2025-07-16T09:34:47-04:00 2024-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2024-01-01 261577154 Usher Syndrome Society Inc % Nancy Corderman USHE 7814445766 1544 Central Avenue Needham MA 02492 NANCY CORDERMAN President 7814445766 2025-07-15 true true JOHN MULLINS P01429307 2027706371 2025-07-16 2024 2025-03-06 01:10:19Z Nancy Corderman 1544 Central Avenue Needham MA 02492 1540380 false X ushersyndromesociety.org X 2008 MA To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure. 9 9 0 50 0 0 489403 1518667 0 10586 17979 3734 499989 1540380 353660 267603 0 0 0 12957 94761 183155 448421 450758 51568 1089622 681044 2032699 6058 681044 2026641 To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure. false false 406321 267603 In 2024 Usher Syndrome Society launched the award winning Every Second Counts campaign, which included taking over nine Times Square billboards, airing a national TV commercial, and securing digital displays on taxi tops, bus stops, and major media platforms to raise awareness for Usher syndrome. The campaign generated 145,849,932 impressions, leading to a 984% increase in direct website traffic, a 558% rise in website users, and a 118% growth in our donor base. We also educated the public by hosting three storytelling events featuring film screenings, showcasing our Shine a Light Portraits in 5 rotating exhibits. This momentum enabled us to launch PUSH, a groundbreaking research program, accelerating treatment for all types of Usher syndrome, and award $265,000 in Translational Research Grants to advance critical global research efforts. 406321 true true false false false false false false false false false false false false false true true false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 9 0 true 0 false false false false false false false false false false X 9 9 true false true false false false false true true false false true false false false false false false MA X The Organization 7814445766 1544 Central Avenue Needham MA 02492 X Alan Pinto Director 5.00 0.00 X 0 0 0 Rebecca Alexander Director 5.00 0.00 X 0 0 0 Tori Banu Director 1.00 0.00 X 0 0 0 Peggy Borst Director 10.00 0.00 X 0 0 0 Hannah Corderman Director 5.00 0.00 X 0 0 0 Sophia Boccard Director 1.00 0.00 X 0 0 0 Michael Conn Director 5.00 0.00 X 0 0 0 Nancy Corderman President 50.00 0.00 X X 0 0 0 David Corderman Chair 5.00 0.00 X X 0 0 0 0 0 0 0 false false false 1518667 1518667 17979 17979 0 Miscellaneous 900099 3734 3734 3734 1540380 3734 0 17979 267603 267603 619 619 11713 11713 3150 1010 1490 650 9826 540 5760 3526 12669 9737 2932 3298 3298 119369 113520 5849 2161 2161 Film Fees 20350 20350 450758 406321 31480 12957 286972 732401 394072 752860 547438 681044 2032699 6058 0 6058 X 681044 1143078 883563 681044 2026641 681044 2032699 X 1089622 255975 X false true X false false X 316843 339499 471195 489403 1518667 3135607 316843 339499 471195 489403 1518667 3135607 0 0 0 0 0 0 3135607 17979 17979 17979 17979 3734 3734 316843 339499 471195 489403 1540380 3157320 0.99310 0.35820 0.01000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1540380 1540380 1540380 450758 450758 450758 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) The Society is exempt from Federal income tax, on its exempt purpose activities, under Section 501(c)(3) of the Internal Revenue Code (IRC). The Society is subject to income tax on its unrelated business income under the IRC. The Society had no unrelated business income for the tax year.For the tax year-end, Society has documented its consideration of FASB ASC 740-10, Income Taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements. true Childrens Hospital Boston 300 Longwood Avenue Boston MA 02115 042774441 501C3 145000 Research Usher Syndrome University of Oregon 6231 University of Oregon Eugene OR 974036231 100000 Research Usher Syndrome Usher Syndrome Coalition 9 Cornerstone Square STE 400-224 Westford MA 01886 264560897 501C3 20000 Research Usher Syndrome 2 1 Officer directors etc family relationship Part VI line 2 Nancy Corderman has a family relationship with David Corderman and Hannah Corderman. Organizational document changes Part VI line 4 Changes to bylaws:Added a Section 5 to Article I describing the purposes of the Corporation, consistent with the prior amendments to your Articles of Organization;Added a Section 6 to Article I, which primarily deals with tax-exempt status guidelines. Generally stating that you cant have private benefits, need to pay fair compensation, and in the event of a liquidation the money needs to go to another charity. This is generally in the bylaws, and also in a nonprofits articles (it is already your articles as well, but best practices are to have it in both places); I added several sections concerning management of conflicts of interests and protection for officers and your directors from liability:I added a Section 5 to Article IV, which puts in writing that you have adopted a conflict of interest policy for approving transactions. Section 6 was added to ensure folks joining your board actually review the conflict of interest policy and consent to it annually. Section 7 and 8 states Massachusetts law and intent to ensure that folks managing the Corporation are immune from personal liability. Lastly, Section 8 provides that if there is some sort of liability asserted against someone personally in connection with their role with the Corporation, the Corporation will have a duty to indemnify them so that they will not be out of pocket. Form 990 governing body review Part VI line 11 No review was or will be conducted. Form 990 availability to public Part VI line 18 No documents available to the public. Governing documents etc available to public Part VI line 19 No documents available to the public. Explanation of other changes in net assets or fund balances Part XI line 9 The prior year 990 was filed on cash basis, and is being filed on accrual basis this year.