2025-12-11T14:21:44-05:00 2023-09-30 991887012 REED QUINN & MCCLURE 2055 N BROWN RD STE 150 LAWRENCEVILLE GA 300434920 990 2022-10-01 581231804 LUPUS FOUNDATION OF AMERICA GEORGIA CHAPTER INC LUPU 7703335930 1337-D CANTON RD MARIETTA GA 30066 TERI EMOND PRESIDENT & CEO 7703335930 2024-01-30 true true GREGORY SILBERMAN P02368872 7704499144 2025-12-10 2022 2025-03-06 01:10:19Z X TERI EMOND 1337-D CANTON RD MARIETTA GA 30066 714846 false X WWW.LUPUSGA.ORG X 1975 GA SEE PAGE 2 PART III 9 9 8 450 0 663004 714492 0 0 -76929 -68166 586075 646326 13259 0 229209 239003 0 31663 275098 343492 504307 595754 81768 50572 558120 612449 138671 79927 419449 532522 X THE LUPUS FOUNDATION OF AMERICA IS THE FOREMOST NATIONAL NONPROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED TO FINDING THE CAUSES OF AND CURE FOR LUPUS AND PROVIDING SUPPORT, SERVICES, AND HOPE TO ALL PEOPLE AFFECTED BY LUPUS. THE GEORGIA CHAPTER'S PROGRAMS ARE THE ONLY STATEWIDE VALUABLE RESOURCE FOR THOUSANDS OF PATIENTS AND FAMILIES PROVIDING SUPPORT AND INFORMATION, PHYSICIAN REFERRALS, PUBLIC AND PROFESSIONAL EDUCATION AND GRASS-ROOTS ADVOCACY false false 533300 13259 AS THE ONLY STATEWIDE VALUABLE RESOURCE FOR THE 55,000 GEORGIANS WITH LUPUS, THE GEORGIA CHAPTER PROVIDES THOUSANDS WITH FREE, VALUABLE EDUCATIONAL INFORMATION, PHYSICIAN REFERRALS, RESOURCES, SUPPORT GROUPS AND EDUCATIONAL PROGRAMS REACHING PATIENTS IN 120 OF THE 159 COUNTIES IN GEORGIA. NINETY PERCENT OF EVERY DOLLAR DONATED STAYS IN GEORGIA TO SUPPORT OUR PROGRAMS. THE CHAPTER ALSO SUPPORTS THE NATIONAL RESEARCH EFFORTS OF THE LUPUS FOUNDATION OF AMERICA, WORKING TO ADVANCE THE SCIENCE AND MEDICINE OF LUPUS TO BRING DOWN THE BARRIERS THAT HAVE IMPEDED PROGRESS IN LUPUS RESEARCH. DESPITE ITS PREVALENCE, LUPUS REMAINS ONE OF THE LEAST RECOGNIZABLE AND MOST MISUNDERSTOOD DISEASES IN BOTH THE MEDICAL AND LAY COMMUNITIES. THERE IS NO KNOWN CAUSE, NO CURE, AND THE INCIDENCE HAS INCREASED HUGELY IN THE PAST 20 YEARS. CURRENT TREATMENTS ARE OFTEN VERY TOXIC, THE SIDE EFFECTS OFTEN RIVALING THE SYMPTOMS OF THE DISEASE. WE REACH OUT TO OUR LUPUS CONSTITUENTS AND THEIR FAMILIES WITH OUR YEAR ROUND CHAPTER PROGRAMS AND EVENTS AND IN A VARIETY OF WAYS, FROM DIRECT MAIL TO ONLINE EMAILS BLASTS, WEBSITE UPDATES AND INFORMATION PLACEMENT IN DOCTORS' OFFICES: OVER 39,000 VISITORS TO OUR WEBSITE IN THIS PAST YEAR. OVER 1,200 INQUIRIES AND CHAPTER RESPONSES FROM PATIENTS AND FAMILIES FOR INFORMATION, RESOURCES, AND REFERRALS. MORE THAN 16,000 SOCIAL MEDIA FOLLOWERS. MORE THAN 56,000 PROFILES IN THE CONSTITUENT DATABASE. MORE THAN 25,000 CONSTITUENTS IN THE EMAIL DATABASE. MEDICAL ADVISORY BOARD, COMPRISED OF 57 MEDICAL AND HEALTH CARE PROFESSIONALS DEDICATED TO SUPPORTING THE IMPORTANT WORK OF THE GEORGIA CHAPTER. IN THE PAST YEAR, MORE THAN 1,200 PEOPLE ATTENDED VIRTUAL SYMPOSIUMS, SEMINARS, AND SUMMITS. 25 SUPPORT GROUPS THROUGHOUT THE STATE WITH VIRTUAL ATTENDANCE OF AT LEAST 2,000 PARTICIPANTS. PATIENT NAVIGATOR PROGRAM SUPPORTING 62 PATIENTS AT THE GRADY LUPUS CLINIC AND THE EMORY MIDTOWN NEPHRITIS CLINIC IN OUR FIRST YEAR. SCHOOL NURSES TRAINING FOR 220+ NURSES IN THE METRO ATLANTA AREA IN PARTNERSHIP WITH THE AMERICAN COLLEGE OF RHEUMATOLOGY. 200,000 WHAT IS LUPUS? BROCHURES, IN ENGLISH AND SPANISH HAVE BEEN DISTRIBUTED IN DOCTORS' OFFICES ACROSS GEORGIA. 3,500 WALKERS AND FAMILIES WERE INSPIRED AND EMPOWERED AT THE 2022 ATLANTA WALK TO END LUPUS NOW, THE SECOND LARGEST LFA WALKS IN THE NATION. IN ADDIITON 500 ATTENDED OUR WALKS IN AUGUSTA, COLUMBUS AND MACON. THE GEORGIA CHAPTER CONTINUALLY UPDATES THE LUPUS RESOURCE TOOLKIT WHICH PROVIDES A LIST OF PATIENT SERVICES AVAILABLE IN THE STATE. THE GEORGIA CHAPTER PARTICIPATES IN A NUMBER OF AWARENESS AND EDUCATION CAMPAIGNS INCLUDING THE LFA-CDC FUNDED GRANT TO PROMOTE LUPUS AWARENESS TO MINORITY COMMUNITIES THROUGH THE LFA'S BE FIERCE, TAKE CONTROL AND STRATEGIES TO EMBRACE LIVING WITH LUPUS FEARLESSLY (SELF) INITIATIVES, THE HISTORICALLY BLACK COLLEGE AND UNIVERSITY CAMPAIGN TO BRING AWARENESS TO COLLEGES AND UNIVERSITIES, THE ANNUAL ADVOCACY DAY AT THE GEORGIA STATE CAPITOL, THE WALK TO END LUPUS, AND LUPUS@WORK INITIATIVE TO ADDRESS WORKPLACE CONCERNS. OUR LUPUS PARENT PROJECT, IN PARTNERSHIP WITH CHILDREN'S HEALTHCARE OF ATLANTA, PROVIDES PARENTS OF CHILDREN, ADOLESCENTS, AND YOUNG ADULTS WITH LUPUS WITH THE OPPORTUNITY TO ENGAGE WITH OTHER PARENTS IN A SAFE AND SUPPORTIVE ENVIRONMENT. THE MOST IMPORTANT WORK CONTINUES AT THE PATIENT SERVICES LEVEL, PROVIDING CRITICAL RESOURCES TO 1,300+ PEOPLE INCLUDING EMERGENCY FINANCIAL ASSISTANCE ALL THE WHILE COUNSELLING OUR CONSTITUENTS TO HELP THEM FIND SUSTAINABLE RESOURCES. 533300 true true false false false false false false false false true false false false true true true false false false false false false false true false false false true false false false false false false false false false false false false false false false false false false true 8 0 true 8 true false false false false false false false false false false false false X 9 9 false false false false false false false true true false false true true false true true true true true false GA X X THE ORGANIZATION 7703335930 1850 LAKE PARK DRIVE 101 SMYRNA GA 30080 TERI EMOND PRESIDENT & 40.00 X 103337 0 5167 VI-VI NGUYEN BOARD CHAIR 1.00 X X 0 0 0 RON OERTELL TREASURER 0.50 X X 0 0 0 BRITTANY WYATT SECRETARY 0.50 X X 0 0 0 REBECCA DEUTSCH DIRECTOR 0.50 X 0 0 0 ASYRIA DANIELS DIRECTOR 0.50 X 0 0 0 DIANE POWELL-LARCHE' DIRECTOR 0.50 X 0 0 0 LATOYA DOBY-HOLMES DIRECTOR 0.50 X 0 0 0 KEITH FULTON DIRECTOR 0.50 X 0 0 0 JAGINDRA MANGRU MD DIRECTOR 0.50 X 0 0 0 103337 5167 1 false false false 355157 153391 205944 714492 355157 68520 -68520 -68520 OTHER 900099 354 354 354 646326 -68166 X 13259 13259 108504 97654 5425 5425 113525 102173 5676 5676 16974 15277 848 849 10551 9495 528 528 114826 95540 11465 7821 7608 6848 380 380 26348 23713 1317 1318 19750 17775 988 987 34291 30861 1715 1715 24799 22319 2480 46167 46167 1453 1307 73 73 22510 20259 1126 1125 598 538 30 30 9675 8708 483 484 SOCIAL MEDIA 9638 7710 1928 EQUIPMENT RENTAL 6843 6159 342 342 BRACELETS & PINS 3893 3504 194 195 OTHER EXPENSES 2023 1821 101 101 2519 2213 100 206 595754 533300 30791 31663 449631 564741 42267 9090 819 9848 24268 24215 651 53 64752 28717 558120 612449 39564 26300 7200 33540 16777 65567 29650 138671 79927 X 302052 486886 117397 45636 419449 532522 558120 612449 X 50572 62501 X false true X true false X 723724 476266 602039 663004 714492 3179525 723724 476266 602039 663004 714492 3179525 738311 2441214 1148 1128 2294 354 4924 3184449 42 0.76660 0.85560 X PART II, LINE 10 OTHER INCOME 4,924 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 24268 24215 53 53 LEASE LIABILITY 29650 29650 X 646326 646326 646326 595754 595754 595754 SCHEDULE D, PAGE 3, PART X THE CHAPTER IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE INTERNAL REVENUE CODE. ACCORDINGLY, THE CHAPTER IS NOT REQUIRED TO PAY INCOME TAXES. CONTRIBUTIONS TO THE CHAPTER QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY THE INTERNAL REVENUE CODE. THE CHAPTER HAS NOT HAD INCOME SUBJECT TO THE UNRELATED BUSINESS INCOME TAX. ACCORDINGLY, IT HAS TAKEN NO UNCERTAIN TAX POSITIONS. WALK FOR LUPUS 322587 322587 68520 THIRD PARTY EVE 32570 32570 355157 355157 68520 68520 -68520 true EMERGENCY FINANCIAL ASST. 32 10601 BOOK SAM LIM 1 2658 BOOK FORM 990, PAGE 1, ITEM B THE AUDITED FINANCIAL STATEMENTS FOR THE ORGANIZATION WERE COMPLETED AFTER THE ORIGINAL FILING OF FORM 990. FORM 990 IS BEING AMENDED SO THAT IT AGREES WITH THE AUDITED FINANCIAL STATEMENTS AS OF 9/30/2023. FORM 990 - ORGANIZATION'S MISSION THE LUPUS FOUNDATION OF AMERICA IS THE FOREMOST NATIONAL NONPROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED TO FINDING THE CAUSES OF AND CURE FOR LUPUS AND PROVIDING SUPPORT, SERVICES, AND HOPE TO ALL PEOPLE AFFECTED BY LUPUS. THE GEORGIA CHAPTER'S PROGRAMS ARE THE ONLY STATEWIDE VALUABLE RESOURCE FOR THOUSANDS OF PATIENTS AND FAMILIES PROVIDING SUPPORT AND INFORMATION, PHYSICIAN REFERRALS, PUBLIC AND PROFESSIONAL EDUCATION AND GRASS-ROOTS ADVOCACY FORM 990, PAGE 2, PART III, LINE 4A AS THE ONLY STATEWIDE VALUABLE RESOURCE FOR THE 55,000 GEORGIANS WITH LUPUS, THE GEORGIA CHAPTER PROVIDES THOUSANDS WITH FREE, VALUABLE EDUCATIONAL INFORMATION, PHYSICIAN REFERRALS, RESOURCES, SUPPORT GROUPS AND EDUCATIONAL PROGRAMS REACHING PATIENTS IN 120 OF THE 159 COUNTIES IN GEORGIA. NINETY PERCENT OF EVERY DOLLAR DONATED STAYS IN GEORGIA TO SUPPORT OUR PROGRAMS. THE CHAPTER ALSO SUPPORTS THE NATIONAL RESEARCH EFFORTS OF THE LUPUS FOUNDATION OF AMERICA, WORKING TO ADVANCE THE SCIENCE AND MEDICINE OF LUPUS TO BRING DOWN THE BARRIERS THAT HAVE IMPEDED PROGRESS IN LUPUS RESEARCH. DESPITE ITS PREVALENCE, LUPUS REMAINS ONE OF THE LEAST RECOGNIZABLE AND MOST MISUNDERSTOOD DISEASES IN BOTH THE MEDICAL AND LAY COMMUNITIES. THERE IS NO KNOWN CAUSE, NO CURE, AND THE INCIDENCE HAS INCREASED HUGELY IN THE PAST 20 YEARS. CURRENT TREATMENTS ARE OFTEN VERY TOXIC, THE SIDE EFFECTS OFTEN RIVALING THE SYMPTOMS OF THE DISEASE. WE REACH OUT TO OUR LUPUS CONSTITUENTS AND THEIR FAMILIES WITH OUR YEAR ROUND CHAPTER PROGRAMS AND EVENTS AND IN A VARIETY OF WAYS, FROM DIRECT MAIL TO ONLINE EMAILS BLASTS, WEBSITE UPDATES AND INFORMATION PLACEMENT IN DOCTORS' OFFICES: OVER 39,000 VISITORS TO OUR WEBSITE IN THIS PAST YEAR. OVER 1,200 INQUIRIES AND CHAPTER RESPONSES FROM PATIENTS AND FAMILIES FOR INFORMATION, RESOURCES, AND REFERRALS. MORE THAN 16,000 SOCIAL MEDIA FOLLOWERS. MORE THAN 56,000 PROFILES IN THE CONSTITUENT DATABASE. MORE THAN 25,000 CONSTITUENTS IN THE EMAIL DATABASE. MEDICAL ADVISORY BOARD, COMPRISED OF 57 MEDICAL AND HEALTH CARE PROFESSIONALS DEDICATED TO SUPPORTING THE IMPORTANT WORK OF THE GEORGIA CHAPTER. IN THE PAST YEAR, MORE THAN 1,200 PEOPLE ATTENDED VIRTUAL SYMPOSIUMS, SEMINARS, AND SUMMITS. 25 SUPPORT GROUPS THROUGHOUT THE STATE WITH VIRTUAL ATTENDANCE OF AT LEAST 2,000 PARTICIPANTS. PATIENT NAVIGATOR PROGRAM SUPPORTING 62 PATIENTS AT THE GRADY LUPUS CLINIC AND THE EMORY MIDTOWN NEPHRITIS CLINIC IN OUR FIRST YEAR. SCHOOL NURSES TRAINING FOR 220+ NURSES IN THE METRO ATLANTA AREA IN PARTNERSHIP WITH THE AMERICAN COLLEGE OF RHEUMATOLOGY. 200,000 WHAT IS LUPUS? BROCHURES, IN ENGLISH AND SPANISH HAVE BEEN DISTRIBUTED IN DOCTORS' OFFICES ACROSS GEORGIA. 3,500 WALKERS AND FAMILIES WERE INSPIRED AND EMPOWERED AT THE 2022 ATLANTA WALK TO END LUPUS NOW, THE SECOND LARGEST LFA WALKS IN THE NATION. IN ADDIITON 500 ATTENDED OUR WALKS IN AUGUSTA, COLUMBUS AND MACON. THE GEORGIA CHAPTER CONTINUALLY UPDATES THE LUPUS RESOURCE TOOLKIT WHICH PROVIDES A LIST OF PATIENT SERVICES AVAILABLE IN THE STATE. THE GEORGIA CHAPTER PARTICIPATES IN A NUMBER OF AWARENESS AND EDUCATION CAMPAIGNS INCLUDING THE LFA-CDC FUNDED GRANT TO PROMOTE LUPUS AWARENESS TO MINORITY COMMUNITIES THROUGH THE LFA'S BE FIERCE, TAKE CONTROL AND STRATEGIES TO EMBRACE LIVING WITH LUPUS FEARLESSLY (SELF) INITIATIVES, THE HISTORICALLY BLACK COLLEGE AND UNIVERSITY CAMPAIGN TO BRING AWARENESS TO COLLEGES AND UNIVERSITIES, THE ANNUAL ADVOCACY DAY AT THE GEORGIA STATE CAPITOL, THE WALK TO END LUPUS, AND LUPUS@WORK INITIATIVE TO ADDRESS WORKPLACE CONCERNS. OUR LUPUS PARENT PROJECT, IN PARTNERSHIP WITH CHILDREN'S HEALTHCARE OF ATLANTA, PROVIDES PARENTS OF CHILDREN, ADOLESCENTS, AND YOUNG ADULTS WITH LUPUS WITH THE OPPORTUNITY TO ENGAGE WITH OTHER PARENTS IN A SAFE AND SUPPORTIVE ENVIRONMENT. THE MOST IMPORTANT WORK CONTINUES AT THE PATIENT SERVICES LEVEL, PROVIDING CRITICAL RESOURCES TO 1,300+ PEOPLE INCLUDING EMERGENCY FINANCIAL ASSISTANCE ALL THE WHILE COUNSELLING OUR CONSTITUENTS TO HELP THEM FIND SUSTAINABLE RESOURCES. FORM 990, PAGE 6, PART VI, LINE 11B THE CHAIRMAN OF THE BOARD SENDS THE DRAFT 990 TO ALL BOARD MEMBERS FOR REVIEW. BOARD MEMBERS MUST REPLY STATING THEY HAVE REVIEWED THE DOCUMENT. FORM 990, PAGE 6, PART VI, LINE 12C EACH BOARD MEMBER SIGNS A CONFLICT OF INTEREST POLICY DOCUMENT. FORM 990, PAGE 6, PART VI, LINE 15A FOR FY22 SALARIES, THE COMPENSATION COMMITTEE REVIEWED THE PERFORMANCES TO DATE OF THE TWO KEY PERSONNEL. THE COMPENSATION WAS INCLUDED IN THE CHAPTER FY21 BUDGET FOR ALL THE BOARD MEMBERS TO REVIEW. FORM 990, PAGE 6, PART VI, LINE 15B FOR FY22 SALARIES, THE COMPENSATION COMMITTEE REVIEWED THE PERFORMANCES TO DATE OF THE TWO KEY PERSONNEL. THE COMPENSATION WAS INCLUDED IN THE CHAPTER FY21 BUDGET FOR ALL THE BOARD MEMBERS TO REVIEW. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS,CONFLICTY OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE FOR REVIEW BY REQUEST AT THE ORGANIZATION'S OFFICE. FORM 990, PART IX, LINE 11G CONTRACT LABOR 51,533 2,863 2,863 PAYROLL SERVICE 0 4,276 0 SQUARE FEES 11,097 793 3,963 RETIREMENT PLAN ADMIN 0 2,538 0 GRANT WRITING 3,000 0 0 DATA COLLECTION 12,000 0 0 PATIENT NAVIGATORS 17,910 995 995 TOTAL 95,540 11,465 7,821 FORM 990, PART XI, LINE 9 CONTRIBUTIONS WITH RESTRICTIONS 62,501