2025-01-29T12:17:35-06:00 2024-06-30 812950760 SAX LLP 1040 AVENUE OF THE AMERICAS-16TH FL NEW YORK NY 10018 990 2023-07-01 135650955 HEMOPHILIA ASSOCIATION OF NEW YORK INC HEMO 2126825510 131 WEST 33RD STREET 11D NEW YORK NY 10001 LINDA MUGFORD EXECUTIVE DIRECTOR 2126825510 2025-01-29 1 0 MARQUS WHITE P00053187 2126857000 2025-01-29 2023 2025-03-06 01:10:19Z LINDA MUGFORD 131 WEST 33RD STREET 11D NEW YORK NY 10001 2830145 0 X WWW.HEMOPHILIANY.COM X 1958 NY FUND CURES FOR HEMOPHILIA AND RELATED CONDITIONS. 14 14 6 15 0 0 507967 2234392 0 0 54143 60894 10113 10303 572223 2305589 204169 242609 0 0 460297 476189 0 0 48125 348755 402659 1013221 1121457 -440998 1184132 3242886 4596219 131213 107373 3111673 4488846 X TO PROVIDE INFORMATION, ADVOCACY, ASSISTANCE AND SCHOLARSHIPS FOR THOSE WITH BLEEDING DISORDERS, AS WELL AS PROVIDE RESEARCH FUNDING FOR BETTER THERAPIES AND POTENTIAL CURES FOR BLEEDING DISORDERS. 0 0 665889 104412 PATIENT SERVICES - MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC INDIVIDUALS AND FAMILIES BASED ON NEED. DURING 2023-2024 68.5% OF STAFF TIME-EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2023-2024 897 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 11% OF CLIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $76,881.05 GROUP MEETINGS WERE CONDUCTED THROUGHOUT THE YEAR. HIGHLIGHTS: TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A MEN'S RETREAT. 136766 135163 RESEARCH - THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS OF HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2023-2024 THE ASSOCIATION MAKE $118,020 IN PAYMENTS TOWARD THE $200,000 RESEARCH GRANT AWARDED IN FY 2022-2023. 6916 3034 PUBLIC HEALTH AND ROFESSIONAL HEALH EDUCATION - IN FISCAL YEAR 2023-2024 THE ASSOCIATION SUPPORTED BLEEDING DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS. 9208 COMMUNITY SERVICES 9208 818779 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 13 0 1 6 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 14 14 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 NY X LINDA E MUGFORD EXECUTIVE DIRECTOR 2126825510 131 WEST 33RD STREET 11D NEW YORK NY 10001 MARIAM VOUTSIS CHAIRMAN OF THE BOARD 2.00 X X 0 0 0 EILEEN MARGOLIES TRUSTEE 2.00 X 0 0 0 EDWARD G ROGOFF PHD TRUSTEE 2.00 X 0 0 0 MARK K SVENNINGSON TRUSTEE 2.00 X 0 0 0 JEFFREY ZACHARIA TRUSTEE 2.00 X 0 0 0 JOHANNA BAQUERO TRUSTEE 2.00 X 0 0 0 THEODORE BUNIN TRUSTEE 2.00 X 0 0 0 BRIAN EGAN TRUSTEE 2.00 X 0 0 0 ROBERT M GREER TRUSTEE 2.00 X 0 0 0 MARK KOVARIK TRUSTEE 2.00 X 0 0 0 JOSEPH MUGFORD TRUSTEE 2.00 X 0 0 0 MAGGI PACK TRUSTEE 2.00 X 0 0 0 AUREO C PINTO JR TRUSTEE 2.00 X 0 0 0 CHRISTOPHER N TOUSSAINT TRUSTEE 2.00 X 0 0 0 LINDA E MUGFORD EXECUTIVE DIRECTOR 40.00 X 169781 0 37264 169781 0 37264 1 0 1 0 0 310022 1924370 2234392 44099 44099 433489 416694 16795 16795 16795 107862 310022 107862 0 OTHER REVENUE 900099 10303 10303 10303 2305589 0 0 71197 170305 170305 72304 72304 207046 83462 102051 21533 204182 199110 403 4669 16496 16393 103 17928 17626 302 30537 21694 7022 1821 109200 109200 11866 11866 33796 30380 2712 704 20578 14619 4730 1229 4940 3510 1135 295 12433 10438 1579 416 3018 2867 134 17 27370 19444 6292 1634 6219 4418 1430 371 EVENT 127820 127820 PRINTING AND PUBLICATIO 15936 13611 1445 880 BAD DEBTS 13250 13250 POSTAGE 4232 3026 957 249 12001 7752 3597 652 1121457 818779 254553 48125 106922 31538 17158 13159 312725 1693923 2850 25 79246 89215 1172310 336968 855365 835342 1868620 1933017 3242886 4596219 127963 104123 3250 3250 131213 107373 X 2745818 2723911 365855 1764935 3111673 4488846 3242886 4596219 1184132 193041 0 X 0 1 X 1 0 X 2267155 311772 392340 507967 2234392 5713626 2267155 311772 392340 507967 2234392 5713626 5713626 34072 29338 63713 59726 44099 230948 256441 256441 1429 24 4012 10113 10303 25881 6226896 0.91760 0.88640 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 0 0 0 0 1 3732 0 0 3732 0 PART II-B, LINE 1: HOURS ALLOCATED FOR THE EXECUTIVE DIRECTOR AND ASSOCIATE DIRECTOR OF PROGRAMS IN CONDUCTING LOBBYING ACTIVITIES. 95000 95000 1000462 287589 712873 25666 3828 21838 12313 6682 5631 38869 38869 0 835342 X 2486764 193041 193041 2293723 11866 11866 2305589 1109591 0 1109591 11866 11866 1121457 PART X, LINE 2: THE ORGANIZATION RECOGNIZES THE EFFECT OF INCOME TAX POSITIONS ONLY IF THOSE POSITIONS ARE MORE LIKELY THAN NOT OF BEING SUSTAINED. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION HAD NO UNCERTAIN TAX POSITIONS THAT WOULD REQUIRE FINANCIAL STATEMENT RECOGNITION OR DISCLOSURE. THE ORGANIZATION IS NO LONGER SUBJECT TO EXAMINATIONS BY THE APPLICABLE TAXING JURISDICTIONS FOR THE PERIODS PRIOR TO JUNE 30, 2021. GREER GOLF 243218 135356 107862 1450 106412 MOHONK 88766 88766 1 85900 85900 417884 310022 107862 1450 106412 107862 0 1 THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE NEW YORK NY 100656399 131624158 501 C 3 135163 0 RESEARCH B LYMPHOID EXPRESSION OF COAGULATION FACTORS THROUGH GENE-EDITED HEMA. S-CELLS MATTHEW L GREER CHILDREN'S FUND 860 NEWTON STREET CHESTNUT HIL MA 02467 264409185 501 C 3 19142 0 TO PROVIDE MEDICAL CARE AND ACADEMIC SUPPORT TO CHILDREN IMPACTED BY CRITICAL ILLNESS WESTERN NEW YORK BLOOD CENTER INC 1010 MAIN STSUITE 300 BUFFALO NY 14202 160965865 501 C 3 16000 0 REGRANT TO SPONSOR EVENT SERVING PATIENTS TO ADVANCE PUBLIC HEALTH 3 PROFESSIONAL EDUCATION 1 3034 INDIVIDUALS - HIGHER EDUCATION ASSISTANCE 64 69270 PART I, LINE 2: THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO SUBMIT PERIODIC REPORTS DETAILING THE USE OF GRANT FUNDS TO ENSURE THAT GRANTS ARE UTILIZED FOR INTENDED PURPOSES. ALL REQUESTS ARE GRANTED AFTER THE SELECTION COMMITTEE REVIEWS THE APPLICATIONS. ALL GRANT EXPENDITURES MUST BE RELATED TO BLEEDING DISORDERS/MEDICAL CONDITIONS. INDIVIDUALS RECEIVING DIRECT PATIENT ASSISTANCE MUST PROVIDE DOCUMENTATION/PROOF OF FINANCIAL HARDSHIP. X X X 0 0 0 0 0 0 0 0 0 LINDA E MUGFORD EXECUTIVE DIRECTOR 169781 0 0 0 0 0 19908 0 17356 0 207045 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 -EXECUTIVE DIRECTOR LINDA MUGFORD AND BOARD TRUSTEE JOSEPH MUGFORD HAVE A FAMILY RELATIONSHIP. -BOARD TRUSTEE BRIAN EGAN AND BOARD CHAIR MARIAM VOUTSIS HAVE A FAMILY RELATIONSHIP FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR AND A COMPLETE COPY OF THE RETURN IS PROVIDED TO THE BOARD OF TRUSTEES PRIOR TO SUBMISSION TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY WHICH COVERS OFFICERS, TRUSTEES, COMMITTEE MEMBERS, SENIOR STAFF MEMBERS, AND CONSULTANTS REQUIRING THEM TO DISCLOSE ANY POSSIBLE CONFLICTS TO THE BOARD OF TRUSTEES (OR THE COMMITTEE OF THE ASSOCIATION). THIS IS DONE ON AN ANNUAL BASIS AND AS ANY POTENTIAL CONFLICTS ARISE. IT IS THE RESPONSIBILITY OF THE BOARD OF TRUSTEES TO DETERMINE WHETHER A CONFLICT OF INTEREST EXISTS, AND TO REVIEW CONFLICTS ONCE DETERMINED. ANY PERSON WITH A CONFLICT IS RECUSED FROM VOTING ON THE MATTER, AND PARTICIPATING IN FINAL DELIBERATIONS. SUCH MATTERS ARE DOCUMENTED IN THE MINUTES OF THE BOARD OF TRUSTEES. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION OF THE EXECUTIVE DIRECTOR IS DETERMINED BY THE BUDGET COMMITTEE WHO PERFORMS A MARKET REVIEW OF EXECUTIVE COMPENSATION USING THE FORM 990S OF SIMILAR ORGANIZATIONS AND COMPENSATION SURVEYS. BUDGET COMMITTEE REVIEWS AND MAKES RECOMMENDATIONS TO THE BOARD FOR BOARD VOTE. THE BOARD APPROVES THE COMPENSATION AND THE APPROVAL IS DOCUMENTED IN THE MINUTES OF THE MEETING. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S FORM 990 IS MADE AVAILABLE FOR PUBLIC INSPECTION AS REQUIRED UNDER SECTION 6104 OF THE INTERNAL REVENUE CODE. IT IS POSTED ON THE NEW YORK STATE ATTORNEY GENERAL WEBSITE, GUIDESTAR.ORG AND OTHER SIMILAR TYPES OF WEBSITES. IN ADDITION, THE FORM 990, GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST AT 131 WEST 33RD STREET, SUITE 11D, NEW YORK, NY 10001 OR BY CALLING THE ORGANIZATION DIRECTLY AT (212) 682-5510.