2025-11-17T10:18:17-06:00 2024-12-31 390974031 WEGNER CPAS LLP 2921 LANDMARK PL STE 300 MADISON WI 537134236 990 2024-01-01 874063264 BRAIN INFLAMMATION COLLABORATIVE INC BRAI 8332864433 925 GENESEE ST 180440 DELAFIELD WI 53018 CHRISTY JAGDFELD PRESIDENT & CEO/TREASURER 8332864433 2025-11-12 1 1 JENNY TARKOWSKI CPA P00634290 6082744020 2025-11-11 2024 2025-03-06 01:10:19Z CHRISTY JAGDFELD 925 GENESEE ST 180440 DELAFIELD WI 53018 639120 0 X BRAININFLAMMATION.ORG X 2021 WI TO CARRY ON SCIENTIFIC RESEARCH IN THE PUBLIC INTEREST FOR THE PURPOSE OF PROMOTING MORE ACCURATE DIAGNOSIS, IDENTIFYING PREVENTION MODELS, AND DISCOVERING LIFE-CHANGING TREATMENTS, AND EVENTUALLY A CURE, FOR POST-INFECTIOUS NEUROINFLAMMATORY ILLNESS SUCH AS PANDAS; PANS; SYDENHAM CHOREA; BASAL GANGLIA ENCEPHALITIS; AUTOIMMUNE ENCEPHALITIS; AUTOIMMUNE MEDIATED OCD, DEPRESSION, ANOREXIA, ANXIETY DISORDERS, TICS, AND TOURETTES; AND POST-COVID INFLAMMATION (COLLECTIVELY, "NEUROPSYCHIATRIC ILLNESSES"); TO IMPROVE THE LIVES OF PEOPLE IMPACTED BY NEUROPSYCHIATRIC ILLNESSES, INCLUDING BY RAISING AWARENESS OF SUCH ILLNESSES AND ACCOMPANYING SYMPTOMS; AND TO COLLABORATE WITH OTHER ENTITIES AND INDIVIDUALS INVOLVED IN THE RESEARCH AND TREATMENT OF NEUROPSYCHIATRIC ILLNESSES WITH THE GOAL OF MAKING RELEVANT RESEARCH AND BEST PRACTICES WIDELY AVAILABLE TO THE INTERESTED PUBLIC. 3 3 0 5 0 0 550367 635468 0 0 0 2 0 3650 550367 639120 22400 61500 0 0 0 0 0 0 25803 634255 433292 656655 494792 -106288 144328 182254 232063 68184 38154 114070 193909 X THE BRAIN INFLAMMATION COLLABORATIVE'S MISSION IS TO REVOLUTIONIZE THE DIAGNOSIS AND TREATMENT OF NEUROINFLAMMATORY ILLNESS THROUGH COORDINATED RESEARCH EFFORTS AS WELL AS THROUGH ADVOCACY, AWARENESS, AND EDUCATION. WE AIM TO ENSURE THAT BRAIN INFLAMMATION IMPACTING MENTAL HEALTH IS PROPERLY DIAGNOSED AND TREATED. 0 0 416694 61500 0 UNHIDE PROJECT PLATFORM: THE UNHIDE PROJECT OFFERS AN INNOVATIVE RESEARCH PLATFORM THAT WILL BRING BREAKTHROUGHS RELATED TO THE DIAGNOSIS AND TREATMENT OF NEUROINFLAMMATION ON PHYSICAL AND MENTAL HEALTH. USING PATIENT INFORMATION, THIS TOOL GENERATES DATA THAT CAN BE USED AND STUDIED BY RESEARCHERS AND CLINICIANS AROUND THE WORLD. WE EXPECT THIS WILL LEAD TO MEANINGFUL CHANGE IN THE DIAGNOSIS AND TREATMENT FOR MILLIONS OF PATIENTS.REMOVING COMMON BARRIERS TO RESEARCH: THIS INCLUDES PROTOCOL WRITING ASSISTANCE, IRB NAVIGATION, DATA COLLECTION, DATA ANALYSIS, PATIENT RECRUITING, PUBLICATION WRITING GUIDANCE AS WELL AS SEED GRANTS UPON APPROVAL. THE USE OF THE PLATFORM IS FREE.WE PROVIDE ADVOCACY AND EDUCATION THROUGH OUR WEBSITE AND WRITTEN WHITEPAPERS. 416694 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 12 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 WI X HEATHER HESS 6318062100 19 WATER RD ROCKY POINT NY 11778 X CHRISTY JAGDFELD PRESIDENT & CEO/TREASURER 30.00 X X 0 0 0 CYNTHIA SHORT SECRETARY (BEG JULY) 1.00 X X 0 0 0 DIANA POHLMAN SECRETARY (THRU JUNE) 1.00 X X 0 0 0 JULIE MILDER DIRECTOR (BEG MAY) 1.00 X 0 0 0 HEATHER KORBMACHER DIRECTOR (THRU MARCH) 1.00 X 0 0 0 0 0 0 0 0 0 0 CALAPRICE-WHITTY CONSULTING INC PO BOX 2451 BLUE JAY CA 92317 PATIENT PLATFORM CONSULTING SERVICES 149041 1 635468 635468 2 2 3650 3650 3650 639120 0 0 3652 X 61500 61500 5885 5885 5509 1045 4464 9600 9600 314948 282193 11284 21471 4100 4100 533 533 51140 46598 2562 1980 1000 1000 24358 24358 9357 9357 DUES AND SUBSCRIPTIONS 6862 4510 2352 494792 416694 52295 25803 65135 117969 1001 4652 2250 63000 5490 10959 108378 35483 182254 232063 68184 38154 68184 38154 X 114070 193909 114070 193909 182254 232063 X 144328 -64489 X 0 1 X 1 0 X 520000 550367 635468 1705835 520000 550367 635468 1705835 1614766 91069 2 2 1705837 3650 X SCHEDULE A, PART II, 2021 COLUMN THE 2021 COLUMN OF SCHEDULE A, PART II REPRESENTS THE SHORT INITIAL PERIOD OF EXEMPTION FOR THE ORGANIZATION FROM DECEMBER 17, 2021 TO DECEMBER 31, 2021. THERE WAS NO ACTIVITY DURING THIS INITIAL PERIOD. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 639120 0 639120 0 639120 494792 0 494792 0 494792 1 LUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH 400 HAMILTON AVE STE 340 PALO ALTO CA 94301 770440090 501(C)(3) 61500 0 GENERAL SUPPORT 1 0 PART I, LINE 2: GRANTEE PROVIDES QUARTERLY UPDATES BY PHONE OR EMAIL AS TO PROGRESS, PERCENTAGE COMPLETE COMPARED TO THE TIMELINE, AND WHY THE TIMELINE IS EXTENDED IF NECESSARY. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S BOARD OF DIRECTORS REVIEWS THE 990 BEFORE IT IS FILED WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, AN INTERESTED PERSON MUST DISCLOSE THE EXISTENCE OF HIS OR HER FINANCIAL INTEREST AND MUST BE GIVEN THE OPPORTUNITY TO DISCLOSE ALL MATERIAL FACTS TO THE DIRECTORS OR MEMBERS OF COMMITTEE WITH BOARD DELEGATED POWERS CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, HE OR SHE SHALL LEAVE THE BOARD OR COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD OR COMMITTEE MEMBERS SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G INTERNS: PROGRAM SERVICE EXPENSES 4,569. MANAGEMENT AND GENERAL EXPENSES 3,397. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 7,966. CLINICAL RESEARCH ASSOCIATES: PROGRAM SERVICE EXPENSES 31,221. MANAGEMENT AND GENERAL EXPENSES 760. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 31,981. PRINCIPAL INVESTIGATOR: PROGRAM SERVICE EXPENSES 34,153. MANAGEMENT AND GENERAL EXPENSES 2,665. FUNDRAISING EXPENSES 1,066. TOTAL EXPENSES 37,884. SENIOR PROGRAM ADVISOR: PROGRAM SERVICE EXPENSES 148,534. MANAGEMENT AND GENERAL EXPENSES 322. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 148,856. RESEARCH CONSULTANT: PROGRAM SERVICE EXPENSES 7,500. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 7,500. MARKETING AND DONOR DEVELOPMENT CONSULTING: PROGRAM SERVICE EXPENSES 3,025. MANAGEMENT AND GENERAL EXPENSES 1,870. FUNDRAISING EXPENSES 20,405. TOTAL EXPENSES 25,300. VIDEOGRAPHERS, PHOTOGRAPHY, AND GRAPHIC ARTISTS: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 2,270. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,270. REGISTRY DEVELOPMENT AND MAINTENANCE: PROGRAM SERVICE EXPENSES 4,434. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 4,434. SOCIAL MEDIA, NEWSLETTER, AND WEB CONSULTANT: PROGRAM SERVICE EXPENSES 48,757. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 48,757. FORM 990, PART XI, LINE 9: LOSS ON DISPOSAL OF DATABASE -64,489.