2025-11-10T14:48:34-06:00 2025-06-30 812950760 SAX LLP 1040 AVENUE OF THE AMERICAS-16TH FL NEW YORK NY 10018 990 2024-07-01 135650955 HEMOPHILIA ASSOCIATION OF NEW YORK INC HEMO 2126825510 131 WEST 33RD STREET 11D NEW YORK NY 10001 ELIZABETH CEDENO EXECUTIVE DIRECTOR 2126825510 2025-11-10 1 0 MARQUS WHITE P00053187 2126857000 2025-11-10 2024 2025-03-06 01:10:19Z ELIZABETH CEDENO 131 WEST 33RD STREET 11D NEW YORK NY 10001 780573 0 X WWW.HEMOPHILIANY.COM X 1958 NY FUND CURES FOR HEMOPHILIA AND RELATED CONDITIONS. 15 15 6 15 0 0 2234392 384466 0 0 60894 46831 10303 9708 2305589 441005 242609 104180 0 0 476189 502706 0 0 23183 402659 353355 1121457 960241 1184132 -519236 4596219 4358738 107373 224150 4488846 4134588 X TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS. 0 0 619716 102894 MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC FAMILIES BASED ON NEED. DURING 2024-2025, 65% OF STAFF TIME/EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2024-2025, 1013 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 13% OF PATIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $40,226. GROUP MEETINGS AND PATIENTS EVENTS WERE CONDUCTED THROUGHOUT THE YEAR. (CONTINUED ON SCHEDULE O)HIGHLIGHTS INCLUDE A TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A WOMEN'S RETREAT. 2126 986 THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS ASSOCIATED WITH HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2024-2025, THE ASSOCIATION MADE $986 IN PAYMENTS TOWARD THE RESEARCH GRANT AWARDED IN FY 2022-2023. 1797 300 IN FISCAL YEAR 2024-2025, THE ASSOCATION SUPPORTED BLEEDNG DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS. 623639 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 1 6 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 15 15 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 NY X ELIZABETH CEDENO EXECUTIVE DIRECTOR 2126825510 131 WEST 33RD STREET 11D NEW YORK NY 10001 MARIAM VOUTSIS CHAIRMAN OF THE BOARD 2.00 X X 0 0 0 EILEEN MARGOLIES TRUSTEE 2.00 X 0 0 0 EDWARD G ROGOFF PHD TRUSTEE 2.00 X 0 0 0 MARK K SVENNINGSON TRUSTEE 2.00 X 0 0 0 JEFFREY ZACHARIA TRUSTEE 2.00 X 0 0 0 JOANA BAQUERO TRUSTEE 2.00 X 0 0 0 THEODORE BUNIN TRUSTEE 2.00 X 0 0 0 BRIAN EGAN TRUSTEE 2.00 X 0 0 0 ROBERT M GREER TRUSTEE 2.00 X 0 0 0 MARK KOVARIK TRUSTEE 2.00 X 0 0 0 JOSEPH MUGFORD TRUSTEE 2.00 X 0 0 0 MAGGI PACK TRUSTEE 2.00 X 0 0 0 AUREO C PINTO JR TRUSTEE 2.00 X 0 0 0 CHRISTOPHER N TOUSSAINT TRUSTEE 2.00 X 0 0 0 ALEJANDRO BAQUERO TRUSTEE 2.00 X 0 0 0 ELIZABETH CEDENO EXECUTIVE DIRECTOR-BEGINNING 1/1/25 40.00 X 88698 0 11688 LINDA E MUGFORD EXECUTIVE DIRECTOR-THRU 12/31/24 24.00 X 168448 0 34254 257146 0 45942 1 0 1 0 0 209842 174624 384466 44365 44365 243496 241030 2466 2466 2466 98538 209842 98538 0 OTHER REVENUE 900099 9708 9708 9708 441005 0 0 56539 63954 63954 40226 40226 176078 114891 55007 6180 243550 158916 76085 8549 25171 16424 7863 884 24977 16299 7802 876 32930 21487 10287 1156 109700 109700 12884 12884 3267 2131 1021 115 25338 17141 7369 828 5062 3442 1456 164 16167 15044 876 247 1992 1376 601 15 28389 18524 8869 996 9283 6057 2900 326 EVENT 104322 104322 PRINTING AND PUBLICATIO 19757 14998 3969 790 MISCELLANEOUS 8858 3034 4056 1768 POSTAGE 5326 3408 1735 183 3010 1965 939 106 960241 623639 313419 23183 31538 137714 13159 13080 1693923 1292275 25 246 89215 42853 1173833 365357 835342 808476 1933017 2064094 4596219 4358738 104123 166150 3250 58000 107373 224150 X 2723911 2891610 1764935 1242978 4488846 4134588 4596219 4358738 -519236 164978 0 X 1 X 0 1 0 X 311772 392340 507967 2234392 384466 3830937 311772 392340 507967 2234392 384466 3830937 20294 3810643 29338 63713 59726 44099 44365 241241 256441 256441 24 4012 10113 10303 9708 34160 4362779 0.87340 0.91760 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 0 0 0 0 1 2200 0 0 2200 0 PART II-B, LINE 1: HOURS ALLOCATED FOR THE EXECUTIVE DIRECTOR AND CLIENT SUPPORT ASSOCIATE IN CONDUCTING LOBBYING ACTIVITIES, SPECIFICALLY ATTENDING "ALBANY DAYS" ADVOCATING ON BEHALF OF PATIENTS FOR SPECIFIC HEALTHCARE BILLS BENEFITING THOSE WITH BLEEDING DISORDERS. 95000 95000 1000463 312601 687862 25666 4470 21196 13836 9418 4418 38869 38869 0 808476 X PART X, LINE 2: THE ORGANIZATION RECOGNIZES THE EFFECT OF INCOME TAX POSITIONS ONLY IF THOSE POSITIONS ARE MORE LIKELY THAN NOT OF BEING SUSTAINED. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION HAD NO UNCERTAIN TAX POSITIONS THAT WOULD REQUIRE FINANCIAL STATEMENT RECOGNITION OR DISCLOSURE. THE ORGANIZATION IS NO LONGER SUBJECT TO EXAMINATIONS BY THE APPLICABLE TAXING JURISDICTIONS FOR THE PERIODS PRIOR TO JUNE 30, 2022. GREER GOLF 215380 116842 98538 2450 96088 PATIENT EVENT 93000 93000 1 308380 209842 98538 2450 96088 98538 0 1 MATTHEW L GREER CHILDREN'S FUND 860 NEWTON STREET CHESTNUT HIL MA 02467 264409185 501 C 3 62668 0 TO PROVIDE MEDICAL CARE AND ACADEMIC SUPPORT TO CHILDREN IMPACTED BY CRITICAL ILLNESS 1 PATIENT'S EMERGENCY ASSISTANCE 34 7626 MEDICAL ASSISTANCE 52 2560 CAMP ASSISTANCE FOR YOUTH 7 2380 SCHOLARSHIPS 15 27660 PART I, LINE 2: THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO SUBMIT PERIODIC REPORTS DETAILING THE USE OF GRANT FUNDS TO ENSURE THAT GRANTS ARE UTILIZED FOR INTENDED PURPOSES. ALL REQUESTS ARE GRANTED AFTER THE SELECTION COMMITTEE REVIEWS THE APPLICATIONS. ALL GRANT EXPENDITURES MUST BE RELATED TO BLEEDING DISORDERS/MEDICAL CONDITIONS. INDIVIDUALS RECEIVING DIRECT PATIENT ASSISTANCE MUST PROVIDE DOCUMENTATION/PROOF OF FINANCIAL HARDSHIP. X X X 0 0 0 0 0 0 0 0 0 LINDA E MUGFORD EXECUTIVE DIRECTOR-THRU 12/31/24 168448 0 0 0 0 0 16946 0 17308 0 202702 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 -EXECUTIVE DIRECTOR LINDA MUGFORD AND BOARD TRUSTEE JOSEPH MUGFORD HAVE A FAMILY RELATIONSHIP. -BOARD TRUSTEE BRIAN EGAN AND BOARD CHAIR MARIAM VOUTSIS HAVE A FAMILY RELATIONSHIP. - BOARD TRUSTEE JOHANNA BAQUERO AND ALEJANDRO BAQUERO HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR AND A COMPLETE COPY OF THE RETURN IS PROVIDED TO THE BOARD OF TRUSTEES PRIOR TO SUBMISSION TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY WHICH COVERS OFFICERS, TRUSTEES, COMMITTEE MEMBERS, SENIOR STAFF MEMBERS, AND CONSULTANTS REQUIRING THEM TO DISCLOSE ANY POSSIBLE CONFLICTS TO THE BOARD OF TRUSTEES (OR THE COMMITTEE OF THE ASSOCIATION). THIS IS DONE ON AN ANNUAL BASIS AND AS ANY POTENTIAL CONFLICTS ARISE. IT IS THE RESPONSIBILITY OF THE BOARD OF TRUSTEES TO DETERMINE WHETHER A CONFLICT OF INTEREST EXISTS, AND TO REVIEW CONFLICTS ONCE DETERMINED. ANY PERSON WITH A CONFLICT IS RECUSED FROM VOTING ON THE MATTER, AND PARTICIPATING IN FINAL DELIBERATIONS. SUCH MATTERS ARE DOCUMENTED IN THE MINUTES OF THE BOARD OF TRUSTEES. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION OF THE EXECUTIVE DIRECTOR IS DETERMINED BY THE BUDGET COMMITTEE WHO PERFORMS A MARKET REVIEW OF EXECUTIVE COMPENSATION USING THE FORM 990S OF SIMILAR ORGANIZATIONS AND COMPENSATION SURVEYS. BUDGET COMMITTEE REVIEWS AND MAKES RECOMMENDATIONS TO THE BOARD FOR BOARD VOTE. THE BOARD APPROVES THE COMPENSATION AND THE APPROVAL IS DOCUMENTED IN THE MINUTES OF THE MEETING. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S FORM 990 IS MADE AVAILABLE FOR PUBLIC INSPECTION AS REQUIRED UNDER SECTION 6104 OF THE INTERNAL REVENUE CODE. IT IS POSTED ON THE NEW YORK STATE ATTORNEY GENERAL WEBSITE, GUIDESTAR.ORG AND OTHER SIMILAR TYPES OF WEBSITES. IN ADDITION, THE FORM 990, GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST AT 131 WEST 33RD STREET, SUITE 11D, NEW YORK, NY 10001 OR BY CALLING THE ORGANIZATION DIRECTLY AT (212) 682-5510.