2025-11-24T16:29:44-05:00 2024-12-31 990 2024-01-01 161513923 WORLD FEDERATION OF HEMOPHILIA USA WORL 8774177944 PMB 142 911 CENTRAL AVE ALBANY NY 122061304 Alain Baumann 8774177944 2025-11-25 2024 2025-03-06 01:10:19Z X Alain Baumann 1425 Rene Levesque West Suite 1200 MONTREAL Quebec CA H3G 1T7 1095526264 false X www.wfhusa.org X 1996 NY Affiliated to the World Federation of Hemophilia an international charitable organization based in Montreal the mission of the World Federation of Hemophilia USA is to advance the global mission of WFH within the US to improve and sustain care for people with inherited bleeding disorders around the world 12 12 0 13 0 0 1131275449 1095452756 0 0 21376 73508 0 0 1131296825 1095526264 1067532407 1154048112 0 0 0 0 0 0 60197 3340505 850611 1070872912 1154898723 60423913 -59372459 436959567 377644851 309970 345276 436649597 377299575 The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All. false false 1153880637 1153186208 1094378239 The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy.The reported $59.37 million deficit is primarily attributable to fluctuations in the value of donated pharmaceutical products which are recorded as in-kind revenue and expense. These are non-cash transactions impacting the total change in net assets without reflecting a change in operating cash flow or program delivery. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over seventy countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program. 647000 582300 647000 The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Training and Education Program. 155000 139500 155000 The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Research Program. 33165 0 0 Other programs include the Awareness Building and Travel Fund. This initiative is dedicated to increasing awareness about bleeding disorders in the United States and worldwide. 33165 0 0 1154715802 true true false false false false false false false true false false false false false false true false false true true true false false false false false false false false false false false false false false false false true false false false false true false false false true 0 0 0 false false false false false false false 0 false false false false false false false false false false 12 12 false false false false true true true true true false false true true true true false false false false false AL AK AR CA CO CT DC FL GA HI IL KS KY ME MD MA MI MS NH NJ NY NC OH OK OR PA RI SC TN UT VA WA WV WI X World Federation of Hemophilia 5148757944 1184 rue Sainte Catherine Ouest Bureau 500 MONTREAL QC CA H3B 1K1 X Len Valentino President 1.00 0 X X 0 0 0 Philip Kucab Vice-President 1.00 0 X X 0 0 0 Sean Singh Treasurer 1.00 0 X X 0 0 0 Alain Baumann Secretary Exec Director 4.00 0 X X X 0 0 0 Paula Bell BoD member 1.00 0 X 0 0 0 Jeff Blake BoD member 1.00 0 X 0 0 0 Joanne A Davis BoD member 1.00 0 X 0 0 0 Amy Dunn BoD member 1.00 0 X 0 0 0 Rob Maloney BoD member 1.00 0 X 0 0 0 Glenn Pierce BoD member 1.00 0 X 0 0 0 Dawn Rotellini BoD member 1.00 0 X 0 0 0 Frank Schnabel IV BoD member 1.00 0 X 0 0 0 Mark Skinner BoD member 1.00 0 X 0 0 0 Eric Stolte BoD member 1.00 0 X 0 0 0 0 0 0 0 false false false 0 0 0 0 0 1095452756 1090753383 1095452756 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 73508 73508 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1095526264 73508 0 0 0 0 0 0 1154048112 1154048112 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 227230 155659 30150 41421 0 0 0 0 16840 0 16840 0 0 0 0 0 0 0 8939 0 8939 0 32724 0 32542 182 2713 1791 0 922 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 18159 0 14173 3986 0 0 0 0 10009 0 10009 0 0 0 0 0 0 0 0 0 0 0 0 0 8000 0 8000 0 Postage / shipping 438 0 346 92 0 0 0 0 Charitable registrations and filing fees 15319 0 1725 13594 Pharmaceutical product expiration and damage 510240 510240 0 0 0 0 0 0 1154898723 1154715802 122724 60197 0 0 0 0 265133 565925 0 0 0 0 354729 147266 0 0 0 0 0 0 435020873 375518475 0 0 0 0 0 0 1318832 1413185 0 0 0 0 0 0 0 0 436959567 377644851 309970 345276 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 309970 345276 X 435561558 376152949 1088039 1146626 436649597 377299575 436959567 377644851 -59372459 22437 0 0 0 0 X true X true X true false X 398358408 822907635 684598697 1131275449 1095452756 4132592945 0 0 0 0 0 0 0 0 0 0 0 0 398358408 822907635 684598697 1131275449 1095452756 4132592945 3592832797 539760148 116832 218704 50745 105968 87006 579255 0 0 0 0 0 0 0 0 0 0 0 0 4133172200 0.1306 0.1344 X Part II, line 17a See an attached PDF document for detailed explanation for line 17a RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 896906 24054 59695 0 -22615 0 958040 764348 53114 79444 0 0 0 896906 602082 63001 0 0 0 0 665083 550651 52776 0 0 0 0 602082 497885 52766 0 0 0 0 550651 0 0 0 false false 1095539762 22437 22437 1095517325 8939 8939 1095526264 1154889784 0 1154889784 8939 8939 1154898723 Part I to XII | PartandLinenumber:,Explanation:| Part V Line 4,The Susan Skinner Memorial Fund SSMF has been established as an endowment fund to support through scholarship payments the training education and leadership development of women within the bleeding disorders community. Scholarship recipients aged 18-60 years from the United States and abroad demonstrate outstanding leadership in improving the care of women with bleeding disorders in their countries and show potential to become future leaders in the bleeding disorders community.| true East Asia and the Pacific 0 0 Program services HUMANITARIAN AID 114314618 Europe Including Iceland and Greenland 0 0 Program services HUMANITARIAN AID 3140655 Middle East and North Africa 0 0 Program services HUMANITARIAN AID 85439563 Russia and Neighboring States 0 0 Program services HUMANITARIAN AID 52563153 South America 0 0 Program services HUMANITARIAN AID 85669708 South Asia 0 0 Program services HUMANITARIAN AID 405900136 Sub-Saharan Africa 0 0 Program services HUMANITARIAN AID 316948477 Central America and the Caribbean 0 0 Program services HUMANITARIAN AID 80479151 North America 0 0 Program services HUMANITARIAN AID 5290080 North America 0 0 Program services HUMANITARIAN AID 3440667 North America 0 0 Program services RESEARCH PROGRAM 139500 North America 0 0 Program services TRAINING AND EDUCATION PROGRAM 582300 0 0 0 0 1153908008 1153908008 North America HUMANITARIAN AID 3440667 CHECK Middle East and North Africa HUMANITARIAN AID 7282000 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 884000 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 11835600 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 18199425 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 2191436 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 13080670 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 19091622 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 13879660 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 198403290 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 57517504 MEDICAL SUPPLY FMV North America HUMANITARIAN AID 139500 CHECK Sub-Saharan Africa HUMANITARIAN AID 5530300 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 12970652 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 264000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 13567940 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 22492437 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 14656000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 1462405 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 7674421 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 3659780 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 69200 MEDICAL SUPPLY FMV North America HUMANITARIAN AID 582300 CHECK Central America and the Caribbean HUMANITARIAN AID 15951967 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 7160580 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 565200 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 594000 MEDICAL SUPPLY FMV East Asia and the Pacific East Asia and the Pacific 40633808 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 10116500 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 507805 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 2823500 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 66100 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 48799360 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 16572503 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 2186693 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 46900316 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 11003140 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 11699900 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 40726254 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 54758042 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 1039000 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 44476046 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 8980000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 681000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4184831 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1260000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 7395932 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 15422015 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4429992 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4315485 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 11893375 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 747000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 456000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 11518778 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 29557924 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 8910806 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1742250 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1870530 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 114000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 7218420 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 2577000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 29020010 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 7885484 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 70564351 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1257075 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 25178800 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1216900 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1199700 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 42775196 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 5066777 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 16798845 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1892500 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 549000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 9832670 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 8313976 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 280940 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 9356471 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 8662155 MEDICAL SUPPLY FMV North America HUMANITARIAN AID 5290080 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 36215 MEDICAL SUPPLY FMV 1 78 false false false false false false Part I, II, III and IV | PartandLinenumber:,Explanation:| Part I Line 2,Humanitarian aid is shipped to hospitals registered hemophilia associations and ministries of health in recipient countries. Shipments are handled by international freight forwarders requiring full documentation of product type quantity customs value and delivery details with contact information. Before shipping we coordinate with the recipient and freight forwarder to ensure all documents and authorizations are in place. The freight forwarder provides an airway bill and tracks delivery. Recipients must send a signed acknowledgment confirming product details brand manufacturer lot quantity expiry. They must also submit a utilization report describing how the donated products were used. Detailed reporting on usage of the monetary allocations to the WFH for Joint programms is being periodically presented to the Finance Committee and the Board of Directors of WFH USA.| X 65 7329 FMV X 529806 1090753383 REF. PRICING BOOK 0 false true false Item B - Amended Return In Part IX Column d we identified a rounding discrepancy. While the error is immaterial and does not affect the financial statements we are submitting an amended return to ensure accuracy and consistency in reporting. Doing Business As Names WFH USA Part VI, Line 6 The World Federation of Hemophilia WFH a Canadian charity is the sole member of WFH USA. Part VI, Line 7a The World Federation of Hemophilia WFH has the power to elect all members of WFH USAs governing body. In addition the World Federation of Hemophilia has the sole power to amend the bylaws of the organization. Part VI, Line 7b Once a year at the General Assembly the WFH as a sole voting member of WFH USA approves the election of WFH USA Board of Directors Part VI, Line 11a Form 990 is prepared by the WFH staff and reviewed by the Head of Accounting & Financial Planning and Finance & Administration Director. After approval Form 990 is sent to the WFH USAs Executive Director and Finance Committee for their review and approval. Upon approval a copy of the form is also provided to all other members of the Board. Subsequently Form 990 is published on the WFH USA website for public inspection Part VI, Line 12c Officers and Directors have to sign a conflict of interest form every year at the first annual board meeting. This is a standing agenda item such that conflicts are updated if required at each board meeting. Disclosure of a conflict or potential conflict of interest enables the Board to request the abstention of a member from an area where conflict occurs or could occur. Part VI, Line 19 The audited financial statements of WFH USA are posted on the organizations website along with the completed Form 990 and schedules. WORLD FEDERATION OF HEMOPHILIA 1184 Sainte Catherine Ouest Suite Montreal QC CA H3B1K1 108222050 Improve and sustain care for people with inherited bleeding disorders around the world. CA 501(C)(3) Charity Status 7 N/A false false false false false false false false false false false true true true false true true WORLD FEDERATION OF HEMOPHILIA M 227231 In accordance with the services agreement between WFH and WFH USA WFH provides various services to WFH USA. As full consideration for these services WFH USA reimburses WFH for the actual costs incurred without any markup. In 2024 reimbursements related to employee salaries totaled $ 227,231. WORLD FEDERATION OF HEMOPHILIA S 33778 The WFH received monetary donations on behalf of WFH USA throughout the year. These donations totaling $33,778 were transferred from WFH to WFH USA. WORLD FEDERATION OF HEMOPHILIA P 192845 In 2024 WFH incurred various expenses on behalf of WFH USA. These expenses totaling $192,845 were properly recorded in the accounting books and subsequently reimbursed to WFH. WORLD FEDERATION OF HEMOPHILIA R 4162467 WFH USA has signed a Collaboration Agreement with WFH which defines joint and coordinated activities the Joint Programs to support their common charitable goal. The Joint Programs currently include the WFH Humanitarian Aid Program the WFH Research Program WFH Training and Education Program including other programs. As per the Collaboration Agreement donors may designate contributions to WFH USA solely to be used to financially support the WFH Joint Programs. These donations less reasonable costs of administration and management incurred by WFH USA are periodically allocated to WFH as needed to carry out WFHs responsibilities with respect to the Joint Programs. In 2024 the total amount of contributions received by WFH USA was $4,416,663 of which $4,162,467 was allocated to WFH. WORLD FEDERATION OF HEMOPHILIA O 65095 In 2024 the National Director of WFH USA also held the position of Head of Corporate and Community Partnership at WFH and Executive Director Secretary of WFH USA also served as the CEO of WFH. They both are paid by WFH. Employee time dedicated to WFH USA is determined based on timesheets and the dollar equivalent is being compensated by WFH USA to the WFH. The compensated amount was $65,095 in 2024 included in part V 1m