2025-07-15T11:00:30-05:00 2024-12-31 061156122 ROLLERI & SHEPPARD CPAS LLP 2150 POST ROAD 5TH FL FAIRFIELD CT 06824 990 2024-01-01 260687439 RETT SYNDROME RESEARCH TRUST INC RETT 2034450041 67 UNDER CLIFF ROAD TRUMBULL CT 06611 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 2034450041 2025-07-08 1 1 JOHN M ROLLERI CPA P00182555 2032592727 X 2024 2025-03-06 01:10:19Z MONICA COENRAADS 67 UNDERCLIFF ROAD TRUMBULL CT 06611 9550380 0 X WWW.REVERSERETT.ORG X 2007 CT THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. 14 14 8 0 0 0 8080684 8679173 106950 178536 336181 449600 0 0 8523815 9307309 9938988 9350537 0 0 1287803 1227852 0 0 712318 1111513 1153076 12338304 11731465 -3814489 -2424156 18457084 20356580 11321272 15636502 7135812 4720078 X THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. 0 0 10784868 9350537 178536 THE ORGANIZATION PROVIDES FUNDING TO LEADING RESEARCH INSTITUTIONS AND COMPANIES WORKING ON RETT SYNDROME AND RELATED MECP2 DISORDERS. 37251 THE ORGANIZATION SPONSORS SCIENTIFIC WORKSHOPS THAT BRING THE LEADING RETT RESEARCHERS TOGETHER WITH ELITE SCIENTISTS IN SYNERGISTIC FIELDS TO EXCHANGE DATA AND SET RESEARCH DIRECTION. THE ORGANIZATION PROVIDES FUNDING TO LEADING RESEARCH INSTITUTIONS WORKING ON RETT SYNDROME AND RELATED MECP2 DISORDERS. RESEARCH IS AIMED AT 1) RESTORING LEVELS OF MECP2 PROTEIN, 2) IDENTIFYING OBJECTIVE TOOLS TO MEASURE RETT SYMPTOMS 3) ESTABLISH A CLINICAL TRIAL NETWORK 4) IDENTIFY FUNCTION OF MECP2 PROTEIN. THE ORGANIZATION SPONSORS SCIENTIFIC WORKSHOPS THAT BRING THE LEADING RETT RESEARCHERS TOGETHER WITH ELITE SCIENTISTS IN SYNERGISTIC FIELDS TO EXCHANGE DATA AND SET RESEARCH DIRECTION. 10822119 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 19 0 8 1 0 0 0 0 0 1 1 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA CT IL MA MD NJ NY PA X MONICA COENRAADS 2034450041 67 UNDER CLIFF ROAD TRUMBULL CT 06611 ADRIAN BIRD TRUSTEE 2.00 X 0 0 0 ALBA TULL TRUSTEE 2.00 X 0 0 0 BRAD ZELINGER TRUSTEE 2.00 X 0 0 0 BRIAN WHITMER TRUSTEE 2.00 X 0 0 0 HEIDI EPSTEIN VICE CHAIRMAN 2.00 X X 0 0 0 INGRID HARDING CO-FOUNDER AND TRUSTEE 2.00 X 0 0 0 LAWRENCE MATTIS SECRETARY 2.00 X X 0 0 0 AMY GILLIAND TRUSTEE 2.00 X 0 0 0 MARCI VALNER TREASURER 2.00 X X 0 0 0 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 50.00 X X 220000 0 0 RACHAEL STEVENSON TRUSTEE 2.00 X 0 0 0 RACHEL ROTHSCHILD TRUSTEE 2.00 X 0 0 0 STEPHANIE BOHN TRUSTEE 2.00 X 0 0 0 ROBERT DEANS CHIEF TECHNOLOGY OFFICER 50.00 X 215000 0 0 TIMOTHY J FREEMAN CHIEF DEVELOPMENT OFFICER 50.00 X 220000 0 0 JANA SE VON HEHN CHIEF SCIENTIFIC OFFICER 50.00 X 220000 0 0 875000 0 0 4 0 1 0 EDRAIN COLINA 346 STRATFORD ROAD BROOKLYN NY 11218 MARKETING 154360 1 8679173 8679173 LICENSING 900099 156372 156372 BIOREPOSITORY 900099 22164 22164 178536 446592 446592 246079 243071 3008 3008 3008 9307309 628136 0 0 9350537 9350537 1095026 775529 127977 191520 60612 42927 7084 10601 72214 51144 8440 12630 457758 375983 46164 35611 9379 6642 1097 1640 4500 3187 526 787 7465 2489 2488 2488 FUNDRAISING 447893 447893 MISCELLANEOUS 88492 83954 400 4138 RESEARCH COSTS 46602 46602 SCIENTIFIC MEETINGS, TR 37251 37251 53736 45874 2852 5010 11731465 10822119 197028 712318 3121261 4317606 14145135 13681914 1189610 2357060 1078 18457084 20356580 35125 103250 11286147 15533252 11321272 15636502 X 7135812 4720078 7135812 4720078 18457084 20356580 -2424156 -1078 9500 0 X X 0 1 X 1 0 X 7664611 7837691 6657601 7603093 8430457 38193453 7664611 7837691 6657601 7603093 8430457 38193453 38193453 62327 29868 30209 333088 446592 902084 39095537 0.97690 0.98730 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 9315731 -1078 9500 8422 9307309 0 9307309 11731465 0 11731465 0 11731465 1 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION 1200323 0 0 0 0 0 0 1200323 0 1200323 UNITED KINGDOM 104872 WIRE TRANSFER 0 NETHERLANDS 1095451 WIRE TRANSFER 0 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION WORKS CLOSELY WITH ITS GRANTEES AND MONITORS FUNDING AND PROGRESS OF THE RESEARCH AS IT IS PERFORMED. 1 CHILDREN'S HOSPITAL OF MONTEFIORE C/O RETT SYNDROME TRUMBULL CT 06611 25000 0 RETT RESEARCH UNIVERSITY OF CALIFORNIA DAVIS C/O RETT SYNDROME TRUMBULL CT 06611 243402 0 RNA EDITING RETT SYNDROME GLOBAL REGISTRY C/O RETT SYNDROME TRUMBULL CT 06611 103596 0 RETT RESEARCH RETT SYNDROME BIOREPOSITORY C/O RETT SYNDROME TRUMBULL CT 06611 163173 0 RNA EDITING YALE UNIVERSITY C/O RETT SYNDROME TRUMBULL CT 06611 97328 0 RETT RESEARCH FRED HUTCHINSON CANCER CENTER C/O RETT SYNDROME TRUMBULL CT 06611 46755 0 RETT RESEARCH MIT C/O RETT SYNDROME TRUMBULL CT 06611 1244914 0 RETT RESEARCH UNIVERSITY OF MASSACHUSETTS C/O RETT SYNDROME TRUMBULL CT 06611 781032 0 RETT RESEARCH CALIFORNIA INSTITUTE OF TECHNOLOGIES C/O RETT SYNDROME TRUMBULL CT 06611 250000 0 RETT RESEARCH EMORY UNIVERSITY C/O RETT SYNDROME TRUMBULL CT 06611 424881 0 RETT RESEARCH COLUMBIA UNIVERSITY C/O RETT SYNDROME TRUMBULL CT 06611 96578 0 RETT RESEARCH NEW YORK UNIVERSITY C/O RETT SYNDROME TRUMBULL CT 06611 30234 0 RETT RESEARCH JACKSON LABS C/O RETT SYNDROME TRUMBULL CT 06611 166121 0 RETT RESEARCH COURAGENE C/O RETT SYNDROME TRUMBULL CT 06611 15000 0 RETT RESEARCH BOSTON CHILDRENS HOSPITAL C/O RETT SYNDROME TRUMBULL CT 06611 90152 0 RETT RESEARCH EMERALD INNOVATIONS C/O RETT SYNDROME TRUMBULL CT 06611 107145 0 RETT RESEARCH X X 0 0 0 0 0 0 0 0 0 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 TIMOTHY J FREEMAN CHIEF DEVELOPMENT OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 JANA SE VON HEHN CHIEF SCIENTIFIC OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 ROBERT DEANS CHIEF TECHNOLOGY OFFICER 215000 0 0 0 0 0 0 0 0 0 215000 0 0 0 X AUCTION AND RAFFLE ITEMS 0 248716 X IN-KIND SERVICES 2 9500 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B LINE 11A EXPLANATION - A COPY OF FORM 990 IS GIVEN TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO ITS FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION MAINTAINS A CONFLICT OF INTEREST POLICY THAT MUST BE SIGNED BY THE TRUSTEES ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER AND CHIEF DEVELOPMENT OFFICE IS REVIEWED BY THE BOARD AND COMPARED TO THE COMPENSATION OF EXECUTIVE DIRECTORS/PRESIDENTS OF ORGANIZATIONS OF A SIMILAR SIZE. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND VIA THEIR WEBSITE FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND VIA THEIR WEBSITE FORM 990, PART XII, LINE 2C: THE FINANCIAL STATEMENTS HAVE BEEN AUDITED UNDER GENERALLY ACCEPTED ACCOUNTING PRINCIPLES.