2025-11-07T11:58:58-06:00 2024-12-31 161131146 BONADIO & CO LLP 171 SULLYS TRAIL PITTSFORD NY 14534 990 2024-01-01 263275794 DAYSTAR FOR MEDICALLY FRAGILE CHILDREN D/B/A DAYSTAR KIDS DAYS 5853856287 700 LAC DE VILLE BOULEVARD ROCHESTER NY 14618 CAROL DEMOULIN INTERIM CHIEF EXECUTIVE OFFICER 5853856287 2025-11-07 1 0 CHELSEY WYANT P01336644 5853811000 2025-11-06 2024 2025-03-06 01:10:19Z DAYSTAR KIDS CAROL DEMOULIN 700 LAC DE VILLE BOULEVARD ROCHESTER NY 14618 10510768 0 X WWW.DAYSTARKIDS.ORG X 2008 NY SEE SCHEDULE O. 20 20 57 20 0 0 1629781 7361855 3065062 3004424 90626 139894 -5359 -69922 4780110 10436251 0 0 0 0 2956427 2902649 0 0 135252 1126162 1098888 4082589 4001537 697521 6434714 10777562 17434174 1041253 892756 9736309 16541418 DAYSTAR KIDS PROMOTES THE HEALTH CARE, THERAPEUTIC, EDUCATIONAL, AND SOCIAL GOALS FOR CHILDREN WHOSE DEVELOPMENT IS DISRUPTED BY HOSPITALIZATION AND/OR TREATMENT FOR THEIR COMPLEX HEALTH CARE CONDITIONS. 0 0 2458481 2402469 DAYSTAR KIDS PROVIDES YEAR-ROUND, FULL-DAY SPECIALIZED PEDIATRIC AND DEVELOPMENTAL SERVICES TO CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS RANGING IN AGE FROM 4 MONTHS TO 5 YEARS OLD AND EMPOWERS CHILDREN WITH THE SKILLS THEY NEED TO SUCCESSFULLY ENTER KINDERGARTEN WITH THEIR PEERS. IN 2024, DAYSTAR KIDS PROVIDED SKILLED PEDIATRIC NURSING SERVICES, EARLY CHILDHOOD AND SPECIAL EDUCATION PROGRAMS, HEALTH CARE COORDINATION, FAMILY SUPPORT SERVICES, AND RELATED THERAPIES ONSITE TO 60 ENROLLEES FROM 15 SCHOOL DISTRICTS WITHIN 5 COUNTIES IN THE GREATER ROCHESTER AREA. 205812 205812 DAYSTAR KIDS' FAMILY SUPPORT SERVICES PROGRAM IS SUPPORTED BY NEW YORK STATE OFFICE FOR PEOPLE WITH WITH DEVELOPMENTAL DISABILITIES AND PROVIDES ESSENTIAL CARE COORDINATION SERVICES, TRANSITIONAL SUPPORT SERVICES, PREVENTIVE HEALTHCARE SERVICES, HEALTHCARE NAVIGATION ASSISTANCE, FAMILY ADVOCACY, AND ESSENTIAL EDUCATION AND TRAINING SERVICES TO UP TO 50 FAMILIES ANNUALLY WITH AN INFANT OR CHILD WITH COMPLEX HEALTHCARE CONDITIONS AND DEVELOPMENTAL DISABILITIES. DURING 2024, DAYSTAR SERVED 57 FAMILIES WHO WERE APPROVED FOR THIS SERVICE, EMPOWERING THEM TO EFFECTIVELY ADVOCATE AND MANAGE THEIR CHILD'S COMPLEX HEALTH CARE, SOCIAL-EMOTIONAL, AND EDUCATIONAL GOALS, WHILE SUPPORTING THEIR FAMILY'S NEED FOR ADDITIONAL CARE COORDINATION SUPPORTS. 396143 396143 DAYSTAR KIDS' EARLY INTERVENTION AND PRESCHOOL SPECIAL SERVICES PROGRAM CONSISTS OF A DEDICATED TEAM OF RELATED PROVIDERS EXPERT IN WORKING WITH CHILDREN WITH MEDICAL COMPLEXITY TO PROVIDE ASSESSMENTS, EVALUATION SERVICES, AND THERAPY SERVICES. THIS PROGRAM IMPROVES SERVICE INTEGRATION, LINKING THE AGENCY'S CURRICULUM, THERAPEUTIC GOALS, AND HEALTH CARE DIRECTIVES TO SUPPORT THE INDIVIDUALIZED NEEDS OF EACH ENROLLEE, AND CREATES UNPARALLELED CONTINUITY OF CARE BY MINIMIZING PATIENT TRANSITIONS AND DISRUPTION OF SERVICES. DURING 2024, DAYSTAR PROVIDED THESE SERVICES TO 62 ENROLLEES. 3060436 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 1 0 1 1 0 0 0 0 0 0 0 0 1 12 0 1 57 1 0 0 0 0 0 0 0 0 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NY X INSERO ADVISORS LLC 5856979643 300 CLINTON SQUARE ROCHESTER NY 14604 KIM CONDON CHIEF EXECUTIVE OFFICER 40.00 X 151848 0 31955 LISA DIDOMENICO CHIEF PROGRAM OFFICER 40.00 X 148250 0 17031 NICOLE VIGGIANO CHIEF HUMAN RESOURCES OFFICER 40.00 X 124462 0 1369 FREDRICK MOORE CHIEF FINANCIAL OFFICER 40.00 X 50384 0 3097 DIANE TUCKER CHIEF FINANCIAL OFFICER 40.00 X 18127 0 5041 MIKE BUCKLEY PRESIDENT 1.00 X X 0 0 0 MICHAEL SCHWABL VICE PRESIDENT 1.00 X X 0 0 0 STEVE MCCLUSKI TREASURER 1.00 X X 0 0 0 PHIL CASTLEBERRY SECRETARY 1.00 X X 0 0 0 ANDREW PLUTA BOARD MEMBER 1.00 X 0 0 0 SR BETH SUTTER BOARD MEMBER 1.00 X 0 0 0 MIKE HESS BOARD MEMBER 1.00 X 0 0 0 KATHY RIDEOUT EDD PNP-BC FNAP BOARD MEMBER 1.00 X 0 0 0 ADAM SMITH BOARD MEMBER 1.00 X 0 0 0 GABRIEL CHODAK BOARD MEMBER 1.00 X 0 0 0 LINDSAY PRICHARD FOX BOARD MEMBER 1.00 X 0 0 0 MASON GROWER IV BOARD MEMBER 1.00 X 0 0 0 AMBER FOSTER BOARD MEMBER 1.00 X 0 0 0 JESSE HAMLIN BOARD MEMBER 1.00 X 0 0 0 493071 0 58493 3 0 1 0 0 321230 89897 6950728 1035387 7361855 STATE AND LOCAL FUNDING 624410 3004424 3004424 3004424 139894 139894 3165 321230 74517 -71352 -71352 OTHER 900099 1430 1430 1430 10436251 3004424 0 69972 260451 260451 2216609 1993787 167085 55737 204100 198549 5551 221489 182444 33945 5100 39869 39869 22570 22570 294957 142561 118796 33600 50724 26220 24504 13367 1291 11704 372 80876 67903 12636 337 98067 46833 50702 532 9192 8089 1011 92 85873 75568 9446 859 49100 43208 5401 491 REPAIRS AND MAINTENANCE 107426 94535 11817 1074 RECRUITMENT AND TRAININ 100355 94955 5400 PAYROLL SERVICE FEE 43958 35964 6989 1005 SUPPLIES 37070 37070 65484 37679 21807 5998 4001537 3060436 805849 135252 377715 65789 264555 33983 4493490 313454 264811 21255 17500 6114774 1045224 5009319 5069550 4791264 7489051 10777562 17434174 149110 131491 555790 500000 336353 261265 1041253 892756 X 6490726 8243096 3245583 8298322 9736309 16541418 10777562 17434174 6434714 370395 0 X X 0 1 X 1 0 X 367867 5374873 1092913 1048322 7361855 15245830 1418176 1990748 2622599 3065062 3004424 12101009 1786043 7365621 3715512 4113384 10366279 27346839 15862 29706 101621 191836 789263 1128288 0 15862 29706 101621 191836 789263 1128288 26218551 332 103781 118831 191830 139894 554668 332 103781 118831 191830 139894 554668 1786375 7469402 3834343 4305214 10506173 27901507 0.93970 0.95880 0.01990 0.02120 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3245583 57000 377249 3679832 2793708 451875 3245583 3275380 -481672 2793708 2970000 305380 3275380 1.00000 0 0 190573 190573 2270312 731854 1538458 240384 215809 24575 3413505 97561 3315944 5069550 10881163 370395 74517 444912 10436251 0 10436251 4076054 74517 74517 4001537 0 4001537 PART V, LINE 4: ENDOWMENT FUNDS ARE INTENDED TO SUPPORT FUTURE PROGRAM INITIATIVES IN ACCORDANCE WITH OUR ENDOWMENT SPENDING POLICY. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 74,517. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 74,517. DERBY 324395 321230 3165 74517 324395 321230 3165 74517 74517 -71352 X X 0 0 0 0 0 0 0 0 0 KIM CONDON CHIEF EXECUTIVE OFFICER 151848 0 0 0 0 0 7907 0 24048 0 183803 0 0 0 LISA DIDOMENICO CHIEF PROGRAM OFFICER 148250 0 0 0 0 0 7460 0 9571 0 165281 0 0 0 PART I, LINE 3 THE EXECUTIVE COMMITTEE OF THE BOARD CONDUCTS A COMPENSATION STUDY EVERY FEW YEARS AS PART OF THE DETERMINATION OF THE CEO'S COMPENSATION, WITH ANNUAL "COST OF LIVING" ADJUSTMENTS IN THE YEARS WHEN A STUDY IS NOT CONDUCTED. MIKE SCHWABL BOARD MEMBER 46091 MARKETING 0 X 1 1035387 FAIR MARKET VALUE 0 1 0 PART I, COLUMN (B): NUMBER OF CONTRIBUTORS FORM 990, PART I, LINE 1: PEDIATRIC RESPITE AND DEVELOPMENTAL SERVICES FOR CHILDREN WITH COMPLEX HEALTH CARE CONDITIONS. SERVICES INCLUDE PEDIATRIC NURSING SERVICES; EARLY CHILDHOOD EDUCATIONAL ENRICHMENT GROUPS; INDIVIDUALIZED SPECIAL EDUCATION SERVICES; PRESCHOOL AND/OR EARLY INTERVENTION THERAPIES; AND FAMILY SUPPORT SERVICES FOR CHILDREN AGES 4 MONTHS TO 5 YEARS OF AGE. DAYSTAR KIDS SUPPORTS UP TO 60 ENROLLEES ANNUALLY, AND IS THE ONLY FULL-DAY PROGRAM AVAILABLE TO CHILDREN WHO HAVE COMPLEX MEDICAL CONDITIONS; REQUIRE ONGOING NURSING SUPERVISION AND CARE, AND/OR RELY ON MEDICAL DEVICES TO COMPENSATE FOR LIFE-SUSTAINING ACTIVITIES. DAYSTAR KIDS' INNOVATIVE PROGRAM HAS BEEN RECOGNIZED BY NYS OFFICE OF CHILDREN AND FAMILY SERVICES AS A "BEST PRACTICES MODEL AND IS LAUDED AS A COST-EFFECTIVE ALTERNATIVE TO HOME-BASED HEALTH CARE SERVICES; DAYSTAR KIDS IS RECOGNIZED AS A PROVEN PREVENTION STRATEGY TO MINIMIZE HOSPITALIZATION, AND AN ECONOMIC CATALYST, HELPING FAMILIES PRESERVE THEIR FINANCIAL INDEPENDENCE AND MAINTAIN EMPLOYMENT. FORM 990, PART VI, SECTION B, LINE 11B THE DRAFT 990 WILL BE PRESENTED AT A MEETING OF THE FINANCE AND EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS; THE COMMITTEE WILL BE REQUIRED TO REVIEW AND A MOTION TO APPROVE THE FORM 990 WILL BE PRESENTED. IF THERE ARE CHANGES RECOMMENDED, STAFF WILL MAKE THE REQUESTED CHANGES AND PRESENT THEM TO THE COMMITTEE FOR ITS FINAL APPROVAL. ONCE APPROVED BY THE COMMITTEE, THE FORM 990 WILL BE PRESENTED TO THE BOARD OF DIRECTORS AT THE NEXT MEETING. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD DELEGATED POWER SHALL ANNUALLY SIGN A STATEMENT WHICH AFFIRMS SUCH PERSON : HAS RECEIVED A COPY OF THE CONFLICT OF INTEREST POLICY, HAS READ AND UNDERSTANDS THE POLICY, HAS AGREED TO COMPLY WITH THE POLICY, AND UNDERSTANDS THE AGENCY'S CHARITABLE MISSION. BOARD MEMBERS ARE REQUIRED TO FILE A CONFLICT OF INTEREST DISCLOSURE FORM ANNUALLY; STAFF ARE TRAINED ANNUALLY ON THE AGENCY'S CORPORATE COMPLIANCE AND CONFLICT OF INTEREST POLICIES, AND ACTIVITIES ARE MONITORED QUARTERLY THROUGH THE AGENCY'S CORPORATE COMPLIANCE REVIEW COMMITTEE. FORM 990, PART VI, SECTION B, LINE 15 MEMBERS OF THE AGENCY'S FINANCE AND EXECUTIVE COMMITTEE REVIEW ANNUAL EXECUTIVE SALARY LEVELS FOR ITS DIRECTORS AND ARE REQUIRED TO ANNUALLY REVIEW AND VOTE UPON THESE POSITIONS WITHIN THE ANNUAL OPERATING BUDGET. IN ADDITION, THE AGENCY CONTRACTS WITH PAYCHEX, A HUMAN RESOURCES AND PAYROLL MANAGEMENT FIRM. AS PART OF THE AGENCY'S ANNUAL CONTRACT, PAYCHEX PROVIDES DAYSTAR KIDS WITH A DEDICATED HR SPECIALIST, WITH WHOM THE AGENCY CONSULTS ON SUCH MATTERS. ADDITIONALLY, MEMBERS OF THE FINANCE/EXECUTIVE COMMITTEE ARE PROVIDED WITH DATA FROM THE ANNUAL NONPROFIT ORGANIZATIONS SALARY AND BENEFITS SURVEY FROM NY COUNCIL OF AGENCY EXECUTIVES FOR COMPARATIVE DATA. FORM 990, PART VI, SECTION C, LINE 19 DAYSTAR KIDS' GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE POSTED AT RECEPTION AND ARE AVAILABLE ONSITE UPON REQUEST. FORM 990, PART XII, LINE 2C: NO CHANGES FROM THE PRIOR YEAR.