2025-11-12T16:10:37-08:00 2024-12-31 825419537 JACOBSON LAWRENCE & ASSOCIATES PLLC 200 FIRST AVENUE W SUITE 302 SEATTLE WA 98119 990 2024-01-01 842240648 Cureshank CURE 3104098060 11777 San Vicente Blvd 500 Los Angeles CA 90049 Abby Lievense Treasurer 2025-11-12 true true Derek Desjardins CPA P01410368 2067282727 2024 2025-03-06 01:10:19Z Abby Lievense 11777 San Vicente Blvd 500 Los Angeles CA 90049 597811 false X www.cureshank.org X 2019 CA CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field. 8 8 0 7 0 464968 586766 0 11045 0 464968 597811 50633 83728 0 0 0 33973 237335 444427 287968 528155 177000 69656 1042385 1118841 362 7162 1042023 1111679 CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field. false false 279862 83728 CureSHANK will bring the scientific community together by organizing scientific symposium and other meetings. With our scientific stakeholders, we will develop a research roadmap to a cure for SHANK-related disorders. We will also serve as an honest broker to enable collaboration among SHANK researchers and coordination of their projects to improve the speed and efficiency of research. 131845 CureSHANK will fund targeted research studies, including scientific projects that elucidate the underlying disease mechanisms, that identify and validate targets for drug development, and that de-risk promising drug targets. CureSHANK will also fund certain promising clinical trials readiness initiatives. These activities are needed to increase the number of drug targets moving from academic research labs into successful industry-sponsored clinical trials. 45063 CureSHANK will advocate for increased funding of SHANK research by other stakeholders and strategize with researchers on initiatives, such as seed grants, that could help attract research investment by other funders. 456770 true true false false false false false false false false true false false false false false true false false false true false false false false false false true false false false false false false false false false false false false false false false false false false false true 12 0 true 0 false false false false false false false 0 false false false false false false false X 8 8 false false false false false false false true true false false true true true false true true false false false CA X X X Abby Lievense 3104098060 11777 San Vicente Blvd 500 Los Angeles CA 90049 X Geraldine Bliss President 50.00 0.00 X X 0 0 0 Talya Emery Silva Vice President 50.00 0.00 X X 0 0 0 Abby Lievense Treasurer 20.00 0.00 X X 0 0 0 Laura Hinrichsen Secretary 10.00 0.00 X X 0 0 0 Grace Li Director 10.00 0.00 X 0 0 0 Jenny Graham Beeson Director 10.00 0.00 X 0 0 0 Laura Hinrichsen Director 10.00 0.00 X 0 0 0 Paulina Rychenkova Director 5.00 0.00 X 0 0 0 0 false false false Trish Davidson Consulting LLC 2225 Primrose Drive Falls Church VA 22046 Consortium Consulting 107288 1 586766 24493 586766 0 11045 11045 0 0 0 0 0 0 0 0 597811 11045 X 83728 83728 0 0 0 0 0 0 0 0 0 0 32448 32448 10789 10789 0 0 0 274224 258724 7750 7750 33320 19063 720 13537 546 197 349 0 0 0 0 0 68770 62807 5963 0 0 0 1292 1292 Bank SErvice Charges 12797 460 12337 Subscriptions 7426 7426 Membership Fees 2815 2815 0 528155 456770 37412 33973 1038385 347286 661543 0 0 0 0 0 0 4000 79585 5886 5886 24541 0 0 0 0 1042385 1118841 362 7162 362 7162 X 1042023 1111679 1042023 1111679 1042385 1118841 69656 X false true X true false X 40500 547552 487298 464968 586766 2127084 0 0 40500 547552 487298 464968 586766 2127084 195630 1931454 3 4 11045 11052 0 5565 5565 2143701 0.90100 0.88170 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5886 5886 5886 597811 597811 597811 528155 528155 528155 Europe 0 0 Confernce Conference Sponsorship 5000 5000 5000 false false false false false false true Icahn School of Medicine 1 Gustave L Levy Place New York NY 10029 136171197 501(C)(3) 10000 0 University of Utah 201 S Presidents Circle Salt Lake City UT 84112 876000525 62474 0 2 0 Grantmaker's Description of How Grants are Used The organization requires final reports from all grantees. Form 990, Part VI, Section B, Line 11b A copy of Form 990 is provided to the governing body via email before it is filed. Form 990, Part VI, Section C, Line 19 Upon request.