2025-11-07T07:46:52-08:00 2024-12-31 921472936 ADEPTUS ADVISORS LLC 244 WEST 54TH STREET 9TH FLOOR NEW YORK NY 10019 990 2024-01-01 133380237 THE JEFFREY MODELL FOUNDATION INC JEFF 2128190200 780 THIRD AVENUE NEW YORK NY 10017 FREDERICK MODELL President 2025-11-07 true true Lawrence S Gitlitz P00095651 2127588050 2024 2025-03-06 01:10:19Z 780 THIRD AVENUE NEW YORK NY 10017 15043758 false X WWW.INFO4PI.ORG X 1986 NY The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public. 41 41 12 0 9078111 8802593 0 524338 1405450 0 9602449 10208043 2094727 2165862 0 1965685 2518797 0 267972 3299877 4582195 7360289 9266854 2242160 941189 42921915 46039860 5889326 6267167 37032589 39772693 The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. 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AT DECEMBER 31, 2024, THE FOUNDATION DID NOT HAVE ANY UNRECOGNIZED TAX BENEFITS OR LIABILITIES. THE FOUNDATION OPERATES IN THE UNITED STATES AND IN STATE AND LOCAL JURISDICTIONS, AND THE PREVIOUS THREE YEARS REMAIN SUBJECT TO EXAMINATION BY TAX AUTHORITIES. THERE ARE PRESENTLY NO ONGOING TAX EXAMINATIONS. true ARGENTINA 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 25000 AUSTRIA 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 22500 CANADA 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 66500 BELGIUM 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 25000 BRAZIL 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 40000 CZECH REPUBLIC 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 46950 FRANCE 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 62500 JAPAN 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 25000 ITALY 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 50000 GERMANY 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 80000 PERU 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 111750 SPAIN 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 25000 AUSTRALIA 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 25000 UNITED KINGDOM 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 75000 ISRAEL 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 33400 SWEDEN 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 25000 MEXICO 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 75000 NETHERLANDS 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 100000 TUNISIA 0 0 PROGRAM SERVICES DIAGNOSTIC SERVICES 12500 COLUMBIA 0 0 PROGRAM SERVICES DIAGNOSTIC SERVICES 50000 INDIA 0 0 PROGRAM SERVICES DIAGNOSTIC RESEARCH 40000 813600 202500 1016100 ARGENTINA DIAGNOSTIC RESEARCH 25000 AUSTRALIA DIAGNOSTIC RESEARCH 25000 AUSTRIA DIAGNOSTIC RESEARCH 22500 BELGIUM DIAGNOSTIC RESEARCH 25000 BRAZIL DIAGNOSTIC RESEARCH 40000 CANADA DIAGNOSTIC RESEARCH 66500 COLUMBIA DIAGNOSTIC RESEARCH 50000 CZECH REPUBLIC DIAGNOSTIC RESEARCH 46950 FRANCE DIAGNOSTIC RESEARCH 62500 GERMANY DIAGNOSTIC RESEARCH 80000 INDIA DIAGNOSTIC RESEARCH 40000 ISRAEL DIAGNOSTIC RESEARCH 33400 ITALY DIAGNOSTIC RESEARCH 50000 JAPAN DIAGNOSTIC RESEARCH 25000 MEXICO DIAGNOSTIC RESEARCH 75000 NETHERLANDS DIAGNOSTIC RESEARCH 100000 PERU DIAGNOSTIC RESEARCH 111750 SPAIN DIAGNOSTIC RESEARCH 25000 SWEDEN DIAGNOSTIC RESEARCH 25000 TUNISIA DIAGNOSTIC RESEARCH 12500 UNITED KINGDOM DIAGNOSTIC RESEARCH 75000 21 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US The Organization requires written verification of program criteria Part I, Line 3f - Investments and Expenditures DIAGNOSTIC RESEARCH false ALL CHILDRENS HOSPITAL 501 6TH AVENUE ST PETERSBURG FL 33701 25000 0 RESEARCH BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVENUE BOSTON MA 02115 75000 0 RESERACH CHILDRENS HOSP OF CHICAGO 225 E CHICAGO AVE CHICAGO IL 60611 25000 0 RESEARCH CHILDRENS HOSP-COLO FOUND 13123 E 16TH AVENUE AURORA CO 80045 25000 0 RESEARCH CHILDRENS HOSP-PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 35000 0 RESEARCH CHILDRENS NATL MEDICAL CTR 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 25000 0 RESEARCH CLINIC FOR SPECIAL CHILDREN 20 COMMUNITY LANE GORDONVILLE PA 17529 33000 0 RESEARCH COLUMBIA UNIVERSITY 630 WEST 168TH STREET NEW YORK NY 10032 181000 0 RESEARCH DUKE UNIV SCHOOL OF MED 203 RESEARCH DRIVE DURHAM NC 27710 25000 0 RESEARCH HARVARD IMMUNOLOGY PHD PROG 200 LONGWOOD AVE BOSTON MA 02115 12500 0 RESEARCH INDIVIDUAL SMALL GRANTS 780 THIRD AVENUE NEW YORK NY 10017 47162 0 RESEARCH JOHNS HOPKINS ALL-CHILD HOSP 500 SEVENTH AVENUE SOUTH ST PETERSBURG FL 33701 16800 0 RESEARCH JOHNS HOPKINS UNIVERSITY 3400 N CHARLES STREET BALTIMORE MD 21218 41800 0 RESEARCH MEDICAL COLLEGE OF WISCONSIN 9000 WEST WISCONSIN AVENUE MILWAUKEE WI 53201 25000 0 RESEARCH MEDICAL UNIV- SOUTH CAROLINA 171 ASHLEY AVENUE CHARLESTON SC 29425 25000 0 RESEARCH NEW YORK UNIVERSITY 50 WEST 4TH STREET NEW YORK NY 10012 155000 0 RESEARCH REGENTS OF UC IRVINE 5141 CALIFORNIA STE 250 IRVINE CA 92617 25000 0 RESEARCH SAINT LOUIS UNIVERSITY 1402 SOUTH GRAND BLVD ST LOUIS MO 63104 25000 0 RESEARCH SEATTLE CHILDRENS RESEARCH 1900 9TH AVENUE SEATTLE WA 98101 25000 0 RESEARCH ST JUDES CHILDRENS HOSPITAL 220 E 42ND STREET NEW YORK NY 10017 25000 0 RESEARCH ST LOUIS CHILDRENS HOSP ONE CHILDRENS PL ST LOUIS MO 63110 25000 0 RESEARCH TEXAS CHILDRENS HOSPITAL 1919 S BRAESWOOD SUITE 5214 HOUSTON TX 77030 50000 0 RESEARCH UCLA MEDICAL SCIENCE DEV 10945 LE CONTE AVENUE LOS ANGELES CA 90095 62500 0 RESEARCH UNIV OF TEXAS SW MED CTR 5323 HARRY HINES BLVD DALLAS TX 75390 25000 0 RESEARCH UNIVERSITY OF MIAMI ADV 1580 NORTHWEST 10TH AVE MIAMI FL 33136 25000 0 RESEARCH UNIVERSITY OF PITTBURGH 4227 FIFTH AVENUE PITTSBURGH PA 15260 25000 0 RESEARCH UNIVERSITY OF SAN DIEGO 5998 ALCALA PARK SAN DIEGO CA 92110 15000 0 RESEARCH UNIVERSITY OF SOUTH FLORIDA 4202 E FOWLER AVE TAMPA FL 33620 25000 0 RESEARCH YALE UNIVERSITY 38 HILLHOUSE AVENUE NEW HAVEN CT 06511 25000 0 RESEARCH 0 29 false false false false false false false false false CHRISTOPHER SIMS CHIEF FINANCIAL OFFICER 198273 198273 FREDERICK MODELL President 716538 716538 JESSICA QUINN SCIENTIFIC DIRECTOR 200677 200677 ROGER DAVILLA 197465 197465 VANESSA TENEMBAUM EXECUTIVE DIRECTOR 354119 354119 Form 990, Part VI, Section B, Line 11b THE PRESIDENT AND FINANCIAL OFFICER REVIEW THE FORM 990 WITH THE PREPARER Form 990, Part VI, Section B, Line 12c EVERY MATTER IS REVIEWED INITIALLY BY THE EXECUTIVE DIRECTOR. AFTER REVIEW, EACH MATTER IS FURTHER REVIEWED BY THE FOUNDATION'S OFFICERS. UPON THIS LEVEL OF REVIEW, ANY REMAINING ISSUES ARE BROUGHT TO THE ATTENTION OF OUTSIDE INDEPENDENT ADVISORS. Form 990, Part VI, Section B, Line 15a THE FOUNDATION UTILIZES COMPARABILITY STUDIES AS A GUIDELINE FOR DETERMINING COMPENSATION BASED ON SERVICES PERFORMED. Form 990, Part VI, Section C, Line 19 THE CONFLICT OF INTEREST POLICY AS WELL AS THE ACCOUNTABILITY AND TRANSPARENCY POLICY, WHISTLEBLOWER POLICY AND RECORDS RETENTION POLICY ARE POSTED ON THE FOUNDATION'S WEB-SITE. Form 990, Part XII, Line 2c THE AUDITED FINANCIAL STATEMENTS ARE REVIEWED BY MANAGEMENT Statement Note 1 Form 990 - Page 8, Section B - Description of ServicesCavarocchi,Ruscio, Dennis Associates, LLCNon-Government Advocacy for Education and Awareness ProgramsThe Causeway Agency - Media Placement and Monitoring of Public Service Advertising ProgramVeritas Intercontinenal- Clinical Diagnostic LaboratoryCircle Graphics - Creative and Marketing FirmEsubstance Limited (INK) - Destination/Meeting planner focused on Rare Diseases