2025-11-17T12:34:34-05:00 2024-12-31 BDO USA 8001 FORSYTH BLVD STE 900 ST LOUIS MO 63105 990 2024-01-01 202529619 The Hemophilia Alliance Group Purchasing Organization % JEFF BLAKE HEMO 2152799236 2655 Ulmerton Rd Suite 263 Clearwater FL 33762 Jeff Blake President 2152799236 2025-11-17 true true Kimberly A Tortora CPA P01856820 3148891100 2024 2025-03-06 01:10:19Z The Hemophilia Alliance Jeff Blake 2655 Ulmerton Rd263 Clearwater FL 33762 10882096 false X www.hemoalliance.org X 2005 MD THE HEMOPHILIA ALLIANCE WORKS TO ENSURE MEMBER HEMOPHILIA TREATMENT CENTERS HAVE THE EXPERTISE, RESOURCES AND PUBLIC SUPPORT TO SUSTAIN THEIR INTEGRATED CLINICAL AND PHARMACY SERVICES FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. 15 15 13 15 0 600719 375630 8606264 9816901 544066 666198 23020 23367 9774069 10882096 3122497 3005828 0 0 2674830 2983562 0 0 0 2426820 2828554 8224147 8817944 1549922 2064152 10815535 26037862 10608 12953966 10804927 13083896 X THE HEMOPHILIA ALLIANCE PROVIDES MEMBER HEMOPHILIA TREATMENT CENTERS WITH RESOURCES AND SERVICES TO SUSTAIN THE COMPREHENSIVE CARE MODEL FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. false false 8126610 3005828 9840268 TO FACILITATE PURCHASING TERMS AND FAVORABLE PRICING FOR MEMBERS TO OBTAIN BLOOD CLOTTING FACTOR AND OTHER PRODUCTS USED TO TREAT INDIVIDUALS WITH HEMOPHILIA OR RELATED BLEEDING DISORDERS. COUNSELING CENTERS ON COMPLYING WITH STATE & FEDERAL LAW AND GRANT REQUIREMENTS, AIDING IN THE PRODUCTION OF EDUCATIONAL PIECES, PROMOTING THE VALUE OF THE COMPREHENSIVE CARE MODEL TO POLICY MAKERS, PATIENTS AND THIRD-PARTY PAYERS. 8126610 true false false true false false false false false false false false false false true false false false false false false false false false false false false true false true false false false false false false false false false false false false true false false false false true 27 0 true 13 true false false false false false false false false false false false false X 15 15 false false false false false false false true false false false true true true true false true true true false X JEFF BLAKE 2152799236 2655 ULMERTON RD Clearwater FL 33762 X JEFFREY BLAKE PRESIDENT/CEO 40.0 0.0 X 400000 0 47323 JOSEPH N PUGLIESE FORMER PRESIDENT/CEO 40.0 0.0 X 271000 0 27100 JENNIFER BORRILLO SVP MEMBER & COMM. RELATIONS 40.0 0.0 X 233000 0 62492 SEAN SINGH SVP MARKETING & OPERATIONS 40.0 0.0 X 250843 0 21029 MARK A PLENCNER DIR, MEMBER & COMM. RELATIONS 40.0 0.0 X 185269 0 19546 JEFFREY A AMOND DIR, MEMBER & COMM. RELATIONS 40.0 0.0 X 181843 0 19155 ANGELA BLUE Dir - Member & Comm. Relations 40.0 0.0 X 171889 0 26084 KAREN HAUSE Dir - Member & Comm. Relations 40.0 0.0 X 178272 0 18801 ZACHARY DUFFY DIR, MEMBER & COMM. RELATIONS 40.0 0.0 X 165059 0 17455 ERIC GRAY CPA CHAIR 2.0 0.0 X X 0 0 0 BECKY BURNS VICE CHAIR 2.0 0.0 X X 0 0 0 DEAN M HINDENLANG PHD SECRETARY 2.0 0.0 X X 0 0 0 STEVEN M POWELL MBA TREASURER 2.0 0.0 X X 0 0 0 LOUISE M BACA MSN RN DIRECTOR 1.0 0.0 X 0 0 0 REGINA BUTLER RN-BC DIRECTOR 1.0 0.0 X 0 0 0 STACY CROTEAU DIRECTOR 1.0 0.0 X 0 0 0 COLLEEN DRUZGAL DIRECTOR 1.0 0.0 X 0 0 0 MIGUEL A ESCOBAR MD DIRECTOR 1.0 0.0 X 0 0 0 REBECCA KRUSE-JARRES MD DIRECTOR 1.0 0.0 X 0 0 0 JOHN MYERS RPH MBA DIRECTOR 1.0 0.0 X 0 0 0 JUSTIN NELSON-DEERINGMHACPH DIRECTOR 1.0 0.0 X 0 0 0 JASON WITTES DIRECTOR 1.0 0.0 X 0 0 0 MICHAEL SILVEY MD DIRECTOR 1.0 0.0 X 0 0 0 SACHIKO SUZUKI DIRECTOR 1.0 0.0 X 0 0 0 2037175 0 258985 9 true true false ARTEMIS POLICY GROUP 912 East Capitol Street NE WASHINGTON DC 20003 PROFESSIONAL SVCS. 198000 KARAN LEGAL GROUP 3848 Aldrich Avenue South MINNEAPOLIS MN 55409 LEGAL SVCS. 225500 2 375630 375630 ADMINISTRATION FEES 561499 9514345 9514345 DATA AGREEMENT FEES 561499 22000 22000 SPONSORSHIP REVENUE 561499 280556 280556 9816901 666198 666198 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 MISCELLANEOUS REVENUE 561499 23367 23367 23367 10882096 9840268 666198 3005828 3005828 0 0 0 1312787 1109850 202937 0 0 1254403 1254403 0 136341 136341 0 82407 82407 0 197624 177862 19762 0 294369 202950 91419 11388 8541 2847 72500 72500 0 0 124753 52469 72284 0 123740 92805 30935 34480 25860 8620 0 0 399623 378464 21159 0 1158801 1022736 136065 0 0 0 22026 22026 PATIENT SUPPORT & REIMB. 421517 421517 COMMUNICATION 48000 48000 DUES & SUBSCRIPTIONS 42270 2365 39905 HONORARIUM 27500 27500 47587 4212 43375 8817944 8126610 691334 0 54090 250000 10761445 25787862 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10815535 26037862 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10608 12953966 10608 12953966 X 10804927 13083896 0 0 10804927 13083896 10815535 26037862 2064152 214817 X false false false X 473999 518982 678263 600719 375630 2647593 6198850 7015160 8217771 8629284 9816901 39877966 0 0 0 6672849 7534142 8896034 9230003 10192531 42525559 0 0 0 42525559 11377 1833 151636 544066 666198 1375110 0 11377 1833 151636 544066 666198 1375110 0 23367 23367 6684226 7535975 9047670 9774069 10882096 43924036 0.96816 0.98060 0.03131 0.01940 X false false false true 0 false false true 72500 false false 72500 false 0 PART II-B , LINE 1, LOBBYING ACTIVITIES: ENGAGED LEGISLATIVE CONSULTANTS TO COORDINATE AND CONDUCT MEETINGS WITH LEGISLATORS REGARDING HEALTHCARE MATTERS, 340B LEGISLATION PROPOSED AND TOPICS PERTINENT TO THE ORGANIZATION'S MISSION. 0 REBATES PAYABLE TO MEMBERS 12953966 12953966 true THE HEMOPHILIA ALLIANCE FOUNDATION 20 VINE STREET 1447 LANSDALE PA 19446 800902096 501(c)(3) 869000 SEE PART IV NATIONAL BLEEDING DISORDERS FOUNDATION 7 PENN PLAZA STE 1204 NEW YORK NY 10012 135641857 501(C)(3) 819353 SEE PART IV AMERICAN THROMBOSIS AND HEMOSTATIS NETWORK 67 RED ROCK CIRCLE ROCHESTER NY 14626 205244339 501(c)(3) 700000 SEE PART IV INDIANA HEMOPHILIA & THROMBOSIS CENTER INC 8326 NAAB RD INDIANAPOLIS IN 46260 352047838 501(c)(3) 402000 SEE PART IV WORLD FEDERATION OF HEMOPHILIA 911 CENTRAL AVENUE ALBANY NY 12206 161513923 501(c)(3) 135000 SEE PART IV THE COALITION FOR HEMOPHILIA B INC 757 3RD AVE 20TH FL NEW YORK NY 10017 133686549 501(c)(3) 27500 SEE PART IV VERSITI INC 638 N 18TH STREET MILWAUKEE WI 53233 454675354 501(C)(3) 8012 SEE PART IV 7 0 PART I, LINE 2: THE BOARD OF DIRECTORS APPROVES A TOTAL GRANT BUDGET AND THEN DISSEMINATES THE INDIVIDUAL AWARDS GIVEN TO THE ORGANIZATIONS LISTED IN PART II OF SCHEDULE I. PART II, COLUMN H, PURPOSE OF GRANTS: 1. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: THE HEMOPHILIA ALLIANCE FOUNDATION PURPOSE OF GRANT OR ASSISTANCE: SUPPORT FOR GRANTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN THEIR CARE OF BLEEDING AND CLOTTING DISORDERS. 2. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: NATIONAL BLEEDING DISORDERS FOUNDATION PURPOSE OF GRANT OR ASSISTANCE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. 3. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: AMERICAN THROMBOSIS AND HEMOSTATIS NETWORK PURPOSE OF GRANT OR ASSISTANCE: ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS. 4. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: INDIANA HEMOPHILIA & THROMBOSIS CENTER, INC. PURPOSE OF GRANT OR ASSISTANCE: SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS. 5. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: WORLD FEDERATION OF HEMOPHILIA PURPOSE OF GRANT OR ASSISTANCE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. 6. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: THE COALITION FOR HEMOPHILIA B, INC. PURPOSE OF GRANT OR ASSISTANCE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. 7. NAME OF DOMESTIC ORGANIZATION OR GOVERNMENT: VERSITI LABS PURPOSE OF GRANT OR ASSISTANCE: GENETIC TESTING PROGRAM ADMINISTRATION X X X X X X true false false false false false false false false JOSEPH N PUGLIESE FORMER PRESIDENT/CEO 21000 0 250000 0 0 0 27100 0 0 0 298100 0 0 0 JEFFREY BLAKE PRESIDENT/CEO 340000 0 60000 0 0 0 31500 0 15823 0 447323 0 0 0 SEAN SINGH SVP MARKETING & OPERATIONS 136992 0 0 0 113851 0 13699 0 7330 0 271872 0 0 0 MARK A PLENCNER DIR, MEMBER & COMM. RELATIONS 168934 0 16335 0 0 0 18527 0 1019 0 204815 0 0 0 JEFFREY A AMOND DIR, MEMBER & COMM. RELATIONS 154977 0 26866 0 0 0 18184 0 971 0 200998 0 0 0 ZACHARY DUFFY DIR, MEMBER & COMM. RELATIONS 148746 0 16313 0 0 0 16506 0 949 0 182514 0 0 0 ANGELA BLUE Dir - Member & Comm. Relations 154901 0 16988 0 0 0 17189 0 8895 0 197973 0 JENNIFER BORRILLO SVP MEMBER & COMM. RELATIONS 225000 0 8000 0 0 0 15750 0 46742 0 295492 0 KAREN HAUSE Dir - Member & Comm. Relations 155769 0 22503 0 0 0 17827 0 974 0 197073 0 PART I, LINE 4A: DURING THE TAX YEAR, THE ORGANIZATION MADE PAYMENTS PURSUANT TO AN AGREEMENT WITH SEAN SINGH OF $97,851. THE AMOUNT WAS INCLUDED IN THE COMPENSATION REPORTED FOR THAT INDIVIDUAL IN PART VII AND SCHEDULE J. FORM 990, PART VI, SECTION A, LINE 8B: MEETINGS ARE DOCUMENTED AT THE GOVERNING BODY LEVEL. THAT IS THE ONLY BODY WITH AUTHORITY TO ACT OF BEHALF OF THE ALLIANCE. FORM 990, PART VI, SECTION B, LINE 11B: A PDF COPY IS PROVIDED ELECTRONICALLY VIA E-MAIL TO THE ORGANIZATION. THE PDF COPY IS REVIEWED BY THE FINANCE COMMITTEE FOR ANY MODIFICATIONS AND THEN DISTRIBUTED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND FEEDBACK PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C: REGULAR REVIEW THROUGH MONTHLY BOARD MEETINGS AND PEER REVIEW. FORM 990, PART VI, SECTION B, LINE 15: THE ORGANIZATION HAS ADOPTED AN EXECUTIVE COMPENSATION & INTERMEDIATE SANCTIONS POLICY THAT APPLIES TO ITS OFFICERS. THE PURPOSE OF THE POLICY IS TO ENSURE THAT ITS COMPENSATION ARRANGEMENTS WITH RELATED PARTIES ARE EVALUATED AND ENTERED INTO AT ARMS' LENGTH AND ANY COMPENSATION THAT IS PAID TO A RELATED PARTY IS REASONABLE AND REFLECTS FAIR MARKET VALUE. THE POLICY ENCOURAGES THE APPLICATION OF THE REBUTTABLE PRESUMPTION STANDARD OF CODE SECTION 4958 AND THE RELATED TREASURY REGULATIONS BY (A) EXCLUDING ANY INTERESTED PARTY FROM THE DECISION-MAKING PROCESS; (B) REQUIRING DISINTERESTED BOARD OR COMMITTEE MEMBERS TO OBTAIN AND RELY UPON COMPARABILITIY DATA WHEN SETTING THE PROPOSED COMPENSATION TERMS; (C) REQUIRING APPROVAL OF THE TRANSACTION IN ADVANCE BY DISINTERESTED DIRECTORS OR COMMITTEE MEMBERS; AND (D) REQUIRING CONTEMPORANEOUS DOCUMENTATION (I.E., MINUTES) REFLECTING THE DECISION AND THE PROCESS BY WHICH IT WAS MADE. THE ORGANIZATION RETAINED A COMPENSATION CONSULTANT TO CONDUCT A STUDY AND PROVIDE COMPARATIVE SALARY MARKET DATA FOR THE CONSIDERATION OF ITS EXECUTIVE COMMITTEE CONSISTING OF INDEPENDENT DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19: INFORMATION PROVIDED TO PUBLIC UPON REQUEST. HEMOPHILIA ALLIANCE NETWORK SVCS LLC 2655 ULMERTON ROAD 263 CLEARWATER FL 33762 320519019 SEE PART VII FL 0 0 SEE PART VII PART I, COLUMN B & COLUMN F: COLUMN B - PRIMARY ACTIVITY: PROVIDE RESOURCES AND SUPPORT TO MEMBER TREATMENT CENTERS. COLUMN F - DIRECT CONTROLLING ENTITY: THE HEMOPHILIA ALLIANCE GPO