2025-05-15T09:35:23-04:00 2024-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2024-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER EXEC. DIR. & PRES. 9198096779 2025-05-14 true true SUSAN DEAN P01281194 9196621001 2025-05-15 2024 2025-03-06 01:10:19Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 5362824 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 13 12 16 45 0 7189579 4859019 0 218994 445749 34045 58056 7442618 5362824 2007102 3731199 0 1536923 2131135 0 609870 1053049 972295 4597074 6834629 2845544 -1471805 11037912 11385145 1830024 3665296 9207888 7719849 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 5063579 3655631 (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS. 738793 75568 (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS. 5802372 true true false false false false false false false false true false false false false true true false false false true true false false false false false true true true false false false false false true false false true false false false false false false false false true 19 0 true 16 true false false false false false false false false false false false false X 13 12 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 PO BOX 2127 DURHAM NC 27702 KENNY BRIGHTON HEAD OF PHIL 40.00 X 216428 0 13189 DANIEL FREED CHIEF SCIENT 40.00 X 204345 0 23214 JOSH SOMMER EXEC. DIR. & 50.00 X X 174183 0 28553 SARA NICK HEAD OF ENGA 40.00 X 142821 0 9699 SHANNON LOZINSKY DIRECTOR OF 40.00 X 121708 0 17888 LEE DOLAT SCIENTIST 40.00 X 112452 0 15642 SAI PERVEEN CHEMUDUPATI DIRECTOR OF 40.00 X 105347 0 11259 JESSE BONGARTZ HEAD OF FINA 40.00 X 100921 0 11209 LESLIE ADLER DIRECTOR 2.00 X 0 0 0 PAUL FELDMAN DIRECTOR 2.00 X 0 0 0 STEVEN GOLICK DIRECTOR 2.00 X 0 0 0 CHRISTOPHER HEERY DIRECTOR 2.00 X 0 0 0 ALICIA JEFFREYS DIRECTOR 2.00 X 0 0 0 SUSAN MAHONY DIRECTOR 2.00 X 0 0 0 STEVEN MANDEL DIRECTOR 2.00 X 0 0 0 LAUREN MULHOLLAND DIRECTOR 2.00 X 0 0 0 SHREYASKUMAR PATEL DIRECTOR 2.00 X 0 0 0 DAVID SANDAK CHAIR 2.00 X 0 0 0 MEGAN STEWART DIRECTOR 2.00 X 0 0 0 JOHN THERIEN DIRECTOR 2.00 X 0 0 0 1178205 130653 8 false true false S TEXAS ACCELERATED RESEARCH THERAPE 4383 MEDICAL DRIVE SUITE 4021 SAN ANTONIO TX 78229 RESEARCH 155885 1 4859019 266328 4859019 445749 445749 CONTRACT RESEARCH 37640 37640 OTHER INCOME 15790 15790 CONFERENCE REGISTRATION 4626 4626 58056 5362824 58056 445749 2715621 2715621 75568 75568 940010 940010 924560 613127 104839 206594 970173 643375 110012 216786 9416 6244 1068 2104 95908 63602 10875 21431 131078 86925 14863 29290 30508 28797 73 1638 80469 80469 16582 16582 152249 143706 367 8176 17311 11807 5504 47317 10704 14480 22133 223448 164572 22958 35918 2678 606 819 1253 137969 81179 14062 42728 55203 49805 2160 3238 21996 13216 8197 583 IN-KIND CONTRIBUTIONS 121571 120163 563 845 EVENTS 44994 33345 11649 BAD DEBT EXPENSE 20000 20000 6834629 5802372 422387 609870 3639340 784029 6083749 8881876 1064570 1422306 15041 51767 240611 129636 145151 110975 90061 134192 11037912 11385145 510650 833241 1319374 2832055 1830024 3665296 X 4158191 4104641 5049697 3615208 9207888 7719849 11037912 11385145 X -1471805 31042 -47276 X false true X true false X 2488341 2961128 4812417 7189579 4859019 22310484 2488341 2961128 4812417 7189579 4859019 22310484 7603990 14706494 5729 26512 49598 230561 445749 758149 1775 1775 23070408 202883 0.63750 0.61100 X PART II, LINE 10 CONFERENCE REGISTRATION FEES 1,775 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 177051 87264 89787 63560 42372 21188 110975 X 5387847 31042 57839 -47276 41605 5346242 16582 16582 5362824 6875886 57839 57839 6818047 16582 16582 6834629 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2024 OR 2023. SCHEDULE D, PAGE 4, PART XI, LINE 2D LOSS ON FOREIGN CURRENCY -47,276 true EUROPE GRANTS RESEARCH 745876 SOUTH ASIA GRANTS RESEARCH 194134 940010 940010 EUROPE RESEARCH 96580 WIRE TRANSFER SOUTH ASIA RESEARCH 194134 WIRE TRANSFER EUROPE RESEARCH 205400 WIRE TRANSFER EUROPE RESEARCH 275000 WIRE TRANSFER EUROPE RESEARCH 150000 WIRE TRANSFER EUROPE RESEARCH 18896 WIRE TRANSFER 6 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 745,876 0 SOUTH ASIA 194,134 0 true CANCER RESEARCH INSTITUTE 29 BROADWAY FLOOR 4 NEW YORK NY 10006 131837442 501C3 250000 RESEARCH GRANT CHILDREN'S HOSPITAL OF PHILADELPHIA CHOP 3615 CIVIC CENTER BOULEVARD PHILADELPHIA PA 19104 231352166 501C3 84723 RESEARCH GRANT MASSACHUSETTS GEN HOSPITAL 185 CAMBRIDGE ST BOSTON MA 02114 041564655 501C3 56500 RESEARCH GRANT MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 311485731 501C3 407935 RESEARCH GRANT START 4383 MEDICAL DRIVE SUITE 4021 SAN ANTONIO TX 78229 208313687 275562 RESEARCH GRANT THE BROAD INSTITUTE INC 415 MAIN STREET CAMBRIDGE MA 02142 263428781 501C3 299789 RESEARCH GRANT UNIVERSITY OF TEXAS MD ANDERSON CAN 1515 HOLCOMBE BLVD HOUSTON TX 77030 746001118 400000 RESEARCH GRANT UPMC DEPARTMENT OF NEUROSURGERY 200 LOTHROP STREET PITTSBURG PA 15213 232919472 501C3 50000 RESEARCH GRANT NYU GROSSMAN SCHOOL OF MEDICINE 435 E 30TH STREET 8TH FLOOR NEW YORK NY 10016 135562309 325000 RESEARCH GRANT CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 90048 951644600 501C3 50000 RESEARCH GRANT THE MEDICAL COLLEGE OF WISCONSIN 999 N 92ND ST MILWAUKEE WI 53226 390806261 501C3 50000 RESEARCH GRANT AMERICAN ASSN FOR CANCER RESEARCH 615 CHESTNUT ST PHILADELPHIA PA 19106 233100004 501C3 138060 RESEARCH GRANT REDESIGN SCIENCE INC 180 VARICK ST STE 6 NEW YORK NY 10014 823078352 15000 RESEARCH GRANT 9 4 PATIENT ASSISTANCE 15 75568 FMV SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. X X false false false false false false false false false KENNY BRIGHTON HEAD OF PHILANTHROPY 168374 48000 54 11203 1986 229617 DANIEL FREED CHIEF SCIENTIFIC OFF 178269 26016 60 13428 9786 227559 JOSH SOMMER EXEC. DIR. & PRES. 148519 25610 54 11852 16701 202736 SARA NICK HEAD OF ENGAGEMENT 124062 18699 60 8295 1404 152520 SMITH ANDERSON LLP BOARD DIRECTOR 57839 IN-KIND LEGAL SVCS false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. X 7 144756 FMV X TECH SOLUTIONS 1 121572 FMV false true false FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR, TREASURER AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS INCLUDING ARTICLES OF INCORPORATION, BY-LAWS, POLICIES, ANNUAL AUDITS, AND 990S ARE ON FILE IN THE FINANCE OFFICE AND ARE AVAILABLE TO THE PUBLIC UPON REQUEST. SOME OF THESE DOCUMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE. FORM 990, PART XI, LINE 9 LOSS ON FOREIGN CURRENCY -47,276