2025-11-14T12:51:51-06:00 2024-12-31 362239746 SASSETTI LLC 2107 SWIFT DRIVE SUITE 210 OAK BROOK IL 60523 990 2024-01-01 364378232 FOUNDATION FOR SARCOIDOSIS RESEARCH FOUN 3123410500 320 W OHIO ST 300 CHICAGO IL 60654 MARY COBB PRESIDENT 7733288156 2025-09-29 1 1 IZABELA POLUDNIAK P01959192 7083861433 2025-09-26 2024 2025-03-06 01:10:19Z MARY COBB 320 W OHIO ST 300 CHICAGO IL 60654 14480859 0 X WWW.STOPSARCOIDOSIS.ORG X 2000 IL THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS. 12 12 18 125 0 0 2411412 13025070 252937 192325 -22783 364032 -67462 4438 2574104 13585865 323706 952335 0 0 1217231 1334219 0 0 211631 861499 1081462 2402436 3368016 171668 10217849 5742895 17183158 455899 1172431 5286996 16010727 X THE FOUNDATION FOR SARCOIDOSIS RESEARCH (FSR) IS THE LEADING INTERNATIONAL ORGANIZATION DEDICATED TO FINDING A CURE FOR SARCOIDOSIS AND IMPROVING CARE FOR SARCOIDOSIS PATIENTS THROUGH RESEARCH, EDUCATION, AND SUPPORT. SINCE ITS ESTABLISHMENT IN 2000, FSR HAS FOSTERED OVER $7.5 MILLION IN SARCOIDOSIS SPECIFIC RESEARCH EFFORTS. 0 0 971674 63300 PATIENT AND CLINICIAN SUPPORT AND PROGRAMMING:FSR PROVIDES PATIENTS WITH DIRECT SUPPORT THROUGH OUR PEER-LED TRAINED VOLUNTEER COMMUNITY GROUPS, SUPPORT GROUPS, OUR ONE-ONE-ONE PATIENT NAVIGATOR SUPPORT PROGRAM, AND COMMUNITY OUTREACH ACTIVITIES. FSR PROVIDES DIRECT PATIENT EDUCATION THROUGH FSR'S WEBINAR AND TOWN HALL EDUCATIONAL SERIES, FSR SARC FIGHTER PODCAST. FSR HAS ALSO PROVIDED A SPECIFIC EMPHASIS ON IMPROVING REPRESENTATION IN CLINICAL TRIALS THROUGH OUR IGNORE NO MORE EFFORTS.FSR ALSO PROVIDES CLINICIAN EDUCATION AND SUPPORT THROUGH THE CLINICIAN EDUCATION AND ENGAGEMENT SERIES, PEER CASE REVIEWS, AND THE FSR JOURNAL CLUB. THESE PROGRAMS PROVIDE CLINICIANS WITH CONTINUING MEDICAL EDUCATION CREDITS AND FOSTER BEST PRACTICE SHARING AND OUTCOME IMPROVEMENT STRATEGIES. 1376075 952335 129025 FSR PROVIDES RESEARCH FUNDING THROUGH OUR FELLOWSHIP, CARDIAC GRANT, AND PILOT GRANT FUNDING PROGRAM. THROUGH THE FSR CLINICAL STUDIES NETWORK, FSR FUNDS AND FACILITATES A 12 SITE INTERNATIONAL STUDY SEEKING TO UNDERSTAND THE DIAGNOSIS OF CARDIAC SARCOIDOSIS. FSR HAS ALSO SIGNIFICANTLY INCREASED PARTICIPATION IN THE FSR PATIENT REPORTED OUTCOMES REGISTRY IN ORDER TO INCREASE UNDERSTANDING OF PATIENT'S LIVED EXPERIENCE WITH SARCOIDOSIS. 219305 FSR WORKS DIRECTLY WITH INDUSTRY PARTNERS LEVERAGING ITS EXPERTISE, CONTACTS, THE FSR PATIENT REPORTED OUTCOMES REGISTRY, AND ITS DATABASE IN SUPPORT OF ACADEMIC AND INDUSTRY SPONSORED RESEARCH EFFORTS. THROUGH THIS PROGRAM FSR HELPS TO REVIEW PROTOCOLS, CONNECT INDUSTRY WITH POSSIBLE INVESTIGATORS AND RESEARCH SITES, AND SUPPORT THE RECRUITMENT AND ENROLLMENT OF SARCOIDOSIS-RELATED INDUSTRY SPONSORED TRIALS. 2567054 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 18 0 18 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 IL X X PORTE BROWN 8479561040 845 OAKTON ST ELK GROVE VILLAGE IL 60007 MARY COBB PRESIDENT 10.00 X X 0 0 0 HEIDI W JUNK VICE PRESIDENT (THRU DEC-2024) 5.00 X X 0 0 0 MICHAEL KAPLAN TREASURER (THRU DEC-2024) 5.00 X X 0 0 0 JOEL ROSEN SECRETARY 5.00 X X 0 0 0 YVETTE C COZIER DIRECTOR 1.00 X 0 0 0 EMERSON RANDY HALL JR DIRECTOR 1.00 X 0 0 0 CALVIN HARRIS DIRECTOR 1.00 X 0 0 0 MICHAEL KLINGHER DIRECTOR 1.00 X 0 0 0 JEFFREY RAICH DIRECTOR 1.00 X 0 0 0 LOUISE M PERKINS DIRECTOR 1.00 X 0 0 0 CRAIG LIPSET DIRECTOR 1.00 X 0 0 0 LESLIE SERCHUCK DIRECTOR 1.00 X 0 0 0 REV MICHAEL A WALROND JR DIRECTOR (THRU NOV-24) 1.00 X 0 0 0 MARY MCGOWAN PRESIDENT & CEO 40.00 X 256000 0 16376 TRICHA SHIVAS CHIEF OF STAFF AND STRATEGY 40.00 X 200600 0 16556 456600 0 32932 2 0 1 0 0 130000 12895070 13025070 PROGRAM SERVICE FEES 541700 129025 129025 MEMBERSHIP DUES & ASSESSMENTS 900099 63300 63300 192325 388899 388899 870127 894994 -24867 -24867 -24867 370 0 370 370 MISCELLANEOUS INCOME 900099 4068 4068 4068 13585865 196763 0 364032 847694 847694 104641 104641 456600 309294 97203 50103 701571 475233 149353 76985 600 406 128 66 81078 54921 17260 8897 94370 63925 20090 10355 94788 161 94626 1 26189 26189 322570 304955 16615 1000 1362 1362 142138 78470 26897 36771 153332 37546 90487 25299 33602 33602 116926 108787 8092 47 82790 81880 910 55 55 4501 4501 RESEARCH PROGRAMS 103209 97779 3323 2107 3368016 2567054 589331 211631 959707 759559 322714 187301 7284 98186 49489 66514 45703 45703 54 0 4403647 16071598 5742895 17183158 142399 321294 313500 845304 5833 455899 1172431 X 4205506 14502618 1081490 1508109 5286996 16010727 5742895 17183158 10217849 505882 0 X X 0 1 X 1 0 X 1137781 1943444 1461209 2331449 13025070 19898953 1137781 1943444 1461209 2331449 13025070 19898953 11466427 8432526 446799 154644 119287 143978 388899 1253607 470 320 1375 6232 4068 12465 21165025 889584 0.39840 0.58730 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2020 AMOUNT: $ 470. 2021 AMOUNT: $ 320. 2022 AMOUNT: $ 1,375. 2023 AMOUNT: $ 6,232. 2024 AMOUNT: $ 4,068. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6841 6841 0 38862 38862 0 0 X 14100062 505882 34504 540386 13559676 26189 26189 13585865 3376331 34504 34504 3341827 26189 26189 3368016 PART X, LINE 2: THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE MANAGEMENT TO EVALUATE TAX POSITIONS TAKEN BY THE ORGANIZATION AND RECOGNIZE A TAX LIABILITY IF THE FOUNDATION HAS TAKEN ANY UNCERTAIN POSITIONS THAT MORE LIKELY THAN NOT WOULD NOT BE SUSTAINED UPON EXAMINATION BY THE INTERNAL REVENUE SERVICE OR OTHER APPLICABLE TAXING AUTHORITIES. MANAGEMENT HAS ANALYZED TAX POSITIONS TAKEN BY THE FOUNDATION AND HAS CONCLUDED THAT THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN AS OF DECEMBER 31, 2024. THUS, NO PROVISION FOR INCOME TAX HAS BEEN PROVIDED FOR IN THE FINANCIAL STATEMENTS. THE FOUNDATION'S FORMS 990, RETURN OF FOUNDATION EXEMPT FROM INCOME TAX, ARE SUBJECT TO EXAMINATION BY THE IRS, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. 0 0 0 0 0 0 0 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) FSR PILOT GRANT AWARED 99241 WIRE TRANSFER 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM FSR PILOT GRANT AWARED 5400 0 2 0 0 0 0 0 0 SCHEDULE F, PART II GRANTS MADE TO ORGANIZATIONS ARE MONITORED THROUGH REPORTS RECEIVED FROM THE GRANT RECIPIENTS INCLUDING FINANCIAL SPEND DOWN. 1 AMERICAN THORACIC SOCIETY (ATS) 25 BROADWAY NEW YORK NY 10004 061548706 501C3 10611 0 RESEARCH CLEVELAND CLINIC 9500 EUCLID AVE CLEVELAND OH 44193 340714585 501C3 16450 0 RESEARCH DUKE UNIVERSITY 2200 W MAIN STREET DURHAM NC 27705 560532129 501C3 100000 0 RESEARCH MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVE CHARLESTON SC 29425 576028985 501C3 9000 0 RESEARCH NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER CO 80206 742044647 501C3 10550 0 RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 501C3 15450 0 RESEARCH UNIVERSITY OF IOWA 118 S CLINTON ST IOWA CITY IA 52242 426004813 501C3 163400 0 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501C3 200000 0 RESEARCH UNIVERSITY OF ILLINOIS AT CHICAGO 28395 NETWORK PLACE CHICAGO IL 606731283 376000511 501C3 12500 0 RESEARCH UNIVERSITY OF CALIFORNIA SAN FRANCISCO 2000 CLAYTON ROAD CONCORD CA 94520 941156628 501C3 150000 0 RESEARCH MAYO CLINIC PO BOX 860334 MINNEAPOLIS MN 55486 416011702 501C3 50500 0 RESEARCH UNIVERSITY OF COLORADO 12700 EAST 19TH ST AURORA CO 80045 861693262 501C3 100000 0 PILOT GRANT 12 PART I, LINE 2: FSR HAS A WELL DOCUMENTED, THOROUGH PROGRAM FOR SOLICITATING AND EVALUATING REQUESTS FOR RESEARCH AND RESEARCH FELLOWSHIP GRANTS. THE PROCESS IS OVERSEEN BY FSR'S SCIENTIFIC ADVISORY BOARD. THEIR EVALUATIONS OF RESEARCH APPLICATIONS AND RECOMMENDATIONS FOR FUNDING ARE PRESENTED TO THE FSR GOVERNING BOARD OF DIRECTORS WHICH DETERMINES WHICH REQUESTS WILL BE FUNDED. FOR ALL MULTIYEAR FUNDING, THE COMMITMENT BEYOND THE INITIAL YEAR(S) IS CONTINGENT UPON RECEIPT AND EVALUATION BY FSR OF A SATISFACTORY ANNUAL PROGRESS REPORT. FSR REQUIRES ONGOING REPORTING PROGRESS OF RECRUITMENT/ENROLLMENT IN RESEARCH STUDIES OVERSEEN BY FSR'S SCIENTIFIC ADVISORY BOARD CHAIR AND AD HOC GRANT REVIEW COMMITTEE. X X X X 0 0 0 0 0 0 0 0 0 MARY MCGOWAN PRESIDENT & CEO 242000 0 14000 0 0 0 0 0 16376 0 272376 0 0 0 TRICHA SHIVAS CHIEF OF STAFF AND STRATEGY 190600 0 10000 0 0 0 0 0 16556 0 217156 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS DISTRIBUTED TO THE BOARD BEFORE BEING FILED. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS REVIEWED AND SIGNED ON AN ANNUAL BASIS AS PART OF THE ORGANIZATION'S DUE DILIGENCE. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS REVIEWED AND SIGNED ON AN ANNUAL BASIS AS PART OF THE ORGANIZATION'S DUE DILIGENCE. FORM 990, PART VI, SECTION B, LINE 15A THE BOARD OF DIRECTORS SHALL ANNUALLY REVIEW IN WRITING, THE PERFORMANCE OF THE CHIEF EXECUTIVE OFFICER (CEO) AGAINST PERFORMANCE CRITERIA THAT ARE LINKED TO THE ORGANIZATION'S LONG-TERM PLAN. THE CEO SHALL PARTICIPATE IN THE EVALUATION PROCESS AND REVIEWS, SIGNS AND RESPONDS TO THE EVALUATION BEFORE IT IS ENTERED INTO HIS OR HER RECORD. THE BOARD OF DIRECTORS SHALL ALSO REVIEW THE FAIRNESS OF THE CEO'S COMPENSATION AND BENEFITS IN RELATIONSHIP TO INDUSTRY PRACTICES AND FEDERAL REQUIREMENTS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XII, LINE 2C: THIS PROCESS IS UNCHANGED FROM THE PRIOR YEAR.