2025-04-25T13:46:31-07:00 2024-07-31 362716239 Barnes Givens & Barnes Ltd 200 E Evergreen Ave Suite 117 Mount Prospect IL 60056 990 2024-01-01 742926378 MISSION MSA MISS 8667374999 1660 International Dr 600 MCLEAN VA 22102 JOSEPH LINDAHL Executive Director 2025-04-25 true true William J Barnes P00399658 2247642442 2024 2025-03-06 01:10:19Z X 1660 International Dr 600 MCLEAN VA 221024877 1340289 false X WWW.MSACOALITION.ORG X 1999 TX THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. 14 14 0 668 0 1186812 548793 0 75026 85600 0 1261838 634393 486273 463708 0 0 0 155416 1432109 1041511 1918382 1505219 -656544 -870826 5922702 5394999 42407 26092 5880295 5368907 X THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. false false 552994 463708 RESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA. 259770 PATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL. 212970 CREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES. 50208 Centers of excellence 50208 1075942 true true false false false false false false false false false false false false false true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 false 0 false false false false false false false 0 false false false false false false false X 14 14 false true false false false false false true true false false true true true true true true false false false AL AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WI WV X X JOSEPH LINDAHL 8667374999 1660 International Dr Ste 600 MCLEAN VA 221024877 X Pam Bower CHAIR 20.00 0.00 X X 0 0 0 Liz Dyas Chair-elect 10.00 0.00 X X 0 0 0 Dawn Rodgers-Dexter Treasurer 15.00 0.00 X X 0 0 0 Patricia Libby Thvedt Secretary 20.00 0.00 X X 0 0 0 Kate Alivarius Director 2.00 0.00 X 0 0 0 Adrienne Glusman Marioles Director 2.00 0.00 X 0 0 0 Alan Smally Director 2.00 0.00 X 0 0 0 Andre Cote Barch Director 2.00 0.00 X 0 0 0 Gary Troutman Director 2.00 0.00 X 0 0 0 Hasan Hasan Director 2.00 0.00 X 0 0 0 William Billy Finnerty Director 2.00 0.00 X 0 0 0 Prof Dr Nadia Stefanova Director 2.00 0.00 X 0 0 0 Josh Launer Director 2.00 0.00 X 0 0 0 Amy Wynn Director 2.00 0.00 X 0 0 0 JOSEPH LINDAHL Executive Dir. 40.00 0.00 X 0 0 0 0 false false false MCI USA 1660 International Dr Ste 600 MCLEAN VA 221024877 Management 726000 1 548793 548793 0 63641 63641 0 0 0 727855 705896 21959 21959 21959 0 0 0 0 634393 21959 63641 172575 172575 0 291133 291133 0 0 0 0 0 0 0 726000 423099 168278 134623 0 0 0 0 18403 18403 83164 63178 19617 369 0 19221 6403 9897 2921 0 0 0 80745 32155 48590 0 0 0 0 0 583 583 Dues & subscriptions 44590 44450 140 Awareness Outreach 19214 19214 Other 18895 1784 7411 9700 Software and technology 13487 5309 668 7510 17209 16642 274 293 1505219 1075942 273861 155416 89178 126014 618070 118383 0 33566 0 0 0 0 0 42393 0 5181888 5108209 0 0 0 0 5922702 5394999 14488 26092 27919 42407 26092 X 2866226 2714065 3014069 2654842 5880295 5368907 5922702 5394999 -870826 359438 X X false true X true false X 1326828 1947017 1394761 1186812 548793 6404211 0 0 1326828 1947017 1394761 1186812 548793 6404211 645817 5758394 38259 66121 95758 75026 63641 338805 0 70000 70000 6813016 0.84520 0.63980 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 999115 359438 23687 383125 615990 18403 18403 634393 1510503 23687 23687 1486816 18403 18403 1505219 Part X : FIN48 Footnote THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL ANDSTATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIESRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BESUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF July 31, 2024 MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME.THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BYEVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF July 31, 2024. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS. true Asia MSA RESEARCH 100000 Wire Europe MSA RESEARCH 191133 WIRE 2 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THERESEARCH GRANTS. true Pres & Fellows of Harvard Col 10 Shattuck Street Boston MA 02115 042103580 501 c 3 100494 0 MSA Research University of California SD 9500 Gilman Dr La Jolla CA 92093 956006144 501c 3 50000 0 MSA Research University of California SF 1651 4th St 4th Fl San Francisco CA 94158 946036493 501 c 3 50000 0 MSA Research 3 0 Grantmaker's Description of How Grants are Used THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THE RESEARCH GRANTS. Form 990, Part VI, Section A, Line 3 THE ORGANIZATION IS A PARTY TO AN AGREEMENT FOR OPERATIONS MANAGEMENT,FINANCE AND ACCOUNTING, FUNDRAISING, EVENTS MANAGEMENT, PUBLICATIONS,MEMBERSHIP SUPPORT AND COMMUNICATION SERVICES PROVIDED TO THE ORGANIZATIONBY MCI USA. Form 990, Part VI, Section B, Line 11b THE FORM 990 IS REVIEWED IN DETAIL BY THE TREASURER OF THE ORGANIZATION.THE FORM 990 IS THEN SENT TO ALL MEMBERS OF THE BOARD OF DIRECTORS FORREVIEW AND COMMENT PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c EACH BOARD MEMBER COMPLETES AND SIGNS A CONFLICT OF INTEREST QUESTIONNAIREEVERY YEAR. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTSAVAILABLE TO THE PUBLIC UPON REQUEST Form 990, Part XII, Line 2c THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOROVERSIGHT FOR THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF ANINDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED DURING THE YEAR.