2024-08-22T10:22:57-05:00 2023-12-31 273858252 DEAN DORTON ALLEN FORD PLLC 810 WRIGHTS SUMMIT PARKWAY SUITE 300 FORT WRIGHT KY 41011 990 2023-01-01 260269131 THE CURE STARTS NOW INC CURE 5137724888 10280 CHESTER ROAD CINCINNATI OH 45215 BROOKE DESSERICH EXECUTIVE DIRECTOR 5137724888 2024-08-08 1 0 BRYAN PAUTSCH P00034913 8593313300 2024-08-08 2023 2024-08-08 14:25:15Z BROOKE DESSERICH 10280 CHESTER ROAD CINCINNATI OH 45215 5645829 0 X WWW.THECURESTARTSNOW.ORG X 2007 OH TO EDUCATE, AID, AND FUND CURES FOR CANCER, STARTING FIRST WITH PEDIATRIC BRAIN CANCER 7 4 20 1200 0 0 4315043 3674963 0 0 0 0 916587 1405730 5231630 5080693 4144313 2271664 0 0 1082006 1262140 0 0 536751 831655 1226503 6057974 4760307 -826344 320386 2625696 4130907 612509 1703931 2013187 2426976 TO EDUCATE, AID, AND FUND CURES FOR CANCER, STARTING FIRST WITH PEDIATRIC BRAIN CANCER 0 0 2284695 2271664 IN ITS EFFORTS TO FOCUS ON THOSE CANCERS THAT PRESENT THE GREATEST OPPORTUNITIES FOR AN ENCOMPASSING CANCER CURE, THE FOUNDATION ANNUALLY AWARDS RESEARCH GRANTS TO INSTITUTIONS AND MEDICAL PROFESSIONALS. TYPICALLY, GRANTS AWARDED HAVE A FOCUS ON PEDIATRIC BRAIN CANCERS, AS THIS WAS THE ORIGIN OF THE FOUNDATION'S PHILOSOPHY. GRANT APPLICATIONS WILL BE JUDGED ON A PEER-REVIEWED BASIS WITH THE FOUNDATION'S MEDICAL ADVISORY COUNCIL, WHICH IS COMPRISED OF TOP ONCOLOGISTS AND RESEARCHERS FROM AROUND THE WORLD, AS WELL AS PARENT ADVOCATES. GRANTS ARE JUDGED BASED ON MULTIPLE CRITERIA INCLUDING SCIENTIFIC MERIT, DISEASE IMPACT, INNOVATION, FEASIBILITY, AND EXPERTISE OF THE INVESTIGATOR. 428714 THE DIPG/DMG SYMPOSIUM, ORIGINALLY HELD IN CINCINNATI IN 2011, IS A BIENNIAL CONFERENCE THAT FEATURES CANCER EXPERTS FROM AROUND THE WORLDIN COLLABORATION WITH FAMILIES AND FOUNDATIONS SUPPORTING THEIR WORK.ATTENDED BY FOUNDATIONS AND INSTITUTIONS WORLDWIDE. THE DIPG/DMGCOLLABORATIVE SYMPOSIUM QUICKLY BECAME A DYNAMIC COOPERATIVE, EXPLORINGREVOLUTIONARY DIPG AND DMG RESEARCH, CLINICAL PROTOCOLS, AND UNIVERSALAPPLICATIONS OF DIPG RESEARCH IN THE SEARCH FOR A CURE FOR ALL FORMS OFCANCER. 1415604 FAMILY SUPPORT AND AWARENESS FUNDS PROVIDE EMOTIONAL SUPPORT, MECHANISMS TO HONOR THEIR CHILD'S LEGACY AND OTHER ASSISTANCE FOR FAMILIES BATTLING PEDIATRIC CANCER. THIS INCLUDES INFORMATION WEBSITES, TRIAL DISCOVERY TOOLS, PATIENT ASSISTANCE AND PROGRAMS TO FEATURE PATIENTS WITH THE INTENTION OF BUILDING LOCAL SUPPORT AND AWARENESS. 4129013 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 2 0 20 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 7 4 1 0 0 0 0 0 1 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AR CA CO CT FL GA IA IL IN KS KY LA MA MD MI MN MS NC NE NH NJ NY OH OR PA RI SC TN TX UT VA WA WI HI MO NV X X X BROOKE DESSERICH 5137724888 10280 CHESTER RD CINCINNATI OH 45215 KEITH DESSERICH CHAIRMAN 60.00 X X 33166 0 2985 DOUG DESSERICH DIRECTOR/TREASURER 1.00 X X 0 0 0 GAVIN BAUMGARDNER DIRECTOR 5.00 X X 0 0 0 TAMARA EKIS DIRECTOR 1.00 X X 0 0 0 DAN LEE DIRECTOR 1.00 X X 0 0 0 ALYSSA HAWRANKO DIRECTOR 1.00 X X 0 0 0 TERRY REGAN DIRECTOR 1.00 X X 0 0 0 BROOKE DESSERICH EXECUTIVE DIRECTOR/CEO 60.00 X 109575 0 13962 MIKE WEINER CIO 60.00 X 115561 0 10400 258302 0 27347 2 0 0 0 0 150561 3524402 3674963 1967991 150561 565136 1402855 1402855 MISCELLANEOUS REVENUE 900099 2875 2875 2875 5080693 2875 0 1402855 1194236 1194236 1077428 1077428 258302 177667 8945 71690 682101 469169 23620 189312 321737 227245 4586 89906 6413 4434 225 1754 47456 32808 1668 12980 11464 7925 403 3136 160098 160098 124006 86326 4146 33534 18137 12538 638 4961 189077 130715 6647 51715 45377 42294 3083 101006 101006 38547 38547 11443 7911 402 3130 PROGRAM SUPPLIES 300246 300246 WEBSITE 134151 92743 4716 36692 MISCELLANEOUS 34897 39 34858 ADVOCACY 2749 2749 1436 1436 4760307 4129013 94543 536751 1916662 3467967 6553 1374 34625 236410 271875 226752 51930 45123 2019 2047 29940 29940 583967 348046 2625696 4130907 93982 100794 1227428 27663 518527 348046 612509 1703931 X 1601082 1923616 412105 503360 2013187 2426976 2625696 4130907 320386 93403 0 X X 0 1 X 1 0 X 0 2129478 3378419 4315043 3674963 13497903 2129478 3378419 4315043 3674963 13497903 369598 13128305 257 257 1392080 1221308 873279 916587 1405730 5808984 19307144 45000 0.68000 0.71470 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: NET FUNDRAISING INCOME - 2019 AMOUNT: $ 1,392,080. 2020 AMOUNT: $ 1,221,308. 2021 AMOUNT: $ 872,574. 2022 AMOUNT: $ 912,422. 2023 AMOUNT: $ 1,402,855. OTHER INCOME - 2021 AMOUNT: $ 705. 2022 AMOUNT: $ 4,165. 2023 AMOUNT: $ 2,875. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 0 0 0 0 0 1 2749 0 1 1653 4402 0 PART II-B, LINE 1: COST FOR TRAVEL TESTIFYING IN FRONT OF CONGRESSIONAL COMMITTEE, AND LOBBY ACTIONS CONNECTED TO THE PROMISING PATHWAYS ACT GENERALLY REFERRED TO AS SENATE BILL S.1906 AND HOUSE BILL H.R.4408. 1 2162731 145375 111616 33759 32896 29843 3053 93604 85293 8311 45123 RIGHT OF USE ASSETS - BUILDING LEASE 348046 348046 LONG TERM LEASE LIABILITY 348046 348046 X 5739232 93403 565136 658539 5080693 0 5080693 5325443 565136 565136 4760307 0 4760307 PART X, LINE 2: THE CURE STARTS NOW, INC. IS A OHIO NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND ARE EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON RELATED INCOME PURSUANT TO THE INTERNAL REVENUE CODE. THE ORGANIZATION HAS ADOPTED THE PROVISIONS OF THE ACCOUNTING PRONOUNCEMENT RELATED TO ACCOUNTING FOR UNCERTAINITY IN INCOME TAXES. THE ORGANIZATION RECOGNIZED NO INTEREST OR PENALTIES IN THE STATEMENTS OF ACTIVITIES FOR THE YEARS ENDED DECEMBER 31, 2023 AND 2022. IF THE SITUATION AROSE IN WHICH THE ORGANIZATION WOULD HAVE INTEREST TO RECOGNIZE, IT WOULD BE RECOGNIZED IN OTHER EXPENSES. CURRENTLY, THE PRIOR THREE YEARS ARE OPEN UNDER FEDERAL AND STATE STATUTUES OF LIMITATIONS AND REMAIN SUBJECT TO REVIEW AND CHANGE. THE ORGANIZATION IS NOT CURRENTLY UNDER AUDIT NOR HAS THE ORGANIZATION BEEN CONTACTED BY THESE JURISDICTIONS. BASED ON THE EVALUATION OF THE ORGANIZATION'S TAX POSITIONS, MANAGEMENT BELIEVES ALL POSITIONS TAKEN WOULD BE UPHELD UNDER AN EXAMINATION. THEREFORE, NO PROVISION FOR THE EFFECTS OF UNCERTAIN TAX POSITIONS HAS BEEN RECORDED FOR THE YEARS ENDED DECEMBER 31, 2023 AND 2022. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 565,136. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 565,136. 0 EUROPE 0 0 PROGRAM SERVICES MEDICAL RESEARCH.LIST 59 _ 3JAB@VLCPA.COM - 06/01/23 13:01 WORKSHEET SCHEDULE F - STATEMENT OF ACTIVITIES OUTSIDE THE U.S. _ 532932 _ -55568 910431 AUSTRALIA 0 0 PROGRAM SERVICES MEDICAL RESEARCH.LIST 64 _ 3JAB@VLCPA.COM - 06/01/23 13:02 WORKSHEET SCHEDULE F - STATEMENT OF ACTIVITIES OUTSIDE THE U.S. _ 100000 _ -71753 166997 0 0 0 0 0 0 1077428 0 1077428 GERMANY/EUROPE MEDICAL RESEARCH 50000 WIRE TRANSFER 0 NETHERLANDS/EUROPE MEDICAL RESEARCH 762125 WIRE TRANSFER 0 NETHERLANDS/EUROPE MEDICAL RESEARCH 98300 WIRE TRANSFER 0 AUSTRALIA MEDICAL RESEARCH 116997 WIRE TRANSFER 0 AUSTRALIA MEDICAL RESEARCH 50000 WIRE TRANSFER 0 4 0 0 0 0 0 0 PART I, LINE 2: A PROGRESS REPORT MUST BE SUBMITTED BY THE INVESTIGATOR(S) ON ANNUAL INTERVALS AND AT THE END OF THE OF THE FUNDING PERIOD. FAILURE TO SUBMIT A PROGRESS REPORT WILL EXCLUDE THE INVESTIGATOR FROM ANY FUTURE FUNDING FROM THE FOUNDATION. BI-YEARLY RESEARCHERS MUST PRESENT IN-PERSON AT THE DIPG SYMPOSIUM. ONCE IN A LIFETIME GALA 733363 85020 648343 24275 109429 33056 TEAM BROCK GOLF 120955 4145 116810 10084 5331 1909 6251 157 1264234 61396 1202838 60475 48462 17569 248295 2118552 150561 1967991 94834 163222 19478 287602 565136 1402855 1 CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE ML 4900 CINCINNATI OH 45229 310833936 501(C)(3) 50000 0 DR BIPLAB DASGUPTA - EXPLORING NOVEL TARGETS IN DIPG PEDIATRIC BRAIN TUMOR CONSORTIUM FOUNDATION 10280 CHESTER RD CINCINNATI OH 45215 208573849 501(C)(3) 25000 0 MEDICAL RESEARCH UNIVERSITY OF COLORADO DENVER-VENKATARAMA 1201 LARIMER ST DENVER CO 80204 846000555 501(C)(3) 200000 0 DR SUJATHA VENKATARAMAN-PRECLINICAL ASSESSMENT EFFICACY & SPECIFICITY MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVE NEW YORK NY 100656007 131924236 501(C)(3) 100000 0 CSF CELL-FREE TUMOR DNA LIQUID BIOPSIES UNIVERSITY OF CHICAGO MEDICAL CENTER 5841 S MARYLAND AVE CHICAGO IL 60637 362177139 501(C)(3) 100000 0 DR ERIC THOMPSON CHARACTERINZING & TARGETING ABL1 & ABL2 IN MEDULO LEPTOMENINGEAL DESSEMINATION ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1468 MADISON AVE NEW YORK NY 10029 136171197 501(C)(3) 100000 0 DR DOLORES HAMBARDZUMYAN TARGETING MACROPHAGES TO IMPROVE THE SURVIVAL OF DIPG CHILDREN'S HOSPITAL COLORADO 1800 GRANT STREET SUITE 600 DENVER CO 80203 846000555 501(C)(3) 100000 0 DR. NATHAN DAHL-DUAL TARGETING PROCESSIVE TRANSCRIPTION FOR MYC-DRIVEN CIRCUITRY IN MEDULLO NEMOURS CHILDREN'S HEALTH 13535 NEMOURS PARKWAY ORLANDO FL 32827 590634433 501(C)(3) 50000 0 DR. WESTMORELAND: TREATMENT OF DIPG WITH ONCOLYTIC ZIKA VIRUS ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1468 MADISON AVE NEW YORK NY 10029 136171197 501(C)(3) 100000 0 ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE ML 4900 CINCINNATI OH 45229 310833936 501(C)(3) 200000 0 DR LU - "TARGETING DIPG WITH INNOVATIVE T-CELL IMMUNOTHERAPY" PART I, LINE 2: GRANT FUNDS ARE MONITORED BY A MEDICAL ADVISORY COUNCIL. GRANT APPLICATIONS ARE REVIEWED BY THE MEDICAL ADVISORY COMMITTEE AND THEY PROVIDE THEIR SUGGESTIONS FOR FUNDING. THOSE SUGGESTIONS ARR ACCEPTED BY THE STRATEGIC COUNCIL COMPRISED OF CHAPTER REPRESENTATIVES. APPLICATIONS ARE THEN APPROVED BY THE BOARD OF DIRECTORS. KEITH DESSERICH KEITH IS SOLE MEMBER OF TIOC, LLC 176316 RENTAL AGREEMENT - THIS TRANSACTION HAS BEEN APPROVED BY THE BOARD AND IS COMPARATIVE TO AVERAGE RENTAL COST OF THE AREA. AMOUNT INCLUDES UTILITIES, BUILDING MAINTENANCE, SERVICES, TAXES AND INSURANCE. 0 FORM 990, PART VI, SECTION A, LINE 2 GAVIN BAUMGARDNER, DOUGLAS DESSERICH, KEITH DESSERICH, AND BROOKE DESSERICH HAVE A FAMILY RELATIONSHIP FORM 990, PART VI, SECTION A, LINE 7B DECISIONS OF THE GOVERNING BODY ARE APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B THE EXECUTIVE DIRECTOR PREPARES THE FINANCIAL STATMENTS. THE CHAIRMAN OF THE BOARD AND THE TREASURER REVIEW THE FINANCIAL STATEMENTS PRIOR TO SENDING THEM TO THE ACCOUNTING FIRM. THE ACCOUNTING FIRM PREPARES THE FORM 990 AND IT IS PRESENTED TO THE BOARD OF DIRECTORS AT THE FOLLOWING MEETING AND PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR THE CONFLICT OF INTEREST POLICY IS RE-SENT AND THE MEMBERS OF THE BOARD OF DIRECTORS RE-SIGN THE POLICY. ANY BOARD MEMBERS WITH A CONFLICT CANNOT DISCUSS OR VOTE ON THE MATTER. FORM 990, PART VI, SECTION B, LINE 15 AT THE TIME OF COMPENSATION REVIEW, THE BOARD OF DIRECTORS REVIEW A COMPENSATION REPORT AND ENSURE THE COMPENSATION IS WITHIN LIMITS OF SIMILAR EXECUTIVE DIRECTORS IN THE GEOGRAPHY AND SIZE OF THE ORGANIZATION. THE EXECUTIVE DIRECTOR REVIEWS THE COMPENSATION REPORT AND ENSURES THE COMPENSATION IS WITHIN LIMITS OF SIMILAR KEY EMPLOYEES IN THE GEOGRAPHY AND SIZE OF THE ORGANIZATION. FORM 990, PART VI, SECTION C, LINE 19 AN ANNUAL REPORT, FINANCIAL STATEMENTS, AND OTHER STATISTICAL INFORMATION ARE ALL ON WEBSITE. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM PRIOR YEARS.