2025-06-27T06:51:54-05:00 2024-12-31 042571780 AAFCPAS INC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2024-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2025-06-26 1 1 JOHN BUCKLEY CPA P00830631 5083669100 2025-06-26 2024 2025-03-06 01:10:19Z DAVID ARONS 55 CHAPEL STREET 006 NEWTON MA 02458 13614569 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 14 14 52 45237 0 0 12821930 12526004 0 0 369617 606892 157818 69141 13349365 13202037 2467750 1905000 0 0 5649249 6337628 0 0 1233459 4133341 4357941 12250340 12600569 1099025 601468 15961971 17010470 675141 912822 15286830 16097648 NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 0 0 4821262 1905000 0 OUR DEFEAT STRATEGY DRIVES AND INFLUENCES BEST-IN-CLASS MEDICAL RESEARCH TO DEVELOP AND DELIVER NEW INNOVATIVE TREATMENTS AND POTENTIAL CURES TO PATIENTS WITH BRAIN TUMORS AS QUICKLY AS POSSIBLE. PATIENTS AND CAREGIVERS ARE OUR PRIORITY. WE FOCUS ON GROUNDBREAKING RESEARCH INITIATIVES WITH THE POTENTIAL TO TRANSLATE PROMISING SCIENCE FROM THE LAB INTO TREATMENTS THAT IMPROVE SURVIVAL AND QUALITY OF LIFE. WE'RE ACCELERATING BREAKTHROUGHS THAT WILL HAVE A PROFOUND IMPACT ON THE BRAIN TUMOR COMMUNITY. OUR RESEARCH INITIATIVES ADVANCE TREATMENTS FOR PATIENTS OF ALL AGES ACROSS BRAIN TUMOR TYPES. WE INCENTIVIZE AND FACILITATE COLLABORATION BETWEEN PHARMACEUTICAL COMPANIES, INVESTORS, AND WORLD-CLASS SCIENTISTS TO GET RESULTS FOR PATIENTS. 3955808 OUR CONNECT STRATEGY CONVENES, EDUCATES, AND UNITES THE BRAIN TUMOR COMMUNITY. WE BRING STAKEHOLDERS TOGETHER, TO ADDRESS BARRIERS TO THE DEVELOPMENT OF NEW TREATMENTS AND BETTER HEALTH CARE. NBTS LEADS SEVERAL NATIONAL AWARENESS CAMPAIGNS TO EDUCATE THE PUBLIC ABOUT BRAIN TUMORS AND THE IMPORTANCE OF REDUCING THE BURDEN OF THEM. WE EQUIP PATIENTS AND CARE PARTNERS WITH TOOLS AND RESOURCES TO NAVIGATE EVERY STEP OF THEIR UNIQUE HEALTH CARE JOURNEYFROM UNDERSTANDING THEIR DIAGNOSIS AND BUILDING THEIR MEDICAL TEAM TO MAKING DECISIONS ABOUT TREATMENT. WE ORGANIZE EVENTS THAT BRING THE BRAIN TUMOR COMMUNITY TOGETHER TO HONOR, LEARN, DEVELOP MEANINGFUL RELATIONSHIPS, TURN GRIEF INTO ACTION, AND FUEL MOMENTUM FOR OUR CAUSE. OUR SUPPORT GROUPS FOSTER CONNECTIONS SHOWING PATIENTS AND CARE PARTNERS THAT THEY ARE NOT ALONE. 1665702 OUR CHANGE STRATEGY FUELS THE VOICE OF THE BRAIN TUMOR COMMUNITY TO ADVOCATE PUBLIC POLICY. WE ENSURE THE COMMUNITY'S NEEDS ARE REFLECTED IN NATIONAL MEDICAL RESEARCH AND HEALTH CARE POLICY. TOGETHER, WE ADVOCATE FOR THE FEDERAL GOVERNMENT TO MAKE STRATEGIC INVESTMENTS IN BRAIN TUMOR RESEARCH, IMPROVE HEALTH CARE DELIVERY, REDUCE HEALTH DISPARITIES, AND RAISE THE PRIORITY LEVEL FOR OUR COMMUNITY'S NEEDS. OVER 18,000 VOLUNTEER ADVOCATES ACROSS ALL 50 STATES AFFECT CHANGE AT ALL LEVELS ANNUALLY. WE MOBILIZE OUR COMMUNITY ON POLICY ISSUES TO URGE GOVERNMENT OFFICIALS TO ENACT POLICIES THAT SUPPORT OUR VISION OF CONQUERING AND CURING BRAIN TUMORSONCE AND FOR ALL. THROUGH OUR ADVOCACY, WE AFFECT THE LIVES OF NEARLY ONE MILLION AMERICANS LIVING WITH A BRAIN TUMOR TODAY, AND THOSE WHO WILL BE DIAGNOSED. 10442772 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 0 1 0 0 1 1 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 52 0 1 52 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA X X RICH LESCARBEAU 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 EDJAH NDUOM CHAIR 2.00 X X 0 0 0 ERICA BIRKE VICE CHAIR 1.00 X X 0 0 0 MIL PAREKH TREASURER 1.00 X X 0 0 0 LEAH RECHT JD CLERK 1.00 X X 0 0 0 RYAN LANG BOARD MEMBER (UNTIL 9/24) 1.00 X 0 0 0 ALLISON BISHOF BOARD MEMBER 1.00 X 0 0 0 DR JOOHEE SUL BOARD MEMBER 1.00 X 0 0 0 CORIE YUTKIN BOARD MEMBER 1.00 X 0 0 0 ADAM HAYDEN BOARD MEMBER 1.00 X 0 0 0 KABIR SETHI BOARD MEMBER 1.00 X 0 0 0 FRANK MACCHIAROLA BOARD MEMBER 1.00 X 0 0 0 CHRIS BROWN BOARD MEMBER 1.00 X 0 0 0 KAREN TURNER BOARD MEMBER 1.00 X 0 0 0 JONATHAN WEINBERG BOARD MEMBER 1.00 X 0 0 0 JIGAR RAYTHATHA BOARD MEMBER 1.00 X 0 0 0 DAVID ARONS CEO 40.00 X 300444 0 43616 MARISA PETRILLO CHIEF PEOPLE OFFICER 40.00 X 162556 0 33895 KATIE GERMAIN CHIEF OF MARKETING & COMMUNICATIONS OFFICER 40.00 X 176480 0 7767 RICHARD LESCARBEAU VP OF FINANCE (AS OF 3/24) 40.00 X 143208 0 36667 DOROTHY WHALEN CHIEF FINANCIAL OFFICER (UNTIL 6/24) 40.00 X 98561 0 10946 ASHLEY BRENNAN VICE PRESIDENT, DEVELOPMENT 40.00 X 220534 0 34269 KIRK TANNER CHIEF SCIENTIFIC OFFICER 40.00 X 234411 0 19201 JOHN HIGGINS MANAGING DIRECTOR, BTIF 40.00 X 216980 0 26471 ELIZABETH RYU DIRECTOR OF RESEARCH 40.00 X 148416 0 22827 GARY HEIMBERG VP AND COUNSEL, GOVERNMENT RELATIONS 40.00 X 130056 0 19443 ANNE STAMESHKIN SENIOR DIRECTOR OF COMMUNICATIONS 40.00 X 137160 0 8520 NOEL TWIGG SENIOR DIRECTOR OF DEVELOPMENT 40.00 X 127953 0 17289 2096759 0 280911 19 0 1 0 ALSTON & BIRD 90 PARK AVE NEW YORK NY 10016 DIRECT LOBBYING 155162 TECH SUPER POWERS 500 HARRISON AVE SUITE 108 BOSTON MA 02118 IT SUPPORT 120045 2 12526004 86508 12526004 509414 509414 71007 439003 58955 353577 12052 85426 97478 97478 RECOVERY OF GRANT EXPENSE 541700 65000 65000 OTHER INCOME 900099 4141 4141 69141 13202037 0 0 676033 1605000 1605000 100000 100000 200000 200000 1522555 1177555 63345 281655 4038133 3087219 352169 598745 98471 74519 8783 15169 274419 211839 33666 28914 404050 310233 30553 63264 31982 31982 62850 14038 48812 557655 557655 25140 25140 129220 115655 13565 349121 329469 19652 75202 27973 43558 3671 542658 401218 65323 76117 125978 67536 39545 18897 336140 300916 24717 10507 97975 84488 2977 10510 40511 22281 12153 6077 SPECIAL EVENTS 1774547 1633126 63764 77657 DONATED GOODS 86508 80858 5650 TRAINING AND RECRUITING 44247 3794 39324 1129 DUES AND SUBSCRIPTIONS 39398 36130 1003 2265 38809 1270 37524 15 12600569 10442772 924338 1233459 1826609 738571 10642998 7613041 473750 343000 677955 690647 280305 321815 248875 174319 155168 74556 883467 6400510 709224 650014 52091 34728 260404 143588 15961971 17010470 398767 509434 250000 276374 153388 675141 912822 X 10148462 10577674 5138368 5519974 15286830 16097648 15961971 17010470 X 601468 393577 -184227 X X 0 1 X 1 0 X 8855708 11743049 13242979 12821930 12526004 59189670 8855708 11743049 13242979 12821930 12526004 59189670 1541500 57648170 66897 46779 18168 369617 509414 1010875 157818 69141 226959 60427504 0.95400 0.98030 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: RECOVERY OF GRANT EXPENSE - 2023 AMOUNT: $ 153,810. 2024 AMOUNT: $ 65,000. OTHER INCOME - 2023 AMOUNT: $ 4,008. 2024 AMOUNT: $ 4,141. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 599482 599482 12001087 12600569 780028 195007 0 0 597421 670021 762517 780028 2809987 4214981 243345 276959 497623 599482 1617409 149355 167505 190629 195007 702496 1053744 PART II-A, LINE 1 NATIONAL BRAIN TUMOR SOCIETY ENGAGES IN A MODEST AMOUNT OF IRS DEFINITION DIRECT LOBBYING TO INFLUENCE SPECIFIC FEDERAL LEGISLATION ON AN ANNUAL BASIS. THE FEDERAL LEGISLATION SPANS THE HEALTH CARE AND LIFE SCIENCES RESEARCH POLICY ISSUES THAT MAKE UP NBTS' POLICY AGENDA. THE LOBBYING WORK IS CARRIED OUT BY NBTS PROFESSIONAL STAFF AND CONSULTANTS. NBTS DOES NOT ENGAGE IN IRS DEFINITION INDIRECT LOBBYING. 565448 47098 612546 565448 565448 565448 565448 565448 565448 565448 565448 0.00000 0.89240 0.10760 0 0 39894 23792 16102 179644 139723 39921 29337 10804 18533 74556 OPERATING LEASE LIABILITIES 153388 153388 X 13386247 393577 -184227 209350 13176897 25140 25140 13202037 12575429 0 12575429 25140 25140 12600569 PART V, LINE 4: THE ORGANIZATION HAS ENDOWMENT NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY DONOR RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2024 WAS INVESTED IN BOND FUNDS AND MONEY MARKETS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS AND TO FUND RESEARCH PROJECTS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2024. THE ORGANIZATION'S INFORMATION RETURNS ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE JURISDICTIONS. PART XI, LINE 2D - OTHER ADJUSTMENTS: IMPAIRMENT LOSS ON CONVERTIBLE NOTES AND INTEREST RECEIVABLE -15,000. IMPAIRMENT LOSS ON NON-MARKETABLE INVESTMENTS IN LIFE SCIENCE COMPANIES -155,633. ERTC WRITE-OFF -13,594. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 GRANTMAKING 150000 EAST ASIA AND THE PACIFIC 0 0 GRANTMAKING 50000 0 0 0 0 0 0 200000 0 200000 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 150000 WIRE TRANSFER 0 EAST ASIA AND THE PACIFIC RESEARCH 50000 WIRE TRANSFER 0 2 0 0 0 0 0 0 1 YALE UNIVERSITY 2 WHITNEY AVE 6TH FLOOR NEW HAVEN CT 06510 060646973 501 (C) 3 875000 0 RESEARCH THE BRIGHAM AND WOMENS HOSPITAL INC 75 FRANCIS STREET BOSTON MA 02115 900656139 501 (C) 3 250000 0 RESEARCH MAYO CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501 (C) 3 25000 0 RESEARCH MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 041564655 501 (C) 3 25000 0 RESEARCH BAPTIST HEALTH SOUTH FLORIDA FOUNDATION INC 6855 RED ROAD SUITE 600 CORAL GABLES FL 33143 591923401 501 (C) 3 100000 0 RESEARCH REGENTS OF THE UNIVERSITY OF CA LA 10889 WILSHIRE BOULEVARD LOS ANGELES CA 90095 943067788 501 (C) 3 80000 0 RESEARCH VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 843075 RICHMOND VA 23284 540757884 501 (C) 3 100000 0 RESEARCH UNIVERSITY OF NORTH CAROLINA AT WILMINGTON 601 COLLEGE ROAD WILMINGTON NC 28403 561258660 501 (C) 3 100000 0 RESEARCH HEALTH RESEARCH ALLIANCE 3110 EDWARDS MILL ROAD 300 RALEIGH NC 27612 680617198 501 (C) 3 50000 0 RESEARCH 9 RESEARCH GRANT 1 100000 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 300444 0 0 0 0 0 9266 0 34350 0 344060 0 0 0 ASHLEY BRENNAN VICE PRESIDENT, DEVELOPMENT 220534 0 0 0 0 0 5560 0 28709 0 254803 0 0 0 KIRK TANNER CHIEF SCIENTIFIC OFFICER 234411 0 0 0 0 0 7094 0 12107 0 253612 0 0 0 JOHN HIGGINS MANAGING DIRECTOR, BTIF 216980 0 0 0 0 0 6688 0 19783 0 243451 0 0 0 MARISA PETRILLO CHIEF PEOPLE OFFICER 162556 0 0 0 0 0 5167 0 28728 0 196451 0 0 0 KATIE GERMAIN CHIEF OF MARKETING & COMMUNICATIONS 176480 0 0 0 0 0 5328 0 2439 0 184247 0 0 0 RICHARD LESCARBEAU VP OF FINANCE (AS OF 3/24) 143208 0 0 0 0 0 4698 0 31969 0 179875 0 0 0 ELIZABETH RYU DIRECTOR OF RESEARCH 148416 0 0 0 0 0 4666 0 18161 0 171243 0 0 0 X 1 72872 FMV X 79 9679 FMV X GIFT CARDS 8 3675 FMV X TRUCK RENTAL 1 150 FMV X TICKETS 2 132 FMV 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE CHIEF OPERATING OFFICER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 9: IMPAIRMENT LOSS ON CONVERTIBLE NOTES AND INTEREST RECEIVABLE -15,000. IMPAIRMENT LOSS ON NON-MARKETABLE INVESTMENTS IN LIFE SCIENCE COMPANIES -155,633. ERTC WRITE-OFF -13,594. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR BRAIN TUMOR INVESTMENT FUND LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 845100031 BRAIN TUMOR RESEARCH DE 433693 2118000 NATIONAL BRAIN TUMOR SOCIETY INC NBTS TDG LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 862578255 BRAIN TUMOR RESEARCH DE 1350000 537000 NATIONAL BRAIN TUMOR SOCIETY INC CURE GBM 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC