2025-11-11T13:55:08-08:00 2024-12-31 272133606 MAUREEN A LEIDL CPA 223 LORRAINE AVE MONTCLAIR NJ 07043 990 2024-01-01 943098601 flok Health FKA NATIONAL PKU NEWS FLOK 9736199160 PO BOX 43552 MONTCLAIR NJ 07043 GLENN HABER Treasurer 2025-11-06 true true Maureen A Leidl CPA P00847064 9737832000 X 2024 2025-03-06 01:10:19Z SARAH CHAMBERLIN PO BOX 43552 MONTCLAIR NJ 07043 1768667 false X www.pkunews.org X 1989 WA flok Health supports people with inherited metabolic disorders through research, education, and community. Its programs include the flok app for daily management, family camps and retreats, and patient-led research initiatives. 11 11 6 35 0 594615 1557455 193344 206425 8036 2772 3503 2015 799498 1768667 17000 13731 0 339803 614153 0 61214 389762 759467 746565 1387351 52933 381316 992950 1494592 121077 228225 871873 1266367 flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment. false false 737748 Daily Care: To improve everyday life with a low-protein disorder, flok Health develops and maintains tools and resources that support dietary management and health tracking: flok App: Publicly released in November 2024, the flok mobile app integrates dietary tracking, symptom and activity journaling, and biometric data collection for people managing flok conditions. It is designed to support individuals and their care teams in making informed decisions about health and nutrition. Cook for Love: A culinary education platform offering free, low-protein recipes and meal planning guidance. The website continues to serve over 13,000 registered users and remains a critical daily care resource. Pocket Books: The Organization publishes and distributes printed guides listing protein and amino acid values for common foods, tailored to individuals with specific metabolic conditions. These materials are widely used by families and clinicians to support medical nutrition therapy. 419880 Community: flok Health fosters connection and belonging through direct community engagement, including the planning and hosting of camps and retreats for children, adults, and families affected by low-protein metabolic conditions. These events offer safe, supportive environments to build relationships, share lived experiences, and practice key skills related to dietary care. Community programs are designed to empower individuals and strengthen a network of mutual support that spans generations and geographies. 48754 Research: While flok Health did not conduct original research in 2024, the organization focused significant effort on preparing the infrastructure, partnerships, and regulatory pathways to enable future community-led studies. This includes developing features within the flok app to capture real-world data, establishing ethical review processes, and convening stakeholders to shape a research agenda grounded in patient priorities. The ultimate goal is to fuel a natural history of these rare conditions and accelerate the development of better treatments and improved standards of care. 1206382 true true false false false false false false false false true false false false false false false false false false false false false false false false false false true false false false false false false false false false true false false false false false false false false true 46 0 true 6 true false false false false false false false 0 false false false false false false false X 11 11 true false false false false false false true true false false true true true true true true true true false AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OR PA RI SC TN UT VA WI WV X X SARAH CHAMBERLIN 2064121972 PO BOX 43552 MONTCLAIR NJ 07043 SARAH CHAMBERLIN Executive Dir. 45.00 0.00 X 143625 0 0 MICHAEL SITLER Dir. Operations 40.00 0.00 122500 0 0 KRISTEN VANAGS Dir.Commnity Engmt 40.00 0.00 108100 0 0 ERIN MACLEOD BOARD MEMBER 5.00 0.00 X 0 0 0 BRITTANY MURRAY Board Member 5.00 0.00 X 0 0 0 BRENDA WINIARSKI Board Member 5.00 0.00 X 0 0 0 ADRIAN ALAN MAYS Board Member 5.00 0.00 X 0 0 0 AMEYA BHATAWDEKAR Board Member 5.00 0.00 X 0 0 0 JERRY ELKINS II Vice President 5.00 0.00 X X 0 0 0 JACQUELINE KELLISH Board Member 5.00 0.00 X 0 0 0 WHITTNEY McCOLLUM Board Member 5.00 0.00 X 0 0 0 DAELYN RICHARDS Board Member 5.00 0.00 X 0 0 0 JEB HABER President 10.00 0.00 X 0 0 0 GLENN HABER Treasurer 8.00 0.00 X 0 0 0 374225 3 false false false 0 1557455 50385 1557455 RESOURCE MATERIALS 3059 3059 SPONSORSHIPS 111095 111095 SUBSCRIPTIONS AND SUPPORT 92271 92271 206425 2772 2772 0 0 0 0 0 0 0 Cash Back on Credit Card 2015 2015 2015 1768667 211212 X 0 13731 13731 0 0 143625 86175 21544 35906 0 399849 362614 37235 0 28072 23904 2246 1922 42607 35184 4608 2815 0 0 0 0 0 0 339337 302117 36604 616 8844 7094 875 875 1501 1157 253 91 0 0 0 0 0 57011 49205 4583 3223 812 812 0 20267 20267 6703 2392 4235 76 Software 160508 150209 957 9342 Venue Fees 96186 96186 Supplies 45067 39783 3342 1942 Telecommunications 8063 7871 96 96 15168 8493 2365 4310 1387351 1206382 119755 61214 528451 882531 0 0 187920 190299 0 0 0 0 10842 14919 7103 3493 5031 3610 0 72473 0 260706 330760 0 992950 1494592 77183 85006 43894 143219 121077 228225 X 799887 659747 71986 606620 871873 1266367 992950 1494592 381316 678 12500 X false true X true false X 544899 720712 220347 594615 1557445 3638018 0 0 544899 720712 220347 594615 1557445 3638018 764006 2874012 587 589 602 1745 2772 6295 0 3503 2015 5518 3649831 0.78740 0.74550 X Support Schedule: Other Income Explanation There was a change in fiscal year end from March 31 to December 31, accordingly, there was a 9-month fiscal period ended December 31, 2023. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 7103 3493 3610 3610 1769345 678 678 1768667 1768667 1387351 1387351 1387351 false 0 0 Scholarship 10 13731 Technology cost 50385 FMV false false false Form 990, Part VI, Section A, Line 2 Jeb Haber, President, and Glenn Haber, Board member, Treasurer, are related as Glenn Haber is Jeb Haber's father. Form 990, Part VI, Section B, Line 11b The Form 990 is reviewed by the Treasurer and the Executive Director and a copy is provided to the full Board prior to filing. Form 990, Part VI, Section C, Line 19 No documents available to the public.