2025-11-15T04:39:10-07:00 2024-12-31 262176601 EASY OFFICE DBA JITASA 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 990 2024-01-01 930995453 FANCONI CANCER FOUNDATION FANC 5416874658 360 EAST 10TH AVE SUITE 201 EUGENE OR 97401 ISIS SROKA CEO 5416874658 2025-11-15 1 1 JEREMY CORK P01544850 2082874777 2025-11-15 2024 2025-03-06 01:10:19Z MARK QUINLAN 360 EAST 10TH AVE SUITE 201 EUGENE OR 97401 6133069 0 X FANCONI.ORG X 1989 OR OUR MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY FANCONI ANEMIA AND ASSOCIATED CANCERS WORLDWIDE BY FUNDING EXCEPTIONAL RESEARCH AND EMPOWERING OUR COMMUNITY. 13 13 14 125 0 0 3189061 3928443 40035 43514 262765 298642 1777 230 3493638 4270829 1938214 2783861 0 0 1165161 1371638 0 0 412362 1084595 1332505 4187970 5488004 -694332 -1217175 7555758 6443578 890455 822113 6665303 5621465 OUR MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY FANCONI ANEMIA AND ASSOCIATED CANCERS WORLDWIDE BY FUNDING EXCEPTIONAL RESEARCH AND EMPOWERING OUR COMMUNITY. 0 0 2981036 2734561 0 RESEARCH INITIATIVES - MANAGES COLLABORATIVE PARTNERSHIPS WITH EXTERNAL FUNDERS, MANAGES GRANT AWARD PROCESS, PROVIDES OVERSIGHT AND DIRECTION FOR THE FANCONI ANEMIA CANCER CONSORTIUM, MANAGES THE VIRTUAL TUMOR BOARD, MANAGES THE FCF CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, MAINTAINS THE FANCONI ANEMIA CLINICAL CARE GUIDELINES MANUAL, CONVENES SPARKS MEETINGS, MANAGES FRIENDS DATA COMMONS. 676152 1000 43514 EVENTS - ANNUAL PLANNING MEETING, ANNUAL FAMILY RETREAT, SCIENTIFIC, SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR SPARKS AND FA CONNECT. 557360 48300 0 COMMUNITY PROGRAMS AND SUPPORT - ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS, MANAGES ADVOCACY AND ENGAGEMENT PROGRAM. 0 0 0 4214548 1 1 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 0 0 0 1 1 1 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 12 0 1 14 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 AK AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MO NC ND NH NJ NM NY OH OK OR PW RI SC TN VA WA WI WV X X EASY OFFICE DBA JITASA 2082874777 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 MARK QUINLAN EXECUTIVE DIRECTOR 40 X 199779 0 77508 ISIS SROKA CHIEF SCIENTIFIC OFFICER 40 X 136013 0 12620 LAUREN KENNEDY HIGHEST COMPENSATED EMPLOYEE 40 X 115479 0 8188 SHERRI VAN RAVENHORST HIGHEST COMPENSATED EMPLOYEE 40 X 103233 0 5475 LISA MINGO PRESIDENT 5 X X 0 0 0 JOHN CONNELLY SECRETARY 5 X X 0 0 0 WIN GOULDIN VICE PRESIDENT 5 X X 0 0 0 PEDRO RAVELO TREASURER 5 X X 0 0 0 LYNN FROHNMAYER BOARD MEMBER 1 X 0 0 0 ADAM BECKER BOARD MEMBER 1 X 0 0 0 WILLIAM BLOXOM BOARD MEMBER 1 X 0 0 0 JOHN WAGNER BOARD MEMBER 1 X 0 0 0 TRACY STRIMLING BOARD MEMBER 1 X 0 0 0 JASMINE BENNETSEN BOARD MEMBER 1 X 0 0 0 HENEKKE TAKKENBERG BOARD MEMBER 1 X 0 0 0 CARMEM BONFIM BOARD MEMBER 1 X 0 0 0 ZARIEL TOOLAN BOARD MEMBER 1 X 0 0 0 554504 0 103791 4 0 1 0 0 0 0 0 0 0 3928443 1448 3928443 PROGRAM SERVICE FEES 900099 43514 43514 0 0 0 0 0 0 43514 114855 0 0 114855 0 0 0 0 0 0 0 0 0 0 2046027 0 1862240 0 183787 0 183787 183787 0 0 0 230 230 0 0 230 4270829 227531 0 114855 1991399 1991399 10150 10150 782312 782312 348412 197371 83242 67799 787828 446367 191406 150055 24049 12997 3830 7222 114037 64320 14999 34718 97312 56289 24527 16496 3023 3023 63571 63571 214959 28892 149358 36709 73111 16091 44585 12435 76149 23688 44977 7484 72584 72584 135187 125116 3059 7012 44008 37079 6929 10327 10327 VENUE RENTAL 571084 422477 148607 0 FAMILY FUNDRAISING EXPENSES 64055 0 0 64055 BANK CHARGES AND PROCESSING FEES 2999 0 2999 0 IN-KIND DONATED GOODS EXPENSE 1448 0 0 1448 5488004 4214548 861094 412362 1681246 1896840 54933 121347 0 5309235 3963127 510344 462264 7555758 6443578 149010 263696 353268 226823 388177 331594 890455 822113 X 6665303 5621465 0 0 6665303 5621465 7555758 6443578 -1217175 197974 0 -24406 -231 0 X 0 1 0 0 X 235071 3309323 2979498 3189061 3928446 13641399 235071 3309323 2979498 3189061 3928446 13641399 4102919 9538480 125808 279590 164431 208600 114855 893284 14534683 1196045 0.65626 0.65568 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 142713 0 12765 0 0 5788 149690 128196 0 21103 0 0 6586 142713 165877 0 -31193 0 0 6488 128196 150681 0 21457 0 0 6261 165877 133887 700 21533 0 0 5439 150681 1 0 0 0 0 RIGHT OF USE 312574 ENDOWMENT 149690 462264 0 LEASE LIABILITY 331594 331594 X 4447647 197974 3250 0 0 201224 4246423 24406 0 24406 4270829 5491488 3250 0 0 234 3484 5488004 0 0 0 5488004 Schedule D, Part V, Line 4 THE ENDOWMENT FUND WAS SET UP TO FUND THE AMY WINN AND CHRISTOPHER BYRD AWARD THAT IS PRESENTED ANNUALLY TO SOMEONE WHO IS STRIVING TO TO MAKE A DIFFERENCE AND HAS SET HIGH GOALS FOR HIM/HERSELF. IN ADDITION TO FUNDING THE AWARD, THE ENDOWMENT IS SCHEDULED TO FUND THE TRAVEL COST OF THE AWARD WINNER TO THE ANNUAL MEETING FOR ADULTS WITH FANCONI ANEMIA. ALL FUNDS WITHIN THE ENDOWMENT FUND WERE INVESTED IN THE SOCIAL IMPACT POOL WITH THE OREGON COMMUNITY FOUNDATION (OCF). INVESTMENTS WITHIN THIS FUND ARE SUBJECTED TO AN ENVIRONMENTAL, SOCIAL AND GOVERNANCE SCREENING. DISTRIBUTIONS OUT OF THE ENDOWMENT FUND ARE SUBJECT TO OCF DISCRETION. DISTRIBUTIONS ARE BASED ON THE GRANT PERCENTAGE PAYOUT POLICY FOR PERMANENT FUNDS WHICH IS PERIODICALLY UPDATED BY THE BOARD OF DIRECTORS OF OCF. Schedule D, Part X, Line 2 THE ORGANIZATION IS ORGANIZED AS AN OREGON NONPROFIT CORPORATION AND HAS BEEN RECOGNIZED BY THE IRS AS EXEMPT FROM FEDERAL INCOME TAXES UNDER IRC SECTION 501(A) AS AN ORGANIZATION DESCRIBED IN IRC SECTION 501(C)(3), QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER IRC SECTIONS 170(B)(1)(A)(VI) AND (VIII), AND HAS BEEN DETERMINED NOT TO BE A PRIVATE FOUNDATION UNDER IRC SECTIONS 509(A)(1) AND (3), RESPECTIVELY. THE ORGANIZATION IS ANNUALLY REQUIRED TO FILE A RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) WITH THE IRS AND REPORTS IN OTHER STATES WHERE THE ORGANIZATION HAS ACTIVITIES. IN ADDITION, THE ORGANIZATION IS SUBJECT TO INCOME TAX ON NET INCOME THAT IS DERIVED FROM BUSINESS ACTIVITIES THAT ARE UNRELATED TO THEIR EXEMPT PURPOSES. WE HAVE DETERMINED THAT THE ORGANIZATION IS NOT SUBJECT TO UNRELATED BUSINESS INCOME TAX AND HAVE NOT FILED AN EXEMPT ORGANIZATION BUSINESS INCOME TAX RETURN (FORM 990-T) WITH THE IRS. Schedule D, Part XI, Line 2d INVESTMENT FEES Schedule D, Part XII, Line 2d PRIOR PERIOD ADJUSTMENT AND ROUNDING DIFFERENCES 1 Europe (including Iceland and Greenland) 0 0 Program Services RESEARCH AND INTERNATIONAL SUPPORT GRANTS 491533 North America (including Canada and Mexico, but not the United States) 0 0 Program Services RESEARCH GRANTS 163934 East Asia and the Pacific 0 0 Program Services RESEARCH AND INTERNATIONAL SUPPORT GRANTS 126846 0 0 782313 Europe (including Iceland and Greenland) RESEARCH AND INTERNATIONAL SUPPORT GRANTS 491533 WIRE BOOK North America (including Canada and Mexico, but not the United States) RESEARCH GRANTS 163934 WIRE BOOK East Asia and the Pacific RESEARCH AND INTERNATIONAL SUPPORT GRANTS 116846 WIRE BOOK 0 11 SUPPORT GRANT East Asia and the Pacific 1 10000 WIRE BOOK 0 0 0 0 0 0 Schedule F, Part I, Line 2 THE ORGANIZATION PROVIDES FUNDS WITH THE UNDERSTANDING THAT THOSE FUNDS WILL BE USED TO FULFILL THE MISSION OF THE RECEIVING ORGANIZATION. 1 STAND UP TO CANCER 10880 WILSHIRE BOULEVARD SUITE 140 LOS ANGELES CA 90024 951644609 501C3 375000 BOOK NATIONAL CANCER INSTITUTE 9000 ROCKVILLE PIKE BUILDING 31 RO BETHESDA MD 20892 521986675 501C3 369154 BOOK STANFORD UNIVERSITY 3160 PORTER DRIVE PALO ALTO CA 94304 941156365 501C3 229461 BOOK AMERICAN ASSOCIATION FOR CANCER RESEARCH (AACR) 615 CHESTNUT ST 17TH FLOOR PHILADELPHIA PA 191064404 236251648 501C3 164000 REGENTS OF THE UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CENTER 200 SOUTHEAST OAK STREET MINNEAPOLIS MN 55455 416042488 501C3 120000 BOOK THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK NY 10027 135598093 501C3 117501 BOOK FRED HUTCHINSON CANCER RESEARCH CENTER 1100 FAIRVIEW AVE N SEATTLE WA 98109 911935159 501C3 105000 BOOK UNIVERSITY OF CHICAGO 5801 SOUTH ELLIS AVENUE CHICAGO IL 606375418 362177139 501C3 105320 BOOK THE BROAD INSTITUTE INC 415 MAIN STREET CAMBRIDGE MA 021421027 263428781 501C3 105000 BOOK THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK NY 10065 131624158 501C3 64492 UNIVERSITY OF WASHINGTON 1959 NE PACIFIC STREET SEATTLE WA 98915 911486484 501C3 62500 YALE UNIVERSITY (BURTNESS) 150 MUNSON STREET NEW HAVEN CT 065113572 060646973 501C3 62500 BOOK GEORGETOWN UNIVERSITY (KUPFER) 37TH O STREETS NW WASHINGTON DC 20057 530196603 501C3 62500 BOOK THE REGENTS OF THE UNIVERSITY OF CALIFORNIA 490 ILLINOIS STREET 4TH FLOOR BOX 0962 SAN FRANCISCO CA 94143 943067788 501C3 50000 BOOK OREGON STATE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 237083114 501C3 49248 BOOK 15 0 STIPENDS 10 10150 BOOK Schedule I, Part I, Line 2 THE ORGANIZATION COMPILES A GRANT FILE FOR EACH GRANT RECIPIENT THAT HOUSES THE GRANT APPLICATION, REVIEWS CONDUCTED BY OUTSIDE REVIEWERS, THE PROPOSAL REVIEW COMMITTEES REPORT, A CV FOR ALL PARTICIPATING IN THE PROJECT, AND A SIGNED ACCEPTANCE OF THE AWARD. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS FINANCIAL AND RESEARCH REPORTS ARE REQUIRED ON AN ANNUAL BASIS DURING THE LIFE OF THE GRANT AND REVIEWED BY THE EXECUTIVE DIRECTOR TO ENSURE FUNDS ARE BEING USED APPROPRIATELY IN ADDITION TO BEING REVIEWED BY THE PROPOSAL COMMITTEE AND THE BOARD. X X 0 0 0 0 0 0 0 0 0 MARK QUINLAN EXECUTIVE DIRECTOR 199779 0 0 0 77508 0 0 0 0 0 277287 0 0 0 Form 990, Part VI, Section B, Line 11b THE 990 IS REVIEWED AT A REGULAR MEETING OF THE BOARD OF DIRECTORS. Form 990, Part VI, Section B, Line 12c THE EXECUTIVE DIRECTOR REVIEWS THE POLICY ANNUALLY AT THE ANNUAL LEADERSHIP MEETING. Form 990, Part VI, Section B, Line 15 EXCUTIVE DIRECTOR COMPENSATION IS SET BY THE BOARD PRESIDENT AFTER REVIEWING SELF-CONDUCTED MARKET RESEARCH. EMPLOYEE COMPENSATION IS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES, AS WELL AS A WAGE ANALYSIS REVIEW BY INDEPENDENT PERSONS WHICH IS THEN USED TO FORMULATE WAGES BY THE EXECUTIVE DIRECTOR. Form 990, Part VI, Section C, Line 19 WHEN GOVERNING DOCUMENTS OR THE CONFLICT OF INTEREST POLICY ARE REQUESTED A COPY IS MAILED TO THE REQUESTING PARTY. THE ANNUAL FORM 990 AND AUDIT REPORT ARE ON THE ORGANIZATIONS WEBSITE AND COPIES ARE ALSO ISSUED WHEN REQUESTED. FORM 990S CAN BE ACCESSED ALSO VIA WEBSITES: GUIDESTAR.ORG AND IRS.GOV.