2024-10-11T15:12:33-05:00 2023-12-31 411680240 SDK CPA 100 WASHINGTON AVE S STE 1600 MINNEAPOLIS MN 55401 990 2023-01-01 410874541 EPILEPSY FOUNDATION OF MINNESOTA INC EPIL 6512872300 7760 FRANCE AVE S 210 BLOOMINGTON MN 55435 JENNA CARTER EXEC. DIRECTOR 6512872300 2024-09-24 1 0 WENDY HARDEN CPA P00956490 6123325500 2024-09-24 2023 2024-10-15 13:58:12Z JENNA CARTER 7760 FRANCE AVE S STE 210 BLOOMINGTON MN 55435 10074773 0 X WWW.EFMN.ORG X 1954 MN EPILEPSY FOUNDATION OF MINNESOTA (EFMN) LEADS THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY & TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES AND SAVE LIVES. 25 25 50 200 0 0 9815876 3853328 46973 23385 130930 322677 -2228076 -2112549 7765703 2086841 28660 19960 0 0 1905659 1917981 0 0 454804 1033863 1090718 2968182 3028659 4797521 -941818 9009057 8534829 580521 805134 8428536 7729695 X VISION: A WORLD WHERE PEOPLE WITH SEIZURES REALIZE THEIR FULL POTENTIAL. OUR MISSION: WE LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. 0 0 1273503 19950 21776 CONNECT: EPILEPSY FOUNDATION OF MINNESOTA (EFMN) CONNECTS PEOPLE IMPACTED BY EPILEPSY TO EPILEPSY INFORMATION AND EACH OTHER THROUGH PROGRAMMING DESIGNED TO MEET THEIR UNIQUE NEEDS. PROGRAMS INCLUDE PEER-BASED SUPPORT GROUPS FOR PEOPLE WITH EPILEPSY (CONNECT GROUPS), CAMP PROGRAMS, SOCIAL EVENTS AND SHINING STARS. IN 2023, EFMN HELPED 597 PARENTS, YOUTH, AND ADULTS IMPACTED BY EPILEPSY FIND COMMUNITY IN CONNECT GROUPS. 91 YOUTH PARTICIPATED IN CAMP OZ, 16 YOUTH PARTICIPATED IN DAY CAMP, AND 26 PEOPLE PARTICIPATED IN FAMILY CAMP. 493 PEOPLE ATTENDED EFMN'S SOCIAL EVENTS, WHICH BRING TOGETHER ALL TYPES OF PEOPLE AFFECTED BY EPILEPSY TO CONNECT, SHARE EXPERIENCES, AND HAVE FUN. SHINING STARS IS EFMN'S PROGRAM THAT HELPS CHILDREN CONNECT WITH OTHERS WHO ARE FACING SIMILAR CHALLENGES AND SEEK TO EMPOWER THEM TO EMBRACE THEIR DIFFERENCES AND CONTINUALLY STRIVE TO MEET THEIR FULLEST POTENTIAL. IN 2023, 421 CHILDREN WERE IN OUR SHINING STARS PROGRAM. 447635 50 EDUCATE: EPILEPSY FOUNDATION OF MINNESOTA (EFMN) CREATES EPILEPSY SAFE AND SUPPORTIVE COMMUNITIES BY PROVIDING NO-COST SEIZURE RECOGNITION AND RESPONSE TRAINING TO SCHOOLS, CHILDCARE CENTERS, WORKPLACES, CARE FACILITIES, AND OTHER COMMUNITY ORGANIZATIONS. THESE TRAININGS EDUCATE PEOPLE ABOUT EPILEPSY AND TEACH THEM HOW TO KEEP OTHERS SAFE DURING A SEIZURE. IN 2023, EFMN TRAINED 8,923 INDIVIDUALS IN SEIZURE RECOGNITION AND RESPONSE. 290121 10 2000 EMPOWER: EPILEPSY FOUNDATION OF MINNESOTA (EFMN) PROVIDES DIRECT SUPPORT TO PEOPLE IMPACTED BY EPILEPSY, THROUGH OUR INFORMATION SERVICES PROGRAM. INDIVIDUALS CAN CALL, EMAIL, OR SUBMIT AN ONLINE FORM REQUESTING SUPPORT OR INFORMATION, INCLUDING HELP NAVIGATING EPILEPSY-RELATED BARRIERS TO EDUCATION, EMPLOYMENT, HEALTHCARE, AND DAILY LIFE. OUR TEAM PROVIDES CUSTOMIZED, COMPREHENSIVE SUPPORT AND FOLLOWS ALONG WITH EACH INDIVIDUAL, AS NEEDED, TO ENSURE THEIR NEEDS ARE MET. IN 2023, EFMN SUPPORTED 1,317 PEOPLE WITH EPILEPSY AND CAREGIVERS OF PEOPLE WITH EPILEPSY. 2011259 1 0 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 33 0 50 1 0 0 0 0 0 1 1 0 0 0 0 X 25 25 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MN X X BROOKS ANDERSON 6512872307 7760 FRANCE AVE S STE 210 BLOOMINGTON MN 55435 PAUL REINECK MEMBER AT LARGE 1.00 X 0 0 0 TRISHA ZELLER PRESIDENT 3.00 X X 0 0 0 ANNA MILZ MEMBER AT LARGE 1.00 X 0 0 0 ERICA HOLZER SECRETARY 2.00 X X 0 0 0 BILL ATWELL MEMBER AT LARGE 1.00 X 0 0 0 PAUL DELANEY TREASURER 2.00 X X 0 0 0 ZACK FRISK MEMBER AT LARGE 1.00 X 0 0 0 BARBARA JAUQUET-KALINOSKI MEMBER AT LARGE 1.00 X 0 0 0 ANN JONES MEMBER AT LARGE 1.00 X 0 0 0 STEPHANIE MEGAL MEMBER AT LARGE 1.00 X 0 0 0 KATIE O'SULLIVAN VICE PRESIDENT 3.00 X X 0 0 0 PATRICIA PENOVICH MD MEMBER AT LARGE 2.00 X 0 0 0 CHRIS POSHEK MEMBER AT LARGE 1.00 X 0 0 0 ANGELA GARIN MEMBER AT LARGE 1.00 X 0 0 0 SHARON ROBERG-PEREZ MEMBER AT LARGE 1.00 X 0 0 0 KAREN SILGEN MEMBER AT LARGE 1.00 X 0 0 0 BRETT SPARK MEMBER AT LARGE 1.00 X 0 0 0 JEFF SUNBERG MEMBER AT LARGE (1/1/23-9/6/23) 1.00 X 0 0 0 KRISTEN THOEN MEMBER AT LARGE 1.00 X 0 0 0 COLE DAVIES MEMBER AT LARGE 1.00 X 0 0 0 JENNIFER HOVER MEMBER AT LARGE 1.00 X 0 0 0 ANNE BARNWELL MEMBER AT LARGE 1.00 X 0 0 0 KAREN DALY MEMBER AT LARGE 1.00 X 0 0 0 MICHELE PETERSON MEMBER AT LARGE 1.00 X 0 0 0 MEAGHAN MORIARTY MEMBER AT LARGE 1.00 X 0 0 0 SIMA PATEL MEMBER AT LARGE 1.00 X 0 0 0 GLEN LLOYD EXECUTIVE DIRECTOR 40.00 X 196794 0 10669 ANTHONY SCONZA ASSOC EXEC DIR, OPS 40.00 X 67647 0 2280 JENNA CARTER ASSOC EXEC DIR, MISSION & 40.00 X 150420 0 4756 ANGELA MARINO ASSOC EXEC DIR, CHIEF OF STAFF & STRATEGIC OPS 40.00 X 112640 0 10973 KATIE GAMADES ASSOC EXEC DIR OF ADVANCEMENT 40.00 X 81098 0 6588 BROOKS ANDERSON ASSOC EXEC DIR, OPS 40.00 X 98191 0 10604 706790 0 45870 3 0 1 0 0 366660 15794 3470874 2858155 3853328 PROGRAM REVENUE 713990 23385 23385 23385 212241 212241 3137910 3027474 110436 110436 110436 0 366660 131658 -131658 -131658 2847468 4828800 -1981332 -1981332 MISC INCOME 900099 441 441 441 2086841 23826 0 -1790313 19960 19960 748479 479407 185341 83731 900984 683837 21678 195469 61433 45292 5953 10188 88481 65234 8574 14673 118604 85094 14032 19478 17175 6411 9926 838 9792 7432 236 2124 47102 47102 301745 112641 174388 14716 27457 18783 50 8624 104179 53721 21250 29208 176761 137735 20991 18035 32837 25592 3380 3865 35841 28837 2815 4189 8042 1652 5502 888 10627 6424 338 3865 23142 18267 4875 CATERING & RENTAL 219290 176410 2595 40285 FEES & DUES 63547 35912 23361 4274 STAFF DEVELOPMENT 12443 2186 10089 168 HEALTH AND WELLNESS 708 432 90 186 30 30 3028659 2011259 562596 454804 676604 527775 20000 6157 153526 133516 82933 52948 194080 178038 37825 16042 7290782 6800004 747387 998387 9009057 8534829 327283 266344 32404 253238 506386 580521 805134 X 3278628 2339972 5149908 5389723 8428536 7729695 9009057 8534829 -941818 236442 6535 0 X 0 1 X 1 0 X 4894582 3276051 3861526 9815876 3853328 25701363 4894582 3276051 3861526 9815876 3853328 25701363 25701363 66188 61979 88703 104999 212241 534110 26235473 112300 0.97960 0.98530 X 0 1 0 0 0 0 1 9792 0 0 9792 0 FORM 990, SCHEDULE C, PART II-B, LINE 1B & 1G IN 2023, EFMN'S PAID STAFF AND VOLUNTEERS MET WITH LEGISLATORS TO LOBBY FOR THE PASSAGE OF A BILL COVERING SEIZURE DETECTION DEVICES. THESE DEVICES REDUCE THE RISK OF DEATH FROM SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP). AS PART OF ITS EFFORTS, EFMN ORGANIZED MEETINGS WITH LEGISLATORS AND ADVOCATES DURING A DEDICATED DAY AT THE CAPITOL EVENT, WHERE ADVOCATES SHARED STORIES ABOUT THEIR EPILEPSY JOURNEY AND WHAT PASSING LEGISLATION COULD MEAN FOR THEM AND OTHERS. MINNESOTA IS THE FIRST STATE IN THE NATION TO PASS A LAW COVERING SEIZURE DETECTION DEVICES UNDER MEDICAID. 5474113 380552 263533 5591132 424277 5071522 -9811 11875 5474113 392029 32248 424277 355447 36582 392029 308949 57138 10640 355447 0.06710 0.90700 0.02590 0 0 89407 78040 11367 104673 99998 4675 16042 OPERATING RIGHT OF USE ASSET 504238 ERC RECEIVABLE 494149 998387 LEASE LIABILITY 506386 506386 X 2409540 236442 1700 131659 369801 2039739 47102 47102 2086841 3114916 1700 131659 133359 2981557 47102 47102 3028659 PART X, LINE 2: ASC 740 FOOTNOTE ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE MANAGEMENT TO EVALUATE TAX POSITIONS TAKEN BY THE ORGANIZATION AND RECOGNIZE A TAX LIABILITY IF THE ORGANIZATION HAS TAKEN AN UNCERTAIN TAX POSITION THAT MORE LIKELY THAN NOT WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. MANAGEMENT EVALUATED THE ORGANIZATION'S TAX POSITIONS AND CONCLUDED THAT THE ORGANIZATION HAD TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 2D - OTHER ADJUSTMENTS: EVENT DIRECT EXPENSES 131,659. PART XII, LINE 2D - OTHER ADJUSTMENTS: EVENT DIRECT EXPENSES 131,659. FORM 990, SCHEDULE D, PART XII, LINE 4A INVESTMENT FEES INVESTMENT FEES ARE NETTED AGAINST INVESTMENT REVENUE ON THE AUDITED FINANCIAL STATEMENTS. ON FORM 990, THEY ARE INCLUDED WITH INVESTMENT MANAGEMENT FEES ON THE STATEMENT OF FUNCTIONAL EXPENSES PART IX. GALA 94728 94728 94266 WALK 271932 271932 37392 366660 366660 131658 131658 -131658 1 SCHOLARSHIPS 10 10000 BRIDGE FUND - NEED BASED EMERGENCY ASSISTANCE 15 9960 PART I, LINE 2: THE METHODS UTILIZED BY THE ORGANIZATION TO MONITOR THE USE OF GRANT FUNDS IT PROVIDES TO RECIPIENTS IN THE UNITED STATES ARE SIMILAR TO THOSE ONE MIGHT EXPECT TO FIND IN ORGANIZATIONS OPERATING IN SIMILAR CIRCUMSTANCES. X X 0 0 0 0 0 0 0 1 0 GLEN LLOYD EXECUTIVE DIRECTOR 196794 0 0 0 0 0 4644 0 6025 0 207463 0 0 0 JENNA CARTER ASSOC EXEC DIR, MISSION & 150420 0 0 0 0 0 3981 0 775 0 155176 0 0 0 PART I, LINE 7 CERTAIN EMPLOYEES ARE ELIGIBLE FOR ANNUAL DISCRETIONARY BONUSES. THE AMOUNT AND PAYMENT OF THE AWARD IS MADE AT THE DISCRETION OF THE BOARD OF DIRECTORS. X 2847468 PER POUND PRICE X SUPPLIES 1 7388 ESTIMATED FMV X VAN RENTAL 1 3299 ESTIMATED FMV 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B FOLLOWING COMPLETION OF THE ANNUAL AUDIT, A DRAFT OF THE FORM 990 IS PREPARED BY THE AUDITORS AND REVIEWED BY MANAGEMENT. THE DRAFT IS THEN PRESENTED TO THE BOARD OF DIRECTORS. THE BOARD DISCUSSES THE 990 AND PASSES A RESOLUTION TO APPROVE THE 990 AS A PART OF THE REPORT TO THE STATE OF MINNESOTA. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS MUST SIGN A CONFLICT OF INTEREST STATEMENT STATING THAT THEY ARE AWARE OF THE CONFLICT OF INTEREST POLICIES AND PROCEDURES. ANNUALLY THE BOARD MEMBER MUST IDENTIFY ANY POTENTIAL CONFLICTS OF INTEREST. THE INFORMATION IS GATHERED AND REVIEWED BY THE BOARD PRESIDENT AND HELD FOR REFERENCE THROUGHOUT THE YEAR. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE REVIEWS THE EXECUTIVE DIRECTOR MEASURING THEM AGAINST OBJECTIVES THAT ARE SET ANNUALLY. THIS INFORMATION IS REPORTED TO THE BOARD OF DIRECTORS. THE EXECUTIVE DIRECTOR REVIEWS KEY EMPLOYEES ANNUALLY. FORM 990, PART VI, SECTION C, LINE 18 THE FOUNDATION'S 990 IS AVAILABLE TO THE PUBLIC UPON REQUEST AT THE OFFICE OF THE FOUNDATION. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION'S POLICIES REGARDING ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST AT THE OFFICE OF THE FOUNDATION.