2025-05-15T16:34:42-04:00 2024-12-31 383146599 COLE NEWTON & DURAN CPAS 33762 SCHOOLCRAFT RD LIVONIA MI 48150 990 2024-01-01 770552005 KENNEDY'S DISEASE ASSOCIATION INC KENN 8555327762 1445 WOODMONT LN NW UNIT 1805 ATLANTA GA 30318 TERRY THOMPSON PRESIDENT 8555327762 2025-05-14 true true GRETCHEN I STUART CPA P01345047 7344272030 2025-05-15 2024 2025-03-06 01:10:19Z X TERRY THOMPSON 1445 WOODMONT LN NW UNIT 1805 ATLANTA GA 30318 709288 false X WWW.KENNEDYSDISEASE.ORG X 2000 CA TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY). 10 10 0 150 0 441338 686608 0 13199 22680 -30280 454537 679008 477753 578162 0 0 0 0 21396 91633 499149 669795 -44612 9213 761855 879080 245940 328952 515915 550128 TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY). false false 534887 534887 TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL BULBAR ATROPHY). 19880 TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL BULBAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS. 99863 43275 TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL BULBAR ATROPHY). 654630 true true false false false false false false false false true false false false false true true false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 0 0 false 0 false false false false false false false false false false false false false false X 10 10 true false false false false false false true true false false true true true true true true false false false CA CO MD NC NV SC WI X X MARGY YELTON 5133785201 427 S BROADWAY ST LEBANON OH 45036 X TERRY THOMPSON PRESIDENT 20.00 X X 0 0 0 JAMESON PARKER VICE PRESIDE 5.00 X X 0 0 0 JOHN LAUBER TREASURER 12.00 X X 0 0 0 KATHY THOMPSON SECRETARY 20.00 X X 0 0 0 STEVEN RITTMASTER BOARD MEMBER 2.00 X 0 0 0 RON MOFFETT BOARD MEMBER 3.00 X 0 0 0 SIMON HILL BOARD MEMBER 6.00 X 0 0 0 DALE TRAXLER BOARD MEMBER 2.00 X 0 0 0 JOAN SORENSEN BOARD MEMBER 4.00 X 0 0 0 RANDY SOO HOO BOARD MEMBER 6.00 X 0 0 0 false false false 185261 501347 686608 22680 22680 185261 30280 -30280 679008 22680 296775 296775 281387 281387 8500 8500 65 65 4301 4301 3711 3711 64257 64257 1572 1572 BANK CHARGES 6279 6279 LICENSE & FEES 2648 2648 MEMBERSHIPS 300 300 669795 654630 15165 0 309824 354435 3295 3295 452031 524645 761855 879080 40 1065 245900 327887 245940 328952 X 515915 527128 23000 515915 550128 761855 879080 X 9213 25000 X false true X true X 195774 294128 324292 441338 686608 1942140 195774 294128 324292 441338 686608 1942140 195880 1746260 13199 22680 35879 1978019 0.88280 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2945 2945 350 350 X 709223 30280 30280 678943 65 65 679008 700010 30280 30280 669730 65 65 669795 SCHEDULE D, PAGE 3, PART X THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE U.S. INTERNAL REVENUE CODE. HOWEVER, INCOME FROM ACTIVITIES NOT DIRECTLY RELATED TO THE ASSOCIATIONS TAX-EXEMPT PURPOSE IS SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. THE ASSOCIATION HAD NO UNRELATED BUSINESS INCOME FOR THE YEAR ENDED DECEMBER 31, 2024. THE INTERNAL REVENUE SERVICE HAS CLASSIFIED THE ASSOCIATION AS AN ASSOCIATION THAT IS NOT A PRIVATE FOUNDATION. THE ASSOCIATION IS NO LONGER SUBJECT TO U.S. FEDERAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR THE 2021 FISCAL FILING YEAR AND PRIOR YEARS, GENERALLY THREE YEARS AFTER THEY WERE FILED. MANAGEMENT HAS EVALUATED FASB ASC 740, INCOME TAXES, AND HAS CONCLUDED IT HAS NO UNCERTAIN TAX POSITIONS. SCHEDULE D, PAGE 4, PART XI, LINE 2D SPECIAL EVENT EXPENSES 30,280 SCHEDULE D, PAGE 4, PART XII, LINE 2D SPECIAL EVENT EXPENSES 30,280 true EUROPE PROGRAM SERVICES EDUCATION RESEARCH 281387 281387 281387 RESEARCH 50000 WIRE TRANSFER RESEARCH 77000 WIRE TRANSFER RESEARCH 100000 WIRE TRANSFER RESEARCH 51387 WIRE TRANSFER false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 281,387 0 TEXAS GOLF SCRA 58879 58879 21080 DIM SUM - GIVE 37447 37447 9200 4 88935 88935 185261 185261 9200 21080 30280 -30280 true CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVE CLEVELAND OH 44106 341018992 501C3 100000 RESEARCH REVIR THERAPUTICS INC 150 NORTH HILL DRIVE STE 19 BRISBANE CA 94005 863092464 99500 RESEARCH BANBURY CENTER 1 BUNGTOWN ROAD COLD SPRING HARBOR NY 11724 112013303 501C3 43275 EDUCATION UNIVERSITY OF IRVINE 17801 CARTWRIGHT RD STE 203 IRVINE CA 92614 844635288 501C3 50000 RESEARCH 2 SCHEDULE I, PAGE 1, PART I, LINE 2 GRANT PROPOSALS ARE SUBMITED AND REVIEWED BY AN INDEPENDENT SCIENTIFIC REVIEW BOARD. THEIR RECOMMENDATIONS ARE CONSIDERED BY THE ORGANIZTION AND FINAL GRANTS ISSUED BY THE BOARD. THE RECIPIENT OF THE GRANT MUST ADHERE TO THE GRANT REQUIREMENTS, SUBMIT A FINAL ACCOUNTING AT THE END OF THE GRANT TERM, AND RETURN ANY EXCESS FUNDS TO THE ORGANIZATION. FORM 990, PAGE 6, PART VI, LINE 2 TERRY THOMPSON KATHY THOMPSON PRESIDENT SECRETARY HUSBAND AND WIFE FORM 990, PAGE 6, PART VI, LINE 11B A DRAFT FORM 990 IS CIRCULATED TO THE ORGANIZATION'S OFFICERS AND OTHER DIRECTORS FOR APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C A CONFLICT OF INTEREST WILL EXIST WHEN THE INTEREST OR CONCERNS OF A BOARD MEMBER, EMPLOYEE, INDEPENDENT CONTRACTOR, VOLUNTEER, OR ANY MEMBER OF HIS/HER IMMEDIATE FAMILY, PARTY, GROUP, OR ORGANIZTION IN WHICH THE PROFESSIONAL ARE ACTIVELY INVOLVED WITH, MAY HAVE, OR BE SEEN TO HAVE COMPETING INTERESTS WITH THE KENNEDY'S DISEASE ASSOCIATION (KDA). A CONFLICT OF INTEREST MAY ARISE WHEN: 1. THERE IS AN EXISTING RELATIONSHIP WHICH COULD IMPAIR THE EXERCISE OF THE PERSON'S INDEPENDENT JUDGEMENT ON BEHLAF OF THE KDA, OR 2. THE PERSON OR FAMILY MEMBER RECEIVED A FINANCIAL BENEFIT DIRECTLY OR FROM INFORMATION LEARNED DURING A BUSINESS RELATIONSHIP WITH THE KDA. ALL PERSONS INVOLVED WITH THE KDA'S BUSINESS MATTERS NOT ONLY SHOULD AVOID THESE SITUATIONS BUT ALSO AVOID THOSE SITUATIONS WHICH CREATE THE APPEARANCE OF A CONFLICT OF INTEREST. TO AVOID THE FACT OR APPEARANCE OF SUCH CONFLICT, ALL PARTIES MUST MAKE FULL DISCLOSURES OF INDIVIDUAL INTERESTS THAT MAY APPEAR TO CONFLICT WITH INTERESTS OF THE KDA. BOARD MEMBERS WILL REVIEW ANY DICLOSURES MADE. IF A TRUSTEE OR DIRECTOR IS INVOLVED WITH THIS CONFLICT OF INTEREST, THEY WILL NOT BE ABLE TO VOTE OR BE COUNTED AS PART OF THE QUORUM IN ANY DECISION ON THIS MATTER. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, THE INTERESTED PERSON SHALL LEAVE THE BOARD MEETING AND THE REMAINING BOARD WILL DECIDE IF A CONFLICT OF INTEREST EXISTS. FORM 990, PAGE 6, PART VI, LINE 19 ANNUAL REPORT IS MAILED OUT TO SUBSCRIBERS AS PART OF ONE OF THE QUARTERLY NEWSLETTERS AND IT IS ALSO POSTED ON THE ORGANIZATION'S WEBSITE. ORGANIZATION'S ARTICLES OF INCORPORATION ARE ALSO POSTED ON THE WEBSITE. FURTHER, REQUESTS FOR INFORMATION CAN BE MADE THROUGH THE ORGANIZATION'S TOLL FREE NUMBER OR THE ORGANIZATION'S EMAIL ADDRESS, AND INFORMATION WILL BE PROVIDED THEREIN. FORM 990, PART XI, LINE 9 SPECIAL EVENT EXPENSES 30,280 SPECIAL EVENT EXPENSES -30,280