2025-10-28T06:44:40-07:00 2025-06-30 262176601 EASY OFFICE DBA JITASA 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 990EZ 2024-07-01 261224181 LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC LYMP 2622278453 7901 4TH STREET NORTH STE 9153 SAINT PETERSBURG FL 33702 MICHAEL KELLY EXECUTIVE DIRECTOR 2622278453 2025-10-28 1 1 JEREMY CORK P01544850 2082874777 2025-10-28 2024 2025-03-06 01:10:19Z X X www.ldgalliance.org X X 118890 X 113613 0 0 5277 0 0 0 0 0 0 0 0 0 0 0 118890 26090 0 0 109604 0 2079 15327 153100 -34210 378745 11 344546 X 271060 233757 0 0 115193 120068 386253 353825 7508 9279 378745 344546 WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM. OUR PATIENT SUPPORT SERVICES INCLUDED THE MANAGEMENT OF OUR PATIENT REGISTRY TO SUPPORT RESEARCH NEEDS, TRACK VITAL INFORMATION ABOUT CLAS, AND ANSWER QUESTIONS ABOUT THE DISEASES. THE PROGRAMS ALSO SUPPORTS THE MANAGEMENT OF SEVERAL ONLINE SUPPORT GROUPS. 0 44000 OUR OUTREACH PROGRAM INCREASES AWARENESS OF THE CLAS THROUGH OUR WEBSITE, SOCIAL MEDIA, AND EVENTS SUCH AS CLA AWARENESS DAY AND RARE DISEASE DAY. PARTNERSHIPS WITH OTHER RARE DISEASE ORGANIZATIONS AND FOUNDATIONS. ALSO, COVERS WORK FOR NEWSLETTER AND WORK WITH ADVISORY COUNCILS. 0 37369 RESEARCH - IN THIS AREA, WE HOST A CLA WEBINAR SERIES FOR RESEARCH. PRESENTATIONS ARE POSTED ONLINE FOR THE GENERAL PUBLIC. RAISED FUNDS FOR RESEARCH GRANTS SPECIFIC TO CLAS. ALSO, LAY SUMMARIES ARE CREATED TO EDUCATE THE PUBLIC ABOUT NEW RESEARCH PAPERS AND DISCOVERIES. THIS AREA ALSO COVERS WORK WITH OUR MEDICAL AND SCIENTIFIC ADVISORY COUNCIL. 26090 31046 112415 LOUISE MURGIA DIRECTOR OF OPERATIONS 40 64608 0 0 MICHAEL KELLY EXECUTIVE DIRECTOR 20 3125 0 0 SCOTT WEISNER PRESIDENT 2 0 0 0 SCOTT GOLDFARB TREASURER 2 0 0 0 TIFFANY FERRY BOARD MEMBER 2 0 0 0 MITCH MAERSCH BOARD MEMBER 2 0 0 0 SEAN CHASTAIN BOARD MEMBER 2 0 0 0 KEVIN MARTIN BOARD MEMBER 2 0 0 0 SAMIRA FAROUNI BOARD MEMBER 2 0 0 0 OFELIA RODRIGUEZ NIEVAS BOARD MEMBER 2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 FL MICHAEL KELLY 7901 4TH ST N STE 9153 ST PETERSBURG FL 33702 2622278453 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 224895 320875 118418 251887 113613 1029688 13500 13500 224895 320875 118418 265387 113613 1043188 35462 21026 15000 71488 0 0 35462 21026 15000 71488 971700 131 843 2845 5155 5277 14251 131 843 2845 5155 5277 14251 225026 321718 121263 270542 118890 1057439 0.91892 0.9555 0.01348 0.011 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 10 GRANTS TO LYMPHATIC MALFORMATION INSTITUTE (LMI) AND VASCULAR MALFORMATION MEETING. Form 990-EZ, Part I, Line 16 Description;Amount^OFFICE EXPENSES;10725|INSURANCE EXPENSES;2935|ADVERTISING EXPENSES;1595|INTEREST EXPENSES;72^Total;15327^ Form 990-EZ, Part I, Line 20 PRIOR PERIOD ADJUSTMENTS Form 990-EZ, Part II, Line 24 Description;EOY Amount^INVESTMENTS PUBLICLY TRADED SECURITIES;119435|PREPAID EXPENSES;633^Total;120068^ Form 990-EZ, Part II, Line 26 Description;EOY Amount^ACCOUNTS PAYABLE;9279^Total;9279^