2025-05-14T11:29:59-05:00 2024-12-31 833620856 Murray Group CPA PLLC PO Box 77288 Charlotte NC 28271 990 2024-01-01 824368871 Cure VCP Disease Inc CURE 2294109573 209 Avondale Cir Warner Robins GA 31088 Nathan Peck CEO 2294109573 2025-05-14 1 1 Dana F Murray P01368695 7045753816 2025-05-14 2024 2025-03-06 01:10:19Z Nathan Peck 209 Avondale Cir Warner Robins GA 31088 340176 0 X www.curevcp.org X 2018 GA Patient support and research for VCP Disease 6 6 3 0 0 0 380719 278868 4181 28852 0 0 36171 11074 421071 318794 62123 81660 0 0 108429 73176 13750 45000 52703 165828 169966 350130 369802 70941 -51008 488967 432360 11215 5616 477752 426744 X Patient support and research for VCP Disease 0 0 45381 Scientific and Clinical Trial Tools: Cure VCP Disease contracted with contract research groups to build a new patient registry and create two additional cell lines (isogenic controls to strength ongoing research) 64730 64730 Sponsorship of Research: Nationwide Childrens. The purpose of this study is to learn about how VCP disease changes people's movement and strength overtime. Forty-six individuals participated to help prepare for future clinical trials. 130573 Research Network and Conference: Facilitate the VCP research network and host scientific convenings to encourage collaboration. Our 2024 scientific conference brought together 100 scientists and patient advocates to share new research and plan future research 35746 16930 Grants $16,930Conference $500Research $8,733Information Technology $3,138Office Expenses $412Educational resources $52Program Equip. & Mater. $3,988Membership $300Travel $1,693 35746 16930 276430 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 3 1 0 0 0 0 1 1 0 0 0 0 0 0 0 X 6 6 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 CA CO CT FL GA IL MI MN MO NJ NC OH OR PA TN TX WA DC X Allison Peck 2293101298 209 Avondale Cir Warner Robins GA 31088 NATHAN PECK CEO 15.00 X X 0 0 0 ALLISON PECK CFO 15.00 X X 0 0 0 AMY CASEY SECRETARY 10.00 X X 0 0 0 KELLY GOLD BOARD MEMBER 1.00 X 0 0 0 SARA BUHR BOARD MEMBER 1.00 X 0 0 0 MAUREEN MCARTHUR HART BOARD MEMBER 1.00 X 0 0 0 0 0 0 0 0 0 0 0 113565 165303 278868 SCIENTIFIC CONFERENCE 541900 28852 28852 28852 32456 113565 21382 11074 11074 318794 28852 0 11074 X 81660 81660 64146 59331 4815 1029 1029 8001 7464 537 25788 25788 1050 1050 3561 3561 45000 45000 54114 54114 2247 2247 4037 412 3121 504 5335 3138 443 1754 8986 8986 54793 54793 3455 271 3144 40 PROGRAM EQUIPMENT AND M 3988 3988 OTHER PAYROLL EXPENSES 1116 892 172 52 BANK FEES & SERVICE CHA 1094 1093 1 MEMBERSHIPS 350 300 50 52 52 369802 276430 40669 52703 475504 411385 9463 20925 4000 0 50 488967 432360 799 4613 10416 0 1003 11215 5616 X 265648 421990 212104 4754 477752 426744 488967 432360 -51008 0 X 0 0 0 X 103735 82330 107225 180718 278868 752876 3102 1349 1691 4181 28852 39175 106837 83679 108916 184899 307720 792051 36000 11900 16930 31914 32663 129407 0 36000 11900 16930 31914 32663 129407 662644 106837 83679 108916 184899 307720 792051 0.83660 0.77530 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 ACCRUED PAYROLL TAXES 101 ACCRUED WAGES 902 1003 X Part X, Line 2: THE FINANCIAL STATEMENT EFFECTS OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN ARE RECOGNIZED IN THE FINANCIAL STATEMENT WHEN IT IS MORE LIKELY THAN NOT, BASED ON THE TECHNICAL MERITS, THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION. INTEREST AND PENALITIES, IF ANY, ARE INCLUDED IN EXPENSES IN THE STATEMENTS OF ACTIVITES. AS OF DECEMBER 31, 2023 AND 2022, THE ORGANIZATION HAD NO UNCERTAINTY TAX POSITIONS THAT QUALIFY FOR RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. 0 PALMETTO PHILANTHROPY 10 W TALLULAH DR GREENVILLE SC 29605 DEVELOPMENT CONSULTING 0 0 45000 -45000 45000 -45000 TN TX WA DC MACON FUNDRAISER 98762 72041 26721 14595 I CAN EVENT 40249 40249 686 1 7010 1275 5735 6102 146021 113565 32456 21383 21383 11073 0 California Institute of Technology 1200 E California Blvd Pasadena CA 91125 951643307 16930 0 THE PURPOSE OF THE STUDY IS BIOMARKER DISCOVERY. CALTECH TESTED PATIENT'S BLOOD TO LOOK FOR DIFFERENCES TO SEE IF CHANGES CAN BE DETECTED IN RELATION TO DISEASE PROGRESSION The Research Institute at Nationwide Children's Hospital PO Box 781653 Detroit MI 482781653 341986485 64240 0 A 50-50 MATCHING GRANT TO A YOUNG INVESTIGATOR PURSING GENE EDITING Form 990, Part VI, Section A, line 2 Allison Peck and Nathan Peck are married. Form 990, Part VI, Section B, line 11b THE ORGANIZATION'S FINANCE COMMITTEE WILL PROVIDE FINANCIAL OVERSIGHT AND REVIEW THE 990 PRIOR TO FILING. ALL OTHER BOARD MEMBERS WILL BE SENT A COPY OF THE 990 FOR THEIR REFERENCE AND RECORDS. Form 990, Part VI, Section B, line 12c THE GOVERNANCE COMMITTEE REGULARLY MONITORS COMPLIANCE WITH CONFLICT OF INTEREST POLICY AND ENFORCES SIGNING COI POLICY STATEMENTS ANNUALLY Form 990, Part VI, Section C, line 19 UPON REQUEST Form 990, Part IX, line 11g RESEARCH: Program service expenses 54,114. Management and general expenses 0. Fundraising expenses 0. Total expenses 54,114.