2025-11-17T11:56:54-06:00 2024-12-31 390919055 RITZ HOLMAN LLP 330 E KILBOURN AVE SUITE 222 MILWAUKEE WI 53202 990 2024-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 2027721028 1050 CONNECTICUT AVENUE NW 500 WASHINGTON DC 20036 AIMEE HERSH FINANCE CHAIR 2027721028 2025-11-17 1 0 BRIAN FALK P01427495 4142711451 2025-11-17 2024 2025-03-06 01:10:19Z STACY ARDOIN MD 1050 CONNECTICUT AVENUE NW 500 WASHINGTON DC 20036 9591717 0 X HTTPS://WWW.CARRAGROUP.ORG/ X 2014 CA CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 13 9 0 7 0 0 525959 876245 9748979 8039323 565525 676149 541 0 10841004 9591717 1281542 1917390 0 0 1832151 2131540 0 0 294912 8420658 6542631 11534351 10591561 -693347 -999844 17407019 17393639 4708685 5695149 12698334 11698490 X CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 0 0 5474360 6165974 CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA) AND SLE (LUPUS). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES. 115436 50400 ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS. 1917390 1917390 1865194 GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION. 1560739 OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES. 1560739 9067925 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 9 0 1 0 0 0 0 0 0 0 0 0 0 0 X 13 9 0 0 0 0 1 1 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X CARRA-STEPHEN WITTE 2027721028 1050 CONNECTICUT AVENUE NW STE 500 WASHINGTON DC 20036 ROBERT COLBERT MD PHD PAST PRESIDENT 10.00 X X 35000 0 0 EMILY VON SCHEVEN MD MAS PAST PRESIDENT 10.00 X X 33723 0 0 STACY ARDOIN MD PRESIDENT 15.00 X X 62208 0 0 CHRISTY SANDBORG MD CHAIR-SECRETARY 3.00 X X 0 0 0 JAY MEHTA MD MS VICE PRESIDENT 10.00 X X 51899 0 0 CAROL WALLACE MD DIRECTOR 1.00 X 0 0 0 HARRY SAAL PHD DIRECTOR 1.00 X 0 0 0 LEIGH WHITE JD DIRECTOR 1.00 X 0 0 0 DANIEL SOLOMON MD PHD DIRECTOR 1.00 X 0 0 0 JOHN SUNDY MD PHD DIRECTOR 1.00 X 0 0 0 ROBERT FUHLBRIGGE MD PHD DIRECTOR 1.00 X 0 0 0 AIMEE HERSH FINANCE CHAIR 10.00 X X 21546 0 0 RICK GOULBURN DIRECTOR 1.00 X 0 0 0 DIEGO MCDONALD DIRECTOR 1.00 X 0 0 0 MATHIEU NELESSEN CEO 40.00 X 310597 0 66512 514973 0 66512 1 0 1 0 DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 CARRA REGISTRY MANAGEMENT 3987239 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT FOR REGISTRY 318560 CINCINNATI CHILDREN'S HOSPITAL MEDICAL C 3333 BURNET AVE CINCINNATI OH 45229 BIOSAMPLE MANAGEMENT 266700 3 584320 291925 876245 RESEARCH STUDIES & COL 541900 7963974 7963974 MEMBERSHIP DUES 541900 75349 75349 8039323 676149 676149 9591717 8039323 0 676149 1729384 1729384 23176 23176 164830 164830 204376 153282 51094 1570438 734632 639981 195825 240613 112556 98054 30003 116113 54316 47318 14479 946 946 25608 25608 608952 517762 85840 5350 7507 7507 10982 7590 3392 182464 13854 168610 18794 190 18604 60288 9710 1323 49255 24490 24490 34503 34503 REGISTRY OPERATIONS 4634750 4634750 WORK EFFORT 439867 439867 SUBSTUDIES RESEARCH PRO 386626 386626 MANUSCRIPTS 85400 85400 21454 21454 10591561 9067925 1228724 294912 2929485 1564718 11756589 13424529 2604039 2259279 23105 72796 91822 67332 1979 4985 17407019 17393639 1419300 2168076 1424861 1893351 1864524 1633722 4708685 5695149 X 12698334 11698490 12698334 11698490 17407019 17393639 -999844 0 X 0 1 X 1 0 X 3005647 205868 648500 525959 876245 5262219 3005647 205868 648500 525959 876245 5262219 5262219 46432 1422 165869 565525 676149 1455397 65475 29753 541 95769 6813385 36481854 0.77230 0.91680 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GRANT SUPPORT REFUNDS - 2020 AMOUNT: $ 48,875. 2021 AMOUNT: $ 29,346. REBATES/COMMISSIONS - 2020 AMOUNT: $ 900. 2021 AMOUNT: $ 407. IRS REFUNDS - 2020 AMOUNT: $ 15,700. MISCELLANEOUS - 2023 AMOUNT: $ 541. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 10078121 486404 486404 9591717 0 9591717 11077965 486404 486404 10591561 0 10591561 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2024, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR. 1 NORTH AMERICA 1 RESEARCH 141830 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 23800 1 0 0 0 1 0 165630 0 165630 NORTH AMERICA (CANADA) RESEARCH 141830 WIRE 0 UNITED KINGDOM RESEARCH 23000 WIRE 0 2 0 0 0 0 0 0 PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. 1 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 501(C)(3) 49999 0 FMV AF SMALL GRANT COHEN CHILDREN'S MEDICAL CENTER OF NEW YORK-FEINSTEIN 269-01 76TH AVE QUEENS NY 11040 112673595 501(C)(3) 25000 0 FMV AF SMALL GRANT WAKE FOREST UNIVERSITY PO BOX 7868 WINSTONSALEM NC 27109 223849199 501(C)(3) 99857 0 FMV AF LARGE GRANT THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 287500 0 FMV AF MENTORED CAREER DEVELOPMENT GRANT CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER 3333 BURNET AVE CINCINNATI OH 45229 316026285 501(C)(3) 545993 0 FMV AF MENTORED CAREER DEVELOPMENT, HEALTH EQUITY, ABC GRANT, LADA GRANT UNIVERSITY OF MICHIGAN 19000 HUBBARD DR DEARBORN MI 48126 386006309 501(C)(3) 98000 0 FMV AF SMALL & LARGE GRANT UCSF BENIOFF CHILDREN'S HOSPITAL 1444 FLORIDA AVE MODESTO CA 95350 946036493 501(C)(3) 287500 0 FMV AF MENTORED CAREER DEVELOPMENT UNIVERSITY OF WASHINGTON 1501 NE BOAT STREET SEATTLE WA 98195 916001537 501(C)(3) 48804 0 FMV AF ABC GRANT MICHIGAN STATE UNIVERSITY 426 AUDITORIUM RD ROOM 360 EAST LANSING MI 48824 386005984 501(C)(3) 48600 0 FMV LADA GRANT UNIVERSITY OF TEXAS-SOUTHWESTERN 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 501(C)(3) 13246 0 FMV PRES RESEARCH GRANT UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE CB1270 CHAPEL HILL NC 27599 566001393 501(C)(3) 49920 0 FMV AF ABC GRANT SEATTLE CHILDREN'S HOSPITAL PO BOX 50020 SEATTLE WA 98145 134148824 501(C)(3) 124965 0 FMV AF BRIDGE GRANT ARKANSAS CHILDREN'S HOSPITAL 13 CHILDRENS WAY LITTLE ROCK AR 72202 710694931 501(C)(3) 50000 0 FMV AF SMALL GRANT 13 PUBLICATION GRANTS 2 15871 FMV UTRECH TRAVEL GRANTS 1 1790 FMV VERITY GRANT 2 2000 FMV PRES TRAVEL GRANT 2 3515 FMV PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. X X X 0 0 0 0 0 0 0 0 0 MATHIEU NELESSEN CEO 310597 0 0 0 0 0 16878 0 49634 0 377109 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 LINE 6 EXPLANATION - THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A LINE 7A EXPLANATION - MEMBERS VOTE TO ELECT THE EXECUTIVE COMMITTEE FORM 990, PART VI, SECTION B, LINE 11B LINE 11B EXPLANATION - PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE. FORM 990, PART VI, SECTION C, LINE 19 THE MOST RECENT FORM 990S (INCLUDING FINANCIAL INFORMATION), THE BYLAWS, ARTICLES OF INCORPORATION, FORM 1023 APPLICATION FOR EXEMPTION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST