2025-05-13T11:51:31-05:00 2024-06-30 362886485 DUGAN & LOPATKA CPA'S PC 4320 WINFIELD ROAD SUITE 450 WARRENVILLE IL 605554036 990 2023-07-01 362317619 EPILEPSY FOUNDATION OF GREATER CHICAGO EPIL 3129398622 17 N STATE STREET 650 CHICAGO IL 60602 ALISON RUBLE PRESIDENT AND CEO 3129398622 2025-05-12 1 0 RON MARKLUND P01985511 6306654440 2025-05-07 2023 2025-03-06 01:10:19Z ALISON RUBLE 17 N STATE STREET 650 CHICAGO IL 60602 2875078 0 X EPILEPSYCHICAGO.ORG X 1946 IL IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION 11 11 27 5 0 0 2562773 2687364 0 0 25737 137562 -224531 -195929 2363979 2628997 56250 46250 0 0 1570801 1752334 0 0 512532 871333 1067752 2498384 2866336 -134405 -237339 6685421 6177903 2130102 1859454 4555319 4318449 X TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. 0 0 1231645 46250 THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S COUNSELING AND CASE MANAGEMENT PROGRAM PROVIDES PEOPLE LIVING WITH EPILEPSY ACCESS TO SUPPORTIVE COUNSELING AND ASSISTANCE THAT WILL ENHANCE THEIR ABILITY TO COPE WITH ISSUES RELATED TO THEIR MEDICAL CONDITION AND IMPROVE THEIR QUALITY OF LIFE. THROUGH SUPPORTIVE COUNSELING, CASE MANAGERS ARE ABLE TO REACH OUT AND ASSURE ANYONE STRUGGLING WITH EPILEPSY IN THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S 44 COUNTY SERVICE AREA THAT THEY ARE NOT ALONE. IN FY24, THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGEMENT TEAM SERVED 556 INDIVIDUAL CLIENTS, PROVIDING ASSISTANCE ON 9,427 OCCASIONS. BY PARTICIPATING IN THIS CASE MANAGEMENT PROGRAM, CLIENTS CAN DEVELOP THE KNOWLEDGE AND SKILLS NECESSARY TO HANDLE COMMON CHALLENGES SUCH AS ISOLATION, MEDICATION COMPLIANCE, NAVIGATING PUBLIC BENEFITS, DIFFICULTIES WITH THE SCHOOL SYSTEM, AND EMPLOYEE DISCRIMINATION. MOST CLIENTS NEEDED ASSISTANCE WITH OBTAINING ACCURATE INFORMATION ON EPILEPSY, EVALUATION AND ASSESSMENT, REFERRAL AND ENTITLEMENT ASSISTANCE, AND EMPLOYMENT ASSISTANCE. THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S CASE MANAGERS ALSO ADVOCATED ON BEHALF OF CLIENTS ON HUNDREDS OF OCCASIONS, DEALING WITH EMPLOYMENT, DISCRIMINATION, BENEFITS AND MEDICAL MATTERS. INDIVIDUAL CLINICAL SERVICES OFFERED ARE STRUCTURED TO ADDRESS SPECIFIC ISSUES FACED BY PEOPLE LIVING WITH EPILEPSY AND TO FACILITATE APPROPRIATE LINKAGE TO NECESSARY SERVICES AND BENEFITS. SHORT-TERM, SOLUTION FOCUSED COUNSELING FOR INDIVIDUALS AND FAMILIES, INCLUDING THOSE FACING A NEW DIAGNOSIS OF EPILEPSY, THOSE DECIDING ON SURGICAL INTERVENTIONS AND THOSE SEEKING SUPPORT DURING CHANGES OR ADJUSTMENTS TO MEDICATION AND TREATMENT. EPILEPSY IS INTERMITTENT AND UNPREDICTABLE AND CAN HAVE AN IMPACT ON MOOD AND BEHAVIOR. OUR TRAINED STAFF USES METHODS SUCH AS COGNITIVE BEHAVIOR THERAPY (CBT), PSYCHOEDUCATION AND STRENGTHS-BASED COUNSELING TO PROVIDE RELIEF AND SUPPORT TO THOSE LIVING WITH EPILEPSY.THE EPILEPSY FOUNDATION OF GREATER CHICAGO OFFERS SPECIAL PROGRAMS FOR CHILDREN, TEENS, AND ADULTS LIVING WITH EPILEPSY, AS WELL AS THEIR PARENTS AND CAREGIVERS. THESE SOCIAL, RECREATIONAL AND EDUCATIONAL ACTIVITIES BUILD STRONGER BONDS IN THE EPILEPSY COMMUNITY AND PROVIDE VITAL PEER GROUP INTERACTION AND MEMORABLE, SHARED EXPERIENCES FOR INDIVIDUALS WITH EPILEPSY. 168988 THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S HEALTH EDUCATION AND ADVOCACY (HEA) DEPARTMENT (PREVIOUSLY NAMED THE EDUCATION DEPARTMENT) PROVIDES NO-COST EDUCATIONAL PROGRAMS AND TRAININGS THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY TO SCHOOLS, WORKPLACES, LAW ENFORCEMENT, COMMUNITY MEMBERS, AND OTHER COMMUNITY ORGANIZATIONS. THESE TRAININGS EDUCATE PEOPLE ABOUT EPILEPSY AND TEACH THEM HOW TO KEEP OTHERS SAFE DURING A SEIZURE. THERE ARE TWO MAIN TRAININGS PROVIDED TO THE PUBLIC: "SEIZURE TRAINING FOR SCHOOL PERSONNEL, AND "SEIZURE RECOGNITION & FIRST AID". WITH LOCAL PARTNERSHIPS OF THIRD-PARTY EDUCATIONAL PLATFORMS, AND A NATIONAL PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA, EFGC STAFF PROVIDED EDUCATION TO OVER 62,000 PEOPLE THROUGH VIRTUAL AND IN-PERSON PROGRAMMING. ANNUALLY, EFGC HOSTS A FREE, DAY-LONG EDUCATION CONFERENCE WITH SPEAKERS AND EXHIBITORS TO PROVIDE A BROAD PLATFORM GIVING THOSE AFFECTED BY EPILEPSY AND THEIR FAMILIES EASY ACCESS TO A RANGE OF INFORMATION INCLUDING THE LATEST MEDICAL TREATMENT OPTIONS. ON OCTOBER 28TH, 2023, EFGC HOSTED THE 13TH ANNUAL EPILEPSY EDUCATION CONFERENCE IN OAK BROOK, ILLINOIS. THE FREE DAY-LONG CONFERENCE WAS GEARED TOWARD PROVIDING INDIVIDUALS WITH EPILEPSY, THEIR FAMILIES, AND THE GENERAL COMMUNITY WITH THE LATEST INFORMATION ABOUT EPILEPSY. MORE THAN 150 INDIVIDUALS ATTENDED THE 2023 EDUCATION CONFERENCE. 168988 THE EPILEPSY FOUNDATION OF GREATER CHICAGO EDUCATES THE GENERAL COMMUNITY THROUGH VARIOUS PUBLICITY OUTLETS, SUCH AS, ONLINE, TELEVISION, RADIO, AND SOCIAL MEDIA. "ECONNECTIONS," A QUARTERLY E-NEWSLETTER, IS SENT OUT FOUR TIMES TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ENTIRE EMAIL DATABASE. ON AVERAGE, EACH E-BLAST IS SENT TO MORE THAN 12,000 SUBSCRIBERS. "ECONNECTIONS" COVERS A VARIETY OF TOPICS RELATING TO THE EPILEPSY FOUNDATION OF GREATER CHICAGO AND THE EPILEPSY COMMUNITY. DOZENS OF E-BLASTS PROMOTING A SPECIFIC ISSUE, PROGRAM, OR EVENT ARE ADDITIONALLY SENT TO THE TARGETED AUDIENCES. IN FY24, THE EPILEPSY FOUNDATION OF GREATER CHICAGO SENT MORE THAN 90,000 EMAILS TO PEOPLE INTERESTED IN EPILEPSY AND GENERATED MORE THAN 10 MILLION MEDIA IMPRESSIONS THROUGH MARKETING CAMPAIGNS. THE EPILEPSY FOUNDATION OF GREATER CHICAGO UTILIZES POPULAR SOCIAL MEDIA OUTLETS TO INCREASE ITS ONLINE PRESENCE. FACEBOOK, X, INSTAGRAM, YOUTUBE, AND LINKEDIN COLLECTIVELY BOAST MORE THAN 20,000 FOLLOWERS. POSTS REGARDING THE LATEST INFORMATION ABOUT EPILEPSY, HOW IT IMPACTS THE PUBLIC, AS WELL AS THE EPILEPSY FOUNDATION OF GREATER CHICAGO'S ACTIVITIES, ARE UPDATED ON A DAILY BASIS. 1569621 1 1 0 1 0 0 0 0 1 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 11 0 27 1 0 0 0 0 1 1 1 1 0 0 0 0 0 0 X 11 11 0 1 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 IL X KURTIS COTY 3129398622 17 N STATE STREET 650 CHICAGO IL 60602 MATT MCINERNEY BOARD CHAIR 1.00 X X 0 0 0 ERIC WEBER VICE PRESIDENT AND SECRETARY 1.00 X X 0 0 0 STEVE CORDA TREASURER 1.00 X X 0 0 0 LISA AHERN DIRECTOR 1.00 X 0 0 0 TAKIJAH HEARD DIRECTOR 1.00 X 0 0 0 DAN HUGO DIRECTOR 1.00 X 0 0 0 JASON HOFFERICA DIRECTOR 1.00 X 0 0 0 BRAD SEROT DIRECTOR 1.00 X 0 0 0 GEOFFREY VANCE DIRECTOR 1.00 X 0 0 0 MATT SAMSON DIRECTOR 1.00 X 0 0 0 GORDON HARTRANFT DIRECTOR 1.00 X 0 0 0 NANCY IIDA INTERIM PRESIDENT AND CEO 40.00 X 80653 0 0 ALICIA VEGA INTERIM PRESIDENT AND CEO 40.00 X 0 0 0 ROBERTA SHOEMAKER VP OF OPERATIONS & FINANCE 40.00 X 120443 0 9160 ANASTASIA MCCARGO VP OF CLIENT SERVICES 40.00 X 102919 0 10597 304015 0 19757 2 0 0 0 0 482636 1170061 1034667 2687364 137562 137562 50152 482636 246081 -195929 -195929 2628997 0 0 -58367 X 46250 46250 89193 48181 24802 16210 1340809 724286 372840 243683 88509 47811 24612 16086 144887 78266 40289 26332 88936 48041 24731 16164 33025 17840 9183 6002 105128 56789 29233 19106 72000 38893 20021 13086 252247 136261 70142 45844 39813 21506 11071 7236 72009 38898 20024 13087 16502 8914 4589 2999 216672 117043 60250 39379 25046 13530 6964 4552 28180 15222 7836 5122 9552 5160 2656 1736 CATERING AND FACILITY R 89275 48225 24825 16225 DUES AND SUBSCRIPTIONS 51173 27643 14230 9300 BANK SERVICE CHARGES 13713 7409 3812 2492 EMPLOYEE RELATIONS 11239 6072 3125 2042 32178 17381 8948 5849 2866336 1569621 784183 512532 2546355 436547 2250345 3690126 214794 278677 0 29940 47554 210272 235955 80313 171556 155642 1444901 1366783 9916 9916 6685421 6177903 78887 180646 109569 73356 299244 43914 1642402 1561538 2130102 1859454 X 4555319 4318449 4555319 4318449 6685421 6177903 -237339 469 0 X X 0 1 X 1 0 X 2901616 2232686 2594430 2562773 2687364 12978869 2901616 2232686 2594430 2562773 2687364 12978869 240869 12738000 32222 28791 3345 25737 137562 227657 13206526 224355 0.96450 0.97010 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 1 72000 72000 0 PART II-B, LINE 1: LEGISLATIVE CONSULTING FOR LOBBYING FOR SUPPORT OF EPILEPSY 0 1 X 62222 21148 41074 61308 25925 35383 112425 33240 79185 155642 OPERATING LEASE LIABILITY 1561538 1561538 X 2859996 469 230530 230999 2628997 0 2628997 3096866 230530 230530 2866336 0 2866336 PART IV, LINE 2B: THE FOUNDATION IS HOLDING FUNDS THAT WERE RAISED DURING A FUNDRAISING EVENT THAT WAS HELD BY AN INDIVIDUAL. PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES ON ITS CHARITABLE PURPOSE RELATED INCOME UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THERE IS NO UNRELATED BUSINESS INCOME FOR THE ORGANIZATION AND, ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED. THE ORGANIZATION HAS ADOPTED ACCOUNTING PRINCIPLES RELATED TO UNCERTAIN TAX POSITIONS AND HAS EVALUATED ITS TAX POSITION TAKEN FOR ALL OPEN TAX YEARS. CURRENTLY, THE 2020, 2021, AND 2022 TAX YEARS ARE OPEN AND SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE AND THE ILLINOIS DEPARTMENT OF REVENUE; HOWEVER, THE ORGANIZATION IS NOT CURRENTLY UNDER AUDIT NOR HAS THE ORGANIZATION BEEN CONTACTED BY ANY OF THESE JURISDICTIONS. BASED ON THE EVALUATION OF THE ORGANIZATION'S TAX POSITION, MANAGEMENT BELIEVES ALL POSITIONS TAKEN WOULD BE UPHELD UNDER AN EXAMINATION; THEREFORE, NO PROVISION FOR THE EFFECTS OF UNCERTAIN TAX POSITION HAS BEEN RECORDED FOR THE YEARS ENDED JUNE 30, 2024 AND 2023. CASINO NIGHT 208165 191215 16950 94317 13714 12293 WALK 217026 215324 1702 8700 1964 60262 1 107597 76097 31500 32553 22278 532788 482636 50152 135570 15678 94833 246081 -195929 1 SCHOLARSHIPS 9 46250 PART I, LINE 2: THE EPILEPSY FOUNDATION OF GREATER CHICAGO OFFERS THREE DIFFERENT SCHOLARSHIP OPPORTUNITIES. THE JAMES DAVIES SCHOLARSHIP IS A ONE-TIME $5,000 MERIT AWARD THAT WILL PROVIDE FINANCIAL SUPPORT FOR THE PURSUIT OF HIGHER EDUCATION TO STUDENTS LIVING WITH EPILEPSY. THE SECOND IS THE CREATIVE IMPACT AWARD (NEW IN FY24), WHICH IS ALSO A ONE-TIME $5,000 MERIT AWARD TO A PERSON WHO USES A SPECIAL TALENT OR INTEREST IN A PASSIONATE, PERSONAL, AND UNIQUE WAY TO MAKE AN IMPACT ON AND BENEFIT OTHERS IN THE WORLD OUTSIDE THE CLASSROOM. THE THIRD IS THE EFGC SCHOLAR AWARD (WHICH BEGAN IN FY24), A FOUR-YEAR MERIT AWARD OF $25,000, PAID ANNUALLY FOR $6,250, THAT WILL PROVIDE FINANCIAL SUPPORT FOR PURSUING HIGHER EDUCATION TO STUDENTS LIVING WITH EPILEPSY. THE EFGC SCHOLAR AWARD RECIPIENT WILL BE EXPECTED TO PROMOTE AWARENESS OF EPILEPSY ON CAMPUS AND WITHIN THE COMMUNITY AND TO ENGAGE OR PARTICIPATE IN AT LEAST ONE EFGC EVENT ANNUALLY. THERE IS CURRENTLY ONLY ONE AWARDEE. IN FY23, A PROVISIONARY AWARD WAS GIVEN TO A SECOND STUDENT, BUT THAT HAS BEEN DISCONTINUED. EACH SCHOLARSHIP IS OPEN TO HIGH SCHOOL SENIORS AND ALL CURRENTLY ENROLLED COLLEGE OR VOCATIONAL/TECHNICAL SCHOOL FULL-TIME STUDENTS FOR THE 2024/2025 ACADEMIC SCHOOL YEAR. APPLICANTS MUST ALSO HAVE A DIAGNOSIS OF EPILEPSY AND BE RESIDENTS OF ILLINOIS. APPLICANTS ARE JUDGED ON VARIOUS MERITS, INCLUDING: HOW WELL THE APPLICANT MEETS THE SCHOLARSHIP'S VISION, ESSAYS, LETTERS OF RECOMMENDATION, CREATIVE PORTFOLIO, ACADEMIC MERIT, ACHIEVEMENT AND/OR COMMUNITY SERVICE, AND FINANCIAL NEED. THIS INFORMATION WAS PUBLICIZED ON ALL OUR SOCIAL MEDIA OUTLETS, INCLUDING E-NEWSLETTERS. IT WAS ALSO SUBMITTED IN THE FASTWEB DATABASE, AND IN THE CHICAGO PUBLIC SCHOOL SCHOLARSHIP DATABASE, SO AS TO REACH A WIDE STUDENT POPULATION ACROSS THE CHICAGO METRO AREA. THE APPLICATIONS WERE REVIEWED BY THE DIRECTOR OF EDUCATION, ONE FOUNDATION SUPPORTER MEMBER, AND TWO BOARD MEMBERS. EACH REVIEWER COMPLETED A QUANTITATIVE SCORE SHEET, WITH A QUALITATIVE COMMENT SECTION. THE TOP 5 RANKING APPLICATIONS OF THE EACH OF THE $5,000 SCHOLARSHIP APPLICANTS WERE DISCUSSED, AND 10 TOTAL WINNERS WERE SELECTED. WE FELT THIS WAS A FAIR PROCESS, ALSO ACCOUNTING FOR PERSONAL STORIES AND THE OVERALL FAMILY FINANCIAL SITUATION. THE EFGC SCHOLAR AWARD RECIPIENT IS IN YEAR TWO OF THEIR SCHOLARSHIP PROGRAM. WINNERS WERE FIRST CELEBRATED ON OUR SOCIAL MEDIA OUTLETS, MAKING THE ABILITY TO SHARE THEIR SUCCESS WITH FAMILY AND FRIENDS EASY. A CHECK WAS MAILED TO EACH AWARDEES SCHOOL AFTER SUBMITTING APPROPRIATE TAX PAPERWORK. FORM 990, PART VI, SECTION A, LINE 3 ALICIA VEGA OF ALICIA T. CONSULTING, INC. RECEIVED A TOTAL OF $87,500 FOR SERVICES PERFORMED WHILE BEING INTERIM PRESIDENT AND CEO. FORM 990, PART VI, SECTION A, LINE 8B NO COMMITTEE CAN ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE DRAFT FINANCIAL STATEMENT IS PRESENTED TO THE FINANCE COMMITTEE FOR THEIR APPROVAL. ONCE THEY APPROVE IT, THE FINANCIAL STATEMENT IS SENT TO ALL BOARD MEMBERS PRIOR TO THEIR VOTING TO ACCEPT IT AT THEIR FIRST MEETING OF THE FISCAL YEAR; ONCE THE 990 IS COMPLETED AND SUBMITTED TO EFGC, A DRAFT COPY OF THE 990 IS SENT TO ALL BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 12C WE EXPLAIN THE CONFLICT OF INTEREST POLICY AT THE FIRST BOARD MEETING OF EVERY FISCAL YEAR AND REQUIRE BOARD MEMBERS TO FILL OUT THE CONFLICT OF INTEREST FORM EACH FISCAL YEAR. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD PRESIDENT SIGNED OFF ON THE PRESIDENT AND CEO'S FY24 SALARY. ADDITIONALLY, ALL EMPLOYEES RECEIVED A REVIEW FOR FY24 BY THEIR SUPERVISOR BEFORE THE BEGINNING OF THE FISCAL YEAR. ALL SALARIES WERE INCLUDED IN THE FY24 BUDGET THAT THE BOARD VOTED ON AND PASSED AT THEIR JUNE 2024 MEETING. FORM 990, PART VI, SECTION C, LINE 19 ALL POLICIES AND DOCUMENTS ARE AVAILABLE FOR PUBLIC VIEWING UPON REQUEST. FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 130,803. MANAGEMENT AND GENERAL EXPENSES 67,333. FUNDRAISING EXPENSES 44,008. TOTAL EXPENSES 242,144. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 5,458. MANAGEMENT AND GENERAL EXPENSES 2,809. FUNDRAISING EXPENSES 1,836. TOTAL EXPENSES 10,103. FORM 990, PART IX, LINE 24E EMERGENCY CLIENT NEEDS: PROGRAM SERVICE EXPENSES 4,704. MANAGEMENT AND GENERAL EXPENSES 2,422. FUNDRAISING EXPENSES 1,583. TOTAL EXPENSES 8,709. AWARDS AND GIFTS: PROGRAM SERVICE EXPENSES 4,429. MANAGEMENT AND GENERAL EXPENSES 2,280. FUNDRAISING EXPENSES 1,490. TOTAL EXPENSES 8,199. TRAINING AND EDUCATION: PROGRAM SERVICE EXPENSES 3,419. MANAGEMENT AND GENERAL EXPENSES 1,760. FUNDRAISING EXPENSES 1,151. TOTAL EXPENSES 6,330. EQUIPMENT RENTAL AND MAINTENANCE: PROGRAM SERVICE EXPENSES 3,290. MANAGEMENT AND GENERAL EXPENSES 1,694. FUNDRAISING EXPENSES 1,107. TOTAL EXPENSES 6,091. EDUCATIONAL SUPPLIES: PROGRAM SERVICE EXPENSES 1,539. MANAGEMENT AND GENERAL EXPENSES 792. FUNDRAISING EXPENSES 518. TOTAL EXPENSES 2,849. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM PREVIOUS YEARS