2025-08-15T18:10:50-05:00 2024-09-30 390859910 BAKER TILLY ADVISORY GROUP LP 2882 PROSPECT PARK DR STE 300 RANCHO CORDOVA CA 95670 990 2023-10-01 474011296 THE MYALGIC ENCEPHALOMYELITIS ACTION NETWORK MYAL 6263547833 1217 WILSHIRE BOULEVARD 3639 SANTA MONICA CA 90403 OMAR WASOW CO-CHAIR 6263547833 2025-08-14 1 1 AMY L HENDLEY P01300654 9165038100 2025-08-14 2023 2025-03-06 01:10:19Z OMAR WASOW 1217 WILSHIRE BOULEVARD 3639 SANTA MONICA CA 90403 696192 0 X WWW.MEACTION.NET X 2014 NJ TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH ME WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 8 8 9 150 0 0 839488 694380 0 0 0 0 20145 -694 859633 693686 750 400 0 0 502475 509345 0 0 90395 221313 180584 724538 690329 135095 3357 168906 144752 30029 2887 138877 141865 X TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH M.E. WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 0 0 200818 0 0 RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND PATIENT-DRIVEN RESEARCH SO THAT TREATMENTS, DIAGNOSIS, AND OUTCOMES CAN IMPROVE FOR PEOPLE WITH ME. 130173 0 0 DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTE OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF PEOPLE WITH ME THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION, AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE. 121523 400 0 #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR TO RAISE AWARENESS AND ADVOCATE FOR ACTION. MINNESOTA DEPARTMENT OF HEALTH 452514 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 11 0 1 9 1 0 0 0 0 0 0 0 0 0 0 0 0 X 8 8 1 0 0 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 0 0 0 AL AK CA CO GA KY ME MO NJ NV NH NM NC OH OK OR SC UT VA WA DC X ROBIN RHINE 6263547833 1217 WILSHIRE BOULEVARD SUITE 3639 SANTA MONICA CA 90403 LAURIE JONES EXECUTIVE DIRECTOR 40.00 X 93525 0 0 JILL HINSON CO-CHAIR (THRU 05/24) 8.00 X X 0 0 0 BETH MAZUR CO-CHAIR (THRU 12/23) 5.00 X X 0 0 0 KEHSI IMAN WILSON - DIRECTOR (THRU 08/24) CO-CHAIR (AS OF 07/24) 1.00 X X 0 0 0 OMAR WASOW CO-CHAIR (AS OF 05/24) 2.00 X X 0 0 0 MICHELLE PINEDO TREASURER (THRU 04/24) 1.00 X X 0 0 0 STEVE MAZUR TREASURER (AS OF 04/24) 1.00 X 0 0 0 JUDY GAYER SECRETARY (THRU 04/24) 6.00 X X 0 0 0 NIRANJAN SHEKAR SECRETARY (AS OF 04/24) 6.00 X 0 0 0 SHAQUILE COONCE DIRECTOR 1.00 X 0 0 0 JENNIFER ENGLAND DIRECTOR 1.00 X 0 0 0 RYAN PRIOR DIRECTOR (THRU 05/24) 1.00 X 0 0 0 ROBERT SKLANS DIRECTOR 1.00 X 0 0 0 ELIZABETH WEAVER DIRECTOR (AS OF 07/24) 1.00 X 0 0 0 93525 0 0 0 0 0 0 0 13522 680858 694380 1823 2506 -683 -683 EXCHANGE LOSS 900099 -11 -11 -11 693686 0 0 -694 X 400 400 80699 58096 9463 13140 378525 272502 44388 61635 13500 9719 1583 2198 36621 26364 4294 5963 515 515 7323 7323 20340 20340 86691 40908 45783 8952 6770 1918 264 32233 27924 1882 2427 13897 7311 1818 4768 7545 2520 5025 BUSINESS REGISTRATION F 853 853 2235 2235 690329 452514 147420 90395 168906 142934 1818 0 1818 168906 144752 30029 2887 30029 2887 X 138877 141865 138877 141865 168906 144752 3357 -369 0 X X 0 0 0 X 660581 511765 709854 839488 694380 3416068 660581 511765 709854 839488 694380 3416068 1313195 2102873 16 16 493 493 20145 20145 3436722 0.61190 0.80220 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS INCOME RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1818 1818 1818 FORM 990, PART VI, SECTION A, LINE 2 BETH MAZUR AND STEVE MAZUR HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WILL BE REVIEWED BY MANAGEMENT AND A COMMITTEE OF THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE #ME ACTION CONFLICT OF INTEREST POLICY COVERS STAFF MEMBERS AND BOARD MEMBERS. EACH COVERED PERSON IS GIVEN A COPY OF THE CONFLICT OF INTEREST POLICY AT THE TIME THEY BECOME AFFILIATED WITH THE ORGANIZATION AND MUST AGREE IN WRITING TO ABIDE BY IT. COVERED PERSONS ARE REQUIRED TO DISCLOSE TO THE CHAIR OF THE BOARD OR FULL BOARD OF DIRECTORS IF A POTENTIAL CONFLICT EXISTS. THE REMAINING BOARD MEMBERS WILL DETERMINE WHETHER AN ACTUAL CONFLICT OF INTEREST EXISTS. THE COVERED PERSON THAT DISCLOSED THE RELATIONSHIP WILL NOT PARTICIPATE IN OR BE PRESENT DURING THE DISCUSSION OR VOTE. ALL PROCEEDINGS ARE DOCUMENTED IN THE MEETING MINUTES. FORM 990, PART VI, SECTION C, LINE 19 #MEACTION DOES NOT CURRENTLY MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FINANCIAL STATEMENTS ARE MADE AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G PAYROLL PROCESSING FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 3,968. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 3,968. OTHER OUTSIDE SERVICES: PROGRAM SERVICE EXPENSES 40,908. MANAGEMENT AND GENERAL EXPENSES 6,015. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 46,923. CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 35,800. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 35,800. FORM 990, PART XII, LINE 2C: THE ORGANIZATION DID NOT CHANGE ITS SELECTION OR OVERSIGHT PROCESS IN THE CURRENT YEAR.