2025-05-06T13:15:36-07:00 2024-12-31 990 2024-01-01 271618835 MOVEMENT DISORDERS FOUNDATION MOVE 3035883496 7765 Wadsworth Blvd No 740937 Arvada CO 80006 Betty Ross Chairperson of the Board 3039126390 2025-04-28 1 2024 2025-03-06 01:10:19Z X Betty Ross 7765 Wadsworth Blvd No 740937 Arvada CO 80006 164166 0 X www.movementdisordersfoundation.org X 2018 CO We help people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer patient-focused education or provide unique care services. 5 5 0 5 0 0 116078 126837 0 0 30650 35932 913 1397 147641 164166 0 100000 0 0 0 0 0 0 3000 108398 108656 108398 208656 39243 -44490 664057 620271 0 0 664057 620271 X Movement Disorders Foundation helps people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer professional and patient-focused education and provide unique care services. 0 1 124000 100000 24000 Research projects funded by the Movement Disorders Foundation GRANT FUNDING program must have a clear possibility of working at scale and for which grant funding has been otherwise difficult to obtain. In 2023, the organization restructured its grant funding program to support early-career research scientists in their advancement of high risk/high reward translational and/or clinical research that advances the understanding, treatment or prevention of multiple movement disorders. The Young Investigator Pilot Grant program launched in February 2024 with an invitational request for proposals to research institutions in the United States, Canada and United Kingdom. MDF awarded three grants at $50,000 each - of which $100,000 was distributed in FY24 to the recipients. 44286 0 43000 Movement Disorders Foundation is the fiscal sponsor of the HUNTINGTON'S DISEASE SOCIETY OF AMERICA (HDSA) CENTER OF EXCELLENCE at the Rocky Mountain Movement Disorders Center in Englewood, Colorado. The clinic provides an elite team approach to HD care, featuring neurologists, psychiatrists, social workers, therapists, counselors and other professionals working collaboratively to help families plan the best HD care program throughout the course of the disease. The Center of Excellence distinction is conferred on clinics who share HDSA's commitment to high-quality, comprehensive care and access to clinical research. 22500 22500 Movement Disorders Foundation's ENEWSLETTER provides important news, information and resources each Thursday for individuals living with movement disorders and their care partners. Now in its second year, the MDF eNewsletter reaches over 2800 people each week with more than 1500 active readers. 0 0 0 190786 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 X 5 5 0 1 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CO X X Gene Sobczak 3035883496 7765 Wadsworth Blvd No 740937 Arvada CO 80006 Eugene H Sobczak Executive Director 12.5 0 X 60000 0 0 Betty Ross Chairperson 2 0 X 0 0 0 Morris Susman MD Secretary 1 0 X 0 0 0 Peter McKown Treasurer 1.00 0 X 0 0 0 Rajeev Kumar MD Board member 2 0 X 0 0 0 Sara Minott Board member 1 0 X 0 0 0 60000 0 0 0 0 0 0 0 0 0 0 0 0 126837 0 126837 0 35932 35932 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1397 1397 0 0 1397 164166 37329 0 0 X 50000 50000 0 0 50000 50000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 60000 48650 8350 3000 1053 0 1053 0 426 0 426 0 0 0 0 0 0 0 0 0 0 0 40850 40850 0 0 0 0 0 0 268 0 268 0 2903 0 2903 0 0 0 0 0 670 670 0 0 616 616 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1232 1232 CO Secretary of State registration fees 45 0 45 0 Meals 593 0 593 0 208656 190786 14870 3000 54802 83755 0 0 0 8825 55251 0 0 0 0 0 600430 481265 0 0 0 0 664057 620271 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 664057 620271 664057 620271 664057 620271 X -44490 553 0 0 0 151 X 0 0 0 X 804871 472507 160552 116078 126837 1680845 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 804871 472507 160552 116078 126837 1680845 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1680845 3317 10978 13860 30676 35932 94763 0 0 0 0 0 0 3317 10978 13860 30676 35932 94763 0 0 0 0 0 0 0 0 1702 913 1397 4012 808188 483485 176114 147667 164166 1779620 0.94450 0.96404 0.05325 0.03443 X Schedule A, Part III, Line 12 Rebates and refunds RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Europe (including Iceland and Greenland) Research funding for neurodegenerative disorders. 50000 Wire transfer 0 N/A 1 1 0 0 0 0 0 0 1 University of Denver c/o Emily Oldani PhD Engineering and Computer Science 2155 East Wesley Avenue Denver CO 80210 840404231 501(c)(3) 25000 0 N/A N/A Research funding for neurodegenerative disorders. UCHealth Neurosciences Center - Anschutz Medical Campus c/o Emily Forbes MD 1635 Aurora Court Anschutz Outpatient Pavilion Aurora CO 80045 454552631 501(c)(3) 25000 0 N/A N/A Research funding for neurodegenerative disorders. 2 0 Schedule I, Part I, Line 2 The organization receives status reports from scientists on the use of research funds. Form 990, Part III, Line 3 In 2024, the University of Colorado Movement Disorders Center assumed responsibilities from MDF for hosting the region's annual Huntington's Disease FAMILY EDUCATION DAY symposium. Form 990, Part VI, Section A, Line 3 General operations, bookkeeping and accounting, marketing, fundraising and program administration duties are provided by PROTEA success navigation, inc. and its owner, Gene Sobczak. Form 990, Part VI, Section A, Line 4 The Movement Disorders Foundation updated its Board of Directors' Essential Duties and Policies: Confidentiality Policy, Code of Conduct Policy, Conflict of Interest Policy and Disclosure Form, Whistleblower Policy, and Document Retention Policy, all of which were adopted by a resolution of the board on April 19, 2024. Form 990, Part VI, Section B, Line 11b A final version of the Form 990 was reviewed and approved by the Movement Disorders Foundation board of directors at its monthly meeting on March 21, 2025, and thereafter e-mailed to each member before the return was filed. Form 990, Part VI, Section B, Line 12c Members of the board of directors formally disclosed and discussed potential conflicts of interest during meetings. Form 990, Part VI, Section B, Line 15 The board of directors reviewed comparability data in determining compensation for the management company and its employee, who serves as the organization's executive director. Form 990, Part VI, Section C, Line 19 The organization posted its financial statements and governing documents on the websites of the Colorado Secretary of State and Community First Foundation, respectively, and made them available to the public upon request. Form 990, Part IX, Line 11g Professional, therapeutic services provided monthly to patients as part of the Huntington's Disease Society of America (HDSA) Center of Excellence program at the Rocky Mountain Movement Disorders Center. Form 990, Part XI, Line 9 Reimbursement due for incorrect posting of funds for social media