2025-10-28T09:57:16-05:00 2024-12-31 871353108 EISNER ADVISORY GROUP LLC 733 THIRD AVENUE NEW YORK NY 100172703 990 2024-01-01 900658125 HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP HUNT 2122421968 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 AMY GRAY PRESIDENT AND CEO 2122421968 2025-10-28 1 0 WILLIAM EPSTEIN P01307171 2129498700 2024 2025-03-06 01:10:19Z AMY GRAY 505 EIGHTH AVENUE SUITE 1402 NY NY 10018 3589900 1 1 9201 X WWW.HDSA.ORG X 1986 NY DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 17 17 36 500 0 0 3222635 3205417 0 0 28 0 29419 234 3252082 3205651 5436 12638 0 0 0 0 0 0 255643 3039047 3465041 3044483 3477679 207599 -272028 890427 610639 29923 22163 860504 588476 HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES 0 0 3037638 12638 PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 107757 COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES. 76418 EDUCATION - PROVIDES INFORMATION AND EDUCATION THROUGH PUBLICATION AND DISTRIBUTION OF NEWSLETTERS, BROCHURES AND SCIENCE UPDATES. 3221813 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 X 0 0 36 0 0 0 0 0 0 1 1 0 1 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X AMY GRAY 2122421968 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 VICTOR SUNG MD PAST CHAIR 6.00 3.00 X X 0 0 0 TERESA SRAJER CHAIR 6.00 3.00 X X 0 0 0 ANGELA ALLEN TREASURER 6.00 3.00 X X 0 0 0 JENNE COLER-DARK CHAIR ELECT 6.00 3.00 X X 0 0 0 JAY HUGHES SECRETARY 6.00 3.00 X X 0 0 0 KAMRAN ALAM TRUSTEE 6.00 3.00 X 0 0 0 JEFFREY BROWN TRUSTEE 6.00 3.00 X 0 0 0 JEFF CARROLL TRUSTEE 6.00 3.00 X 0 0 0 MARK COE TRUSTEE 6.00 3.00 X 0 0 0 ERIN FURR-STIMMING MD TRUSTEE 6.00 3.00 X 0 0 0 BETH HOFFMAN TRUSTEE 6.00 3.00 X 0 0 0 JONATHAN KLEIN ESQ TRUSTEE 6.00 3.00 X 0 0 0 KELSEY PORTER TRUSTEE (THRU 6/2024) 6.00 3.00 X 0 0 0 DOMINIQUE THOMAS TRUSTEE 6.00 3.00 X 0 0 0 LESLIE M THOMPSON PHD TRUSTEE 6.00 3.00 X 0 0 0 VICKI WHEELOCK MD TRUSTEE 6.00 3.00 X 0 0 0 AMBER SOUTHWELL PHD TRUSTEE 6.00 3.00 X 0 0 0 CHRISTOPHER DECESARIS TRUSTEE 6.00 3.00 X 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFF (THRU 7/12/2024) 35.00 3.00 X 281981 0 34155 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 35.00 3.00 X 286482 0 31727 ARIK JOHNSON CHIEF MISSION OFFICER 35.00 3.00 X 218271 0 14571 JAMISON SKALA DIRECTOR, NATIONAL DEVELOPMENT 35.00 3.00 X 190938 0 13229 DEBORAH BOYD REGIONAL DEVELOPMENT DIRECTOR 35.00 3.00 X 120084 0 22631 REBECCA CHAN CONTROLLER 35.00 3.00 X 120050 0 44507 JESSICA MARSOLEK ASSISTANT DIRECTOR, MISSION PROGRAMS 35.00 3.00 X 111772 0 19744 NICHOLE MENDOZA REGIONAL DEVELOPMENT OFFICER PACIFIC WEST 35.00 3.00 X 102612 0 21541 1432190 0 202105 8 0 1 0 0 56168 2305996 843253 143242 3205417 384249 2305996 384249 0 MISCELLANEOUS 900099 234 234 234 3205651 0 0 234 X 12638 12638 920 880 40 31489 26552 4937 2580 2580 97463 91805 5658 2693053 2693053 300 300 445 384 61 BANK AND CREDIT CARD FE 59438 311 59127 PRINTING & PUBLICATIONS 34423 5414 29009 POSTAGE AND SHIPPING 21704 6015 15689 TELEPHONE 4585 4520 65 518641 377361 158 141122 3477679 3221813 223 255643 821471 580653 53062 4500 14869 24761 1500 775 1025 725 890427 610639 28624 21169 1299 994 29923 22163 X 737522 455277 122982 133199 860504 588476 890427 610639 -272028 0 X 0 1 X 1 0 X 1930908 2867098 3567726 3222635 3205417 14793784 1930908 2867098 3567726 3222635 3205417 14793784 14793784 3 28 31 1259 89 74 29419 234 31075 14824890 0.99790 0.99390 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2020 AMOUNT: $ 1,259. 2021 AMOUNT: $ 89. 2022 AMOUNT: $ 74. 2023 AMOUNT: $ 29,419. 2024 AMOUNT: $ 234. 1500 775 725 725 X 10686999 10174401 10174401 512598 2693053 2693053 3205651 12186426 11401800 11401800 784626 2693053 2693053 3477679 PART X, LINE 2: THE SOCIETY FOLLOWS THE PROVISIONS OF THE FASB'S ASC TOPIC 740, INCOME TAXES, AS IT RELATES TO ACCOUNTING AND REPORTING FOR UNCERTAINTY IN INCOME TAXES. BECAUSE OF THE SOCIETY'S GENERAL TAX-EXEMPT STATUS, MANAGEMENT BELIEVES ASC TOPIC 740 HAS NOT HAD, AND IS NOT ANTICIPATED TO HAVE, A MATERIAL IMPACT ON THE SOCIETY'S FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: REVENUES FROM HDSA NATIONAL 10,174,401. PART XI, LINE 4B - OTHER ADJUSTMENTS: GRANT REVENUE FROM HDSA NATIONAL 2,693,053. PART XII, LINE 2D - OTHER ADJUSTMENTS: EXPENSES FROM HDSA NATIONAL 11,401,800. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT EXPENSES FROM HDSA NATIONAL 2,693,053. WALKS 1359284 1271997 87287 1672 23599 9730 5820 46466 GALAS 634895 440584 194311 10439 25555 80673 17699 59945 16 696066 593415 102651 2369 79302 5348 2963 12669 2690245 2305996 384249 14480 128456 95751 26482 119080 384249 0 X X X X 0 0 0 0 0 0 0 0 0 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 286482 0 0 0 0 0 14479 0 17248 0 318209 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFF (THRU 7/12/2024) 281981 0 0 0 0 0 11931 0 22224 0 316136 0 0 0 ARIK JOHNSON CHIEF MISSION OFFICER 218271 0 0 0 0 0 10913 0 3658 0 232842 0 0 0 JAMISON SKALA DIRECTOR, NATIONAL DEVELOPMENT 190938 0 0 0 0 0 9734 0 3495 0 204167 0 0 0 REBECCA CHAN CONTROLLER 120050 0 0 0 0 0 6742 0 37765 0 164557 0 0 0 PART I, LINE 3 COMPENSATION PRACTICES - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD. X 0 SEE SUPPL. INFO X DONATED GOODS 928 143242 COMPARABLE SALES 0 1 1 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS ARE BASED ON THE NUMBER OF ITEMS RECEIVED. PART I, LINE 32B: THE SOCIETY IS THE RECIPIENT OF THE PROCEEDS OF SALES OF VEHICLE DONATIONS THROUGH AN INTERMEDIARY ORGANIZATION. FORM 990, PART V, STATEMENTS REGARDING OTHER IRS FILINGS AND TAX COMPLIANCE LINE 1A, B, AND C THE FORMS 1096 AND RELATED FORMS 1099 ARE FILED BY THE NATIONAL ORGANIZATION UNDER EIN #13-3349872. THE GROUP RETURN FOR AFFILIATES DID NOT HAVE ANY REQUIREMENT TO FILE FORM 1096. LINES 2A AND B: THE NATIONAL OFFICE OF THE SOCIETY CURRENTLY EMPLOYS 36 INDIVIDUALS. PAYROLL AND BENEFITS ARE PROCESSED THROUGH A PROFESSIONAL EMPLOYER ORGANIZATION (PEO) WHICH FILES THE FORM W-3 ON THE NATIONAL OFFICE OF THE SOCIETY'S BEHALF UNDER THE PEO'S FEDERAL EIN#. THEREFORE THE SOCIETY DOES NOT FILE A FORM W-3. THERE ARE NO EMPLOYEES OF THE CHAPTER AFFILIATES. FORM 990, PART VI, SECTION B, LINE 11B MANAGEMENT THOROUGHLY REVIEWS AND SUBSEQUENTLY PROVIDES AN ELECTRONIC DRAFT COPY OF FORM 990 TO THE GOVERNING BODY FOR REVIEW BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS AND TRUSTEES ARE REQUESTED TO ANNUALLY SIGN DOCUMENTATION. FORM 990, PART VI, SECTION B, LINE 15 OFFICER COMPENSATION - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION OF THE BOARD. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS BY-LAWS, ARTICLES OF INCORPORATION, IRS FORM 1023, ANNUAL REPORTS, AUDITED FINANCIAL STATEMENTS, IRS FORM 990 DOCUMENTS, CONFLICT OF INTEREST POLICY AND PRIVACY POLICY AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 90, PART IX, STATEMENT OF FUNCTIONAL EXPENSES, LINE 21: PAYMENTS TO AFFILIATES REPRESENT THE TOTAL AMOUNT PAID FROM THE CHAPTERS TO THE NATIONAL OFFICE. HUNTINGTON'S DISEASE SOCIETY OF AMERICA 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 133349872 PROG SRVC NY 501(C)(3) LINE 7 N/A 0 0 1 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0