2026-05-15T14:22:11-05:00 2025-12-31 061156122 ROLLERI & SHEPPARD CPAS LLP 2150 POST ROAD 5TH FL FAIRFIELD CT 06824 990 2025-01-01 260687439 RETT SYNDROME RESEARCH TRUST INC RETT 2034450041 67 UNDER CLIFF ROAD TRUMBULL CT 06611 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 2034450041 2026-05-15 1 JOHN M ROLLERI CPA P00182555 2032592727 X 2025 2025-03-06 01:10:19Z MONICA COENRAADS 67 UNDERCLIFF ROAD TRUMBULL CT 06611 8882305 0 X WWW.REVERSERETT.ORG X 2007 CT THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. 13 13 7 0 0 0 8679173 7938233 178536 195455 449600 544692 0 0 9307309 8678380 9350537 5375683 0 0 1227852 1187686 0 0 717939 1153076 1675980 11731465 8239349 -2424156 439031 20356580 20833981 15636502 13674873 4720078 7159108 X THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. 0 0 7097393 5375683 740147 THE ORGANIZATION PROVIDES FUNDING TO LEADING RESEARCH INSTITUTIONS AND COMPANIES WORKING ON RETT SYNDROME AND RELATED MECP2 DISORDERS. 269912 THE ORGANIZATION SPONSORS SCIENTIFIC WORKSHOPS THAT BRING THE LEADING RETT RESEARCHERS TOGETHER WITH ELITE SCIENTISTS IN SYNERGISTIC FIELDS TO EXCHANGE DATA AND SET RESEARCH DIRECTION. THE ORGANIZATION PROVIDES FUNDING TO LEADING RESEARCH INSTITUTIONS WORKING ON RETT SYNDROME AND RELATED MECP2 DISORDERS. RESEARCH IS AIMED AT 1) RESTORING LEVELS OF MECP2 PROTEIN, 2) IDENTIFYING OBJECTIVE TOOLS TO MEASURE RETT SYMPTOMS 3) ESTABLISH A CLINICAL TRIAL NETWORK 4) IDENTIFY FUNCTION OF MECP2 PROTEIN. THE ORGANIZATION SPONSORS SCIENTIFIC WORKSHOPS THAT BRING THE LEADING RETT RESEARCHERS TOGETHER WITH ELITE SCIENTISTS IN SYNERGISTIC FIELDS TO EXCHANGE DATA AND SET RESEARCH DIRECTION. 7367305 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 21 0 7 1 0 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA CT IL MA MD NJ NY PA X MONICA COENRAADS 2034450041 67 UNDER CLIFF ROAD TRUMBULL CT 06611 ADRIAN BIRD TRUSTEE 2.00 X 0 0 0 ALBA TULL TRUSTEE 2.00 X 0 0 0 AMY GILLIAND TRUSTEE 2.00 X 0 0 0 BRAD ZELINGER TRUSTEE 2.00 X 0 0 0 BRIAN WHITMER TRUSTEE 2.00 X 0 0 0 HEIDI EPSTEIN VICE CHAIRMAN 2.00 X X 0 0 0 INGRID HARDING CO-FOUNDER AND TRUSTEE 2.00 X 0 0 0 LAWRENCE MATTIS SECRETARY 2.00 X X 0 0 0 MARCI VALNER TREASURER 2.00 X X 0 0 0 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 50.00 X X 220000 0 0 RACHAEL STEVENSON TRUSTEE 2.00 X 0 0 0 RACHEL ROTHSCHILD TRUSTEE 2.00 X 0 0 0 STEPHANIE BOHN TRUSTEE 2.00 X 0 0 0 ANTHONY P SCHOENER CHAIRMAN 2.00 X X 0 0 0 JANA SE VON HEHN CHIEF SCIENTIFIC OFFICER 50.00 X 220000 0 0 ROBERT DEANS CHIEF TECHNOLOGY OFFICER 50.00 X 215000 0 0 TIMOTHY J FREEMAN CHIEF DEVELOPMENT OFFICER 50.00 X 220000 0 0 875000 0 0 4 0 1 0 EDRIAN CO LLC 346 STRATFORD ROAD BROOKLYN NY 11218 MARKETING 161755 JOHN SINNAMON 5 CLAFLIN ST BELMONT NY 02478 DIRECTOR 101250 2 7938233 7938233 LICENSING 900099 130688 130688 BIOREPOSITORY 900099 64767 64767 195455 543463 543463 205154 203925 1229 1229 1229 8678380 740147 0 0 5375683 5375683 875000 633000 59400 182600 169399 106673 62660 66 71509 50645 8357 12507 71778 50835 8389 12554 621735 599107 5956 16672 22911 16226 2679 4006 4500 3187 526 787 5758 1920 1919 1919 FUNDRAISING 472980 472980 SCIENTIFIC MEETINGS, TR 269912 269912 RESEARCH COSTS 129157 129157 MISCELLANEOUS 115450 107115 106 8229 33577 23845 4113 5619 8239349 7367305 154105 717939 4317606 16298853 13681914 2357060 2535128 2000000 20356580 20833981 103250 23416 15533252 13651457 15636502 13674873 X 4720078 7159108 4720078 7159108 20356580 20833981 439031 2000000 0 X X 0 1 X 1 0 X 7837691 6657601 7603093 8430457 7664150 38192992 7837691 6657601 7603093 8430457 7664150 38192992 38192992 29868 30209 333088 446592 543463 1383220 39576212 0.96500 0.97690 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 8678381 0 8678381 0 8678381 8239349 0 8239349 0 8239349 1 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 1 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RETT RESEARCH 695166 1 0 0 0 1 0 695166 0 695166 UNITED KINGDOM 105166 WIRE TRANSFER 0 UNITED KINGDOM 350000 WIRE TRANSFER 0 UNITED KINGDOM 240000 WIRE TRANSFER 0 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION WORKS CLOSELY WITH ITS GRANTEES AND MONITORS FUNDING AND PROGRESS OF THE RESEARCH AS IT IS PERFORMED. 1 CHILDREN'S HOSPITAL OF MONTEFIORE C/O RETT SYNDROME TRUMBULL CT 06611 40123 0 RETT RESEARCH UNIVERSITY OF CALIFORNIA DAVIS C/O RETT SYNDROME TRUMBULL CT 06611 474894 0 RNA EDITING RETT SYNDROME GLOBAL REGISTRY C/O RETT SYNDROME TRUMBULL CT 06611 110490 0 RETT RESEARCH RETT SYNDROME BIOREPOSITORY C/O RETT SYNDROME TRUMBULL CT 06611 123762 0 RNA EDITING VIVALINK C/O RETT SYNDROME TRUMBULL CT 06611 8741 0 RETT RESEARCH DUKE C/O RETT SYNDROME TRUMBULL CT 06611 213610 0 RETT RESEARCH UNIVERSITY OF MASSACHUSETTS C/O RETT SYNDROME TRUMBULL CT 06611 84791 0 RETT RESEARCH EVOX C/O RETT SYNDROME TRUMBULL CT 06611 240000 0 RETT RESEARCH SENTI BIO C/O RETT SYNDROME TRUMBULL CT 06611 50000 0 RETT RESEARCH SHAPE THERAPEUTICS C/O RETT SYNDROME TRUMBULL CT 06611 300000 0 RETT RESEARCH 4BASEBIO C/O RETT SYNDROME TRUMBULL CT 06611 350000 0 RETT RESEARCH JACKSON LABS C/O RETT SYNDROME TRUMBULL CT 06611 419317 0 RETT RESEARCH COURAGENE C/O RETT SYNDROME TRUMBULL CT 06611 15000 0 RETT RESEARCH VIRALGEN C/O RETT SYNDROME TRUMBULL CT 06611 750000 0 RETT RESEARCH RESPLICE C/O RETT SYNDROME TRUMBULL CT 06611 130000 0 RETT RESEARCH PRE-CLINICAL STUDIES C/O RETT SYNDROME TRUMBULL CT 06611 1100000 0 RETT RESEARCH PROFLUENT C/O RETT SYNDROME TRUMBULL CT 06611 1000000 0 RETT RESEARCH X X 0 0 0 0 0 0 0 0 0 JANA SE VON HEHN CHIEF SCIENTIFIC OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 TIMOTHY J FREEMAN CHIEF DEVELOPMENT OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 ROBERT DEANS CHIEF TECHNOLOGY OFFICER 215000 0 0 0 0 0 0 0 0 0 215000 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B LINE 11A EXPLANATION - A COPY OF FORM 990 IS GIVEN TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO ITS FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION MAINTAINS A CONFLICT OF INTEREST POLICY THAT MUST BE SIGNED BY THE TRUSTEES ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER AND CHIEF DEVELOPMENT OFFICE IS REVIEWED BY THE BOARD AND COMPARED TO THE COMPENSATION OF EXECUTIVE DIRECTORS/PRESIDENTS OF ORGANIZATIONS OF A SIMILAR SIZE. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND VIA THEIR WEBSITE FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND VIA THEIR WEBSITE FORM 990, PART XII, LINE 2C: THE FINANCIAL STATEMENTS HAVE BEEN AUDITED UNDER GENERALLY ACCEPTED ACCOUNTING PRINCIPLES.