2025-05-12T09:40:32-04:00 2024-09-30 364119639 KOLNICKI PETERSON & WIRTH CPA'S 1400 OPUS PLACE SUITE 100 DOWNERS GROVE IL 60515 990 2023-10-01 222580173 NEUROFIBROMATOSIS MIDWEST NEUR 6309453562 473 DUNHAM ROAD SUITE 3 ST CHARLES IL 60174 DIANA HABERKAMP EXECUTIVE DIRECTOR 6309328111 2025-04-29 true true KENNETH W PETERSON CPA P00046293 6303901140 2025-05-12 2023 2025-03-06 01:10:19Z DIANA HABERKAMP 274 SHAWNEE CIRCLE BARTLETT IL 60103 332092 false X WWW.NFMIDWEST.ORG X 1981 IL EDUCATION AND SUPPORT FOR THOSE WITH NEUROFIBROMATOSIS. 4 4 6 80 0 230293 295569 0 7244 8627 3686 3469 241223 307665 60282 17900 0 116338 140729 0 26259 85968 94044 262588 252673 -21365 54992 293598 366270 874 951 292724 365319 X TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI. false false 187646 7900 RESEARCH/CLINICS/IMPROVED CARE NEUROFIBROMATOSIS MIDWEST PROVIDES DIRECT GRANTS FOR RESEARCH AND RESEARCH SUPPORT. WE ALSO WORK WITH CLINICS IN OUR REGION TO IMPROVE CARE AND ACCESS TO CARE. ADDITIONALLY, WE WORK WITH THE NF COMMUNITY AND MANY OTHER RESOURCES ON ADDITIONAL PROGRAMS OR INITIATIVES TO IMPROVE THE QUALITY OF LIFE AND CARE FOR NF PATIENTS AND THEIR FAMILIES. 10000 10000 SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM; SMALLER LOCAL MEETINGS; AND PRINTED AND ONLINE MATERIALS. WE PROVIDE FREE PACKETS OF INFORMATION TO NEWLY DIAGNOSED FAMILIES AND PHONE AND ONLINE SUPPORT. AN ANNUAL GRANT IS PROVIDED TO SEND CHILDREN WITH NF TO CAMP. WE ALSO PROVIDE MATERIALS AND OPPORTUNITIES TO RAISE AWARENESS. 197646 true true false true false false false false false false true false false false false false false false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 0 0 6 true false false false false false true true false false false false false false false false X 4 4 false false false false false false false true true false false true true true false true true true true false IL IN WI X X DIANA HABERKAMP 6309453562 473 DUNHAM RD SUITE 3 3 ST CHARLES IL 60174 X DENISE DULCEAK BOARD CHAIR 1.00 X X 0 0 0 DIANA HABERKAMP EXECUTIVE DI 40.00 X X 0 0 0 GAIL MAVROGENES BOARD MEMBER 1.00 X 0 0 0 ANDY RINGO TREASURER 1.00 X X 0 0 0 LESLI WEGNER SECRETARY 1.00 X X 0 0 0 false false false 87939 207630 10172 295569 7144 7144 11655 10172 1483 1483 1483 16314 87939 13129 3185 1410 1126 284 284 307665 1767 7144 16400 16400 1500 1500 130728 98046 16995 15687 10001 6801 1600 1600 2750 1430 1320 10350 10350 10141 10141 198 198 8988 6712 1138 1138 11557 7975 1501 2081 15992 9595 4798 1599 8344 8344 300 300 12689 12689 857 857 2400 1882 311 207 BANK AND CREDIT CARD FEES 6768 2368 2099 2301 TELEPHONE 2172 1520 326 326 NF EDUCATION 481 481 MISCELLANEOUS 57 57 252673 197646 28768 26259 51570 67656 105 4283 1525 3615 2758 237208 294756 1100 1100 293598 366270 874 951 874 951 X 292724 365319 292724 365319 293598 366270 X 54992 17603 X true X false true false X 140948 145261 183921 230293 295569 995992 140948 145261 183921 230293 295569 995992 995992 7244 7144 14388 2683 3 1 2687 1013067 202321 0.98310 0.98660 X PART II, LINE 10 OTHER INCOME 2,687 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false false false false false false false SCHEDULE C, PART II-B, LINE 1 THE ORGANIZATION HIRED A LOBBYING FIRM THAT PUTS THE ORGANIZATION'S PEOPLE AT NEUROFIBROMATOSIS MIDWEST IN CONTACT WITH POLITICIANS. 4283 1525 2758 2758 321920 14255 14255 307665 307665 266928 14255 14255 252673 252673 SCHEDULE D, PAGE 4, PART XI, LINE 2D DIRECT EXPENSES 14,255 SCHEDULE D, PAGE 4, PART XII, LINE 2D DIRECT EXPENSES 14,255 GREAT STEPS 102616 87939 14677 13129 102616 87939 14677 13129 13129 1548 false BRAINY CAMPS 111 MICHIGAN AVE NW WASHINGTON DC 20010 271547370 X 10000 SUMMER CAMP FORM 990 - ORGANIZATION'S MISSION TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI. FORM 990, PAGE 6, PART VI, LINE 11B THE ORGANIZATION'S PRINCIPAL OFFICER WILL REVIEW THE FEDERAL 990 AND IN ADDITION THE TREASURER AND PRESIDENT WILL REVIEW THE FEDERAL 990 PRIOR TO THE ACTUAL IRS FILING. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD OF DIRECTORS DETERMINE THE SALARIES ANNUALLY. FORM 990, PAGE 6, PART VI, LINE 15B THE BOARD OF DIRECTORS DETERMINE THE BASE SALARIES. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLICE BY REQUEST, FORM 990, PART XI, LINE 9 DIRECT EXPENSES 14,255 DIRECT EXPENSES -14,255