2025-05-19T06:51:40-05:00 2024-01-31 562034483 NORTON COLLAR LUND LILLEY PLLC 7701 SIX FORKS ROAD SUITE 100 RALEIGH NC 27615 990 2023-02-01 561609591 ALS UNITED NORTH CAROLINA ALSU 9197559001 4 N BLOUNT STREET SUITE 200 RALEIGH NC 27601 DAVID SHORE PRESIDENT AND CEO 9197559001 2025-05-19 1 1 JON LUND CPA P00105848 9198411000 2025-05-19 2023 2025-03-06 01:10:19Z X DAVID SHORE 4 N BLOUNT STREET SUITE 200 RALEIGH NC 27601 3471076 0 X WWW.ALSNC.ORG X 1988 NC TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 12 12 17 80 0 0 2387308 2579312 11750 9250 84469 108957 -209343 -21781 2274184 2675738 0 0 0 0 1468538 1081624 0 0 109184 1368413 1527223 2836951 2608847 -562767 66891 3182521 2809016 775169 287857 2407352 2521159 TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 0 0 1589354 9250 CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. ALS UNITED NORTH CAROLINA CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2024 FISCAL YEAR ALSUNC HELD 104 VIRTUAL SUPPORT GROUP MEETINGS, LOANED NEARLY 500 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 2,700 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED OVER 1500 HOURS OF PATIENT VISITS. 7947 THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS. 711960 THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES. 2309261 1 1 0 0 0 0 0 0 0 1 1 0 0 1 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 12 0 1 17 1 0 0 0 0 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 X X DAVID SHORE 9197559001 4 N BLOUNT ST SUITE 200 RALEIGH NC 27601 DOUGLAS NOREEN CHAIR 15.00 X X 0 0 0 KATHRYN FOSTER VICE CHAIR 6.00 X X 0 0 0 CHRISTY HALL SECRETARY 3.00 X X 0 0 0 ROBERT WHITED TREASURER 3.00 X X 0 0 0 KATHLEEN BOYCE DIRECTOR 2.00 X 0 0 0 BRAXTON ANTHONY DIRECTOR 2.00 X 0 0 0 BETH CHRISTINA DIRECTOR 2.00 X 0 0 0 MICHAEL BEDELL DIRECTOR 2.00 X 0 0 0 LINDA SHUFORD-REEVES DIRECTOR 2.00 X 0 0 0 ANN WHITE DIRECTOR 2.00 X 0 0 0 DARVIS SIMMS DIRECTOR 2.00 X 0 0 0 SARAH BOYCE DIRECTOR 2.00 X 0 0 0 DAVID SHORE PRESIDENT & CEO 44.00 X 166065 0 19448 166065 0 19448 1 0 1 0 0 1261344 319407 998561 137500 2579312 CAREGIVERS CONFERENCE 9250 9250 9250 78770 78770 594833 536508 28138 58325 -28138 30187 30187 0 1261344 230692 -230692 -230692 SETTLEMENT 208911 208911 208911 2675738 9250 0 87176 167629 150866 16763 707823 673363 27712 6748 25412 23458 1863 91 112949 109309 2605 1035 67811 63906 3382 523 66304 54944 4956 6404 80619 66806 6026 7787 11294 11294 166564 145341 9565 11658 22803 14370 795 7638 5685 4791 363 531 97804 81068 7302 9434 114581 95230 8829 10522 27554 26389 425 740 836 693 62 81 70080 70080 7435 6356 506 573 PROGRAM EXPENSES 625191 625000 2 189 NATIONAL DUES 154563 124326 16498 13739 MISCELLANEOUS 38913 24343 11018 3552 SERVICE CHARGES 14278 5811 524 7943 22719 12891 1126 8702 2608847 2309261 190402 109184 553775 330503 172521 10793 236634 239910 21715 371869 113871 249128 257998 1680301 1728173 30413 290162 189511 3182521 2809016 482711 85123 10000 0 2500 11803 279958 190931 775169 287857 X 2407352 2506021 0 15138 2407352 2521159 3182521 2809016 66891 46916 0 X 0 1 X 1 0 X 2493664 2318060 2600340 2387308 2579312 12378684 2493664 2318060 2600340 2387308 2579312 12378684 214661 12164023 71181 60988 179500 133702 78770 524141 12902825 5707 0.94270 0.94270 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1680301 375158 184008 500000 11294 1728173 2737944 50730 -265520 827000 15853 1680301 2909687 597725 36776 783893 22351 2737944 2387504 909709 226954 595000 19480 2909687 2346083 752183 357975 1047000 21737 2387504 0 0 8939 2180 6759 362930 111691 251239 257998 SECURITY DEPOSIT 4153 LEASE RIGHT OF USE 185358 189511 LEASE LIABILITY 190931 190931 2970850 46913 28800 230693 306406 2664444 11294 11294 2675738 2857045 28800 230692 259492 2597553 11294 11294 2608847 PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 230,692. OTHER 1. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 230,692. X X X X X X 0 NC WALKS 886971 886971 148444 COMMUNITY PARTNER EVENTS 374373 374373 82248 1261344 1261344 230692 230692 -230692 X X 0 0 0 0 0 0 0 0 0 DAVID SHORE PRESIDENT & CEO 166065 0 0 0 0 0 0 0 19448 0 185513 0 0 0 X POWER WHEELCHAIRS 55 137500 ESTIMATED FMV 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER WILL REVIEW AND COMMENT ON A DRAFT OF THE FORM 990 AND ANNUAL AUDITED FINANCIAL STATEMENTS. AFTER ANY REQUESTED CHANGES, THE DRAFTS OF FORM 990 AND AUDITED FINANCIAL STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE FOR REVIEW. IF NEEDED, THE PREPARER SHALL SCHEDULE A PRESENTATION IN PERSON OR BY TELECONFERENCE WITH THE FINANCE COMMITTEE TO ADDRESS ANY QUESTIONS OR ISSUES. UPON RESOLUTION OF ANY ISSUES AND APPROVAL BY THE FINANCE COMMITTEE, COPIES OF THE FINAL AUDITED FINANCIAL STATEMENTS AND FORM 990 WILL BE PROVIDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THE PRESIDENT & CEO WILL EXECUTE AND MAIL OR ELECTRONICALLY FILE THE FINAL DOCUMENTS WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C ALL EMPLOYEES ARE REQUIRED TO SIGN AN ACKNOWLEDGEMENT OF RECEIPT OF THECONFLICT OF INTEREST POLICY. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE DETERMINES PRESIDENT & CEO'S COMPENSATION BASED ON A SALARY SURVEY AND PERFORMANCE EVALUTION. BOARD MEMBERS ARE NOT COMPENSATED. OTHER OFFICER COMPENSATION IS DETERMINED BASED ON SALARY SURVEYS, PERFORMANCE, AND BUDGETARY NEEDS AND IS APPROVED BY THE BOARD. FORM 990, PART VI, SECTION C, LINE 18 THE GOVERNING DOCUMENTS ARE KEPT ON FILE AT THE ORGANIZATION'S OFFICE AND ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 THE GOVERNING DOCUMENTS ARE KEPT ON FILE AT THE ORGANIZATION'S OFFICE AND ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST.