2024-11-12T12:49:50-06:00 2023-12-31 871353108 EISNER ADVISORY GROUP LLC 733 THIRD AVENUE NEW YORK NY 100172703 990 2023-01-01 900658125 HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP HUNT 2122421968 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 ARIK JOHNSON INTERIM CEO 2122421968 2024-10-18 1 0 WILLIAM EPSTEIN P01307171 2129498700 2023 2024-10-15 13:58:12Z ARIK JOHNSON 505 EIGHTH AVENUE SUITE 1402 NY NY 10018 3619514 1 1 9201 X WWW.HDSA.ORG X 1986 NY DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 16 16 0 500 0 0 3567726 3222635 0 0 0 28 74 29419 3567800 3252082 0 5436 0 0 0 0 0 0 249134 3671274 3039047 3671274 3044483 -103474 207599 739599 890427 86694 29923 652905 860504 HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES 0 0 2601801 5436 PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 107564 COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES. 85984 EDUCATION - PROVIDES INFORMATION AND EDUCATION THROUGH PUBLICATION AND DISTRIBUTION OF NEWSLETTERS, BROCHURES AND SCIENCE UPDATES. 2795349 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 X 0 0 0 0 0 0 0 0 1 1 0 1 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X ROSEMARY COLUCCIO 2122421968 505 EIGHTH AVENUE SUITE 1402 NEW YORK NY 10018 VICTOR SUNG MD PAST CHAIR 3.00 6.00 X X 0 0 0 TERESA SRAJER CHAIR 3.00 6.00 X X 0 0 0 KAMRAN ALAM TREASURER 3.00 6.00 X X 0 0 0 JENNE COLER-DARK CHAIR ELECT 3.00 6.00 X X 0 0 0 JAY HUGHES SECRETARY 3.00 6.00 X X 0 0 0 ANGELA ALLEN TRUSTEE 3.00 6.00 X 0 0 0 JEFFREY BROWN TRUSTEE 3.00 6.00 X 0 0 0 JEFF CARROLL TRUSTEE 3.00 6.00 X 0 0 0 MARK COE TRUSTEE 3.00 6.00 X 0 0 0 ERIN FURR-STIMMING MD TRUSTEE 3.00 6.00 X 0 0 0 BETH HOFFMAN TRUSTEE 3.00 6.00 X 0 0 0 JONATHAN KLEIN ESQ TRUSTEE 3.00 6.00 X 0 0 0 KELSEY PORTER TRUSTEE 3.00 6.00 X 0 0 0 DOMINIQUE THOMAS TRUSTEE 3.00 6.00 X 0 0 0 LESLIE M THOMPSON PHD TRUSTEE 3.00 6.00 X 0 0 0 VICKI WHEELOCK MD TRUSTEE 3.00 6.00 X 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFFICER 3.00 35.00 X 0 370302 53072 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 3.00 35.00 X 0 260173 29750 ARIK JOHNSON CHIEF MISSION OFFICER 3.00 35.00 X 0 203067 11418 JAMISON SKALA DIRECTOR, NATIONAL DEVELOP 3.00 35.00 X 0 173121 12348 DEBRA LOVECKY DIR. OF EDUCATION PROG THRU MAY 2023 3.00 35.00 X 0 257479 17698 DEBORAH BOYD REGIONAL DEVELOPMENT DIREC 3.00 35.00 X 0 117667 21815 REBECCA CHAN CONTROLLER 3.00 35.00 X 0 112876 42564 0 1494685 188665 0 0 1 0 0 88581 2391504 742550 136236 3222635 28 28 367432 2391504 367432 0 MISCELLANEOUS 900099 29419 29419 29419 3252082 0 0 29447 X 5436 5436 281364 281175 189 26272 21294 4978 2607 2607 93764 89183 4581 2302035 2302035 667 667 236 236 BANK AND CREDIT CARD FE 56989 181 56808 PRINTING & PUBLICATIONS 33548 8613 24935 POSTAGE AND SHIPPING 16856 7034 9822 TELEPHONE 5269 4439 830 219440 72449 146991 3044483 2795349 0 249134 0 0 725194 821471 3700 53062 9013 14869 19328 18303 1692 1025 739599 890427 53710 28624 32984 1299 86694 29923 X 535756 737522 117149 122982 652905 860504 739599 890427 207599 0 X 0 1 X 1 0 X 3341459 1930908 2867098 3567726 3222635 14929826 3341459 1930908 2867098 3567726 3222635 14929826 14929826 11 3 28 42 61070 1259 89 74 29419 91911 15021779 0.99390 0.99290 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2019 AMOUNT: $ 61,070. 2020 AMOUNT: $ 1,259. 2021 AMOUNT: $ 89. 2022 AMOUNT: $ 74. 2023 AMOUNT: $ 29,419. 19328 18303 1025 1025 X 10809035 9858988 9858988 950047 2302035 2302035 3252082 11918506 11176058 11176058 742448 2302035 2302035 3044483 PART X, LINE 2: THE SOCIETY FOLLOWS THE PROVISIONS OF THE FASB'S ASC TOPIC 740, INCOME TAXES, AS IT RELATES TO ACCOUNTING AND REPORTING FOR UNCERTAINTY IN INCOME TAXES. BECAUSE OF THE SOCIETY'S GENERAL TAX-EXEMPT STATUS, MANAGEMENT BELIEVES ASC TOPIC 740 HAS NOT HAD, AND IS NOT ANTICIPATED TO HAVE, A MATERIAL IMPACT ON THE SOCIETY'S FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: REVENUES FROM HDSA NATIONAL 9,858,988. PART XI, LINE 4B - OTHER ADJUSTMENTS: GRANT REVENUE FROM HDSA NATIONAL 2,302,035. PART XII, LINE 2D - OTHER ADJUSTMENTS: EXPENSES FROM HDSA NATIONAL 11,176,058. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT EXPENSES FROM HDSA NATIONAL 2,302,035. WALKS 1314249 1228023 86226 1735 28298 9147 5600 41447 GALAS 655395 485237 170158 1469 15818 100101 10650 42120 16 789292 678244 111048 3379 70997 22422 4065 10184 2758936 2391504 367432 6583 115113 131670 20315 93751 367432 0 X X X X 1 0 0 0 0 0 0 1 0 LOUISE VETTER CHIEF EXECUTIVE OFFICER 0 320565 0 49737 0 0 0 16500 0 36572 0 423374 0 0 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 0 260173 0 0 0 0 0 13176 0 16574 0 289923 0 0 DEBRA LOVECKY DIR. OF EDUCATION PROG THRU MAY 2023 0 128419 0 0 0 129060 0 6898 0 10800 0 275177 0 0 ARIK JOHNSON CHIEF MISSION OFFICER 0 203067 0 0 0 0 0 10133 0 1285 0 214485 0 0 JAMISON SKALA DIRECTOR, NATIONAL DEVELOP 0 173121 0 0 0 0 0 8917 0 3431 0 185469 0 0 REBECCA CHAN CONTROLLER 0 112876 0 0 0 0 0 6348 0 36216 0 155440 0 0 PART I, LINE 3 COMPENSATION PRACTICES - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD. PART I, LINE 4A DURING 2023, THE SOCIETY MADE A SEVERANCE PAYMENY TO THE FORMER DIRECTOR OF EDUCATION PROGRAMS. PART I, LINE 7 DURING 2023, THE BOARD OF TRUSTEES APPROVED A NONFIXED PAYMENT FOR THE CHIEF EXECUTIVE OFFICER. X 0 SEE SUPPL. INFO X DONATED GOODS 916 136236 COMPARABLE SALES 0 1 1 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS ARE BASED ON THE NUMBER OF ITEMS RECEIVED. PART I, LINE 32B: THE SOCIETY IS THE RECIPIENT OF THE PROCEEDS OF SALES OF VEHICLE DONATIONS THROUGH AN INTERMEDIARY ORGANIZATION. FORM 990, PART V, STATEMENTS REGARDING OTHER IRS FILINGS AND TAX COMPLIANCE LINE 1A, B, AND C THE FORMS 1096 AND RELATED FORMS 1099 ARE FILED BY THE NATIONAL ORGANIZATION UNDER EIN #13-3349872. THE GROUP RETURN FOR AFFILIATES DID NOT HAVE ANY REQUIREMENT TO FILE FORM 1096. LINES 2A AND B: THE NATIONAL OFFICE OF THE SOCIETY CURRENTLY EMPLOYS 37 INDIVIDUALS. PAYROLL AND BENEFITS ARE PROCESSED THROUGH A PROFESSIONAL EMPLOYER ORGANIZATION (PEO) WHICH FILES THE FORM W-3 ON THE NATIONAL OFFICE OF THE SOCIETY'S BEHALF UNDER THE PEO'S FEDERAL EIN#. THEREFORE THE SOCIETY DOES NOT FILE A FORM W-3. THERE ARE NO EMPLOYEES OF THE CHAPTER AFFILIATES. FORM 990, PART VI, SECTION B, LINE 11B MANAGEMENT THOROUGHLY REVIEWS AND SUBSEQUENTLY PROVIDES AN ELECTRONIC DRAFT COPY OF FORM 990 TO THE GOVERNING BODY FOR REVIEW BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS AND TRUSTEES ARE REQUESTED TO ANNUALLY SIGN DOCUMENTATION. FORM 990, PART VI, SECTION B, LINE 15 OFFICER COMPENSATION - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION OF THE BOARD. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS BY-LAWS, ARTICLES OF INCORPORATION, IRS FORM 1023, ANNUAL REPORTS, AUDITED FINANCIAL STATEMENTS, IRS FORM 990 DOCUMENTS, CONFLICT OF INTEREST POLICY AND PRIVACY POLICY AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 90, PART IX, STATEMENT OF FUNCTIONAL EXPENSES, LINE 21: PAYMENTS TO AFFILIATES REPRESENT THE TOTAL AMOUNT PAID FROM THE CHAPTERS TO THE NATIONAL OFFICE. HUNTINGTON'S DISEASE SOCIETY OF AMERICA 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 133349872 PROG SRVC NY 501(C)(3) LINE 7 N/A 0 0 1 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0