2025-11-13T23:21:46-05:00 2024-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2024-01-01 462133007 Association for Creatine Deficiencies % Daniel Coller ASSO 6019422373 6965 El Camino Real 105-598 Carlsbad CA 92009 DANIEL COLLER Board Chair 6019422373 2025-11-13 true true JOHN MULLINS P01429307 2027706371 2025-11-13 2024 2025-03-06 01:10:19Z Daniel Coller 6965 El Camino Real 105-598 Carlsbad CA 92009 411288 false X www.creatineinfo.org X 2012 CA To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). 6 6 2 7 0 0 574134 353871 5000 47133 2487 4708 6571 5576 588192 411288 183000 215440 0 151548 161645 0 41738 268065 276759 602613 653844 -14421 -242556 674679 418617 26722 10372 647957 408245 To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). false false 535706 215440 47133 Providing accurate and up to date information through attendance at Medical & Scientific conferences, maintaining informational website, hosting CCDS conference and distributing recordings of talks to accelerate knowledge of creatine deficiencies and related research. Advocating for increased adoption of newborn screening. Supporting CCDS caregivers with webinars, opportunities to engage with researchers, and a structured virtual support group. Supporting research through fellowship grants and maintenance of a patient registry and natural history platform. Co-supporting research and patient communities through joint webinars, quarterly newsletters, online resources, etc. 535706 true true false false false false false false false false true false false false false true true false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 8 0 true 2 true false false false false false true true false false false false false false X 6 6 false false false false false false false true true false false true false false false false false false X The Organization 6019422373 6965 El Camino Real 105-598 Carlsbad CA 92009 Heidi Wallis Executive Director 40.00 0.00 X 109716 0 0 Erin Coller Director of Comm 10.00 0.00 X 0 0 0 Kim Tuminello Director of Advocacy 10.00 0.00 X 0 0 0 Mikelle Law Director of Compliance 10.00 0.00 X 0 0 0 Daniel Coller Board Chair 10.00 0.00 X X 0 0 0 Celeste Graham Director of Education 5.00 0.00 X X 0 0 0 Randy Allen Vice Chair 10.00 0.00 X X 0 0 0 109716 0 0 1 false false false 118766 235105 353871 Conference 900099 47133 47133 47133 4708 4708 118766 0 Other 900099 5576 5576 5576 411288 52709 0 4708 X 117440 117440 500 500 97500 97500 109716 77072 19825 12819 40081 28156 7242 4683 277 176 44 57 11571 8141 2040 1390 250 250 27246 27246 78746 62395 11659 4692 14754 603 1983 12168 17064 10051 1714 5299 4308 1502 2264 542 1140 989 63 88 12560 12560 94403 94251 152 22635 22635 2050 132 1918 Other 1603 1603 653844 535706 76400 41738 385706 243608 148265 33625 3118 18877 67905 22635 67905 45270 69685 77237 674679 418617 26722 10372 26722 10372 X 480600 395420 167357 12825 647957 408245 674679 418617 -242556 2844 0 X false true X true false X 657356 338742 664962 574134 353871 2589065 90 90 657446 338742 664962 574134 353871 2589155 0 0 0 0 0 0 2589155 2487 4708 7195 2487 4708 7195 2786 1531 21089 6571 5576 37553 660232 340273 686051 583192 364155 2633903 0.98300 0.98560 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 67905 22635 45270 45270 X 438725 2844 24593 27437 411288 411288 678437 24593 24593 653844 653844 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) The Association is a tax-exempt entity under Code Section 501(c)(3) of the Internal Revenue Code (the Code), and are exempt from federal income taxes on related income pursuant to Section 501(a) of the Code and is not considered to be a private foundation. In addition, the Association is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the entity is not subject to unrelated business income tax and has not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. Accordingly, no provision for income taxes is included in the financial statements. The Association has filed all of its known and required tax returns in a timely manner, including as permitted, allowed extensions. true Europe including Iceland and Greenland Program services Research 60000 North America Not the United States Program services Research 37500 97500 97500 Europe including Iceland and Greenland Research 30000 North America Not the United States Research 30000 Europe including Iceland and Greenland Research 30000 North America Not the United States Research 7500 4 false false false false false false Special Even 118766 118766 118766 118766 true University of Utah 201 Presidents Cir Salt Lake City UT 84112 876000525 501c3 72440 UCLA 405 Hilgard Avenue Los Angeles CA 90095 956006143 501c3 30000 University of Central Florida 4000 Central Florida Blvd Orlando FL 32816 592924021 501c3 15000 3 Officer directors etc family relationship Part VI line 2 Erin Coller and Daniel Coller are married. Form 990 governing body review Part VI line 11 The IRS Form 990 is provided to all board members prior to filing. Governing documents etc available to public Part VI line 19 These documents are available upon request. List of other fees for services expenses Part IX line 11g Other Professional Fees $76,482Service Fees: $2,155Board Expenses: $109