2025-11-13T13:51:15+00:00 2024-12-31 346565596 ERNST & YOUNG US LLP 1101 NEW YORK AVENUE NW Washington DC 20005 990 2024-01-01 853776266 Alzheimers Disease Data Initiative Inc ALZH 4254974300 4110 Carillon Point Kirkland WA 98033 HILLARY BOUNDS SECRETARY 4254974300 2025-11-13 true Amber N Doane P01391011 2023276000 2025-11-13 2024 2025-03-06 01:10:19Z DAVINA INSLEE 4110 Carillon Point Kirkland WA 98033 12475933 false X https://www.alzheimersdata.org/ X 2020 DE THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS 2 2 0 0 0 12920879 12339343 0 0 42409 136590 0 0 12963288 12475933 3438180 3014488 0 0 0 0 0 0 7819594 14029107 11257774 17043595 1705514 -4567662 5319702 2040922 430464 1719346 4889238 321576 X Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures for Alzheimer's disease and related dementias. Learn more atwww.alzheimersdata.org. false false 5168435 AD Workbench - a free, secure, cloud-based data sharing and analytics environment - is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. AD Workbench empowers researchers around the world to share, access, and analyze data across platforms. It provides data hosting, offers collaborative workspaces, and supports federated and distributed data sharing via FDSA.There are currently 8,400+ registered AD Workbench users from across 120 countries with access to over 800K participant records. Through AD Workbench, researchers and institutions can accelerate progress towards new and better treatments and diagnostic tools for Alzheimer's disease and related dementias. 5091974 50000 Global Research Platforms - GRIP is a secure, cloud-based, and open-access platform designed to help researchers integrate, analyze, and share complex biomedical data with ease. It is a multi-site, multi-modal collaboration platform with co-developed, modular tools, workflows, and workspaces that enable secure data sharing, analysis, and collaboration. 2932616 2414488 The AD Data Initiative product suite consists of data sharing and analytic products along with enabling technical resources to empower researchers around the world to share, access and analyze data across multiple platforms. AD Workbench is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. There are currently more than 120 datasets accessible via AD Workbench - including clinical tabular data, imaging, omics and biosamples. The AD Data Initiative works closely with data contributors and data platform partners to ensure interoperability with AD data-sharing platforms and data accessibility across the global Alzheimer's data ecosystem. 2270057 550000 Core to the AD Data Initiative's mission is the belief that data sharing and global collaboration will accelerate progress, seed innovation and lead to breakthroughs faster. AD Data Initiative is advancing a scientific strategy and investing in strategic initiatives to foster global collaboration, empower researchers and advance scientific discovery. These initiatives include: the William H. Gates Sr. Fellowship Program, Global Data Challenges, Scientific Driver Projects and Global Research Collaborations and Consortia. This scientific strategy and the AD Data Initiative's programmatic efforts are guided by an evolving list of priority research questions that have been shaped by insights from Advisory Board members, input from the AD research community and engagement with thought leaders in Alzheimer's and related dementias research. 661862 The AD Data Initiative amplifies its mission through communications and engagement: website, social media, conferences and events, partnership campaigns/communications and special projects. These efforts expand access to important datasets, broaden the use of data platforms and tools, and foster global collaboration to accelerate discovery. 2931919 550000 16124944 true true false false false false false false false false false false false false false false false false false false true true false false false false false true false false false false false false false false false false false false false false false false true true true false false false true 5 0 true 0 false false false false false false false false false false false false X 2 2 false false false false true true true true true false false false true true true true false false false false false false X HILLARY BOUNDS 4254974300 4110 CARILLON POINT KIRKLAND WA 98033 X Niranjan Bose DIRECTOR 5.0 0.0 X 0 0 0 PAUL RAMSEY DIRECTOR 1.0 0.0 X 0 0 0 HILLARY BOUNDS SECRETARY 10.0 0.0 X 0 0 0 TONY POUND TREASURER 1.0 0.0 X 0 0 0 0 0 0 0 false false false Zhlke Engineering GmbH Dsseldorfer Str 38 65760 Eschborn GM Product Management and Maintenance 4497228 Aridhia Informatics Limited 163 Bath Street Glasgow UK Product Management and Maintenance 3074628 IHME 2301 5th Ave Ste 600 Seattle WA 98121 Data collection, analysis, and reporting of results 1350000 Evalueserve Inc One City Plaza 421 Fayetteville St Suite 200 Raleigh NC 27601 Product Management and Maintenance 1342110 Hansell Tierney Inc (HT Talent) 2955 80th Ave SE Ste 103 Mercer Island WA 98040 Staffing services 1001469 24 12339343 12339343 0 0 0 0 0 136590 136590 0 0 0 0 0 0 0 0 0 0 12475933 0 0 136590 X 1095289 1095289 1919199 1919199 642039 187552 454487 180522 51457 129065 253027 253027 1847285 1847285 0 0 555399 555399 1048 1048 10052424 9971400 81024 28680 28680 100555 100555 GNPC 305221 305221 EPND 62907 62907 0 0 0 0 17043595 16124944 918651 0 1749999 1087043 3518066 837723 0 0 0 0 51637 116156 0 0 0 0 0 0 0 0 5319702 2040922 430464 1719346 0 0 0 0 430464 1719346 4889238 321576 4889238 321576 5319702 2040922 -4567662 0 X false false false X university of washington medical center Seattle WA RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe (Including Iceland and Greenland) 0 6 Grantmaking 1819199 Europe (Including Iceland and Greenland) 0 12 Program Services Data Support, Research & Development, Conference Sponsorship 8127262 East Asia and the Pacific 0 2 Grantmaking 100000 East Asia and the Pacific 0 1 Program Services Conference attendance fees and expenses 7823 0 21 0 0 0 21 10054284 0 10054284 Europe (Including Iceland and Greenland) Platform interoperability, data sharing, data harmonization 696082 Europe (Including Iceland and Greenland) Data sharing, coordination with sites making data sharable 500000 Europe (Including Iceland and Greenland) International data sharing and analysis pilot projects 449943 Europe (Including Iceland and Greenland) Imaging data sharing and hosting 73174 South Asia Gates Sr. AD Fellowship recipient award 50000 Europe (Including Iceland and Greenland) Gates Sr. AD Fellowship recipient award 50000 East Asia and the Pacific Gates Sr. AD Fellowship recipient award 50000 Europe (Including Iceland and Greenland) Gates Sr. AD Fellowship recipient award 50000 0 8 false false false false false false Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds AD DATA INITIATIVE MAINTAINS RECORDS INCLUDING GRANT PROPOSALS AND OTHER INFORMATION USED TO EVALUATE GRANTEES, GRANT AGREEMENTS, REPORTS FROM GRANTEES ON THEIR USE OF FUNDS AND PROJECT STATUS, AND FOLLOW-UP INFORMATION OBTAINED WHILE INVESTIGATING ANY AT-RISK GRANTS. ADDI'S SELECTION PROCESS MAY VARY, BUT IN ANY EVENT THE ORGANIZATION WILL ONLY MAKE A GRANT UPON A WRITTEN DETERMINATION THAT THE RECIPIENT IS A SUITABLE GRANTEE AND THE GRANT WILL FURTHER THE ORGANIZATION'S CHARITABLE PURPOSES. IF ADDI RECEIVES INFORMATION INDICATING THAT A DIVERSION OF GRANT FUNDS HAS TAKEN PLACE, ADDI WILL WITHHOLD ANY FURTHER FUNDS AND WILL INVESTIGATE. IF ADDI DETERMINES THAT A DIVERSION OCCURRED, IT WILL TAKE APPROPRIATE STEPS TO SECURE REPAYMENT AND WITHHOLD FUTURE PAYMENTS UNTIL IT IS SATISFIED FUTURE DIVERSIONS WON'T OCCUR AND THE GRANTEE IS TAKING APPROPRIATE PRECAUTIONS. Schedule F, Part I, Line 3 Method used to account for expenditures on org's financial statements EAST ASIA AND THE PACIFIC-Accrual; EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual Schedule F, Part II, Line 1 Method used to account for expenditures on org's financial statements EAST ASIA AND THE PACIFIC-Accrual; EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual; SOUTH ASIA-Accrual true Davos Alzheimer's Collaborative (DAC) 501(c)(3) 225000 Connecting with and supporting the sharing of data from multiple sites in low-middle income countries to more accurately represent the global population Georgia State University Research Foundation (GSU) 501(c)(3) 200000 Understanding the specific and unique challenges that investigators in other countries face when trying to make their data shareable with the larger community of researchers Sage Bionetworks 501(c)(3) 195000 Data platform interoperability Answer ALS 501(c)(3) 150000 Data platform interoperability American Heart Association (AHA) 501(c)(3) 125289 Data platform interoperability Alleo Labs Corporation 145 MISSION STREET SAN FRANCISCO CA 94105 C CORP 50000 Gates Sr. AD Fellowship recipient award State of Maryland University of Maryland Baltimore GOV 50000 Gates Sr. AD Fellowship recipient award University of California San Francisco (UCSF) 501(c)(3) 50000 Project start for GRIP Vision-Language Machine Learning (ML) Models for Brain Image Analysis Washington University in St Louis 501(c)(3) 50000 Gates Sr. AD Fellowship recipient award 8 1 Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds ADDI MAINTAINS RECORDS INCLUDING GRANT PROPOSALS AND OTHER INFORMATION USED TO EVALUATE GRANTEES, GRANT AGREEMENTS, REPORTS FROM GRANTEES ON THEIR USE OF FUNDS AND PROJECT STATUS, AND FOLLOW-UP INFORMATION OBTAINED WHILE INVESTIGATING ANY AT-RISK GRANTS. ADDI'S SELECTION PROCESS MAY VARY, BUT IN ANY EVENT THE ORGANIZATION WILL ONLY MAKE A GRANT UPON A WRITTEN DETERMINATION THAT THE RECIPIENT IS A SUITABLE GRANTEE AND THE GRANT WILL FURTHER THE ORGANIZATION'S CHARITABLE PURPOSES. IF ADDI RECEIVES INFORMATION INDICATING THAT A DIVERSION OF GRANT FUNDS HAS TAKEN PLACE, ADDI WILL WITHHOLD ANY FURTHER FUNDS AND WILL INVESTIGATE. IF ADDI DETERMINES THAT A DIVERSION OCCURRED, IT WILL TAKE APPROPRIATE STEPS TO SECURE REPAYMENT AND WITHHOLD FUTURE PAYMENTS UNTIL IT IS SATISFIED FUTURE DIVERSIONS WON'T OCCUR AND THE GRANTEE IS TAKING APPROPRIATE PRECAUTIONS. Form 990, Part III, Line 4a-4c Description of program services (Expenses $ 2,270,057 including grants of $ 550,000) Core to the AD Data Initiative's mission is the belief that data sharing and global collaboration will accelerate progress, seed innovation and lead to breakthroughs faster. AD Data Initiative is advancing a scientific strategy and investing in strategic initiatives to foster global collaboration, empower researchers and advance scientific discovery. These initiatives include: the William H. Gates Sr. Fellowship Program, Global Data Challenges, Scientific Driver Projects and Global Research Collaborations and Consortia. This scientific strategy and the AD Data Initiative's programmatic efforts are guided by an evolving list of priority research questions that have been shaped by insights from Advisory Board members, input from the AD research community and engagement with thought leaders in Alzheimer's and related dementias research. Form 990, Part III, Line 4a-4c Description of program services (Expenses $ 661,862 including grants of $) The AD Data Initiative amplifies its mission through communications and engagement: website, social media, conferences and events, partnership campaigns/communications and special projects. These efforts expand access to important datasets, broaden the use of data platforms and tools, and foster global collaboration to accelerate discovery. Form 990, Part VI, Line 6 Classes of members or stockholders ALZHEIMERS DISEASE DATA INITIATIVE INC HAS TWO MEMBERS. Form 990, Part VI, Line 7a Members or stockholders electing members of governing body THE MEMBERS OF THE ORGANIZATION HAVE THE RIGHT TO APPOINT AND REMOVE THE DIRECTORS OF THE ORGANIZATION. Form 990, Part VI, Line 7b Decisions requiring approval by members or stockholders MEMBERS HAVE THE POWER TO APPOINT SUCCESSOR MEMBERS. Form 990, Part VI, Line 11b Review of form 990 by governing body THE DRAFT RETURN IS REVIEWED BY THE FINANCE AND LEGAL FUNCTIONS AND APPROVED BY THE SECRETARY AND TREASURER. A FINAL VERSION OF THE FORM IS MADE AVAILABLE TO THE BOARD BEFORE FILING WITH THE IRS. Form 990, Part VI, Line 12c Conflict of interest policy THE CONFLICT OF INTEREST POLICY APPLIES TO DIRECTORS, OFFICERS AND KEY EMPLOYEES. THEY ARE REQUIRED TO DISCLOSE POTENTIAL CONFLICTS WITH RESPECT TO ANY TRANSACTION TO THE BOARD OF DIRECTORS, OR A COMMITTEE THEREOF, WHICH DETERMINES IF THERE IS A CONFLICT. IF THERE IS A CONFLICT, THE PERSON WITH THE CONFLICT MUST REFRAIN FROM ATTEMPTING TO INFLUENCE DECISIONS REGARDING THE TRANSACTION AND IS NOT PERMITTED TO PARTICIPATE IN DISCUSSIONS OF THE TRANSACTION EXCEPT TO RESPOND TO REQUESTS FOR INFORMATION ABOUT THE TRANSACTION. DIRECTORS, OFFICERS AND KEY EMPLOYEES ARE REQUIRED TO ANNUALLY COMPLETE STATEMENTS DISCLOSING FAMILY MEMBERS AND RELATED ENTITIES WHO MAY DO BUSINESS WITH THE ORGANIZATION. THESE STATEMENTS ARE REVIEWED BY THE ORGANIZATION'S LEGAL COUNSEL AND ARE AVAILABLE FOR INSPECTION BY MEMBERS OF THE BOARD OF DIRECTORS. Form 990, Part VI, Line 19 Required documents available to the public These documents are not available for public inspection Form 990, Part IX, Line 11g Other Fees Other - Total Expense: 1847285, Program Service Expense: 1847285, Management and General Expenses: , Fundraising Expenses: ; GLOBAL RESEARCH PLATFORMS LLC 4110 CARILLON POINT KIRKLAND WA 98033 853776266 PLATFORM MANAGEMENT DE 5850000 1250141 AD DATA INITIATIVE BREAKTHROUGH ENERGY CATALYST FOUNDATION PO BOX 563 KIRKLAND WA 98083 853677542 SCIENTIFIC DE 501(c)(3) 7 NA true BREAKTHROUGH ENERGY ACTION INC PO BOX 563 KIRKLAND WA 98083 853694865 ADVOCACY DE 501(c)(4) NA true BREAKTHROUGH ENERGY FOUNDATION PO BOX 563 KIRKLAND WA 98083 853672460 SCIENTIFIC DE 501(c)(3) 7 NA true false false false false false false false false false false false false false false false false false false false