2024-11-08T00:40:29-05:00 2023-12-31 990 2023-01-01 161513923 WORLD FEDERATION OF HEMOPHILIA USA % Alain Baumann WORL 8774177944 PMB 142 911 CENTRAL AVE ALBANY NY 122061304 Alain Baumann Executive Director 2024-11-08 2023 2024-10-15 13:58:12Z WFH USA Alain Baumann 1425 Rene Levesque West Suite 1200 MONTREAL Quebec CA H3G 1T7 1131296825 false X www.wfhusa.org X 1996 NY Affiliated to the World Federation of Hemophilia an international charitable organization based in Montreal the mission of the World Federation of Hemophilia USA is to advance the global mission of WFH within the US to improve and sustain care for people with inherited bleeding disorders around the world 9 9 0 10 0 0 684598697 1131275449 -26415 0 42836 21376 0 0 684615118 1131296825 684198174 1067532407 0 0 92025 0 0 0 49466 220664 3340505 684510863 1070872912 104255 60423913 1856452 436959567 720864 309970 1135588 436649597 The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All. false false 1069941307 1066813918 1130225869 The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy. Notably the majority of the organizations net surplus $60,410K of $60,424K is tied to donated pharmaceutical products awaiting to be distributed to recipients in emerging countries as part of the program. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over sixty countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program. 530600 482100 530600 The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Training and Education Program. 201000 180900 201000 The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Research Program. 96524 46600 46600 Other programs including the Solidarity Program and Awareness Building support the development of WFHs national member organizations ensure WFHs timely response to emerging needs provide relief during crises and raise awareness of bleeding disorders in the USA and worldwide. 96524 46600 46600 1070769431 true true false false false false false false false true false false false false false false true false false true true true false false false false false false false false false false false false false false false false true false false false false true false false false true 0 0 0 false false false false false false false 0 false false false false false false false false false false X 9 9 false false false false true true true true true false false true true true true false false false false false AL AR CA DC FL GA HI IL KS KY MD MA MI MS NH NJ NY NC OR PA RI SC TN UT VA WV WI AK CO CT ME OH OK WA X World Federation of Hemophilia 5148757944 1425 Rene Levesque West Suite 1200 MONTREAL QC CA H3G 1T7 X Eric Stolte President 1.00 0 X X 0 0 0 Len Valentino Vice-President 1.00 0 X X 0 0 0 Sean Singh Treasurer 1.00 0 X X 0 0 0 Alain Baumann Secretary 4.00 0 X X X 0 0 0 Paula Bell Director 1.00 0 X 0 0 0 Amy Dunn Director 1.00 0 X 0 0 0 Phillip Kucab Director 1.00 0 X 0 0 0 Glenn Pierce Director 1.00 0 X 0 0 0 Mark W Skinner Director 1.00 0 X 0 0 0 Frank L Schnabel IV Director 1.00 0 X 0 0 0 Dawn Rotellini Ex-Officio NBDF Liaison 1.00 0 X 0 0 0 0 0 0 0 false false false 0 0 0 0 0 1131275449 1125857688 1131275449 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 21376 21376 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1131296825 21376 0 0 X 0 0 0 0 1067532407 1067532407 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 194712 153719 21133 19860 0 0 0 0 15218 0 15218 0 0 0 0 0 0 0 7518 0 7518 0 24468 11790 0 12678 5999 3470 0 2529 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 28108 14045 10894 3169 0 0 0 0 11103 0 11103 0 0 0 0 0 0 0 0 0 0 0 0 0 6000 0 6000 0 Postage 248 0 234 14 Charitable registrations and filing fees -6869 0 -18085 11216 Pharmaceutical product expiration and damage 3054000 3054000 0 0 0 0 0 0 0 0 0 0 1070872912 1070769431 54015 49466 0 0 0 0 448815 265133 14753 0 0 0 207864 354729 0 0 0 0 0 0 0 435020873 0 0 0 0 0 0 439162 1318832 0 0 745858 0 0 0 0 0 1856452 436959567 333776 309970 0 0 387088 0 0 0 0 0 0 0 0 0 0 0 0 0 720864 309970 X 1135588 435561558 0 1088039 1135588 436649597 1856452 436959567 X 60423913 84592 0 7518 0 374997986 X true X true X true false X 439969894 398358407 822907635 684598697 1131275449 3477110082 0 0 0 0 0 0 0 0 0 0 0 0 439969894 398358407 822907635 684598697 1131275449 3477110082 3009855933 467254149 19769 116832 218704 50745 105968 512018 0 0 0 0 0 0 0 0 0 0 0 0 3477622100 0.1344 0.1460 X Part II, line 17a See an attached PDF document for detailed explanation for line 17a RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 764348 53114 79444 0 0 0 896906 602082 63001 0 0 0 0 665083 550651 51431 0 0 0 0 602082 497885 52766 0 0 0 0 550651 448161 49724 0 0 0 0 497885 0 1 0 false false 1131381417 84592 84592 1131296825 0 1131296825 1070865394 0 1070865394 7518 7518 1070872912 Part V, line 4 The Susan Skinner Memorial Fund SSMF has been established as an endowment fund to support through scholarship payments the training education and leadership development of women within the bleeding disorders community. Scholarship recipients aged 18-60 years from the United States and abroad demonstrate outstanding leadership to improve the care of women with bleeding disorders in their countries and the potential to become future leaders in the bleeding disorder community. NOTE: Following the adoption of US GAAP as an accounting standard there was an adjustment to the opening balance of the endowment to recognize $0.1 million of earnings on endowment funds that had previously been deferred. This adjustment is a one-time change and does not reflect any operational activity or cash flow of the organization. true East Asia and the Pacific 0 0 Program services HUMANITARIAN AID 81622782 Russia and Neighboring States 0 0 Program services HUMANITARIAN AID 48274883 South America 0 0 Program services HUMANITARIAN AID 27163910 Central America and the Caribbean 0 0 Program services HUMANITARIAN AID 62243235 Middle East and North Africa 0 0 Program services HUMANITARIAN AID 111808715 Sub-Saharan Africa 0 0 Program services HUMANITARIAN AID 217999178 South Asia 0 0 Program services HUMANITARIAN AID 279678830 Europe Including Iceland and Greenland 0 0 Program services HUMANITARIAN AID 2784880 North America 0 0 Program services HUMANITARIAN AID 235237505 North America 0 0 Program services Research Program 180900 North America 0 0 Program services Training & Education Program 482100 North America 0 0 Program services Solidarity Program 46600 0 0 0 0 1067523518 1067523518 North America HUMANITARIAN AID 4420205 CHECK South Asia HUMANITARIAN AID 110334140 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 30934895 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1311000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 6288200 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 11913506 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 9141500 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 1191966 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 20724838 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 2475875 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 9382354 MEDICAL SUPPLY FMV North America RESEARCH PROGRAM 180900 CHECK East Asia and the Pacific HUMANITARIAN AID 540000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 4832000 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 36991387 MEDICAL SUPPLY FMV Central America and the Caribbean 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SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 1697285 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 3456000 MEDICAL SUPPLY FMV North America Solidarity Program 46600 CHECK East Asia and the Pacific HUMANITARIAN AID 14857100 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 106200 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 443700 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 775500 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 348000 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 1925683 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 19416417 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 10825556 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 13797716 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1997200 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 3727238 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4371911 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 15875950 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 6667442 MEDICAL SUPPLY Appraisal Middle East and North Africa HUMANITARIAN AID 9034520 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 647175 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 2207000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 17350667 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 17539700 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 7103140 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 34553096 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 2293500 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 72490790 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 9355170 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 11326290 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 355400 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 78792470 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 916 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1244850 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 5501500 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4427479 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 944000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4901420 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 161250 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4794526 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 309005 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 1290000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4087711 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 8212662 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 322500 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 1569116 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 109800 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 215000 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 14136385 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 215000 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 915000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 983632 MEDICAL SUPPLY FMV North America HUMANITARIAN AID 230817300 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 2654430 MEDICAL SUPPLY FMV 1 78 false false false false false false Part I, II, III and IV | PartandLinenumber:,Explanation:| Part I Line 2,Humanitarian aid is sent to Hospitals & Registered Hemophilia Associations in the recipient countries. It is sent by international couriers DHL Fedex that require us to provide the contact name address and telephone where the shipment will be sent. Before sending we coordinate with the recipient and with the courier to ensure we have all the necessary documents and authorizations. The international courier provides us with an airway bill with a tracking number. We require that the recipients send us an acknowledgment of receipt signed by the person to whom the shipment was addressed or their representative. It specifies the product brand name manufacturer lot number quantity of the product and expiry date. In addition we ask the recipients to provide a detailed utilization report. Detailed reporting on usage of the monetary allocations to the WFH for Joint is being periodically presented to the Finance Committee and the Board of Directors of WFH USA.| X 56 7648 FMV X 487504 1125857688 Ref. Pricing Book 0 false true false Part VI, Line 6 The World Federation of Hemophilia WFH a Canadian charity is the sole member of WFH USA. Part VI, Line 7a The World Federation of Hemophilia WFH has the power to elect all members of WFH USAs governing body. In addition the World Federation of Hemophilia has the sole power to amend the bylaws of the organization. Part VI, Line 7b Once a year at the General Assembly the WFH as a sole voting member of WFH USA approves the election of WFH USA Board of Directors Part VI, Line 11b Form 990 is prepared by the WFH staff and reviewed by the Head of Accounting & Financial Planning and Finance & Administration Director. After approval Form 990 is sent to the WFH USAs Executive Director and Finance Committee for their review and approval. Upon approval a copy of the form is also provided to all other members of the Board. Subsequently Form 990 is published on the WFH USA website for public inspection Part VI, Line 12c Officers and Directors have to sign a conflict of interest form every year at the first annual board meeting. This is a standing agenda item such that conflicts are updated if required at each board meeting. Disclosure of a conflict or potential conflict of interest enables the Board to request the abstention of a member from an area where conflict occurs or could occur. Part VI, Line 19 The audited financial statements of WFH USA are posted on the organizations website along with the completed Form 990 and schedules. Part XI, Line 9 | Description:, Explanation:, Amount:| During the 2023 current fiscal year WFH USA adopted US GAAP as an accounting standard in compliance with the New York State Attorney Generals Charities Bureau. This change necessitated an adjustment to the opening balance of net assets to properly reflect the new accounting treatment. As a result the organizations opening net assets were adjusted by $374,997,986 to align with the updated GAAP requirements including the recording of approximately $374.6 million of donated pharmaceutical inventory and recognition of approximately $0.3 million of donor restricted income and $0.1 million of earnings on endowment funds that had previously been deferred. This adjustment is reported in Part XI Line 5 of Form 990 as "Other changes in net assets or fund balances." This adjustment is a one-time change to the net assets and does not reflect any operational activity or cash flow of the organization during the reporting period., Change of accounting standard, $XXX-XX-XXXX| Part I Line 1 | Explanation:| Affiliated to the World Federation of Hemophilia an international charitable organization based in Montreal the mission of the World Federation of Hemophilia USA is to advance the global mission of WFH within the US to improve and sustain care for people with inherited bleeding disorders around the world Part III Line 1 | Explanation:| The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia within the United States which is to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All. Charitable solicitations for the common purposes of WFH and WFH USA within the U.S. are conducted through WFH USA a 501c3 affiliated entity WORLD FEDERATION OF HEMOPHILIA 1425 RENE LEVESQUE WEST SUIT 1200 Montreal QC CA H3G1T7 108222050 SEE STATEMENT CA 501(C)(3) Charity Status 7 N/A false false false false false false false false false false false true true true false true true WORLD FEDERATION OF HEMOPHILIA M 194712 1Per Services agreement with the WFH the WFH performs various services for the WFH USA. As full consideration for the WFHs performance of the services WFH USA reimburses the WFH for the costs without any markup incurred and paid by the WFH in providing the services to WFH USA. In 2023 the total reimbursements relating to employee salaries amounted to $194,712 WORLD FEDERATION OF HEMOPHILIA O 72274 2In 2023 the National Director of WFH USA also held the position of Head of Corporate & Community Partnerships at WFH and the Executive Director Secretary of WFH USA also served as the CEO of WFH. They both are paid by WFH. Employee time dedicated to WFH USA is determined based on timesheets and the dollar equivalent is being compensated by WFHUSA to the WFH. The compensated amount was $72,274 in 2023included in line 1M WORLD FEDERATION OF HEMOPHILIA P 91956 3The WFH incurred certain expenses on behalf of WFH USA throughout the 2023 year. These expenses totaling to $91,956 were recorded in the accounting books and reimbursed to WFH. WORLD FEDERATION OF HEMOPHILIA R 5129805 4WFH USA has signed a Collaboration agreement with the WFH which defines joint and coordinated activities the Joint Programs to support their common charitable goal. The Joint Programs currently include the WFH Humanitarian Aid program the WFH Research Program WFH Training and Education Program and the Other Programs including the Solidarity Program and Awareness Building. As per the Collaboration Agreement donors may designate contributions to WFH USA solely to be used to financially support to the WFH Joint Programs. These donations less reasonable costs of administration and management incurred by WFH USA are periodically allocated to the WFH as needed to carry out the WFHs responsibilities with respect to the Joint Programs. In 2023 the total amount of contributions received by WFH USA was $5,264,044 of which $5,129,805 was allocated to the WFH. WORLD FEDERATION OF HEMOPHILIA S 35629 5The WFH received monetary donations on behalf of WFH USA throughout the year. These donations totaling to $35,629 were transferred from WFH to WFH USA.