2025-05-14T17:39:36-07:00 2024-12-31 202466693 Donna Foxman CPA 105 Foxwood Terrace Toms River NJ 08755 990 2024-01-01 223123551 Lyme Disease Association Inc LYME 8454861103 PO Box 1438 Jackson NJ 08527 Richard Smith V P/Treasurer 2025-05-14 true true Donna Foxman CPA P01320600 7323497638 X 2024 2025-03-06 01:10:19Z X Richard Smith PO Box 1438 Jackson NJ 08527 51000 false X LymeDiseaseAssociation.org X 1992 NJ Lyme Disease Association (LDA) raises funds for research, education, prevention and patient support. LDA partnered to establish Columbia Un. Lyme & Tick-Borne Diseases Research Center. Provides research grants, LymeAid 4 Kids, physician conferences, public presentations. X 5 5 0 20 0 330238 48006 0 231 2994 0 330469 51000 39755 366088 0 0 0 0 217965 186796 257720 552884 72749 -501884 556186 0 54302 0 501884 0 X LDA's mission is promoting awareness of & controlling spread of Lyme & other tick-borne (TBD) diseases and their complications through education; raising and distributing funds for research & education; assisting underprivileged patients. false false 514762 After 33 years of dedicated advocacy within the Lyme disease community, The Lyme Disease Association (LDA) officially closed its doors on December 5, 2024. Throughout its impactful history, LDA raised funds to support research, education, prevention, and patient support. Among its many accomplishments,the LDA partnered in the establishment of the Columbia University Lyme & Tick-Borne Diseases Research Center. The organization also provided research and educational grants, launched the LymeAid 4 Kids program, and delivered numerous public presentations to raise awareness and support. LA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $477,300 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 15 financially disadvantaged families grants in 2024. Research, Education, Grants: Since 1992, LDA has provided 128 research grants including one in 2024.Research published in peer-reviewed journals helps move the field forward. To date there have been more than 60 journal publications from LDA funded research. From 1999 to 2024, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provide educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD. Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences: public, corporations, schools, government, health care providers, and radio interviews.LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news, links to resources & researcher funding opportunities/studies for public. LDA answers non-medical questions online & maintains a free tick-borne disease searchable nationwide doctor referral with about 800 medical providers/other professionals.Several School Nursing educational programs were provided in 2024 along with a National Vector Borne Disease Strategy. 514762 true true false false false false false false false false true false false false false false false false false false false false false false false false false true true false false false false false false false false false false false true false false false false false false true 11 0 false 0 false false false false false false false 0 false false false false false false false X 5 5 false false false false false false false true false false false true true true true true false true true false AK AL AR AZ CA CO CT FL GA KS KY LA MA MD ME MN MO NC NH NJ NY OH OK OR PA RI SC TN UT VA WA WI WV X X Lia McCabe 8454861103 2828 Upper Drive Corning NY 14830 X Corey Lakin Director 4.00 0.00 X 0 0 0 Ruth Waddington Secretary 4.00 0.00 X X 0 0 0 Jeannine Phillips Director 4.00 0.00 X 0 0 0 Richard Smith V P/Treasurer 4.00 0.00 X X 0 0 0 Timothy Lynagh Director 4.00 0.00 X 0 0 0 0 false false false 0 6220 41786 48006 0 2994 2994 0 0 0 0 0 0 0 0 51000 2994 343004 343004 23084 23084 0 0 0 0 0 0 0 0 0 2000 2000 1000 1000 0 0 0 0 794 360 434 1549 1549 0 0 0 97 97 0 2085 2085 0 0 1727 1727 3806 1212 2594 Outside services 157532 136212 21320 Database management, website 7417 4423 2994 Telephone & internet 1874 1874 Technology & office expenses 1551 1551 5364 2558 2806 552884 514762 38122 0 268763 0 277555 0 0 0 0 0 0 0 0 13599 13599 1727 0 8141 0 0 0 0 0 556186 0 10513 43789 54302 0 X 178023 323861 501884 0 556186 0 -501884 X false false false X 241978 308002 278794 330238 48006 1207018 0 0 241978 308002 278794 330238 48006 1207018 0 1207018 5899 4340 209 231 2994 13673 0 0 1220691 0.98880 0.98950 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 13599 13599 51000 51000 51000 552884 552884 552884 true Colorado Tick-Borne Assoc 10760 Sawatch Range Rd Salida CO 81201 813611916 21000 0 actual education Columbia Un Research Center 1051 Riverside Drive New York NY 10032 135598093 15000 0 actual education Invisible International 1122 Kenilworth Drive Towson MD 21204 844626505 5001 0 actual education Lyme Diseaseorg PO Box 16009 San Diego CA 92176 680214101 9000 0 actual education Southampton Hospital Found 240 Meeting House Lane Southampton NY 11968 113466516 314854 0 actual research University of Texas at Dallas 800 W Campbell Rd Richardson TX 75080 751305566 18150 0 actual research 6 6 LymeAid 4 Kids (1,000 each grant) 15 21300 actual Dr. Robert C. Bransfield 1 1784 actual Additional Supplemental Information Research and education grants totaling $383,005 were awarded in 2024. In addition to the grants over $5,000, one smaller grant was awarded to the following in 2024: Robert C. Bransfield, MD $1,784 In addition, LDA awarded several grants totalling $21,300 to individuals under LymeAid 4 Kids programs. Grantmaker's Description of How Grants are Used Many of these are the final grants from LDA prior to the organization's termination.A total of $406,089 was granted in 2024. However, a total of $40,001 for prior year grants was not used, for a net grant total of $366,088 for 2024. Cash 2024-11-25 5001 actual 844626505 1122 Kenilworth Drive Towson MD 21204 501(c)(3) Cash 2024-12-04 21000 actual 813611916 10760 Sawatch Range Rd Salida CO 81201 501(c)(3) Cash 2024-12-04 15000 actual 135598093 1051 Riverside Drive New York NY 10032 501(c)(3) Cash 2024-12-04 9000 actual 680214101 PO Box 16009 San Diego CA 92176 501(c)(3) Cash 2024-11-11 314854 actual 113466516 240 Meeting House Lane Southampton NY 11968 501(c)(3) false false false false true false false true false false Form 990, Part VI, Section A, Line 8b Board minutes are documented for all Board meetings and any actions taken by the Board. There are no committees which are authorized to act on behalf of the organization. Form 990, Part VI, Section B, Line 11b The Association's financial records are reviewed by the Board members. The 990 is reviewed by the treasurer before it is filed. It is then sent to the Board for comment. The Board reviews the 990 and then votes to accept the documents at the next Board meeting or in online discussion. Form 990, Part VI, Section B, Line 12c The organization has a written conflict of interest policy. Board members are reminded of compliance with this policy on an ongoing basis. Form 990, Part VI, Section B, Line 15a The organization does not have paid employees. Form 990, Part VI, Section B, Line 15b There are no paid employees. This is a volunteer run organization. Form 990, Part VI, Section C, Line 19 Information is available upon request as required by current regulations. Financial information can also be found on Candid, formerly Guidestar.