2026-03-30T08:46:59-06:00 2025-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2025-01-01 873607948 FAM177A1 Research Fund % Jill Hawkins FAM1 2063105575 8838 SE 72nd Place Mercer Island WA 98040 JILL HAWKINS Founder & President 2063105575 2026-03-30 true JOHN MULLINS P01429307 2027706371 2026-03-30 2025 2025-03-06 01:10:19Z Jill Hawkins 8838 SE 72nd Place Mercer Island WA 98040 392132 false X www.fam177.org X 2022 WA The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatm 4 4 0 15 0 0 306239 362115 0 4967 -33251 306239 333831 29302 243153 0 0 0 22723 52183 29071 81485 272224 224754 61607 265642 327249 0 265642 327249 The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatm false false 153211 153211 Patient Advocacy & Data: Global Networking: Successfully connected with more families globally, including new cases in the Middle East and Europe, increasing the known patient cohort to facilitate research. 93601 89942 Breakthrough Research & Grants: The Fund strategically allocated resources to multiple international research projects aimed at understanding the genes function and developing therapies: Gene Therapy Initiative: Funded a pioneering AAV9-based gene therapy project at Hebrew University led by Professor Rami I. Aqeilan, aiming to deliver functional copies of the FAM177A1 gene. CURE Epilepsy Partnership: Formed a significant partnership with CURE Epilepsy to co-fund a $100,000 grant. This project, led by Dr. Berrak Ugur at Yale University, utilizes patient-derived organoids (brain-in-a-dish) to study how FAM177A1 loss affects neuronal growth and protein transport in the Golgi complex. Model Organism Development: Continued funding for research at the University of Portsmouth (UK) using Xenopus (frog) models to test potential treatments and study early brain development mysteries. Drug Repurposing: Advanced work on fruit fly models to identify existing medications that might be effective for FAM177A1 patients. Fundraising & Awareness: The Organization saw a record-breaking year for community engagement: FAM JAM 2025: The 2nd annual FAM JAM event in Seattle raised $280,000, directly fueling the research pipeline. Impact Reporting: Released the 2024 Impact Report in March 2025, providing transparency and documenting the foundations growth and scientific strategy for donors. 246812 true true false false false false false false false false false false false false false false false false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false false true 6 0 true 0 false false false false false false false false false false false false X 4 4 true false false false false false false true true false false true true true true true true false false false WA X The Organization 2063105575 8838 SE 72nd Place Mercer Island WA 98040 X Jill Hawkins Founder & President 25.00 0.00 X X 0 0 0 Doug Hawkins Vice President 1.00 0.00 X X 0 0 0 Beth Sampson Treasurer 1.00 0.00 X 0 0 0 Michelle Bice Secretary 1.00 0.00 X 0 0 0 0 0 0 0 false false false 270195 91920 362115 4967 4967 25050 270195 58301 -33251 -33251 333831 0 0 -28284 89942 89942 153211 153211 22723 22723 472 472 1312 1312 3659 3659 905 905 272224 246812 2689 22723 33413 265642 293836 265642 327249 0 0 X 265642 327249 265642 327249 265642 327249 61607 0 X false false false X 26790 102004 306177 362115 797086 26790 102004 306177 362115 797086 80746 716340 4967 4967 27147 27147 829200 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Middle East and North Africa Grant making Grant making 112500 Europe including Iceland and Greenland Grant making Grant making 40711 153211 153211 Middle East and North Africa Research 112500 Europe including Iceland and Greenland Research 40711 2 false false false false false false FAM JAM 295245 270195 25050 58301 295245 270195 25050 58301 58301 -33251 true Unravel Biosciences 196 Boston Ave Suite 1000 Medford MA 02155 862290599 31000 Research Cure Epilepsy 420 N Wabash Ave Chicago IL 60611 364253176 501C3 30000 Research KAL Research Initiateives LLC 26211 Seminole Hill Lane Katy TX 77494 872078489 17176 Research Combined Brain 1510 Old Hickory Blvd Brentwood TN 37027 831825692 501C3 7310 Research 2 2 Officer directors etc family relationship Part VI line 2 Jill Hawkins and Doug Hawkins are married Form 990 governing body review Part VI line 11 The Form 990 is reviewed by members of The Board before being filed to the IRS. Conflict of interest policy compliance Part VI line 12c We review as needed during board meetings Governing documents etc available to public Part VI line 19 Will be provided upon request