2025-10-16T15:59:17-05:00 2025-06-30 871353108 EISNER ADVISORY GROUP LLC 130 NORTH 18TH STREET SUITE 3000 PHILADELPHIA PA 191032757 990 2024-07-01 412073220 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ASSO 2675147221 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 2675147221 2025-10-14 1 0 HELEN M MARTIN P01330899 2158818800 2024 2025-03-06 01:10:19Z SUSAN L-J DICKINSON 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 24754249 0 X WWW.THEAFTD.ORG X 2002 PA PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES (CONT'D IN SCH O)AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 21 21 64 605 0 0 12361972 12345385 2204 302568 899785 1935108 -124841 -162507 13139120 14420554 2986505 1942719 0 0 5424380 6363009 70000 75000 1633555 3046054 3179067 11526939 11559795 1612181 2860759 53971673 60143025 3390530 3243046 50581143 56899979 X PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 0 0 3809685 1657793 439004 RESEARCH - EACH YEAR AFTD INVESTS IN THE SCIENCE THAT WILL DRIVE DISCOVERY AND DEVELOPMENT OF ACCURATE DIAGNOSTICS AND THE FIRST THERAPEUTICS FOR FTD. TO THAT END, AFTD AWARDED EIGHT GRANTS DURING FY25, INCLUDING THREE PILOT GRANTS AWARDED THROUGH THE AFTD PATHWAYS FOR HOPE PILOT GRANT PROGRAM.AFTD DELIVERED THREE AWARDS THROUGH THE ACCELERATING DRUG DISCOVERY PROGRAM IN COLLABORATION WITH ADDF. DR. JEFFREY ROTHSTEIN OF JOHNS HOPKINS UNIVERSITY AND HIS TEAM WILL USE THE AWARD TO EVALUATE A NOVEL THERAPEUTIC TO CORRECT A PROBLEM AT THE HEART OF FTD ASSOCIATED WITH THE ACCUMULATION OF THE PROTEIN TDP-43.(CONTINUTED IN SCHEDULE O)AFTD AWARDED THREE HOLLOWAY POSTDOCTORAL FELLOWSHIPS - ONE TO A RESEARCHER WORKING ON A PROJECT TARGETING CONTRIBUTIONS TO WHITE MATTER HYPERINTENSITIES IN BAHAVIORAL VARIANT FTD, ANOTHER TO A RESEARCHER WORKING ON LEVERAGING A LARGE GRN FAMILY TO IDENTIFY RESILIENCE FACTORS IN FTD, AND THE LAST TO DEVELOP AN EDUCATIONAL SUPPORT GROUP PROGRAM FOR LATINO AND HISPANIC CAREGIVERS. AFTD ALSO AWARDED A CLINICAL RESEARCH TRAINING SCHOLARSHIP TO INVESTIGATE THE MOLECULAR ROLE OF SPECIFIC INCLUSIONS IN FTD-ALS, FUNDED THROUGH THE GENEROUS SUPPORT OF THE HOLLOWAY FAMILY FUND, WITH ADDITIONAL SUPPORT FROM THE AMERICAN BRAIN FOUNDATION IN COLLABORATION WITH THE AMERICAN ACADEMY OF NEUROLOGY.AFTD CONTINUED TO SUPPORT THE FTD DISORDERS REGISTRY, AN ELECTRONIC DATABASE THAT COLLECTS INFORMATION ABOUT THE FTD EXPERIENCE FROM PERSONS DIAGNOSED AND FTD CARE PARTNERS. THIS ESSENTIAL SOURCE OF FIRST-HAND ACCOUNTS WILL HELP INFORM RESEARCHERS AND CLINICIANS, AND WILL SPUR INNOVATION THAT WILL LEAD TO BETTER DIAGNOSES AND THERAPIES FOR PEOPLE LIVING WITH FTD. AT THE END OF FY25, 8,537 PEOPLE HAD JOINED THE REGISTRY.IN COLLABORATION WITH THE FTD DISORDERS REGISTRY, AFTD PRESENTED ONE PERSPECTIVES IN FTD RESEARCH WEBINAR ADDRESSING FTD RESEARCH 2024. IT WAS OUR MOST POPULAR WEBINAR FOR THE FY25 AND HAD A 63% ATTENDANCE RATE. 2351223 284926 2068 EDUCATION AND SUPPORTSUPPORT - AFTD UNDERSTANDS THE CHALLENGES THAT FTD PRESENTS TO PATIENTS AND THEIR FAMILIES, AND WORKS HARD TO DEVELOP UNIQUE RESOURCES AND INFORMATION THAT WILL IMPROVE QUALITY OF LIFE FOR THOSE LIVING WITH FTD. AFTD STAFF RESPONDED TO 4,203 HELPLINE INQUIRIES IN FY25, A 7 PERCENT INCREASE OVER FY24. AS OF JUNE 30, 2025, THERE ARE 118 AFTD-AFFILIATED SUPPORT GROUP FACILITATORS LEADING 98 GROUPS ACROSS THE UNITED STATES. AFTD AWARDED 659 COMSTOCK GRANTS (TRAVEL, RESPITE, AND QUALITY OF LIFE GRANTS) TO FTD CAREGIVERS AND PERSONS DIAGNOSED. EDUCATION AND INFORMATION -- AFTD COLLABORATES WITH A GROWING NUMBER OF PARTNERS EACH YEAR TO EDUCATE HEALTHCARE PROFESSIONALS ABOUT FTD, WITH A GOAL OF SPEEDING OUR WAY TOWARD ACCURATE DIAGNOSIS AND EFFECTIVE DISEASE MANAGEMENT AND TREATMENT. AFTD'S 2025 EDUCATION CONFERENCE, HELD IN PERSON IN DENVER AND ONLINE VIA LIVESTREAM, DREW 1,195 ATTENDEES COMBINED. THE CONFERENCE FEATURED EXPERTS FAMILIAR WITH FTD AND THE AFTD COMMUNITY TO COMPREHENSIVELY DISCUSS CONTENT PERTINENT TO PEOPLE LIVING WITH OR AFFECTED BY FTD, AS WELL AS HEALTHCARE PROFESSIONALS SEEKING GREATER UNDERSTANDING OF THIS DISEASE. AFTD OFFERED 10 EXPERT-LED EDUCATIONAL WEBINARS, INCLUDING ONE WITH THE FTD DISORDERS REGISTRY AND TWO WEBINARS THAT OFFERED CONTINUING EDUCATION CREDITS TO VIEWERS. AFTD ALSO PUBLISHED FOUR ISSUES OF THE PARTNERS IN FTD CARE NEWSLETTER FOR HEALTH PROFESSIONALS. 3300365 ADVOCACY AND AWARENESS - OUR COMMUNITY IS LEADING THE WAY TO SEND THE MESSAGE THAT DEMENTIA IS A MULTI-FACETED DISEASE THAT CAN OCCUR AT A YOUNG AGE AND BEGIN WITH SYMPTOMS UNRELATED TO MEMORY. AFTD IS WORKING HARD TO ENSURE THAT THIS MESSAGE IS HEARD IN WASHINGTON DC AND OTHER SEATS OF POWER, WHERE DECISIONS ABOUT RESEARCH FUNDING AND SERVICES ARE MADE. AFTD'S ADVOCACY ACTION CENTER MOBILIZES ADVOCATES ACROSS OUR COMMUNITY BY PROVIDING CLEAR GUIDANCE ON HOW TO TAKE ACTION IN SUPPORT OF LEGISLATIVE, POLICY, AND REGULATORY CHANGES TO IMPROVE QUALITY OF CARE AND QUALITY OF LIFE FOR PEOPLE WITH FTD AND THEIR FAMILIES. AS OF FY25, 2,259 INDIVIDUALS ARE RAISING THEIR VOICES THROUGH OUR ADVOCACY PLATFORM. 9461273 1 1 0 1 0 0 0 0 0 0 1 1 0 0 1 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 63 0 1 64 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 21 21 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT DC FL GA HI IL KS KY ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI X X X MITCH APPLESON 2675147221 2700 HORIZON DRIVE STE 120 KING OF PRUSSIA PA 19406 RITA CHOULA CHAIR 4.00 X X 0 0 0 GAIL ANDERSON VICE CHAIR 4.00 X X 0 0 0 VALERIE SNOW SECRETARY 4.00 X X 0 0 0 JULIE KELLY TREASURER 4.00 X X 0 0 0 HALIMA AMJAD DIRECTOR 3.00 X 0 0 0 KYLE BIRMINGHAM DIRECTOR 3.00 X 0 0 0 HELEN-ANN COMSTOCK DIRECTOR 3.00 X 0 0 0 JOE ESPOSITO DIRECTOR (EFF 5/3/25) 2.00 X 0 0 0 JILL GOLDMAN DIRECTOR 2.00 X 0 0 0 KRISTIN HOLLOWAY DIRECTOR 2.00 X 0 0 0 SHOSHANA KRILOW DIRECTOR 3.00 X 0 0 0 JOSEPH MARQUEZ DIRECTOR 2.00 X 0 0 0 LENN MARQUEZ DIRECTOR (EFF 5/3/25) 3.00 X 0 0 0 KATHY MELE DIRECTOR 3.00 X 0 0 0 DON NEWHOUSE DIRECTOR 2.00 X 0 0 0 GIRISH PATANGAY DIRECTOR (EFF 5/3/25) 3.00 X 0 0 0 DAVID PFEIFER DIRECTOR (EFF 5/3/25) 3.00 X 0 0 0 KRISTIN SCHNEEMAN DIRECTOR 3.00 X 0 0 0 MARG SUTHERLAND DIRECTOR 2.00 X 0 0 0 ABRAR TANVEER DIRECTOR 2.00 X 0 0 0 KIM TORRES DIRECTOR 2.00 X 0 0 0 JARY LARSEN DIRECTOR (THRU 5/4/25) 4.00 X 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 36.00 4.00 X 320026 0 29988 MITCH APPLESON CHIEF OPERATING OFFICER 38.00 2.00 X 255015 0 28570 PENNY DACKS SR DIRECTOR OF SCIENTIFIC INITIATIVES 30.00 10.00 X 226491 0 17572 SHARON DENNY SR DIRECTOR OF PROGRAMS 40.00 X 174174 0 26116 PETER WITZLEB DIRECTOR OF IT 40.00 X 168866 0 6033 SHANA DODGE DIRECTOR OF RESEARCH ENGAGEMENT 40.00 X 152910 0 15035 PHILLIP JOHN WEICHEL SR DIRECTOR OF ADVANCEMENT 40.00 X 157933 0 42270 1455415 0 165584 16 0 1 0 PRECON 11910 PARKLAWN DRIVE ROCKVILLE MD 20852 AV FOR ANNUAL EDUCATION CONFERENCE 211632 MERIPLEX SOLUTIONS LLC 1100 LUDLOW ST STE 02-113 PHILADELPHIA PA 19107 IT CONSULTANT 111685 COREZ 1356 BROADWAY NEW YORK NY 10018 VENUE 101376 3 1974858 10370527 134360 12345385 FTD RESEARCH ROUNDTABLE 541700 300500 300500 EDUC & AWARENESS PRODUCT SALES 541700 2068 2068 302568 1346877 1346877 10461208 9872977 588231 588231 588231 159707 1974858 460718 -301011 -301011 FTD REGISTRY 541700 138504 138504 138504 14420554 441072 0 1634097 1547368 1547368 285426 285426 109925 109925 651499 332922 162874 155703 4615773 3691272 47733 876768 137671 104744 6495 26432 556770 423609 26266 106895 401296 305318 18932 77046 23878 23878 90000 90000 75000 75000 627302 480935 91821 54546 91986 91511 475 43815 25426 12756 5633 619374 497453 16494 105427 252906 191163 15514 46229 320576 255468 7171 57937 813492 787996 24650 846 9107 6929 482 1696 30790 23555 1539 5696 MISC ADVOCACY AND AWARE 178678 4207 2911 171560 PRINTING AND COPYING 138212 92877 0 45335 BANK & CREDIT CARD FEES 60666 2925 394 57347 DUES AND SUBSCRIPTIONS 42130 34708 1579 5843 -163845 75536 3478 -242859 11559795 9461273 464967 1633555 572093 1081629 2593871 1180267 7229199 8104403 127647 130445 95209 147966 76791 61344 24554 15447 42853060 40186544 8971577 476040 324747 53971673 60143025 726636 1419790 1734688 1267595 421417 215004 507789 340657 3390530 3243046 X 41033313 45547179 9547830 11352800 50581143 56899979 53971673 60143025 X 2860759 3551948 -110592 16721 X X 0 1 X 1 0 X 8142577 12078806 8797440 12361972 12345385 53726180 8142577 12078806 8797440 12361972 12345385 53726180 19349568 34376612 271150 400405 1186362 1153617 1346877 4358411 12211 38428 166500 138504 355643 58440234 321331 0.58820 0.53730 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 124752 124752 11699858 11824610 741231 185308 0 0 572666 645183 741845 741231 2700925 4051388 4114 14023 30009 124752 172898 143167 161296 185461 185308 675232 1012848 76791 61344 15447 15447 CAPITAL GROUP GROWTH EFT 3593013 F ISHARES MSCI USA QUALITY FACTOR ETF 5378564 F 8971577 OPERATING LEASE LIABILITY 340657 340657 X PART X, LINE 2: THE INTERNAL REVENUE SERVICE HAS CLASSIFIED THE ORGANIZATION AS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTERPRISE'S FINANCIAL STATEMENTS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ORGANIZATION, AND HAS CONCLUDED THAT AS OF JUNE 30, 2025 AND 2024, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. THE ORGANIZATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX POSITIONS, IF ANY. THERE WERE NO INCOME TAX RELATED INTEREST OR PENALTIES RECORDED FOR EITHER OF THE YEARS ENDED JUNE 30, 2025 OR 2024. 1 SOUTH AMERICA 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION GRANTMAKING 109925 0 0 0 0 0 0 109925 0 109925 ARGENTINA 2025-2026 PATHWAYS FOR HOPE PILOT GRANT 109925 ELECTRONIC FUNDS TRANSFER 0 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. X 1 EVENT ASSOCIATES INC 162 W 56TH STREET SUITE 405 NEW YORK NY 10019 COORDINATION AND PLANNING OF EVENT -"HOPE RISING" 0 1970341 75000 1895341 1970341 75000 1895341 AL AL AR CA CO CT DC FL GA IL KS ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI HOPE RISING 1970341 1854746 115595 201424 84521 116630 DRIVING HOPE NY 124907 88637 36270 40371 3257 1 39317 31475 7842 9369 5146 2134565 1974858 159707 251164 84521 125033 460718 -301011 1 ALZHEIMER'S DRUG DISCOVERY FOUNDATION 57 WEST 57TH STREET SUITE 904 NEW YORK NY 10019 201082179 501(C)(3) 700000 0 ADDF/AFTD DRUG DISCOVERY PROGRAM AND TREAT TREATFTD THERAPEUTIC INITIATIVE AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)(3) 100000 0 CLINICAL RESEARCH SCHOLARSHIPS THE FTD DISORDERS REGISTRY 2700 HORIZON DRIVE SUITE 120 KING OF PRUSSIA PA 19406 473601782 501(C)(3) 287374 0 FTD PATIENT REGISTRY WASHINGTON UNIVERSITY IN ST LOUIS 4444 FOREST PARK AVENUE ST LOUIS MO 63108 430653611 501(C)(3) 230000 0 PATHWAYS FOR HOPE PILOT GRANT UNIVERSITY OF TEXAS AT AUSTIN 2515 SPEEDWAY AUSTIN TX 78712 746000603 501(C)(3) 109994 0 WELL-BEING IN FTD PILOT GRANT STANFORD UNIVERSITY 450 JANE STANFORD WAY STANFORD CA 94305 941156365 501(C)(3) 120000 0 HOLLOWAY POSTDOCTORAL FELLOWSHIP 6 0 TRAVEL SCHOLARSHIPS 46 21076 RESPITE CARE, TRAVEL AND QUALITY OF LIFE GRANTS 546 264350 PART I, LINE 2: RESEARCH GRANTS: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. RESPITE AND TRAVEL GRANTS: GRANTEES SUBMIT A LISTING OF EXPENSES INCURRED AND PAYMENT IS MADE VIA REIMBURSEMENT. QUALITY OF LIFE GRANTS: GRANTEE EXPENDITURES ARE MONITORED THRU ON-LINE REPORTING. X X 0 0 0 0 0 0 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 319630 0 0 0 396 0 9493 0 20495 0 350014 0 0 0 MITCH APPLESON CHIEF OPERATING OFFICER 254955 0 0 0 60 0 7798 0 20772 0 283585 0 0 0 PENNY DACKS SR DIRECTOR OF SCIENTIFIC INITIATIVE 226431 0 0 0 60 0 6777 0 10795 0 244063 0 0 0 SHARON DENNY SR DIRECTOR OF PROGRAMS 173778 0 0 0 396 0 5187 0 20929 0 200290 0 0 0 PHILLIP JOHN WEICHEL SR DIRECTOR OF ADVANCEMENT 157567 0 0 0 366 0 4935 0 37335 0 200203 0 0 0 PETER WITZLEB DIRECTOR OF IT 168728 0 0 0 138 0 5028 0 1005 0 174899 0 0 0 SHANA DODGE DIRECTOR OF RESEARCH ENGAGEMENT 152850 0 0 0 60 0 4563 0 10472 0 167945 0 0 0 X 14 134360 HI/LOW DATE OF GIFT 0 1 0 PART I, COLUMN (B): THE COUNT ABOVE REPRESENTS THE NUMBER OF UNIQUE STOCK DONATIONS RECEIVED FROM INDIVIDUAL DONORS. FORM 990, PART VI, SECTION A, LINE 2 DIRECTORS DON NEWHOUSE AND KATHY MELE HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE COMPLETE 990 WILL BE REVIEWED AND APPROVED BY AFTD'S AUDIT COMMITTEE AND PROVIDED TO THE FULL BOARD PRIOR TO SUBMISSION. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS AND CEO SIGN THE CONFLICT OF INTEREST FORM EVERY YEAR. IF AN ISSUE WERE TO ARISE IT WOULD BE ADDRESSED BY THE EXECUTIVE COMMITTEE AND THE BOARD MEMBER/CEO IN QUESTION. FORM 990, PART VI, SECTION B, LINE 15 THE PERFORMANCE REVIEW OF AFTD'S CEO WAS BASED ON THE PAST FISCAL YEAR RESULTS. IT INCLUDES INPUT THAT THE BOARD CHAIR AND VICE CHAIR OBTAINED FROM AFTD BOARD MEMBERS, AFTD STAFF AND MAJOR DONORS. THE PERFORMANCE REVIEW WAS WRITTEN BY THE CHAIR WITH INPUT FROM THE VICE CHAIR. BASED ON PERFORMANCE REVIEW AND FISCAL YEAR RESULTS, THE CHAIR RECOMMENDED A SALARY RANGE AND PROPOSED INCREASE WHICH WAS PUT FORWARD TO THE EXECUTIVE COMMITTEE FOR DISCUSSION AND ALIGNMENT. THE FINAL COMPENSATION WAS THEN APPROVED BY THE BOARD. THE SALARY RANGE AND ANNUAL INCREASE WAS DETERMINED AFTER REVIEWING SALARY COMPARABILITY DATA FOR NON PROFITS OF SIMILAR SIZE NATIONALLY AND IN THE GREATER PHILADELPHIA AREA ADJUSTED FOR COST OF LIVING INCREASES. A COMPARABILITY STUDY WAS PERFORMED DURING FY23 AND AFTD USED 3 SURVEYS FOR BENCHMARKS FOR ALL STAFF AT AFTD. IN ADDITION, AFTD DOCUMENTS ALL SALARY RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST FROM THE OFFICE. FORM 990, PART XI, LINE 9: RETURN OF PRIOR YEAR GRANT AWARDED 16,721. FORM 990, PART XII, LINE 2C THE AUDIT COMMITTEE ASSUMES RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. THE FTD DISORDERS REGISTRY LLC 2700 HORIZON DRIVE SUITE 120 KING OF PRUSSIA PA 19406 473601782 PROVIDES PATIENT REGISTRY FOR THOSE AFFECTED BY FTD DE 501(C)(3) LINE 7 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0