2024-10-30T10:57:01-07:00 2023-12-31 362716239 Givens & Barnes 200 E Evergreen Ave Ste 117 Mount Prospect IL 60056 990 2023-01-01 742926378 THE MULTIPLE SYSTEM ATROPHY COALITION INC MULT 8667374999 1660 International Dr 600 MCLEAN VA 22102 JOSEPH LINDAHL Executive Director 2024-10-30 true true William J Barnes P00399658 2247642442 2023 2024-10-15 13:58:12Z 1660 International Dr 600 MCLEAN VA 221024877 1998409 false X WWW.MSACOALITION.ORG X 1999 TX THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. 12 12 0 668 0 1394761 1186812 0 72218 75026 0 1466979 1261838 795677 486273 0 0 0 368753 1117553 1432109 1913230 1918382 -446251 -656544 6293509 5922702 388754 42407 5904755 5880295 X THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. false false 373221 CREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES. 311952 294523 RESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA. 218957 PATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL. 198817 1102947 true true false false false false false false false false false false false false false true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 6 0 true 0 false false false false false false false 0 false false false false false false false X 12 12 false true false false false false false true true false false true true true true true true false false false AL AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WI WV X X JOSEPH LINDAHL 8667374999 1660 International Dr Ste 600 MCLEAN VA 221024877 X Pam Bower CHAIR 20.00 0.00 X X 0 0 0 CYNTHIA ROEMER IMED PAST CHAIR 10.00 0.00 X X 0 0 0 Dawn Rodgers-Dexter Treasurer 15.00 0.00 X X 0 0 0 Patricia Libby Thvedt Secretary 20.00 0.00 X X 0 0 0 Liz Dyas Director 2.00 0.00 X 0 0 0 Larry Kellerman Director 2.00 0.00 X 0 0 0 Adrienne Glusman Marioles Director 2.00 0.00 X 0 0 0 Vikram Khurana Director 2.00 0.00 X 0 0 0 Alan Smally Director 2.00 0.00 X 0 0 0 Andre Cote Barch Director 2.00 0.00 X 0 0 0 Gary Troutman Director 2.00 0.00 X 0 0 0 William Billy Finnerty Director 2.00 0.00 X 0 0 0 JOSEPH LINDAHL Executive Dir. 40.00 0.00 X 0 0 0 0 false false false MCI USA 1660 International Dr Ste 600 MCLEAN VA 221024877 Management 1012000 1 1186812 1186812 0 136309 136309 0 0 0 675288 736571 -61283 -61283 -61283 0 0 0 0 1261838 -61283 136309 386273 386273 0 100000 100000 0 0 0 0 0 0 0 1012000 379500 316250 316250 0 0 0 0 28393 28393 138435 87856 37293 13286 0 19188 13972 5216 36494 29860 4684 1950 0 0 61294 30698 27102 3494 0 0 0 0 0 2461 2461 Awareness Outreach 79789 64770 1848 13171 Fundraising Expenses 22055 1453 20602 Other 12715 3875 8840 Honorarium/stipend 11487 11487 7798 6143 1655 1918382 1102947 446682 368753 525532 89178 1166961 618070 0 96737 33566 0 0 0 0 0 0 4504279 5181888 0 0 0 0 6293509 5922702 12158 14488 376596 27919 388754 42407 X 2795758 2866226 3108997 3014069 5904755 5880295 6293509 5922702 -656544 632084 X X false true X true false X 4138319 1326828 1947017 1394761 1186812 9993737 0 0 4138319 1326828 1947017 1394761 1186812 9993737 3351269 6642468 43568 38259 66121 95758 75026 318732 0 70000 70000 10382469 0.63980 0.62960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1965346 632084 99817 731901 1233445 28393 28393 1261838 1989806 99817 99817 1889989 28393 28393 1918382 Part X : FIN48 Footnote THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL ANDSTATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIESRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BESUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF DECEMBER 31, 2023 MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME.THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BYEVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF DECEMBER 31, 2023. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS. true Asia Research 10000 Wire Europe MSA RESEARCH 90000 WIRE TRANSF 2 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THERESEARCH GRANTS. true Brigham and Womens Hospital 75 Francis St Boston MA 02115 042312909 501 C 3 10000 0 MSA Research Massachusetts General Hospita 55 Fruit St Boston MS 02114 042697983 501 c 3 10000 0 MSA Research Mayo Clinic Jacksonville 4500 San Pablo Rd Jacksonville FL 32224 593337028 501 c 3 10000 0 MSA Research Medical University of South C 1 South Park Circle Ste 402 Charleston SC 29407 576000722 501 c 3 10000 0 MSA Research New York University 550 First Ave New York NY 10016 135562308 501 c 3 10000 0 MSA Research Pres & Fellows of Harvard Col 10 Shattuck Street Boston MA 02115 042103580 501 c 3 90408 0 MSA Research Rush University Medical Cente 1620 W Harrison St Chicago IL 60612 362174823 501 c 3 10000 0 MSA Research Stanford University - Miglis 485 Broadway Redwood City CA 94063 941156365 501 c 3 10000 0 MSA Research The Queens Medical Center 1301 Punchbowl St Honolulu HI 96813 990073524 501 c 3 10000 0 MSA Research University of Arkansas for Me 4301 W Markham St Slot 812 Little Rock AR 72205 716046242 501 c 3 10000 0 MSA Research University of California SD 9500 Gilman Dr La Jolla CA 92093 956006144 501 c 3 10000 0 MSA Research University of Florida 1149 Newell Dr Gainsville FL 32610 596002052 501 c 3 120000 0 MSA Research University of Michigan 5082 Wolverine Tower Ann Arbor MI 48109 386006309 501 c 3 10000 0 MSA Research University of North Carolina 104 Airport Dr Ste 2200 Chapel Hill NC 27599 566001393 501 c 3 10000 0 MSA Research University of Pennsylvania 3451 Walnut St Philadelphia PA 19104 231352685 501 c 3 10000 0 MSA Research University of Pittsburgh Medi 3471 5th Ave ste 811 Pittsburgh PA 15213 232919472 501 c 3 10000 0 MSA Research University of Texas Southwest 5323 Harry Hines Blvd Dallas TX 75390 756002868 501 c 3 10000 0 MSA Research Vanderbilt University Medical 1161 21st St South Nashville TN 37232 352528741 501 c 3 10000 0 MSA Research Virginia Commonwealth Univers PO 843035 Richmond VA 23084 546001758 501 c 3 10000 0 MSA Research 19 0 Grantmaker's Description of How Grants are Used THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THE RESEARCH GRANTS. Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: Centers of excellence Form 990, Part VI, Section A, Line 3 THE ORGANIZATION IS A PARTY TO AN AGREEMENT FOR OPERATIONS MANAGEMENT,FINANCE AND ACCOUNTING, FUNDRAISING, EVENTS MANAGEMENT, PUBLICATIONS,MEMBERSHIP SUPPORT AND COMMUNICATION SERVICES PROVIDED TO THE ORGANIZATIONBY MCI USA. Form 990, Part VI, Section B, Line 11b THE FORM 990 IS REVIEWED IN DETAIL BY THE TREASURER OF THE ORGANIZATION.THE FORM 990 IS THEN SENT TO ALL MEMBERS OF THE BOARD OF DIRECTORS FORREVIEW AND COMMENT PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c EACH BOARD MEMBER COMPLETES AND SIGNS A CONFLICT OF INTEREST QUESTIONNAIREEVERY YEAR. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTSAVAILABLE TO THE PUBLIC UPON REQUEST Form 990, Part XII, Line 2c THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOROVERSIGHT FOR THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF ANINDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED DURING THE YEAR.