 153539 RESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA. 322728 CREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES. 238799 Centers of excellence 238799 1795890 true true false false false false false false false false false false false false false true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 6 0 true 0 false false false false false false false 0 false false false false false false false X 14 14 false true false false false false false true true false false true true true true true true false false false AL AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WI WV X X JOSEPH LINDAHL 8667374999 540 N DEARBORN ST 101196 CHICAGO IL 606101087 JOSEPH LINDAHL Executive Dir. 40.00 0.00 X 90769 0 0 Liz Dyas CHAIR 20.00 0.00 X X 0 0 0 Dawn Rodgers-Dexter Treasurer 15.00 0.00 X X 0 0 0 Patricia Libby Thvedt Secretary 20.00 0.00 X X 0 0 0 Pam Bower Director 2.00 0.00 X 0 0 0 Adrienne Glusman Marioles Director 2.00 0.00 X 0 0 0 Andre Cote Barch Director 2.00 0.00 X 0 0 0 Gary Troutman Director 2.00 0.00 X 0 0 0 William Billy Finnerty Director 2.00 0.00 X 0 0 0 Prof Dr Nadia Stefanova Director 2.00 0.00 X 0 0 0 Josh Launer Director 2.00 0.00 X 0 0 0 Amy Cooper Director 2.00 0.00 X 0 0 0 Kate Alivarius Director 2.00 0.00 X 0 0 0 Hasan Hasan Director 2.00 0.00 X 0 0 0 Paul Beach Director 2.00 0.00 X 0 0 0 90769 0 false false false MCI USA 1660 International Dr Ste 600 MCLEAN VA 221024877 Management 1027217 1 1152738 1152738 Registrations 70277 70277 Sponsorships 345002 345002 415279 148297 148297 0 0 0 1537840 1495656 42184 42184 42184 0 0 0 0 1758498 457463 148297 268999 268999 0 95000 95000 0 90769 68077 9077 13615 0 168470 126352 16847 25271 0 0 0 1027217 678980 198623 149614 0 0 0 0 28558 28558 253464 83296 143826 26342 0 70189 32998 9867 27324 0 0 0 180629 123923 52746 3960 0 0 0 0 0 1749 1749 Patient support and education 300093 283624 11437 5032 Software and technology 94099 41516 35705 16878 Other 18576 1123 16246 1207 Awareness Outreach 10730 8149 2581 -12503 -16147 3246 398 2596039 1795890 530508 269641 126014 518146 118383 18443 0 63667 0 0 0 0 42393 23227 0 5108209 4331906 0 0 0 0 5394999 4955389 26092 97931 64258 26092 162189 X 2714065 2093854 2654842 2699346 5368907 4793200 5394999 4955389 -837541 261834 X X false true X true false X 1326828 1947017 1394761 1186812 1701531 7556949 0 0 1326828 1947017 1394761 1186812 1701531 7556949 592087 6964862 38259 66121 95758 75026 254122 529286 0 70000 70000 8156235 0.85390 0.63980 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1991774 261834 261834 1729940 28558 28558 1758498 2567481 2567481 28558 28558 2596039 Part X : FIN48 Footnote THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL ANDSTATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIESRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BESUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF July 31, 2025 MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME.THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BYEVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF July 31, 2025. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS. true Asia Research 12500 wire Canada MSA RESEARCH 15000 Wire Europe MSA RESEARCH 57500 WIRE Middle East Research 10000 wire 4 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THERESEARCH GRANTS. true Brigham and Womens Hospital 75 Francis St Boston MA 02115 042312909 501 c 3 7500 0 MSA Research Emory University 599 Clifton Road NE Atlanta GA 30322 580566256 501 c 3 7500 0 MSA Research Massachusetts General Hospita 55 Fruit St Boston MS 02114 042697983 501 c 3 7500 0 MSA Research New York University 550 First Ave New York NY 10016 135562308 501 c 3 10170 0 MSA Research others under 5000 each 540 N DEARBORN ST 101196 CHICAGO IL 60610 501 c 3 15627 0 MSA Research Rush University Medical Cente 1620 W Harrison St Chicago IL 60612 362174823 501 c 3 7500 0 MSA Research University of Florida 1149 Newell Dr Gainsville FL 32610 596002052 501 c 3 105869 0 MSA Research University of Miami 1600 NW 10th Ave Miami FL 33136 590624458 501 c 3 7500 0 MSA Research University of North Carolina 104 Airport Dr Ste 2200 Chapel Hill NC 27599 566001393 501 c 3 7500 0 MSA Research University of Texas Southwest 5323 Harry Hines Blvd Dallas TX 75390 756002868 501 c 3 7500 0 MSA Research University of Utah 27 S Mario Capecchi Dr Salt Lake City UT 84113 876000525 501 c 3 7500 0 MSA Research University of Virginia 1001 Emmet St N Charlottesville VA 22903 546001796 501 c 3 7500 0 MSA Research Virginia Commonwealth Univers PO 843035 Richmond VA 23084 546001758 501 c 3 7500 0 MSA Research Washington University One Brookings Dr St Louis MO 63130 430653611 501 c 3 7500 0 MSA Research Yale University 367 Cedar St New Haven CT 06511 060646973 501 c 3 7500 0 MSA Research 15 0 Grantmaker's Description of How Grants are Used THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THE RESEARCH GRANTS. Form 990, Part VI, Section A, Line 3 THE ORGANIZATION IS A PARTY TO AN AGREEMENT FOR OPERATIONS MANAGEMENT,FINANCE AND ACCOUNTING, FUNDRAISING, EVENTS MANAGEMENT, PUBLICATIONS,MEMBERSHIP SUPPORT AND COMMUNICATION SERVICES PROVIDED TO THE ORGANIZATIONBY MCI USA. Form 990, Part VI, Section B, Line 11b THE FORM 990 IS REVIEWED IN DETAIL BY THE TREASURER OF THE ORGANIZATION.THE FORM 990 IS THEN SENT TO ALL MEMBERS OF THE BOARD OF DIRECTORS FORREVIEW AND COMMENT PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c EACH BOARD MEMBER COMPLETES AND SIGNS A CONFLICT OF INTEREST QUESTIONNAIREEVERY YEAR. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTSAVAILABLE TO THE PUBLIC UPON REQUEST Form 990, Part XII, Line 2c THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOROVERSIGHT FOR THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF ANINDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED DURING THE YEAR.