2025-11-17T09:44:42-05:00 2024-12-31 522212837 GREENE FINNEY CAULEY LLP 908 N MAIN ST ANDERSON SC 29621 990 2024-01-01 474901704 CP NOW CPNO 4023022776 PO BOX 8347 GREENVILLE SC 29604 PAUL GROSS PRESIDENT AND CEO 8642526828 2025-11-15 true true CHRISTOPHER S CAULEY P00534004 8642258713 2025-11-15 2024 2025-03-06 01:10:19Z CEREBRAL PALSY RESEARCH NETWORK PAUL GROSS PO BOX 8347 GREENVILLE SC 29604 1054350 false X CPRN.ORG X 2015 SC CEREBRAL PALSY RESEARCH NETWORK BRINGS TOGETHER DIVERSE VOICES TO CREATE CONSENSUS IN MOVING FORWARD NEW CP RESEARCH AND QUALITY IMPROVEMENT IN CP HEALTHCARE. 5 5 3 10 0 331843 551406 412838 484585 265 18228 131 744946 1054350 79837 0 81704 263646 0 614 466252 575249 547956 918732 196990 135618 576168 746525 108401 143140 467767 603385 X CP NOW'S MISSION IS TO OPTIMIZE THE LIFELONG HEALTH AND WELLNESS OF PEOPLE WITH CEREBRAL PALSY AND THEIR FAMILIES THROUGH HIGH QUALITY RESEARCH, EDUCATION AND COMMUNITY PROGRAMMING. false false 621789 79837 222500 RESEARCH: CPRN FOCUSES ON RESEARCH THAT DEVELOPS EVIDENCE-BASED PRACTICES THAT IMPROVE LIVES OR TO DEVELOP EVIDENCE TO GUIDE DECISION MAKING, TREATMENTS AND PROGRAMS FOR THE BEST HEALTH OUTCOMES. OUR RESEARCH PROGRAMMING IS DEVELOPED IN PARTNERSHIP WITH OUR ENGAGED COMMUNITY AND CLINICIANS, RESEARCHERS AND REPRESENTATIVES FROM NATIONAL AGENCIES, SUCH AS THE NATIONAL INSTITUTES OF HEALTH AND AMERICAN ACADEMY FOR CEREBRAL PALSY AND DEVELOPMENTAL MEDICINE. THE NETWORK ALSO ADDED SUPPORT FOR COMMUNITY ENGAGEMENT IN RESEARCH AS CO-INVESTIGATORS ON RESEARCH PROJECTS. 135300 252500 QUALITY IMPROVEMENT: THE QUALITY IMPROVEMENT INITIATIVES LEAD SITES THROUGH A STANDARD METHODOLOGY TO IMPROVE OUTCOMES TARGETED BY SPECIFIC QI INITIATIVES. CPRN CURRENTLY RUNS FOUR OF THESE IN THE NETWORK. QI PROGRAMS MAKE TARGETED AND MEASURABLE IMPROVEMENTS IN SYSTEMS OF HEALTHCARE IN 3-6 MONTHS BY STANDARDIZING STEPS. 94069 9585 EDUCATION: CPRN DEVELOPS EDUCATIONAL RESOURCES FOR THE ENTIRE CP COMMUNITY TO INFORM HEALTHCARE DECISIONS. THIS INCLUDES INDIVIDUALS WITH CP, THEIR FAMILIES, CLINICIANS, RESEARCHERS, AND ADVOCATES. THESE RESOURCES ARE INTENDED TO ASSIST THE PATIENT COMMUNITY IN UNDERSTANDING THE MOST UP-TO- DATE INFORMATION ABOUT CP AND PERTINENT HEALTH AND WELLNESS INFORMATION. 7853 WELLBEING: CPRN FOCUSES ON IMPROVING THE HEALTH AND WELLBEING OUTCOMES THAT IMPROVE HEALTHCARE AND CREATE GREATER OPPORTUNITIES FOR PHYSICAL ACTIVITY AND PARTICIPATION. 7853 859011 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false true 11 0 true 3 true false false false false false false false false false false false false X 5 5 false false false false false false false true false false false true true true true true true false false false SC X X X CORI SPARKS 8642526828 PO BOX 8347 GREENVILLE SC 29604 X JOYCE TROST VP OF RESEAR 40.00 X 174927 0 7080 PAUL GROSS PRESIDENT AN 35.00 X X 0 0 0 RICHARD SMITH TREASURER 0.10 X X 0 0 0 GAREY NORITZ SECRETARY 0.10 X X 0 0 0 DAVID BROWDY DIRECTOR 0.10 X 0 0 0 CHRIS OLVER DIRECTOR FRO 0.10 X 0 0 0 MICHAEL PEARLMUTTER DIRECTOR TIL 0.10 X 0 0 0 174927 7080 1 false true false UNIVERSITY OF PITTSBURGH 4200 FIFTH AVENUE 3017 CATHEDRAL OF LEARNING MB 55 PITTSBURGH PA 15260 RESEARCH/DATA 216839 1 551406 551406 CP REGISTRY NETWORK 541700 474702 474702 EDUCATION PROGRAMMING 541700 9883 9883 484585 18228 18228 131 131 131 1054350 484585 18359 X 79837 79837 182007 171087 10920 59794 52603 7191 1865 1865 19980 17910 2070 11303 6190 5113 12058 12058 477510 471993 5517 9917 9534 383 11786 8215 3389 182 5075 905 3738 432 38036 38028 8 6084 6084 INSTRUCTIONAL SUPPPLIES 3480 844 2636 918732 859011 59107 614 479366 163063 488149 93205 93000 3597 2313 576168 746525 108401 133140 10000 108401 143140 X 467767 603385 467767 603385 576168 746525 135618 X false false false X 54932 183202 286695 331843 551406 1408078 54932 183202 286695 331843 551406 1408078 78955 1329123 26 57 131 265 18228 18707 481 481 1427266 1123149 0.93120 0.94480 X PART II, LINE 10 MISCELLANEOUS REVENUE 481 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true COLUMBIA UNIVERSITY IRVING MED CTR 630 WEST 168TH ST BOX 49 NEW YORK NY 10032 135598093 501C3 9672 RESEARCH GILLETTE CHILDREN'S SPEC HEALTHCARE 200 UNIVERSITY AVE E FINANCE BILLING 010611 SAINT PAUL MN 55101 363379150 501C3 10000 RECRUITMENT NATIONWIDE CHILDREN'S HOSPITAL PO BOX 781653 DETROIT MI 48278 316056230 501C3 33714 RESEARCH REGENTS OF THE UNIVERSITY OF MI 3003 S STATE ST 5082 WOLVERINE TWR ANN ARBOR MI 48109 386006309 501C3 15975 RESEARCH UNIVERSITY OF COLORADO DENVER 1800 GRANT STREET SUITE 200 DENVER CO 80203 846000555 501C3 10476 RESEARCH 5 SCHEDULE I, PAGE 1, PART I, LINE 2 WE REQUIRE TWO TO THREE REPORTS A YEAR TO MANAGE GRANT FUNDING: 1. ONE SIX MONTH "WORK IN PROGRESS" LIVE REPORT TO OUR INVESTIGATORS WHICH INCLUDES A BRIEF REMINDER OF THE PROJECT, WHAT HAS BEEN ACCOMPLISHED OVER THE LAST SIX MONTHS, AND WHAT IS PLANNED FOR THE NEXT SIX MONTHS. 2. A SCIENTIFIC POSTER OR BREAKOUT AT OUR ANNUAL MEETING IF THE STUDY IS AT A POINT TO BENEFIT AND SHARE PROGRESS. 3. AN ANNUAL WRITTEN REPORT OF THE PROGRESS AND EXPENDITURE OF FUNDS. ALL GRANTS ARE TRACKED IN A DATABASE WITH A PIPELINE REFLECTING THEIR STAGE AND PROGRESS. false false false false false false false false false JOYCE TROST VP OF RESEARCH & QI 166187 8740 7080 182007 FORM 990, PAGE 2, PART III, LINE 4D WELLBEING: CPRN FOCUSES ON IMPROVING THE HEALTH AND WELLBEING OUTCOMES THAT IMPROVE HEALTHCARE AND CREATE GREATER OPPORTUNITIES FOR PHYSICAL ACTIVITY AND PARTICIPATION. FORM 990, PAGE 6, PART VI, LINE 8B THERE ARE NO COMMITTEES WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PAGE 6, PART VI, LINE 11B THE CEO AND BOOKKEEPER REVIEW THE 990 PRIOR TO SENDING TO THE TREASURER. AFTER REVIEW BY THE TREASURER, A COPY IS THEN DISTRIBUTED TO THE BOARD FOR THEIR REVIEW. FORM 990, PAGE 6, PART VI, LINE 12C BOARD MEMBERS ARE PROVIDED WITH THE CONFLICT OF INTEREST POLICY AND ARE REQUIRED TO REVIEW AND SIGN IT ON AN ANNUAL BASIS. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G RESEARCH SERVICES 216,839 0 0 CONTRACT SERVICES 162,120 0 0 CONSULTING FEES 37,586 0 0 OTHER PROFESSIONAL SERVICES 25,593 3,911 0 SOCIAL MEDIA SERVICES 23,555 0 0 HR FEES 6,300 0 0 PAYROLL PROCESSING FEES 0 1,606 0 TOTAL 471,993 5,517 0