2025-05-08T12:03:18-05:00 2024-12-31 461498870 BMSS LLC 1020 HIGHLAND COLONY PKWY SUITE 600 RIDGELAND MS 39157 990 2024-01-01 710874241 FOUNDATION TO ERADICATE DUCHENNE INC FOUN 7036837500 PO BOX 2371 ALEXANDRIA VA 223010371 JAMES WOOD TREASURER 7036837500 2025-05-07 1 1 MAURA MCDEVITT CPA P02480985 6019482924 2025-05-07 2024 2025-03-06 01:10:19Z JAMES WOOD PO BOX 2371 ALEXANDRIA VA 223010371 1246145 0 X WWW.DUCHENNEMD.ORG X 2002 VA TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE. 7 7 0 7 0 0 834048 772781 0 0 2721 141543 -9986 187845 826783 1102169 407352 593952 0 0 0 0 90000 90000 96878 142358 143939 639710 827891 187073 274278 1030887 1308359 148015 139818 882872 1168541 THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE. 0 0 653952 593952 THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $593,952 DURING 2024. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY. 653952 1 1 0 1 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 1 1 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 MD DC VA TN MS X LESLIE WADLER 7036837500 4202 MAPLE TREE CT ALEXANDRIA VA 22304 X JOEL WOOD PRESIDENT 10.00 X X 0 0 0 SCOTT SINDER SECRETARY 5.00 X X 0 0 0 JAMES WOOD TREASURER 5.00 X X 0 0 0 DAN CARSON DIRECTOR 1.00 X 0 0 0 DAVE HEIL DIRECTOR 1.00 X 0 0 0 BRAD TODD DIRECTOR 1.00 X 0 0 0 BILL QUIRK DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 EPIPHANY PRODUCTIONS INC 4102 MAPLE TREE COURT ALEXANDRIA VA 22304 FUNDRAISING & ADMINISTRATIVE 162500 CORNERSTONE GOVERNMENT AFFARIS 800 MAINE AVE SW FLOOR 7 WASHINGTON DC 20024 ADVOCACY & LOBBYING 120000 2 760536 12245 772781 141543 141543 0 760536 143976 -143976 -143976 TRINDS LLC 900099 331821 331821 331821 1102169 0 0 329388 322308 322308 271644 271644 60000 60000 12300 6150 6150 60000 60000 90000 90000 2014 2014 BANK FEES 8897 8897 LICENSES & PERMITS 728 728 827891 653952 77061 96878 5050 12601 239870 289943 30487 39981 51434 715499 954381 1030887 1308359 75528 10818 72487 129000 148015 139818 X 882872 1168541 882872 1168541 1030887 1308359 274278 11391 0 X X 0 1 X 1 0 X 732763 945848 805428 834048 902964 4221051 732763 945848 805428 834048 902964 4221051 218671 4002380 280 226 2721 2625 11360 17212 103390 111785 103942 132937 331821 783875 5022138 0.79690 0.85770 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 60000 0 0 60000 0 PART II-B, LINE 1: CONSULTANT PAID TO ADVOCATE ON BEHALF OF OUR ORGANIZATION AND SIMILAR MUSCULAR DYSTROPHY ORGANIZATIONS TO PROVIDE FUNDS FOR RESEARCH FOR THE CURE OF NEUROMUSCULAR DEGENERATIVE DISORDER DISEASES. 0 INVESTMENT IN TRINDS, LLC 904381 F INVESTMENT IN REVERAGEN BIOPHARMA, INC. 50000 C 954381 X 1257536 11390 143977 155367 1102169 0 1102169 971867 143976 143976 827891 0 827891 PART X, LINE 2: MANAGEMENT BELIEVES IT HAS NO MATERIAL UNCERTAIN TAX POSITIONS AND, ACCORDINGLY, IT WILL NOT RECOGNIZE ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENTS 143,976. ROUNDING 1. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENTS 143,976. 1 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 GRANT TO RECIPIENT LOCATED IN THE REGION 179000 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANT TO RECIPIENT LOCATED IN THE REGION 92644 0 0 0 0 0 0 271644 0 271644 CANADA TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 50000 0 UNITED KINGDOM TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 92644 0 CANADA TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 129000 0 0 0 0 0 0 0 X X X X X X 1 EPHIPHANY PRODUCTIONS INC 104 EAST HUME AVENUE ALEXANDRIA VA 22301 FUNDRAISING EVENT PLANNING, CONSULTING 0 902964 150000 752864 902964 150000 752864 DC MD VA TN MS DINING AWAY DUCHENNE 651886 651886 180 95631 17600 550 9198 FORE DUCHENNE 108650 108650 4719 15483 615 760536 760536 4899 111114 17600 550 9813 143976 -143976 1 UNIVERSITY OF PITTSBURGH 3550 TERRACE ST ROOM A506 SCAIFE HALL PITTSBURGH PA 15261 250965591 11300 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY DUCHENNE RESEARCH 1101 E MARSHALL ST RICHMOND VA 23298 546001758 38703 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY PARENT PROJECT MUSCULAR DYSTROPHY 1012 14TH STREET STE 500 WASHINGTON DC 20005 311405490 25000 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY RESEARCH FOUNDATION FOR SUNY FOR THE STATE UNIVERISTY OF NEW YORK PO BOX 9 ALBANY NY 122010009 141368361 162308 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVE NW WASHINGTON DC 20010 521654453 9997 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY VIRGINIA COMMONWEALTH UNIVERSITY 1101 E MARSHALL ST RICHMOND VA 23298 546001758 75000 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY FORM 990, PART VI, SECTION A, LINE 2 JOEL WOOD (PRESIDENT) AND JAMES WOOD (TREASURER) ARE BROTHERS. FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER OF THE FOUNDATION, JAMES E. WOOD, PRESENTS THE PREPARED FORM 990 TO THE GOVERNING BODY. THE INFORMATION CONTAINED IN THE FORM 990 IS REVIEWED AND EXPLAINED AND ANY QUESTIONS POSED ARE ANSWERED. AFTER THE GOVERNING BODY HAS REVIEWED THE FORM 990 AND AGREES WITH THE INFORMATION CONTAINED THEREIN, THE FORM 990 IS FILED WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE AFFILIATIONS OF THE BOARD MEMBERS AND OFFICERS ARE REGULARLY MONITORED TO ENSURE THAT NO CONFLICTS OF INTEREST OCCUR, EITHER PERCEIVED OR ACTUAL, WITH RESPECT TO THE FOUNDATION TO ERADICATE DUCHENNE AND THOSE CHARGED WITH ITS GOVERNANCE. THE BOARD MEMBERS ARE PROVIDED A COPY OF THE POLICY AND REVIEW AND DISCLOSE ANY CONFLICTS ON AN ANNUAL BASIS. ANY ISSUES ARE BROUGHT TO THE BOARD, DISCUSSED AND REPORTED IN THE BOARD MINUTES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST. FORM 990, PART XII, LINE 2C THE AUDITOR MEETS WITH THE BOARD OF DIRECTORS MAKING A FULL PRESENTATION AT THE COMPLETION OF THE AUDIT FOR THE YEAR ANSWERING ANY OF THE BOARD'S QUESTIONS. THE AUDITOR WORKS CLOSELEY WITH THE BOARD OF DIRECTORS DURING THE YEAR SHOULD ANY CONCERNS ARISE.